Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

[large_farva]

bets on what SJ did to lose insurance?

she could die without that saline!

 

[Punkinsplice]

bets on what SJ did to lose insurance?
View attachment 1082728
she could die without that saline!

I couldn't begin to guess, but considering the source, it was probably some really stupid thing SJ did. Do you have to re-enroll every year for private insurance? Maybe she forgot or doesn't realize that her deductible resets every year and she still has to pay for stuff even with insurance. That said, I know very little about private insurance, so take anything i say about it with a pound of salt.

 

[mooserangerofthenorth]

Given her awful spelling I'm going to "humane" is Humana. Humana is either military or Medicare. Usually with Medicare you have re enroll or pay x amount before coverage. Doctors office verify coverage for prior authorization for diagnostic imaging and medications. Looks like she is out luck, you can enroll again until open enrollment or life event.


I think this image is a Henderson patient. I'm guessing intraoperative fluroscope.


Also, who does this because it "was found by accident". Chiari is actually pretty common, most are incidental findings. You had no symptoms and it isn't going to kill you? Yup, sticking a bunch of hardware in there sounds like a good idea.

 

[Munchie_Minder]

Given her awful spelling I'm going to "humane" is Humana. Humana is either military or Medicare. Usually with Medicare you have re enroll or pay x amount before coverage. Doctors office verify coverage for prior authorization for diagnostic imaging and medications. Looks like she is out luck, you can enroll again until open enrollment or life event.


I think this image is a Henderson patient. I'm guessing intraoperative fluroscope.
View attachment 1082808

Also, who does this because it "was found by accident". Chiari is actually pretty common, most are incidental findings. You had no symptoms and it isn't going to kill you? Yup, sticking a bunch of hardware in there sounds like a good idea.
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Well that’s downright horrifying. I know dozens of Chiari patients who have never needed brain surgery. It’s only indicated if herniation has both progressed to limit cerebral spinal fluid flow and symptoms are problematic. Also, that’s NOT a decompression surgery. That’s a fusion of C0-2. If you had Chiari alone, why would you have a fusion? And that type of fusion with what looks like posterior pedical screw fixation without removal of disks is pretty much guaranteeing a repeat surgery. I’m officially horrified.

A “normal” Chiari decompression surgery is this which isn’t as easily seen on X-ray unless you know what you’re looking for.

 

[mooserangerofthenorth]

@Munchie_Minder thank you for explaining that. I dont work the realm that you see neurosurg patients that often, but most are an anterior approach now.

As someone who works in medicine I am appalled by Dr Henderson. I never heard of an NDA with your doctor till him. Reminds me of a BU doctor who kept getting child abusers off the hook by saying "its EDS, just ignore the fact they threw them down the stairs". He also tried to suggest that scurvy (yes, scurvy) is common. I cant for the life me remember the doctors name.

 

[eternal dog mongler]

So... signing an NDA isnt exactly normal for surgeons or specialists, is it?

In my area there are (that I know of) two cosmetic surgeons that do and a dermatologist.

They're deathly afraid of bad reviews on the internet because they mostly see self-referred patients. But restaurants are afraid of bad reviews too, and nobody sane would sign an NDA before you get to order your food. You'd be afraid of being served squirrel vomit or some shit.

Yet people will apparently sign NDAs for invasive medical procedures.

 

[SevenEightNine]

Actually, know who he reminds me of?

That one doctor who was giving people synthetic trachea with stem cells and murdered like 8 people via medical malpractice. He got away with it too (not being convicted and rotting in jail), as they tend to.

He got another doctor "cancelled," in fact, went after his academic career. You know, a doctor who stood up for patients, even a tiny bit.

Medicine is fucked that way. They defend each other no matter what. It's very, very difficult to get an expert witness for a malpractice case. In my country anyway. America seems different. Trachea Frankenstein was in europe, IIRC.

 

[Erica_Kane]

bets on what SJ did to lose insurance?
View attachment 1082728
she could die without that saline!

My thoughts living in her state an dealing with people like her? She is now restricted meaning 1 doctor is in charge of all referrals and treatment and 1 pharmacy can fill her prescriptions. Over utilization is a reason this happens.

 

[ShadowCass]

I have never heard of that but it sounds like a good thing. I am sure there are several insurance companies that would rejoice if some of the folks in this thread got restricted. Is it a state thing or an insurance thing?

My thoughts living in her state an dealing with people like her? She is now restricted meaning 1 doctor is in charge of all referrals and treatment and 1 pharmacy can fill her prescriptions. Over utilization is a reason this happens.

 

[RacerDee]

My thoughts living in her state an dealing with people like her? She is now restricted meaning 1 doctor is in charge of all referrals and treatment and 1 pharmacy can fill her prescriptions. Over utilization is a reason this happens.

Also living here, I have also seen this happen to people, usually due to the amount of pain medication they are receiving.

 

[Maxie]

bets on what SJ did to lose insurance?
View attachment 1082728
she could die without that saline!

Was she on medicaid and forget to tell them she went back to work?

 

[I hate children?]

bets on what SJ did to lose insurance?
View attachment 1082728
she could die without that saline!

