iluvmylife
kiwifarms.net
- Joined
- Jun 27, 2019
the only point she managed to make is how awful and dumb she is
Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention
- Thread starter Petronella
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Ms.bojangles
kiwifarms.net
- Joined
- Jun 5, 2019
The day starts off with a dramatic post about how she's going to die if she doesn't get help. Yet in the next post she thanks two friends who come over to help with the girls and even "witnessed" her seizing and "puking her brains out". Complains about alot of thing that are common with moms that have two kids under 4. Especially when they get a cold. Also she hasn't mentioned her daughter being sick chronically since she has gotten acutely ill and hasn't taken her to any more doctors.
Makes a post about how she's been doctor shopping, literally, and how she still isn't done. With a chronic illness, wouldn't you already have situated all your specialties in a place where you live? (she's been in the same area since Lilly was born for context)
And what we were all expecting from the beginning, going to the hospital for not sleeping and being sick with a cold and her apparent 25lb weight loss in the last couple months. (I'm not a mom but wouldn't you keep a similar sleep schedule to your kids so you aren't sleeping 20 minutes to their 4-5 hours?) also mentions that she knows they won't do anything.
Couple hour pass and she's checked into the ER. Has to let us know she got a wheelchair and I just love her spoonie style in this one. Hospital mask that isn't even sealed properly around the mouth and giant dark sunglasses. I can't tell but I hope she's also wearing her neck brace, it would just really bring this look home.
Just a little update cause she is spiraling fast and I don't want to miss the fireworks.
Makes a post about how she's been doctor shopping, literally, and how she still isn't done. With a chronic illness, wouldn't you already have situated all your specialties in a place where you live? (she's been in the same area since Lilly was born for context)
And what we were all expecting from the beginning, going to the hospital for not sleeping and being sick with a cold and her apparent 25lb weight loss in the last couple months. (I'm not a mom but wouldn't you keep a similar sleep schedule to your kids so you aren't sleeping 20 minutes to their 4-5 hours?) also mentions that she knows they won't do anything.
Couple hour pass and she's checked into the ER. Has to let us know she got a wheelchair and I just love her spoonie style in this one. Hospital mask that isn't even sealed properly around the mouth and giant dark sunglasses. I can't tell but I hope she's also wearing her neck brace, it would just really bring this look home.
Just a little update cause she is spiraling fast and I don't want to miss the fireworks.
medicaidmunch
kiwifarms.net
- Joined
- Jun 20, 2019
Some more stuff on mysteryelles. I think it’s interesting she got a power wheelchair so quickly. She went from a basic chair to a fully customized (?) wheelchair in a few months. She doesn’t mention why she needs it.
She also was a gymnast. This follows the pattern of a lot of the other muchies
She bites herself and pulls out her hair during “meltdowns”
Apparently this is how she walks
She also was a gymnast. This follows the pattern of a lot of the other muchies
She bites herself and pulls out her hair during “meltdowns”
Apparently this is how she walks
Occam's Epilady
kiwifarms.net
- Joined
- Jul 9, 2019
Oh Lord, someone created r/IllnessFakersFakers, which appears to be a forum for munchies to call out the IF sub (?). It already has a half-dozen salty posts.
Edit: Innocent people are terrified to discuss their lives, you guys
Edit: Innocent people are terrified to discuss their lives, you guys
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medicaidmunch
kiwifarms.net
- Joined
- Jun 20, 2019
is it possible to have lupus and hEDS? I know the criteria has info about being diagnosed with an acquired CTD but it’s kind of confusing to me
and yes, this is a clinic that doesn’t accept insurance and it’s $400 an hour for an “invisible illness” appointment.
and yes, this is a clinic that doesn’t accept insurance and it’s $400 an hour for an “invisible illness” appointment.
- Joined
- Jun 30, 2017
This thread manages to be one of the most disturbing on here. Something in our society is broken to be producing so many of these cases. Social media has to be part of it. Who in their right mind would be OK putting so much mental illness on display before IG and FB and shit? WTF.
Ms.bojangles
kiwifarms.net
- Joined
- Jun 5, 2019
Update from the hospital
These people are so transparent...
Edited to add:
After getting out of the Er this afternoon (just to remind everyone how she was so weak she needed a wheelchair to get into the Er in the first place) well she walks home and posts a story rant while doing so. Later on she also goes for a shopping trip with two small children to Costco, and she is solo, aka no husband. Now we fast forward to her continuing to rant about the Er visit she was less than happy for. But maybe I've gotten down to the bottom of why this doctor pinned her as a fraud...
