Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

MunchOff said:
A while ago, when someone questioned why she is ambulatory user of a wheel chair she claimed her (Undiagnosed) ehlers danlos mainly affects her neck and shoulders. She has videos where she’s showing supposed subluxations (I couldn't see anything) in her shoulders.

Should she be doing that then?
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You would expect to see hyperextended elbows and knees if she had hEDS. Or even feet turned at odd angles.
 
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Maxie said:
You would expect to see hyperextended elbows and knees if she had hEDS. Or even feet turned at odd angles.
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You can see from some of her "dance" videos that she's not actually that flexible. She can't kick very high without leaning forward and curling her back. It's like what you would see in a beginners ballet class. She is only flexible when compared to a completely sedentary person with very little flexibility anyone who'd done a fes yoga classes or legit has eds would be noticeably more flexible
 
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large_farva said:
What I mean by wheelchair abuse is someone like SJ using it without any need whatsoever, just to get attention or use it as an accessory for her vlog. Has nothing to do with her buying it for herself.

Her reasoning was that she wanted to "take her wheelchair for a spin" (direct quote from her IG story about it).
It's not a fucking powerwheel.
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The bio on her doesn’t say, but who actually paid for this wheelchair and smart drive? She did?

You can walk up stairs. You are bending over watering and showing off plants with no problems. You’re walking around with a towel on your head. That’s some magical saline there. If you can walk around enough to water plants, you can walk around to get exercise and help your pots. S.J., next time you whore your inexperience with non-necessary wheelchair to get clicks, I want to actually see you bust ass.

Yutyrannus said:
Whats the rate of hEDS in males versus females? Legit or not, I only hear about females or FTMs having it.
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HEDS is just as prevalent in males as it is in females. It is not x linked, and sex has no bearing on transmission. It is inherited through a dominant gene pattern, which gives a 50% transmission chance regardless of sex. It tends to affect females with more issues simply because males tend to have more muscle mass which overcomes the joint instability better. Also, males are usually believed about their pain more and tend to get better investigation of pain. Interestingly, males with HEDS tend to be more affected by pain before puberty, and then females after puberty. The hormones that women experience during their menses and pregnancy and childbirth in particular have a lot of effects on the laxity of tissue.

The reason why you hear about it more in females is because munchies have coopted it and munchies are overwhelmingly female.

This is only for the unknown phenotype, of Hypermobile EDS. Other types of EDS may not have dominant gene transmission patterns. But as of now, Hypermobile EDS is the only one without the known gene. Within five years there will be a known gene though, as we are screening and researching the gene heavily due to a recent grant.
 
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Munchie_Minder said:
HEDS is just as prevalent in males as it is in females. It is not x linked, and sex has no bearing on transmission. It is inherited through a dominant gene pattern, which gives a 50% transmission chance regardless of sex. It tends to affect females with more issues simply because males tend to have more muscle mass which overcomes the joint instability better. Also, males are usually believed about their pain more and tend to get better investigation of pain. Interestingly, males with HEDS tend to be more affected by pain before puberty, and then females after puberty. The hormones that women experience during their menses and pregnancy and childbirth in particular have a lot of effects on the laxity of tissue.

The reason why you hear about it more in females is because munchies have coopted it and munchies are overwhelmingly female.

This is only for the unknown phenotype, of Hypermobile EDS. Other types of EDS may not have dominant gene transmission patterns. But as of now, Hypermobile EDS is the only one without the known gene. Within five years there will be a known gene though, as we are screening and researching the gene heavily due to a recent grant.
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What is with so many young women being diagnosed with hEDS and almost immediately getting a wheelchair? I know a lot of people who are not diagnosed until their 40s who are more active than these young girls. I always question if the young girls truly have it or if they just claim to have because they are somewhat hypermobile.
 
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Maxie said:
What is with so many young women being diagnosed with hEDS and almost immediately getting a wheelchair? I know a lot of people who are not diagnosed until their 40s who are more active than these young girls. I always question if the young girls truly have it or if they just claim to have because they are somewhat hypermobile.
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They WANT to. Pure and simple. Most people with EDS need wheelchairs intermittently when acute injuries happen or after surgery for types of stabilization or if they are very aged and just can’t be stable due to joint proprioception. However, wheelchairs are absolutely last recourse as they create muscle atrophy in every joint.

In some ways, I blame Jaq Jaq et al and social media for this trend. They see people prominently in the “communitay” who have all these “tools” and think that is what they should have instead of just doing proper PT. Long term, they are going to be truly fucking up there joints if they truly have EDS. One of the hallmarks of EdS is poor vitamin D absorption and osteopenia even in children isn’t uncommon. Weight bearing exercise is absolutely crucial for bone density.
 
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Munchie_Minder said:
They WANT to. Pure and simple. Most people with EDS need wheelchairs intermittently when acute injuries happen or after surgery for types of stabilization or if they are very aged and just can’t be stable due to joint proprioception. However, wheelchairs are absolutely last recourse as they create muscle atrophy in every joint.

