Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[Bubblez McGee]

RE: the horrific vids of her in pain with her sociopathic father filming it.... I don't get uncomfortable easily, but this was profoundly disturbing. What I want to know is, why the fuck would they not have pain medication on hand for her - and a strong one at that - for this tortuous pain that obviously is a regular occurrence?

I dont know. He mentioned a medication that she was on, Baclofen. Baclofen isn't a pain med though, but a muscle relaxant. It can help with pain, by lowering the tight muscle tone that many brain injured people have, but it can take weeks to have any effect. At one point he blamed the Baclofen for her pain, but I think he was just trying to find something to lay the onus on. She'd obviously had quite a few of those incidents, so I dont know why he wouldn't have talked to her doctors to create a plan when she has an episode that would address and relieve her pain quickly, especially when it gets to the point of her shrieking in agony. I do have my suspicions though...

Are they like Gwen Hartley or the Empathic Nutritionist, forgoing pain meds for their profoundly disabled children in favor of reiki and "natural remedies"?

He seems to have a lot doctors appointments and medical treatments for her and most of them appear to be standard western medicine type of therapies. I believe he's gone the experimental route a few times, but for the most part he seems to stick to traditional medicine. Which is why its weird that he has no way to help her when she's screaming her head off in agony, other than to hold her and occasionally press on her back.

I think he just likes to portray himself as the heroic, but long suffering father, who feels so bad when his daughter is in pain and he cant help her. If he could give her medication that made her feel better in 10 minutes, then he couldn't make sad videos wearing a serious and concerned look on his face, while he spends hour upon hour holding his daughter in his lap while she screams and cries.

 

[Red Velvet Frappe]

That Sarah Brackney's son doesn't look any better, and it's been a what, like a week after the surgery? His head seems to have swollen even more since the surgery it seems to me. There's not a single picture of Silas being somewhat awake rather than a blank stare. She says her kids look like their dad, and I'm not sure if that a compliment or a insult. I can only hope this baby is drugged out of his mind so he's not feeling anything. His head is growing fast and he's younger than Luna. I wonder how bad it's gonna get, since he's showing signs of it this early.

 

[Diana Moon Glampers]

https://lovingmollymae.wordpress.com/2021/03/20/introducing/

Here's some brand new deformity blog action. Parents found out their child will live a painful, short life with alobor holoprosencephaly (cyclops baby). Parents decide the correct response to this news is to create a blog and announce that they're going to carry this child's life forward as long as possible. "We are so in love," they say of their tortured monster child. This is one to watch.

We learned that baby has something called “alobor holoprosencephaly” (HPE) where there is an absence of a lot of the brain structure. We also learned that baby has a large cleft extending up between the eyes, meaning there is no nose structure evident and the eyes are also very close together and bulging. Baby is measuring quite small in a number of ways which can be attributed to the lack of brain structure. All of these generally point to a chromosomal problem which we will eventually learn more about through testing at some point.

We also learned that a lot of babies do not survive in utero and this could result in miscarriage or baby will be stillborn. If the baby lives through delivery, there is a 50% of death before 5 months old and 80% chance before a year. We have already made the decision that I will carry the baby as long as it is alive as it is only the way this sweet little one gets to be alive & have life.

 

[Trombonista]

They can't even spell the name of their deformed miracle baby's condition.

 

[Marshal Mannerheim]

> it is only the way this sweet little one gets to be alive & have life.

That ship sailed long ago.

 

[Antipathy]

https://lovingmollymae.wordpress.com/2021/03/20/introducing/

Here's some brand new deformity blog action. Parents found out their child will live a painful, short life with alobor holoprosencephaly (cyclops baby). Parents decide the correct response to this news is to create a blog and announce that they're going to carry this child's life forward as long as possible. "We are so in love," they say of their tortured monster child. This is one to watch.

I will not link it here but alobar holoprosencephaly is one of the most horrifying conditions possible for a child to have. It is my go-to argument in favor of abortion when words just don't work anymore

 

[MirnaMinkoff]

https://lovingmollymae.wordpress.com/2021/03/20/introducing/

Here's some brand new deformity blog action. Parents found out their child will live a painful, short life with alobor holoprosencephaly (cyclops baby). Parents decide the correct response to this news is to create a blog and announce that they're going to carry this child's life forward as long as possible. "We are so in love," they say of their tortured monster child. This is one to watch.