Now kids, if you want to be taken seriously by a medical professional, maybe don't dramatically tell them you will die unless you get medical treatment asap.
(sorry there's no receipts of the walking, they were both story videos and I lack a screen recorder)
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- Joined
- Jun 30, 2017
Doctors are truly based. Imagine having that level of education and expertise and having to suffer so many fools all day long.
- Joined
- Sep 20, 2017
>you dont hear them complain about taking my money
that logic is similar to people who complain about their meal being wrong at a restaurant despite eating the whole thing and still demanding a refund or not to pay. fuck off
that logic is similar to people who complain about their meal being wrong at a restaurant despite eating the whole thing and still demanding a refund or not to pay. fuck off
Occam's Epilady
kiwifarms.net
- Joined
- Jul 9, 2019
I can't think of any reason why it wouldn't be possible, and a quick search seems to find examples of them being considered separate and coexisting (e.g., https://www.nature.com/articles/srep39636), so I'm going with "yes." Now, since lupus itself is associated with hypermobility, I would be pretty skeptical of a diagnosis of both diseases; I've learned from this thread that some doctors seem totally willing to be pushed into diagnosing EDS based solely on hypermobility, unfortunately.
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cosmicdare
kiwifarms.net
- Joined
- Jun 4, 2019
Seems like it would only make sense to diagnose both if there were siblings or a parent independently diagnosed with hEDS without Lupus. But so far I haven’t noticed any of the Instagram waifs talking about their grandma’s dislocations or their mother’s struggle with orthostatic problems. It’s always just them, and there’s always a new issue to take the spotlight back if someone else gets sick.
- Joined
- Aug 29, 2018
Dr. Kelly has a slick website, has a blog about her experiences with EDS, treats multiple invisible diseases like fibro and EDS and Lyme (duh, it's always Lyme.) Oh and she doesn't take insurance and she charges $400/hr.
If you can't beat 'em, monetize 'em.
Itsnotatumor
kiwifarms.net
- Joined
- Sep 2, 2019
Maybe they’re scared people will confuse it with the “other” trich....
Me thinks ole girl tried to get a cardiology fellowship and didn’t match so she did a year of pain instead and then opened up a fancy concierge clinic with her husband to pay dem bills...
- Joined
- Aug 29, 2019
Is it common for doctors there to prescribe benzos and opioids to be taken together!? That's pretty much the most dangerous drug combination going.
I know some doctors will still do that under exceptional circumstances.. But apparently, from what she's written, three different doctors are fine with it and are even upping and changing the doses with zero concerns..
- Joined
- Aug 29, 2018
Yeah, it is. It's generally not a huge problem as long as they're both taken as prescribed. Everyone I've seen on opioids and benzodiazepines has been on a fairly low dose of both.
Problem with giving them to munchies is that there's a real chance they're gonna swallow both bottles because of their 17/10 pain and go visit the intensive care unit in the sky.
Ms.bojangles
kiwifarms.net
- Joined
- Jun 5, 2019
I feel like spoonies are definitely the hospital equivalent of those restaurant leeches.
"I got an infusion but I want a refund now cause it didn't cure my potparesis danlos syndrome"
medicaidmunch
kiwifarms.net
- Joined
- Jun 20, 2019
yes I went back and looked at the criteria and it says hypermobility & pain cannot be counted towards the diagnosis since lupus can cause that so you would need a positive family history.
but for $400 an hour I bet dr. Kelly would give anyone an EDS diagnosis and port
- Joined
- Aug 29, 2019
For $400 an hour, I'd gladly dislocate grandma's bones myself.
- Joined
- Feb 21, 2018
Agreed, and Linda's docs are probably aware of her history of abusing pain meds.
Also, again, I'm horrified how docs over there seem to jump to the saline infusions as soon as someone's diagnosed with POTS. Most people who've been newly diagnosed haven't made simple lifestyle modifications like drinking way more water, or tried prescribed treatments (meds, compression hose).
As for the wheelchair prescription, why the hell not recommend the patient rent a mobility scooter while she's waiting to see if the POTS treatment works? But it's all about the toys.
Toohottotrot
kiwifarms.net
- Joined
- May 12, 2018
Money or kickbacks(free tvs from wheelchair Is one of heard of) plus some drs will take into account social status e.g. my friends got this so I want it to