Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

[Occam's Epilady]

Since you're new here, I would like to point out that kiwifarms is also not a huge fan of 'blogging', except that it's called 'powerleveling' here. It's okay to talk about thing

Wrong: She's totally lying. When I was in the hospital because my fibromyalgia and chronic lyme flared up at the same time, the doctors definitely did not prescribe me oxycodone (although they did have to explain why several times because I'm autistic, haha). They gave me a Lyrica script instead.

Right: She's totally lying. Doctors wouldn't prescribe opioids for someone with her conditions, only Lyrica or Gabapentin.

That having been said, if you have experience in the medical field that isn't related to you or your relatives being patients, there's more leeway here, but we still don't care about your personal life as a nurse/doctor/whatever, only your professional expertise.

edit: the time when it's okay to make 'I' statements are when you're talking about something that isn't a simple factual claim that can be gotten from either personal knowledge or the internet, for example:
"I live in the same town as CrazyZebraSpoonie, and I see her walking around with no crutches all the time." or,
"I'm of Munchistani descent, and this behavior is unfortunately normal in our culture, even among Munchistani-Americans."

Relative newcomer here and curious -- are these the official "right" and "wrong" approaches? Because it sounds like what's being recommended is that people generalize their individual experiences almost to the point of pretending that they know that their experience was typical. Obviously nobody cares about the emotional journey of your lupus diagnosis or whatever, but what if someone is just stating how they know something? It provides a more accurate picture if someone says, "I was hospitalized for the same thing and did not receive oxy," rather than pretending that they know what is generally done, and I personally would always want to be able to make that distinction as a reader. Am I totally off-base with that?

@PootPoot2, thank you for sharing Jessi. This woman is so over the top. It takes some fucking nerve to manage to get a prescription for low-dose methotrexate, then constantly mention your "cancer drug." It's prescribed for psoriasis for fucks sake.

Edited to add a screenshot of her describing her low-dose methotrexate as "some light chemotherapy," which would be kind of hilarious if it didn't coopt and therefore cheapen what *actual* cancer patients go through. This woman is basically getting poked with a 0.5 mm pencil lead and claiming she's being shot full of lead bullets.

She also writes with impressive lucidity and at *extremely* impressive length for someone who is totally definitely dying right now. Your schtick would be at least a little more credible if you weren't the Henry James of Instagram, dude.

 

[PerfectPeach]

My favorite thing about her is that she’s been called out for being only 28 years old and having the forehead wrinkles of a 40-45 year old. This is utterly not common in EDS, where even fair-skinned EDS patients frequently have zero forehead wrinkles even into their 40’s or 50’s.

I mean, dEDS patients would disagree with that.

EDS types affect the skin differently. Perhaps you're referring to comments made by the heavier "hypermobile" zebras who claim they're constantly told they look 'young for their age' because of their pudgy cheeks but we already know fat padding can help you stave away wrinkles.

 

[Ventress]

@PootPoot2, thank you for sharing Jessi. This woman is so over the top. It takes some fucking nerve to manage to get a prescription for low-dose methotrexate, then constantly mention your "cancer drug." It's prescribed for psoriasis for fucks sake. She also writes with impressive lucidity and at *extremely* impressive length for someone who is totally definitely dying right now. Your schtick would be at least a little more credible if you weren't the Henry James of Instagram, dude.

I was so *triggered* by her wheelchaired exuberance, and any of her videos that display her talking with completely faultless sentences or that include other evidence that she has quite functional cognitive abilities. Many of her ‘conditions’ have brain fog as a symptom but I’ve rarely seen her displaying signs of it. And yeah, is she in a wheelchair for POTS? Fatigue? So fatigued she’s waving her arms about grinning? Mmhmm. ...WHAT IS SHE DYING OF AND HOW DOES SHE KNOW THAT SHE EVEN IS IF THEY DONT KNOW WHAT SHE HAS?