It’s like the April Rose blog, only not fake. I feel bad for these people. It sounds like they have five kids already so this is going to be traumatizing af for them. Hopefully she will miscarry naturally and five children won’t be forced to hold and adore a brainless cyclops baby.

(There was a wild blog years ago where a woman faked a doomed holoprosencephaly baby pregnancy. Don’t ask me why she chose HPE. But Jesus answered her prayers and her reborn doll arrived perfectly with both eyes. I always thought she wanted to pull off the actual “miracle via prayer” that these cases sadly never get.)

 

[Allo Vera]

I will not link it here but alobar holoprosencephaly is one of the most horrifying conditions possible for a child to have. It is my go-to argument in favor of abortion when words just don't work anymore

It’s one of those conditions that makes you marvel at just how spectacularly Mother Nature can fuck up.

Ditto harlequin ichthyosis. I know the prognosis for these kids isn’t that terrible (assuming you count disfigurement, chronic pain and the constant need for baths and ointments as “not that terrible”) but the sight of those babies at birth is truly horrifying.

 

[Marshal Mannerheim]

Don’t ask me why she chose HPE.

It means that the baby's bound to die, so she doesn't have to deal with any awkward questions about what happened to the baby.

 

[Android raptor]

https://lovingmollymae.wordpress.com/2021/03/20/introducing/

Here's some brand new deformity blog action. Parents found out their child will live a painful, short life with alobor holoprosencephaly (cyclops baby). Parents decide the correct response to this news is to create a blog and announce that they're going to carry this child's life forward as long as possible. "We are so in love," they say of their tortured monster child. This is one to watch.

Oh fuck, I'm almost excited to see where this one goes. Sounds like the fetus is completely FUBAR. My bet is it doesn't make it to term, 100% chance she forces her living kids to look at it, 50% chance she takes pics and posts them publically. If it is somehow born alive I doubt it'll live more than a few hours.

 

[Bubblez McGee]

https://lovingmollymae.wordpress.com/2021/03/20/introducing/

Here's some brand new deformity blog action. Parents found out their child will live a painful, short life with alobor holoprosencephaly (cyclops baby). Parents decide the correct response to this news is to create a blog and announce that they're going to carry this child's life forward as long as possible. "We are so in love," they say of their tortured monster child. This is one to watch.

I wonder if these parents realize just how horrific Alobar Holoprosencephaly really is. .
From what they've written so far, it sounds like all they know about the condition is what they've been told by the doctor and tech who discovered and diagnosed it, and it sounds like they were trying to be as kind as possible.
They apparently realize it's fatal, but they're writing as if the believe they're going to have a baby with no nose and some other facial anomalies, but that it will still look like a baby. I think they believe their kid might resemble a cute little Voldemort, with at worst, a cleft palate and eyes that are a little too close together. I doubt they've done their own research and have found pictures of what a baby or fetus with the Alobar form of HPE actually looks like.
I understand that if they're extreme pro lifers, then none of that would matter to them in terms of them having an abortion and they'd still insist on carrying the fetus as long as possible, but it's concerning that they might not be prepared to come face to (hardly any) face with the cosmic horror that they're going to be dealing with, especially if this kid gets remotely close to full term.

It’s one of those conditions that makes you marvel at just how spectacularly Mother Nature can fuck up.

Ditto harlequin ichthyosis. I know the prognosis for these kids isn’t that terrible (assuming you count disfigurement, chronic pain and the constant need for baths and ointments as “not that terrible”) but the sight of those babies at birth is truly horrifying.

The fact that harlequin ichthyosis babies can now survive to adulthood shows how far medical science has come. It wasn't that long ago that the condition had a 100 percent fatality rate, usually within a few days after birth. Of course, given how absolutely terrifying and alien the babies with it appear, I dont doubt that a lot of doctors probably figured that the most merciful thing was to let them pass away as quick as possible and it's likely they didn't try all that hard to look for methods that could prolong their lives.

 

[MirnaMinkoff]

It means that the baby's bound to die, so she doesn't have to deal with any awkward questions about what happened to the baby.

Yeah, but if your plan is to use a reborn doll as your “baby” then it’s a very poor choice. There are much better choices, like congenital heart and organ defects that don’t require you produce horrific facial defects to be believable and sell the BS story.

It’s one of those conditions that makes you marvel at just how spectacularly Mother Nature can fuck up.

