Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[Fliddaroonie]

Sorry, I wasn't comparing the Gard case and the girl with CMT disease choosing to die peacefully at home. Just updating people who were interested in that story, which had a spirited thread here at the time. I've added line breaks.

Sorry, I'm woefully undercaffeinatec

 

[Daughter of Cernunnos]

Sorry, I'm woefully undercaffeinatec

I think poor Charlie was normal at first so I really hope his new brother Oliver STAYS healthy and doesn't have some form of mitochondrial disease... maybe it would be less severe than his brother's? I've read even mild mito can be really shitty. I wonder if they got genetic counseling and why they took the risk again.

 

[Fliddaroonie]

I think poor Charlie was normal at first so I really hope his new brother Oliver STAYS healthy and doesn't have some form of mitochondrial disease... maybe it would be less severe than his brother's? I've read even mild mito can be really shitty. I wonder if they got genetic counseling and why they took the risk again.

The parents would have been offered counselling free at point of access in the NHS. I hope they made use of it. Their poor first kid suffered enough.

 

[Melkor]

I find their audacity to try and pass legislation that would make children suffer more pretty disgusting.

Charlie was suffering. Every moment of his life was nothing but pain, and his parents wanted to extend that pain for god knows how long. The UK government was acting in the interest of the child’s well-being and these people wanna stop that from happening.

Gross.

 

[Android raptor]

Yeah Julianna is the opposite of Charlie Gard or Tinslee. I only watched a little bit and it's heartbreaking. I think everyone involved did the right thing, and I can see why even a young kid would choose peace over a life in pain.

Wasn't the Charlie Gard situation like Alfie Evans where the kid was completely fucked and in pain and the parents wanted to keep it alive?

 

[Bad Take Crucifier]

Charlie Gard's parents and the US doctors wanted to try purely experimental therapies. His genes were fucked. He would have died anyway because his nervous system was literally disintegrating, due to his DNA.

In theory there could be a cure someday, but the best they could really do was extend his life slightly and use him as a lab study.

 

[Thomas Eugene Paris]

I find their audacity to try and pass legislation that would make children suffer more pretty disgusting.

Charlie was suffering. Every moment of his life was nothing but pain, and his parents wanted to extend that pain for god knows how long. The UK government was acting in the interest of the child’s well-being and these people wanna stop that from happening.

Gross.

I agree with you completely. In re-reading Julianna's mom's blog, it struck me how Julianna was able to articulate a lot of things very likely experienced by other terminally ill children, and when she did, her parents actually listened to what she was saying. If she was frightened, in pain, frustrated, she could say so and trust that her parents would at least attempt to help her. The other kids discussed in this thread are all trying, in their own ways, to say the same thing, but their parents are effectively covering their ears so that they cannot hear. How selfish and utterly devoid of compassion do you have to be to know that a child is suffering and do worse than nothing? It's disgusting, and I think many of the parents in this thread are actively exploiting the fact that their children are unable to verbally communicate. Imagine being trapped in a broken body and the people who are supposed to love you more than anyone else basically ignore everything you try to tell them, and make you do it again and again and again. Even the children who may not have much awareness and might not "know" that they are hurting, do not deserve to suffer that way.

What these parents are doing isn't love. It's something that most of us would hesitate to do to someone we hated.

 

[Allo Vera]

Wasn't the Charlie Gard situation like Alfie Evans where the kid was completely fucked and in pain and the parents wanted to keep it alive?

They were both really similar cases, and it was interesting that the parents (and their rabid supporters) were so driven by defying authority. That was the main driver of it all.

It was all about the “rights” of parents to extend a child’s life/suffering at all costs, and completely anti-science/logic/reason.

The hysteria and public protests got so big it’s like they’d all forgotten the two sick babies in the middle of it all.

 

[Melkor]

Charlie Gard's parents and the US doctors wanted to try purely experimental therapies. His genes were fucked. He would have died anyway because his nervous system was literally disintegrating, due to his DNA.

In theory there could be a cure someday, but the best they could really do was extend his life slightly and use him as a lab study.

Call me a bleeding heart, but I don’t really agree with the idea of making a child continue to suffer and be a guinea pig for treatments that probably would not be effective enough in the long run to prove they even work.

 

[FluffyCat9000]

Both the Charlie Gard and Alfie Evans cases are especially horrendous because it gave the (mostly fundamentalist religious) hardcore "life warriors" the perfect case to shove their views into the media.

Both parents were terribly misguided and I'm not clearing them of blame for inviting this, but the hardcore prolife crew were throwing money at them and then crawling into the discussion to push their views. Their legal costs were being covered by some pretty influential groups.

