they used to think it wasn't compatible with life, but you just have to use an industrial amount of moisturizers and baths to keep them from gettng cracked skin. The kids usually lose the ends of their fingers from skin constricting the blood flow, but they aren't mentally exceptional any more often than other children. They can have lives that contribute to society (or decide to end it all, whatever). I watched a documentary about a woman with a hartley esque story of having one baby with HI, and then she decided with her husband to try again and accept any outcome, which was another kid with HI who also had cerebral palsy. Whoops. To be fair, they couldn't detect the condition in utero like they did with lola hartley. It was super creepy because they were deformed
and british.
anyway, I was on twitter looking for more updates on the custody fight with the "trans" kid in texas, and texas right to life groups tried to piggyback a kid being taken off of life support onto the save james hashtag.
“URGENT: @CookChildrens will pull the plug on 9-month-old Baby Tinslee on Sunday -- against her mother's will! Contact Cook Children’s, ask to speak to administrator Stan Davis, and tell him to save Baby Tinslee Lewis! 682-885-4000 or stan.davis@cookchildrens.org #ProLife #CCOT...
twitter.com
this is a horrible case.
A 9-month-old baby was set to be taken off life support at a Fort Worth hospital Sunday night, but a judge’s order has given the child’s family more time...
www.dallasnews.com
tl;dr is this kid has serious heart/lung problems and will die without a permanent ventilator. They dope the kid up so they won't pull out the vent, and when they go off the drugs the kid is in pain. They have done many surgeries to try and fix the underlying problem and nothing has worked. The child is 9 months old and has spent their entire life in intensive care, almost all of it under heavy sedation. The hospital tried to get 20 different facilities to take the kid and none would. I am guessing the next stop is new jersey or some other place where you can put people in human filing cabinets. Eventually the ability of the drugs to sedate is going to have diminishing returns and I guess their mom will restrain them or something? 9 months is an awfully long time to be drugged, they have brain damage from lack of stimulus if nothing else. This is a weird case where keeping them alive will make them exceptional.