Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

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TheBigZee said:
It all needs more research, but it looks like nothing is really rare about the trifecta - hypermobility, pots, and mcas all likely occur in ~10% of the population. The bad news is that food "sensitivities" could be real.
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Well of course they're real lol. I get bored once in a while and try to put together an actual explanation for what's going on and why all these munchies seem like they're rolled out of a factory.

Basically what I've got so far:

1. Factitious Disorder Imposed on Self (aka the politically correct term for Munchausen's) has an extremely high incidence in BPD patients compared to everyone else. At the same time, hEDS patients have a much higher rate of psychatric disorders compared to normal controls.

2. You can get a clinical diagnosis of hEDS if you have benign joint hypermobility, which is actually quite common.

3. EDS (I think this was all EDS, not just hEDS) patients have a higher chance of having an autistic brother compared to the normal adult population. This would be collinear with advanced parental age. Anecdotally, a lot of munchies that get posted in this thread seem to have old, rich parents that seem rather distant.

4. The munchening seems to happen around 17-22 where major life changes are occurring, and a lot of them are failed dancers. (Mysteriously, lots of young women who get into dance have benign joint hypermobility.)

So imagine you're a young woman with BPD and its concomitant fear of abandonment. You realize that the only time your normally distant parents pay attention to you is when you're sick. This gets stuck in your brain, and later in life when you move out of your house to go to college or whatever and feel socially isolated, your brain immediately says "get sick so people pay attention to you."

Luckily, you do actually have something you can get a diagnosis for, which is typically either benign joint hypermobility or POTS, since both are fairly common. Failing that you can just fake a gastroparesis test. None of these conditions are life-ending, but you play them up as much as you possibly can in order to get attention. That's it. That's the pathology, it's based in BPD.
 
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Fission Mailed said:
Oh god I almost forgot about the cat. It's not even expensive to get a cat euthanized. You need to be a monster to do something like that instead of taking it to be treated..

A few years ago I had to get a cat euthanized, and it was $35 for the entire visit and procedure. If you wanted them to dispose of the animal it was an extra $50. That's nothing compared to how absolutely traumatizing it'd be to stomp a cat to death
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putting my rabbit down only cost $60. The bulk of the bill was the emergency visit fee. Wish I didn’t have to do it, I’d rather have my buddy back.
 
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eternal dog mongler said:
2. You can get a clinical diagnosis of hEDS if you have benign joint hypermobility, which is actually quite common.
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It's a good theory about the munchers. It's a little harder than bjh now. The 2017 criteria change blowback was delicious. The spoonie drawer was wailing and gnashing it's teeth with a rattle heard from orbit. Whole armies of middle age women bitching about the significance of fat bubbles on their heels having "nothing to do with eds". The insistence to this day that the foremost international specialists don't understand hEDS. The opiate addicts contemplating losing access to their fun drugs.
 
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FarmerKhourtney said:
Sarah Jean was my favorite in reading through this whole thread. Is she just done munching? I tried looking her up but just found her makeup account on IG.
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She has a new girlfriend and has only been occasionally posting. If this relationship continues I think she might even ‘get better’ so she can continue having fun with her gf.

edit: https://youtu.be/gloDlcotyWM
‘My body said no but I said yes’
 
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TheBigZee said:
It's a good theory about the munchers. It's a little harder than bjh now. The 2017 criteria change blowback was delicious. The spoonie drawer was wailing and gnashing it's teeth with a rattle heard from orbit. Whole armies of middle age women bitching about the significance of fat bubbles on their heels having "nothing to do with eds". The insistence to this day that the foremost international specialists don't understand hEDS. The opiate addicts contemplating losing access to their fun drugs.
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This is murkier territory than you might think at first glance. There are published papers suggesting legitimate criticism over the new nosology, mostly that the line drawn between hEDS and hypermobility spectrum disorders (HSDs) don't have much difference clinically in presentation or management (which in practical terms means that it's annoying and pointless for clinicians. I also raise my eyebrows at some of the things that the EDS Society gets up to). It seems that queen of the EDS Society Lara Bloom is not popular amongst her subjects on the EDS subreddit, there doesn't seem to be much about her here though so it might be stale milk although I do intend to look into her more some time.