Also I have a screenshot of her saying she’s been bleeding internally for six months, I need to find it because EXCUSE ME? ETA: screenshot

 

[Crunchy Leaf]

Relative newcomer here and curious -- are these the official "right" and "wrong" approaches? Because it sounds like what's being recommended is that people generalize their individual experiences almost to the point of pretending that they know that their experience was typical. Obviously nobody cares about the emotional journey of your lupus diagnosis or whatever, but what if someone is just stating how they know something? It provides a more accurate picture if someone says, "I was hospitalized for the same thing and did not receive oxy," rather than pretending that they know what is generally done, and I personally would always want to be able to make that distinction as a reader. Am I totally off-base with that?

@PootPoot2, thank you for sharing Jessi. This woman is so over the top. It takes some fucking nerve to manage to get a prescription for low-dose methotrexate, then constantly mention your "cancer drug." It's prescribed for psoriasis for fucks sake. She also writes with impressive lucidity and at *extremely* impressive length for someone who is totally definitely dying right now. Your schtick would be at least a little more credible if you weren't the Henry James of Instagram, dude.

No, this is my interpretation, I'm not a mod. But I have been on here for over 2 years and only gotten 31 TMI ratings.

The problem is that threads that hit a little too close to home for certain users always wind up with oversharing because they feel the need to prove that they're a legitimate x. You can see this in the Asexuals on Tumblr thread, the nice guys thread, the fat acceptance thread, the trans community thread, etc. I would rather see a 'I know someone who was hospitalized for..." (Other users can feel free to disagree with me here).

I'll also note that I specifically picked fibromyalgia and chronic lyme because those aren't conditions that are taken seriously around here, as opposed to something like EDS which is real and latched onto by munchies. So someone who talks about how they have those will be seen as a faker.

 

[Toohottotrot]

Interesting that mairead doesn't offer virtiral therapy given she works with the Sponies and is 1 herself

 

[thirsttrap12345]

I would assume that we indeed have some IF rejects incoming. Post has been deleted and I'm sure many bans were issued today.

Oh the ban hammer must have come down in full force today. Be prepared everyone.

She's not discussed here often, but it seems ChronicZebra, aka Mairead is now a licensed counselor in the Denver area.

View attachment 894323 View attachment 894324 View attachment 894325

Can you imagine going for therapy, meeting your new counselor, googling them and finding out who she is? Yikes.

It’s fairly common practice to be registered for any practicum and specific clinical interning - licensure for LMHC take hours upon hours plus passing a licensing exam so I don’t think she’s an actual counselor. (Not to mention she has to graduate.) However I have ZERO knowledge about dance movement therapy so it’s possible she is for that?

View attachment 894034

Jessi is live on IG right now but I’m at work, hope somebody else can take one for the team & watch or capture it. She’s speaking super clearly & manic as usual, looking very healthy for someone who’s HASHTAG DYING also no seizure yet. Fingers crossed!

Not sure how she managed this since she has 100 seizures a day.

They always say people go into counseling because they’re messed in the head. The biggest thing she had going for her is that her name hadn’t been said too many times on IF or here. But her name is also so unique that she will be effed by this.
Good job, Mairead.

My favorite thing about her is that she’s been called out for being only 28 years old and having the forehead wrinkles of a 40-45 year old. This is utterly not common in EDS, where even fair-skinned EDS patients frequently have zero forehead wrinkles even into their 40’s or 50’s. So, she has started photoshopping and cropping her photos to hide the evidence. But, you can’t erase internet history.

Spoiler: Before called out on IF for non-EDS skin

View attachment 894385

Spoiler: After being called out for wrinkles on IF

View attachment 894389

Gotta love face tune apps.

Interesting that mairead doesn't offer virtiral therapy given she works with the Sponies and is 1 herself

So how would movement therapy work virtually? Like via Skype? Serious question. Hope she doesn’t read here bc would give her ideas and we’d witness the first of its kind.

 

[Toohottotrot]

No idea but I would take one for the team and try it out and report back and if I could get a screen cap of the experience I would

 

[Kate Farms Shill]

So how would movement therapy work virtually? Like via Skype? Serious question. Hope she doesn’t read here bc would give her ideas and we’d witness the first of its kind.