In some ways, I blame Jaq Jaq et al and social media for this trend. They see people prominently in the “communitay” who have all these “tools” and think that is what they should have instead of just doing proper PT. Long term, they are going to be truly fucking up there joints if they truly have EDS. One of the hallmarks of EdS is poor vitamin D absorption and osteopenia even in children isn’t uncommon. Weight bearing exercise is absolutely crucial for bone density.
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I suppose the only thing is that most of these girls are probably walking about as normal until they need to be on camera.

I can’t tell if it’s a good thing that for example chroniczebra/court/autie are shown excercising.
Whilst showing they are faking at least they might show other ‘zebras’ that excercising is a must. Autie especially takes it to just weird levels though lol.

A lot of them do seem to lay about doing nothing and wouldn’t be surprise if a lot of their ‘joint pain’ is from lack of movement.
 
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Too lazy to quote all the comments abt Deaf community. Yes it’s super toxic depending on where you live + who you interact with, yes there’s a major superiority complex going on w a lot of us, but also... not all of us are like that. A fair amount are tho lmfao. I didn’t know we had a thread! I have nothing useful to add as I’m just ur average deaf girl, nothing special abt me and I don’t have connections, tho. Sorry for the lack of useful info lol.

There’s also a whole superiority thing within the community where everyone who’s deaf is automatically better than anyone who’s hard of hearing or became deaf later on. The whole “native asl users are the only true deaf” thing is another one. Not all of us were lucky enough to get access to our community, or we hate it and left lol so our signing isn’t great. Your signing abilities don’t have anything to do with your level of hearing loss. + that’s a thing too. anyone who’s profoundly deaf is somehow better than those with less severe hearing loss (oh no I said the word someone call the deaf police!) but that’s a load of bullpucky. Sperg over.
 
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MunchOff said:
View attachment 856606

Autie doing her daily demonstrations of how much she doesn’t need her wheelchair... this time in Paris! Pretty sure that’s another pair of heels.

A while ago, when someone questioned why she is ambulatory user of a wheel chair she claimed her (Undiagnosed) ehlers danlos mainly affects her neck and shoulders. She has videos where she’s showing supposed subluxations (I couldn't see anything) in her shoulders.

Should she be doing that then?
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If she's claiming it mostly affects neck and shoulders then her use of a single crutch is puzzling to me (but of course it's just a prop).

Also zero mention of the "burst ovarian cyst" causing any trouble while she's in Paris, despite all the drama about it leading up to the morning of her trip.

Whilst showing they are faking at least they might show other ‘zebras’ that excercising is a must. Autie especially takes it to just weird levels though lol.
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I wouldn't be surprised if she's overexercising. She was anorexic, but seems to have rewritten her story to explain that it was actually the EDS that made her lose so much weight (how???). Since she's also explained away any actual mental illness with "i's autism!" I wouldn't expect her to be in therapy either.
 
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How does one live an entirely chemical free life? Is she made of pure energy?

Everything is chemicals. If you can touch it, it’s chemicals. Water is a chemical. Your body is chemicals. Everything you eat and drink is made up of chemicals.

These people ...
 
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>superiority complex within the hearing impaired communitay

Imagine thinking you're better than somebody because you've never heard a sound. Wtf.

Yeah I guess being born deaf or losing hearing at like toddler age is the *worst* because you've never heard a sound, whereas someone who loses all hearing at 25 still has memories of sounds, but like...people really find any excuse to feel better than.
 
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So, how long do we think until one of these munchies contracts Candida auris?

"Patients who have been hospitalized in a healthcare facility a long time, have a central venous catheter, or other lines or tubes entering their body, or have previously received antibiotics or antifungal medications, appear to be at highest risk of infection with this yeast. "

It's pretty much all over the world now.
 
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Kat's septic. She posted a Facebook screenshot on Instagram:
1564068897197.png
Here we go...
 
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sootsprite said:
Autie on tour. Sorry it's not the video, just a still from it. Note arm stays locked, no hyperextension of elbow. She's using a selfie stick.

View attachment 858609
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She claims hEDS? (Yet another case of munchies claiming hEDS with absolutely 0 hypermobility. Sigh. Read the whole acronym, not just the EDS part please lmfao)

Clockwork_PurBle said:
>superiority complex within the hearing impaired communitay

Imagine thinking you're better than somebody because you've never heard a sound. Wtf.

Yeah I guess being born deaf or losing hearing at like toddler age is the *worst* because you've never heard a sound, whereas someone who loses all hearing at 25 still has memories of sounds, but like...people really find any excuse to feel better than.
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It’s not that bad. It’s just sucky when everyone around you thinks they’re better than you because they’re “more deaf” or whatever. The not hearing part is sorta nice... no noisy cicadas that everyone else in my city can’t stop complaining about!
 
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