Ditto harlequin ichthyosis. I know the prognosis for these kids isn’t that terrible (assuming you count disfigurement, chronic pain and the constant need for baths and ointments as “not that terrible”) but the sight of those babies at birth is truly horrifying.

I’m pretty sure photos of newborn harlequin ichthyosis babies helped vanquish any thoughts of motherhood for many women.

 

[Marshal Mannerheim]

There are much better choices, like congenital heart and organ defects that don’t require you produce horrific facial defects to be believable and sell the BS story.

When are munchies ever known for their common sense, though?

 

[booklover]

https://lovingmollymae.wordpress.com/2021/03/20/introducing/

Here's some brand new deformity blog action. Parents found out their child will live a painful, short life with alobor holoprosencephaly (cyclops baby). Parents decide the correct response to this news is to create a blog and announce that they're going to carry this child's life forward as long as possible. "We are so in love," they say of their tortured monster child. This is one to watch.

I have a feeling this baby isn't going to live much longer, and really, that will be a blessing for all involved.

That profile US picture looks like a normal baby per my untrained eyes, BTW.

 

[The Whore of Babylon]

it's probably worth bringing up this post to highlight the type of "miracle babies" christfag speds expect women to selflessly raise (without any help bc das gommynism):

r/confession - I'm putting my extremely profoundly disabled 7 year old into a residential facility so I can forget he exists. I'm not sorry.

50,380 votes and 2,901 comments so far on Reddit

www.reddit.com

 

[John Merston]

it's probably worth bringing up this post to highlight the type of "miracle babies" christfag speds expect women to selflessly raise (without any help bc das gommynism):

r/confession - I'm putting my extremely profoundly disabled 7 year old into a residential facility so I can forget he exists. I'm not sorry.

50,380 votes and 2,901 comments so far on Reddit

www.reddit.com

That post has already been talked about in this thread.

 

[JaneThough]

Did anyone ever identify her?

 

[Bubblez McGee]

Did anyone ever identify her?

I don't think so, at least not that I've ever heard. I'm still not sure if her story was true or not, even though she swore up and down that it was. She claimed that her kid's condition was so rare that if she named it, she'd essentially be doxing herself. I'm somewhat familiar with different genetic conditions, but I didn't know too much about 3p deletion syndrome, the one she said that her son had, so I looked it up and while it's apparently somewhat rare, it's not so unique that it can be used to identify an anonymous internet poster. Also, from what I could see, it's one of those conditions that has a really wide spectrum of severity and I really couldn't find anyone in the literature that seemed to be as severe how she described her kid.

I could still believe that her kid had an especially bad version of the syndrome, but one thing that really didn't make sense to me was that she said she was initially told he had down syndrome when she was pregnant and didn't out the truth until he was born. Yeah, down's kids and 3p babies apparently have some physical similarities, but I would think that if any physical oddities were detected in the ultra sound, her dr would have sent her to have the fetus genetically tested and there's no way that a genetic test would mix up a chromosome deletion with an extra 21st chromosome. So despite all her insistence that she was absolutely telling the truth, I still suspect the story might have been fabricated.

Anyway...sorry, I didn't mean to give such a long response to a simple question...so I've added a more succinct answer below:

No.

 

[allthecheese]

The main thing I found a little hard to believe is that she only had 20 hrs per week of care. She should have more. I've power-leveled in this thread before, but based on what she's saying, she should at least have 40-60 hrs, enough to have a week's worth of day shifts or a week's worth of night shifts. That's the stuff that saves your sanity. That's the stuff that makes you able to spend time with your other kids and go to their activities, and have a somewhat normal life. So either someone has really, REALLY failed her on advocating for getting this stuff, or she lives in an even crappier state than I do for benefits, and I live in one of the lower ones.

 

[Choroid Plexus]

I have a feeling this baby isn't going to live much longer, and really, that will be a blessing for all involved.

That profile US picture looks like a normal baby per my untrained eyes, BTW.

I can see how to the untrained eye it doesn't look so bad, but here's a normal fetal profile for comparison.

NB= nasal bone, Ntip= nasal tip, and lips.


This is the fetus with HPE. The image might not be a perfect midline view of the face, but even so it doesn't look good. There doesn't appear to be a nasal bone, there's a "bump" of soft tissue on the forehead (ST), possibly a proboscis (P), and the lips are poorly defined (L). A proboscis is basically a nubbin of soft tissue and is characteristic of alobar HPE.