To multiquote:
at the bottom of the post you wish to respond to, click the "quote button (or highlight the specific portion and then click the "quote button that appears under the highlight).
Repeat for all posts you wish to respond to.
scroll down to post reply field
Next to "attach files" you will see "insert quotes..."

This will put all the posts into a single reply and you can then respond to them them as you wish, rather than create a wall of back-to-back responses.

 

[Toohottotrot]

To multiquote:
at the bottom of the post you wish to respond to, click the "quote button (or highlight the specific portion and then click the "quote button that appears under the highlight).
Repeat for all posts you wish to respond to.
scroll down to post reply field
Next to "attach files" you will see "insert quotes..."

This will put all the posts into a single reply and you can then respond to them them as you wish, rather than create a wall of back-to-back responses.

Sorry im just a stoopid mong sped

 

[Kate Farms Shill]

Sorry im just a stoopid mong sped

I wasn't responding to you directly, or at all really. It's just something with a bit of learning curve that a lot of people can't figure out at first and since we have a bunch of new IF refugees I figured it would be a good time to give a tutorial.

 

[Toohottotrot]

Yes maybe a video is needed as tech has got smarter speds arent required to understand as they use to before some idiot hands them the full device

 

[thirsttrap12345]

To multiquote:
at the bottom of the post you wish to respond to, click the "quote button (or highlight the specific portion and then click the "quote button that appears under the highlight).
Repeat for all posts you wish to respond to.
scroll down to post reply field
Next to "attach files" you will see "insert quotes..."

This will put all the posts into a single reply and you can then respond to them them as you wish, rather than create a wall of back-to-back responses.

Thank you I couldn’t figure it out and assumed someone would either call me out or lend a hand

 

[Kate Farms Shill]

Yes maybe a video is needed as tech has got smarter speds arent required to understand as they use to before some idiot hands them the full device

You alright there, mate?

Thank you I couldn’t figure it out and assumed someone would either call me out or lend a hand

Yeah there's a few ways to go about it. That's the quickest, IMO, but you can also just hit "reply" on the ones you want to respond to without submitting the post between. It'll bring you down to the new post field every time so you have to scroll up and down the thread but it's convenient when you're already writing something and someone else posts something you also want to respond to, which is exactly what happened right now.


Edit for a Sarah-Jean update. When last we left our intrepid healthy person, she was chimping out because EvilDad wanted her to get a job at 34 years old because she's expensive as fuck to feed and provide for and perfectly capable of going out with friends every day, filling care package orders, shopping, going to events, and taking care of many pets (while she's not great at knowing uh, anything about her animals she did used to run a farm where she had to muck stalls and haul feed).

-Today starts with her at the emergency vet with Gizmo, the dog she doesn't force to work, because he has pneumonia. Lets her dog cough all over her IV line.
-Goes to get a test done on her hand to figure out what the carpal tunnel that isn't carpal tunnel is all about. Turns out it's on September 16, not August.
-Drops off care packages, forces a cough. Goes home to clean.
-Goes to pick up her -mab drug for the migraines she doesn't have (I think it's emgality), insurance won't cover it. Explains something to do with an at-home assessment cancelled her insurance. It's also fucking up her narcolepsy medication (xyrem probably)
-Helps evildad with yard work
-Going to try to get a job doing makeup again, already planning for it to not work out. Selling her clothes she's too fat to wear on Poshmark.
-Veterinary assistant told her she helped out someone with her knees, some girl found her videos about her knees and it validated her because she felt fake until Sarah-Jean taught her to advocate for herself. Pats herself on the back for this. Since her town has 700 people and apparently this girl also lives there, i'm skeptical af
-Cut to "I don't feel good." Went grocery shopping and was hit with a "very heavy large wave", felt like her numbers were all out of whack. Had to pull over on the side of the road on the way home.

 

[Xenomorph]

You alright there, mate?



Yeah there's a few ways to go about it. That's the quickest, IMO, but you can also just hit "reply" on the ones you want to respond to without submitting the post between. It'll bring you down to the new post field every time so you have to scroll up and down the thread but it's convenient when you're already writing something and someone else posts something you also want to respond to, which is exactly what happened right now.