It got so aggressive and nasty in the UK media. We don't have the same level of "right to life" debates as they do in the US - the reason we remember the names of those two kids is because it's so rare that it goes to the Supreme courts. But recently there's been an almost evangelical push towards this fundamental "we have to defend these poor little angels" even though anyone with a rudimentary science background would see how futile it would be.

In the same way these very woo woo anti-vax anti-science views have been creeping back into the UK, though tbf it never fully died. The "MMR vaccine causes autism" was proposed by a hack UK doctor after all, even though we struck him off the medical register afterwards.

 

[AnOminous]

The "MMR vaccine causes autism" was proposed by a hack UK doctor after all, even though we struck him off the medical register afterwards.

It still got published in The Lancet due to some pretty piss poor peer review. I wonder how many people died because of the moronic conspiracy theories that now involve all vaccines, because of that lying quack Andrew Wakefield.

 

[MysticMisty]

Probably a lot given how serious these illnesses are. God forbid shit like polio makes a comeback and we start seeing people paralyzed (or otherwise permanently disabled) by it again. And if anyone uses smallpox biological warfare on us we're fucked. As is we're never going to eliminated COVID-19 since all these people are going to refuse to get the vaccination, in addition to all the "it's just a hoax" retards.

 

[Marshal Mannerheim]

Call me a bleeding heart, but I don’t really agree with the idea of making a child continue to suffer and be a guinea pig for treatments that probably would not be effective enough in the long run to prove they even work.

Indeed. Gard was going to die and was in pain. If you want to use a suffering baby as a medical experiment, I'd like to have some pretty strong words with you.

 

[KID NAMED SCHWARMAPUNK]

going through this thread made me realize that we should put funds into creating iron-wombs or smth

 

[Allo Vera]

Both the Charlie Gard and Alfie Evans cases are especially horrendous because it gave the (mostly fundamentalist religious) hardcore "life warriors" the perfect case to shove their views into the media.

I think the fundies were in the minority (although they piggybacked onto the story because they love the exposure) UK culture is too secular. I remember the hospital protests for Alfie Evans, and everyone looked like the jobless underclass who would turn up to any protest as long as they got to scream at the police and possibly throw a few punches.

 

[FluffyCat9000]

It still got published in The Lancet due to some pretty piss poor peer review. I wonder how many people died because of the moronic conspiracy theories that now involve all vaccines, because of that lying quack Andrew Wakefield.

He wasn't even acting in some good faith of thinking they were dangerous. He had a patent on an alternative vaccine and wanted to trash the reputation of the MMR one so he could shill his version instead.

If there is a hell, Wakefield deserves to burn for the damage he's caused.

 

[John Merston]

Wasn't the Charlie Gard situation like Alfie Evans where the kid was completely fucked and in pain and the parents wanted to keep it alive?

IIRC, both Gard and Evans were full potato, so hopefully they couldn't actually feel any pain.

 

[unwieldy_object]

What a great temperament! Oh wait, it has no brain and cannot scream.

A bit late but want to point out that they made the choice of carrying to term instead of early induction because that would make it possible for the potato to be a organ donor.

I also recommend "A Mother's Journey", which is a Pulitzer Prize winning photo documentary chronicling the final year in the life of Derek Madsen, who died at age 11 from neuroblastoma, a particularly brutal form of pediatric cancer arising from nerve cells.

The images are haunting and not for the faint of heart, as you can probably imagine considering they depict a little boy dying from cancer in his fucking nerves. Pediatric cancer gets around 4 cents of every available dollar of research funding, a fact that should make every one of us feel some kind of way.

I'm sorry if this is too far afield, and I'm done sharing feels now. Can we go back to laughing?

Kinda off topic but nothing crush my heart more than seeing kids go through cancer and having to endure adult treatments because of the lack of funding.

Meanwhile we have these fucked up fundie parents hogging resources and wasting them on non-sentient potatoes.

Gimme me the top hats cause this officially makes me MATI

 

[Fliddaroonie]

I find their audacity to try and pass legislation that would make children suffer more pretty disgusting.

Charlie was suffering. Every moment of his life was nothing but pain, and his parents wanted to extend that pain for god knows how long. The UK government was acting in the interest of the child’s well-being and these people wanna stop that from happening.

Gross.

It was not the government as such. It was the NHS and Charlie's MDT.

Those parents though? Should not be allowed more kids. They already tortured one and had to be ordered by a Court to knock it fuck off.

 

[just lurking]

( Im on mobile, really hope this works. If it doesn't, I'm sorry)
Lady claimed she was "raped" when a doctor gave her a c-section. Blames doctor for her baby dying and has gone down the rabbit hole of vegan, all natural and advocates heavily for it. She's nuts, just scrolling through a couple of her videos