If she lost her insurance not making payments on time or her being on medicaid and losing it after not reporting income seems something like SJ would do . Whatever the case is I love that she is taking it so seriously.

 

[seizure-san]

My thoughts living in her state an dealing with people like her? She is now restricted meaning 1 doctor is in charge of all referrals and treatment and 1 pharmacy can fill her prescriptions. Over utilization is a reason this happens.

Being suddenly locked in to a new provider/pharmacy/etc while she wasn't paying attention would be hilarious ngl.

I'm leaning towards state insurance being canceled for unreported income myself, only because of how she says it's been "canceled" and not just bitching about switching things around. At least in my state Humana has a Medicaid branch so it's possible. They're also OH YEAH actually Humana Medicaid is currently a HUGE clusterfuck, they've changed how they structured their billing info for some godforsaken reason to something that NO ONE ELSE does. Dunno if it's like that elsewhere but it's made updating billing a trial. God bless the customer service reps that have to try to explain it to her.

I really hope they found her extra income though, because lol no more government- sponsored salt water.

 

[medicaidmunch]

If the upright MRI did show genuine spondylolisthesis, then at least that would be one thing that people could agree on. But that's not what is being used for diagnosis - it's weird stuff like measuring angles and distances (several of these measures have actually been discredited for over a decade).

I knew these MRIs were bullshit but when I saw a munchie post their actual measurements I was shocked. Most of them are vague and say “it’s the worst he’s ever seen” but it’s measured in mm which, I know, can really matter in neurosurgery but when you say you’re in danger of becoming “internally decapitated” I don’t think 2-3mm is making that much of a difference???

Would love to see someone without EDS and issues go to him and report on what he said. Any doctor who claims that others are quacks/uneducated but won’t release their “research” to educate other doctors rings all of my alarm bells.

yes!! I would also love this. There is someone on IFGW that WKs henderson (of course she has a neck fusion) and says that he won’t slice anyone open because she has a “friend” that was turned down. I’m convinced he will fuse anything’s spine as long as it has a pulse.

 

[large_farva]

Her head was literally almost falling off for 12 years, guys. She could have died!
Bitch traveled the world to "interview" neurosurgeons for her chronically normal MRIs, then she found one who was willing to do the upright and cut her open, in Barcelona.

 

[mooserangerofthenorth]

Sad face kiwi Paige is MIA for 5 days. Was someone's death pool of Jan 2nd right?

 

[Punkinsplice]

Sad face kiwi Paige is MIA for 5 days. Was someone's death pool of Jan 2nd right?

I dunno, you know how she likes to leave hospice for a few days to visit family and get sicker, especially during holidays. Maybe her latest bender was too much and she is just hungover. Or in isolation with flesh eating superbugs.

 

[Nomen Celandum]

yes!! I would also love this. There is someone on IFGW that WKs henderson (of course she has a neck fusion) and says that he won’t slice anyone open because she has a “friend” that was turned down. I’m convinced he will fuse anything’s spine as long as it has a pulse.

To give Henderson some credit, he does actually write quite a bit in the scientific literature and he has published his criteria for operating in a peer-reviewed journal. He does actually turn people away when they test negative according to his criteria (which isn't often, but does happen). Most neurosurgeons regard his criteria as BS, and there are studies discrediting some of his criteria as too unreliable.

The one you really need to worry about is the Gillette guy from Barcelona. I've never heard of him turning anyone away as long as they had the cash. He also never publishes anything, and never turns up to the conferences.

 

[Ellesse_warrior]

Sad face kiwi Paige is MIA for 5 days. Was someone's death pool of Jan 2nd right?

I'm sure there would be some kind of memorial up for her on her friends SM if she had died. Can anyone remember what goose girl's Instagram was under?

 

[Munchie_Minder]

I knew these MRIs were bullshit but when I saw a munchie post their actual measurements I was shocked. Most of them are vague and say “it’s the worst he’s ever seen” but it’s measured in mm which, I know, can really matter in neurosurgery but when you say you’re in danger of becoming “internally decapitated” I don’t think 2-3mm is making that much of a difference???





yes!! I would also love this. There is someone on IFGW that WKs henderson (of course she has a neck fusion) and says that he won’t slice anyone open because she has a “friend” that was turned down. I’m convinced he will fuse anything’s spine as long as it has a pulse.

So yes and no. Upright MRIs are not bullshit but the problem is that they haven’t been around long enough to have tons of clinical trials done and training. 3-5 mm is the definition of anteloaxial instability depending on whether it is a child or adult. But the rub is that this should be able to be clearly seen on plain flexion and extension radiograph and shouldn’t need any special weighting with neck turned like Henderson does. We are talking about real conditions with real symptoms. Is it likely that people with EDS experience some symptoms under some circumstances from their neck vertebra slipping that cause symptoms at times? Absolutely. Should we put all of them through brain and spine surgery? Hell no. Measurements matter less than symptoms. If a person can walk and talk, they likely do NOT need this type of surgery. Again, going back to my earlier post, neurological deficit should be the only reason to consider this type of surgery because it is invasive, painful, and outcome is risky. But again, chances are, if there is persistent neurological deficit, a good radiologist will see it on MRI.