Edit for a Sarah-Jean update. When last we left our intrepid healthy person, she was chimping out because EvilDad wanted her to get a job at 34 years old because she's expensive as fuck to feed and provide for and perfectly capable of going out with friends every day, filling care package orders, shopping, going to events, and taking care of many pets (while she's not great at knowing uh, anything about her animals she did used to run a farm where she had to muck stalls and haul feed).

-Today starts with her at the emergency vet with Gizmo, the dog she doesn't force to work, because he has pneumonia. Lets her dog cough all over her IV line.
-Goes to get a test done on her hand to figure out what the carpal tunnel that isn't carpal tunnel is all about. Turns out it's on September 16, not August.
-Drops off care packages, forces a cough. Goes home to clean.
-Goes to pick up her -mab drug for the migraines she doesn't have (I think it's emgality), insurance won't cover it. Explains something to do with an at-home assessment cancelled her insurance. It's also fucking up her narcolepsy medication (xyrem probably)
-Helps evildad with yard work
-Going to try to get a job doing makeup again, already planning for it to not work out. Selling her clothes she's too fat to wear on Poshmark.
-Veterinary assistant told her she helped out someone with her knees, some girl found her videos about her knees and it validated her because she felt fake until Sarah-Jean taught her to advocate for herself. Pats herself on the back for this. Since her town has 700 people and apparently this girl also lives there, i'm skeptical af
-Cut to "I don't feel good." Went grocery shopping and was hit with a "very heavy large wave", felt like her numbers were all out of whack. Had to pull over on the side of the road on the way home.

I wish her father would kick her free loading ass out.

 

[Munchie_Minder]

I mean, dEDS patients would disagree with that.

EDS types affect the skin differently. Perhaps you're referring to comments made by the heavier "hypermobile" zebras who claim they're constantly told they look 'young for their age' because of their pudgy cheeks but we already know fat padding can help you stave away wrinkles.

Sorry, I should have specified HEDS. That’s the subtype she claims. Although, in examining the skin of many people with EDS, people with Classical EDS also often look extremely young for their age, in the face. I will edit my comment to reflect this. Edit to add: It is also quite obvious she doesn’t have DEDS. But I would love to see her claim that.

Without powerleveling too much, I have examined the skin of a couple dozen people with known classical mutations, kyphoscoliotic mutations, and hypemobile patients (who fit the 2017 diagnostic criteria and have positive family history where I saw multiple generations). This is an in person type setting, not online. Many of the older patients were not overweight at all and many into their 40’s or 50’s had zero to very subtle wrinkling in their forehead. The genetics office where I live is interested in investigating this as there seems to be something interesting about the forehead skin in these patients that is tight and not prone to wrinkling, while other areas such as hands and feet are more likely to show signs of premature aging in this population. So, these patients may help unlock some key processes in which types of collagen affect aging processes and how we can correct or prevent them. For reference, this research has been done in the southeast US, from the southern Appalachians to Florida as part of research assistance to a geneticist in the Southeast. So, the patients in this population are in the heaviest areas of sun damage in the US and many of them had jobs that included working in outdoor settings so sun damage avoidance is not a proposed mechanism.

 

[iluvmylife]

Edit for a Sarah-Jean update. When last we left our intrepid healthy person, she was chimping out because EvilDad wanted her to get a job at 34 years old because she's expensive as fuck to feed and provide for and perfectly capable of going out with friends every day, filling care package orders, shopping, going to events, and taking care of many pets (while she's not great at knowing uh, anything about her animals she did used to run a farm where she had to muck stalls and haul feed).

