It's getting noticable that that one side bulge is growing again may explain increase in shunt rate. Can't find the post that had a link to the cali trip "friend"
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Second video if you watch her eyes you can see one of those seizures that no longer occurs according to her mother.
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She's cortically blind. What the fuck is the point of manipulating her limbs like that? Even if she did have intentional movement and could understand cause and effect well enough to enjoy knocking things over, as many children her chronological age do, she can't fucking see to do it because her asshole mom was too busy playing with rocks to seek medical attention for her stuck fetus.
Poor Luna. I wonder what other seizure types she's showing without Robyn being aware. In cases of profound brain injury like this, it's not uncommon for people to have multiple distinct kinds of seizure on a regular basis. Also, because she has so little cortex left, I would be shocked if anticonvulsant medications could help her at all at this point.
There's a type of partial seizure called a gelastic seizure, characterized by spontaneous and uncontrollable laughter and smiling or smirking. It can appear that the individual is happy or amused, although they are usually experiencing considerable distress as a result of the event. Just imagine how scary and bad it would feel to laugh without anything being funny and not being able to stop it. With a partial seizure, the person is almost always aware of what's happening but cannot control it. Most patients who can describe the feeling of a gelastic seizure report that it's very scary and unpleasant.
A lot of parents and caregivers who are unfamiliar with this seizure type interpret it initially as the child's condition improving or the beginning of normal developmental progress, but it's as damaging as any other partial seizure. They're more common in very early childhood, and if they go unaddressed, the focus of abnormal electrical activity can spread to other parts of the brain, resulting in other seizure types, including the convulsive tonic-clonic ("grand mal") events that most people associate with the word "seizure". Unfortunately, because they look so innocent, gelastic seizures often go undiagnosed for a long time, especially if the child is nonverbal and can't verbalize their distress. You'll occasionally see parents of these children talking about how their kid seems to laugh without provocation, sometimes appearing to laugh at someone or something no one else can see. I've seen parents describe it as their child "laughing with angels". I could TOTALLY see Robyn bragging about how in tune Luna is with the vibration of the spheres or whatever and how much she loves to giggle at cosmic jokes only a budding Empath can hear.
Everyone is rightly froke out by tonic-clonic seizures, because they look so awful, but gelastic seizures give a parent fleeting hope, only to destroy it by twisting something as innocent as a baby's laughter into something disgusting. Can you imagine knowing that your kid's laughter was a sign of a malfunctioning brain? Fucking grim.
(For the curious, yes, there is a related seizure type that is characterized by uncontrollable and unprovoked crying or grimacing. They're called dacrystic seizures and, like their gelastic counterparts, they are caused by dysfunction of the hypothalamus. The hypothalamus is a structure deep in the forebrain that regulates basic functions of the autonomic nervous system, including body temperature, hunger and thirst cues, sleeping and wakefulness, and response to fear stimulus. This probably goes without saying, but the hypothalamus is not a part of your brain you want to be fucked up. Having a seizure with a hypothalamic focus is a really bad sign.)
Poor Luna.