sp: clinical research sperging I'm not even convinced I'm right about
My personal sit-back-with-popcorn moment from the above? Finding this back-and-forth between a team of clinical researchers from the EDS Society having a heated discussion via passive-agressive yet politely-worded letters over a paper in the BMJ because the authors dared to insinuate EDS might not be as rare as once thought. Granted I need to look into this much more to come to any sensible conclusion or understanding but if you look at papers like this at all, communications like this are truly bizarre and I've not ever seen anything like it. In the letter the EDS team pick apart the methodology of the authors and when the authors, in good faith, send them a very long and reasoned response and tell them they reject their assertions they start somersaulting into semantics again? It's really weird. It feels like catty one-sided drama but on an academic level. I'm no expert though so I don't know if I'm reading too much into this or not but given that "EDS" patients can be badly behaved is it warranted to explore the society whose board seems to hold a weird monopoly on EDS research in a bit more detail?
One final point is I remember some angry frothing at the mouth from some EDS group, can't remember when or where, over Antonio Bulbena, a psychiatrist who works with the EDS society and proposed the neuroconnective phenotype. I won't even try to start explaining this because it's way above my level but the suggestion by them was that Bulbena was trying to say that it was all psychosomatic (he wasn't). From a munchie-spectator's perspective though this is an interesting suggestion that might begin to go some way to explaining why even so many of those with floppy joints are OTT, badly behaved and have a tendency to munch.
(I edited this like 3 times to figure out the format. sorry I'm new and clueless, please bully me if I can improve this or if it's not relevant to this discussion)
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The EDS society encourages OTT behavior, and maintains a list of doctors that will gladly jump to the most invasive and aggressive treatments possible. The only awareness that needs to be raised this may is about the bullshit they encourage.

The rare or underdiagnosed schmick is mostly a battle between the suuuuper speshial people who are disabled from their eds (actually, they are disabled from hyper agressive treatment of mcas and pots), and the hypermobile spectrum disorder people that want to argue that their fibro and chronic fatigue is under treated medically.

All EDS is highly individual based on what other genes that enhance or mitigate the connective tissue/intercellular matrix issues, or whatever the hell causes hEDS.

Edit: The main types at least, and some of the rare types - Just being male or female makes a huge difference in the course.
 
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In my extremely nonmedical opinion, heds is the garbage can for chronic pain in women in this moment. I think lots of young women have chronic pain and are really annoying to work with so they shove them into an easy "fun" diagnosis and say go away. Like fibro was last decade. I think they should have to submit medical proof of multiple dislocations and family history and not just say they have. That would clear up some of this.
 
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Reddit Refugee said:
sp: clinical research sperging I'm not even convinced I'm right about
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The Bulbena article is incredibly interesting, especially the finding of increased amygdala volume (I'll upload it for people that don't have journal access.)

Unfortunately, the whole conception about psychosomatic illnesses is poison. Patients don't want to be told that everything is in their head, even if it is, and medical education (in the US at least) really downplays the existence of psychosomatic symptoms. You can look at fibro for a good example, since the proposed mechanism behind fibro isn't real, but the symptoms definitely are.
 

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Semserra said:
She has a new girlfriend and has only been occasionally posting. If this relationship continues I think she might even ‘get better’ so she can continue having fun with her gf.

edit: https://youtu.be/gloDlcotyWM
‘My body said no but I said yes’
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"Fell asleep and dropped my beer..."
"She was SO cute!"

Lol! Bitch nodded out from the painkillers and the alcohol.

She does look genuinely happy though. 🍻
 
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