-Today starts with her at the emergency vet with Gizmo, the dog she doesn't force to work, because he has pneumonia. Lets her dog cough all over her IV line.
-Goes to get a test done on her hand to figure out what the carpal tunnel that isn't carpal tunnel is all about. Turns out it's on September 16, not August.
-Drops off care packages, forces a cough. Goes home to clean.
-Goes to pick up her -mab drug for the migraines she doesn't have (I think it's emgality), insurance won't cover it. Explains something to do with an at-home assessment cancelled her insurance. It's also fucking up her narcolepsy medication (xyrem probably)
-Helps evildad with yard work
-Going to try to get a job doing makeup again, already planning for it to not work out. Selling her clothes she's too fat to wear on Poshmark.
-Veterinary assistant told her she helped out someone with her knees, some girl found her videos about her knees and it validated her because she felt fake until Sarah-Jean taught her to advocate for herself. Pats herself on the back for this. Since her town has 700 people and apparently this girl also lives there, i'm skeptical af
-Cut to "I don't feel good." Went grocery shopping and was hit with a "very heavy large wave", felt like her numbers were all out of whack. Had to pull over on the side of the road on the way home.

Im just wondering how long she allowed Gizmo to be sick and cough for him to develop pneumonia. Untreated kennel cough will progress to that and I can see her waiting until it was an emergency.

ETA: I forget when the Schofield kids were brought up here but I fell down that rabbit hole last night. And holy shit. A lifetime ago I was a CPS caseworker that investigated all the numbered child abuse cases with the state in the county I live. I truly hope Susan has a FOUNDED case/cases in which she is the perpetrator. I haven’t had much time to check out thread on here but will be doing so off and on. Those poor kids. I’m so glad they are away from her.

 

[Occam's Epilady]

Sorry, I should have specified HEDS. That’s the subtype she claims. Although, in examining the skin of many people with EDS, people with Classical EDS also often look extremely young for their age, in the face. I will edit my comment to reflect this. Edit to add: It is also quite obvious she doesn’t have DEDS. But I would love to see her claim that.

Without powerleveling too much, I have examined the skin of a couple dozen people with known classical mutations, kyphoscoliotic mutations, and hypemobile patients (who fit the 2017 diagnostic criteria and have positive family history where I saw multiple generations). This is an in person type setting, not online. Many of the older patients were not overweight at all and many into their 40’s or 50’s had zero to very subtle wrinkling in their forehead. The genetics office where I live is interested in investigating this as there seems to be something interesting about the forehead skin in these patients that is tight and not prone to wrinkling, while other areas such as hands and feet are more likely to show signs of premature aging in this population. So, these patients may help unlock some key processes in which types of collagen affect aging processes and how we can correct or prevent them. For reference, this research has been done in the southeast US, from the southern Appalachians to Florida as part of research assistance to a geneticist in the Southeast. So, the patients in this population are in the heaviest areas of sun damage in the US and many of them had jobs that included working in outdoor settings so sun damage avoidance is not a proposed mechanism.

That's fascinating because you'd think that that a lack of collagen would hasten skin aging everywhere. Now that you mention it, though, it makes sense that forehead wrinkles wouldn't be caused by the sagging/laxity-type stuff that affects other areas of the face and body. You mentioned hands and forehead; do you have any information on the lower face? I'd expect EDS patients to become jowly more quickly.

 

[AlabamaWhitman]

Insta is
dis@bled.not. defe@ted

Sorry don’t have The ability to give much more info RN but will work on compiling.

Praising her dog for enduring “hours in an incredibly hot car ride?” Nope, fuck you bitch.

 

[Occam's Epilady]

Praising her dog for enduring “hours in an incredibly hot car ride?” Nope, fuck you bitch.
View attachment 895061

>> [Image description: Jessi lies curled up on a hospital bed in a face mask and rainbow compression socks.]

I am DECEASED. The entire spirit of insta-munchiness has been captured in 18 words.

 

[RayneBeaux Brite]

ETA: I forget when the Schofield kids were brought up here but I fell down that rabbit hole last night. And holy shit. A lifetime ago I was a CPS caseworker that investigated all the numbered child abuse cases with the state in the county I live. I truly hope Susan has a FOUNDED case/cases in which she is the perpetrator. I haven’t had much time to check out thread on here but will be doing so off and on. Those poor kids. I’m so glad they are away from her.

Not to totally derail the thread in to the Schofield cesspit but just a few days ago a judge did find that CPS met its burden of proof and found her guilty of abusing her kids. They will remain in foster care for the next 18 months and Susan will have to jump through a lot of hoops to not have her parental rights completely terminated.