- Joined
- Nov 29, 2018
This IG is a nightmare:
https://www.instagram.com/thetravelinghaloofhope/
Every time they tried to take that halo off, she couldn't even, so she got more spine surgery. Can this actually happen? This is just horrible. Just... that's a fuckton of spinal surgeries and a lot of, "oh no, more surgery and the halo can't come off!" She did have legit scoliosis from the looks of it, so I'm gonna say this is more of a morbid curiosity than munchie. There's some crazy graphic pics in that IG for anyone into that.
This girl has a tragically punchable face, notreal™ seizures and the standard munchie combo of eds, pots, gp, and chiari plus being genderstupid.
https://www.instagram.com/lynnandlavender/


This post screams munchie to me.

Went septic, but excited to keep her port, like really excited, and refers to the port as "her/she"
tapping out for now
https://www.instagram.com/thetravelinghaloofhope/
Every time they tried to take that halo off, she couldn't even, so she got more spine surgery. Can this actually happen? This is just horrible. Just... that's a fuckton of spinal surgeries and a lot of, "oh no, more surgery and the halo can't come off!" She did have legit scoliosis from the looks of it, so I'm gonna say this is more of a morbid curiosity than munchie. There's some crazy graphic pics in that IG for anyone into that.
This girl has a tragically punchable face, notreal™ seizures and the standard munchie combo of eds, pots, gp, and chiari plus being genderstupid.
https://www.instagram.com/lynnandlavender/


This post screams munchie to me.
LIFE UPDATE
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It has been three weeks since I went from one tube to a two tube lady and I am absolutely loving my @craftingforacureco tubie clips! I don’t just use them to keep my tubes out of the way I also use them to hold my fluid bags in place inside of my medical bag. I’m still using my Halloween clips in there cause I refuse to believe October is over. If you haven’t already check them out babes they are actual lifesavers!!
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Barefaced and braless for this update cause why not? This is my second NJ tube since the first one got thrown up six days after it’s placement because of a seizure I had in the hospital. We have spent the last year not worrying about my convulsions because we all assumed they aren’t actually seizures. Having one in the hospital was extremely lucky because were finally able to confirm wether or not they are classic seizures instead of seizure like activity by testing my prolactin levels. During the seizure my levels were at 27.8 and at the exact same time the next day my levels were at 6.2 so that’s a really definitive answer. It makes reality scarier because we now know I have to be taken to the hospital if my seizures last more than ten minutes when mine normally last anywhere from fifteen to ninety minutes. My internist says mine are many small seizures pushed into one. Oddly enough my neurologists don’t seem to think it’s a very big deal and they have settled for just calling them seizures instead of looking into wether or not I have epilepsy. I have been to the er twice in the last two weeks to get my tube unclogged which has been super annoying but I’m staying the course because maybe this will help with the extreme weight loss and the terrible malnutrition. None of my clothes fit, I’m down forty two pounds, and my BMI is at 18.3 as of this morning. I think I might start doing weekly updates if you guys are interested in it? How are you babes doing? What is your experience with NJ tubes or seizures? Let me know below!![]()

Went septic, but excited to keep her port, like really excited, and refers to the port as "her/she"
tapping out for now