Jesus christ. So does that mean Tinslee is possibly getting brain damage in addition to broken ribs every time she has to be revived?
Other than the parents who we know are awful like Luna's mom and Tinslee's mom, do you get the feeling other parents posted here would be assholes who rarely visit their kids and shit? Like all the fundies I post. Also, i don't know if you've read the thread (it was locked about a year ago after both of them finally died), but do you have any thoughts on Gwen Hartley and the shit she did to her gremlins?
Yes, with infants and children they usually suffer more brain damage every time they code, CPR is not as effective at circulating blood and oxygen so often there is more brain injury which is why her not being a DNR is horrific. When an infant does not move normally as they grow, the muscles and bones don't develop properly either. They often suffer from neonatal rickets and get many bone fractures. And CPR causes broken ribs in robust healthy people. Broken ribs hurt like hell!
There are those people who honestly believe they will get a miracle, who despite being blind to the suffering, do care and fist often, and call to check in. Then you have the others who rarely visit, demand meal trays, cab vouchers, etc. They sit at the bedside eyes glued to their phone, and unless they are in the mood for a photo shoot, they leave without ever touching their kid, It's all about themselves.
I did read the hooligan's thread, those parents are nightmares.
I cannot to this day understand these kind of people. If you truly believe in God and his will, then why do they think they are above their God because, when God gave you a dead/dying g child, wouldn't that be a big message that God already made that decision, so prolonging the life is going against God. If you are a woo woo mystical medicine person such as Luna's mom, wanting everything natural, why the hell would you put her through surgeries for a shunt and feeding tube and use oxygen? That shit is not natural, death Ian dying are natural processes. So whatever they claim is there reason , they do things that defy that reason. Gwen's girls were heartbreaking, they actually seemed more physically active with more movements than Luna.
Honesty between people like them, and the ever increasing amount of drug babies, I had to stop working in the NICU.
So my opinions can seem harsh and I am jaded. The financial resources on children like the Hartleys, Tinsley, Luna, it's millions a year paid for by us the tax payers. Even if they started out with insurance there is a maximum payout amount. We pay for the su
Jesus christ. So does that mean Tinslee is possibly getting brain damage in addition to broken ribs every time she has to be revived?
Other than the parents who we know are awful like Luna's mom and Tinslee's mom, do you get the feeling other parents posted here would be assholes who rarely visit their kids and shit? Like all the fundies I post. Also, i don't know if you've read the thread (it was locked about a year ago after both of them finally died), but do you have any thoughts on Gwen Hartley and the shit she did to her gremlins
There is so much information regarding your questions, I would have to answer each one separately as to each infant. Will do my best , please forgive me for any bad spelling, grammar, etc. typing long stuff on phone difficult, especially after a 12 hour night shift.
Regarding Tinslee: I have taken care of infants like her, but once they reach 9 months to a year old they are transferred from the neonatal ICU to the pediatric ICU.
Infants like her are truly living in a world of pain and hell! Mechanical ventilation while breathing for them, also does damage to the lungs due to the pressure required to inflate the lungs, and the more damage and scarring, the higher the pressure is needed so it's a terrible cycle. Being on a ventilator is horrible: the vent gives a set amount of breath at set pressures per minute, if you have a functional brainstem your body naturally wants to breath on it's own, but cannot because when it automatically tries to breath in or out, the vent is chugging along and so you may be trying to exhale while the vent is forcing a breath in. Breathing through a breathing tube and vent tubing feels like what you would experience if you took a long straw and tried to breath through it, this all makes you feel as though you are suffocating.
Since she is on artificial ventilation and tube feedings, she would get blood work drawn daily and more frequently. She would likely have central lines or PICC lines, but those don't last forever, the clot or have problems, requiring multiple IV' s until a new central line is placed. Often if a blood transfusion is needed or a medication that can not be mixed with others, again more IV sticks.
Due to not being able to move normally as she grows her muscles and bones would not develop properly so the bones are weak ( called neonatal rickets). Due to weak bones and chest muscles, CPR on her would be horrifying likely resulting in several rib, sternum, and vertebra fractures. CPR mechanically circulates the blood until the heart restarts but is poor circulation compared to the heart so after you get them back there can be significant damage to the brain and other vital organs.
I see why the medical staff is traumatized caring for her. Skin issues are common with immobile patients as well, babies like this are hurting and feel like they are suffocating just laying there, changing the diaper, positioning, bathing and doing procedures on them pushes the pain to a higher level. I have had infant's literally code as I gently lifted their bottom enough to slide out a wet diaper and slide in a clean one
Jesus christ. So does that mean Tinslee is possibly getting brain damage in addition to broken ribs every time she has to be revived?
Other than the parents who we know are awful like Luna's mom and Tinslee's mom, do you get the feeling other parents posted here would be assholes who rarely visit their kids and shit? Like all the fundies I post. Also, i don't know if you've read the thread (it was locked about a year ago after both of them finally died), but do you have any thoughts on Gwen Hartley and the shit she did to her gremlins?
As for the Harleys again that is horrific. Those girls lived a lot longer than they should have. In my opinion the mom was selfish. Most people would rather have quality over quantity of life. I cannot see anywhere any proof that at any time those girls ever felt pleasure or comfort. Thier entire lives. At the least they felt nothing, to at the worst feeling suffering and pain, and all just to be able to send smug letters to a doctor every year?
Besides what those girls may have gone through, those parents anger me for other reasons. I also did some infant/ pediatric home health care. The cost of keeping children like that alive is in the millions per child per year. Even if they started off with insurance all plans have a maximum pay out. We the taxpayers support them via social security disability, medicaid and many other state and federal programs.
We pay for home nursing care, respiratory therapy, speech therapy, play therapy, physical therapy, occupational therapy. Multiple doctors are required GI, orthopedic, neuro, hemotologist, nutritioniste is the ewuiand surgeons as those feeding tubes need to be revised. That's just the people involved, then there are the braces, casting, special beds, bathing chair/ beds, wheelchairs and other mobility equipment. Feeding pumps, oxygen equipment, tube feeding formulas, handicapped vans for transportation safely. The increasingly larger diapers, blue underpads and so much more.
What passed me off the most is that most of these parent don't work, or only one does, yet they live in very nice homes, homes that as a full time nurse I couldn't even dream of. The cost of most of the medical stuff is covered, yet they get income from multiple places individual donors, grants, fundraisers, etc. I mean the Hartleys even managed a free hot tub. From the vids they appeared to have a nice home, they must have had a handicap ped van or type of transportation. I bet they also had a couple of nice cars aside.
It sucks as to walk in to a house nicer than you could afford, then you do all the shit work such as bathing, changing, feeding and they often ask the nurses to do housework and laundry as well, while the parents sit on their ass. The times you see Gwen actually doing bathing or diapers, etc, usually those kind of people only do when the camera is on.
