I can safely say this is the first time I've seen a baby without any eyes at all. Doesn't appear to have a neck either, and it's fingers/hands look deformed, though it's hard to tell due to poor lighting in a hundred year old photo. But the pinky on the left hand looks like a stub and the right hand appears to be a fingerless stump.
let's hope they don't have another kid. look at how they lived with this one, they're not fit to raise a normal human being. it's manic.
Here's a memorial video from a baby that didn't have eyes, either.
www.youtube.com
I'm frankly horrified watching the angry baby video. That poor being is miserable and I can see his suffering. I couldn't carry the child to term willingly.Here's some of the latest video's from Ember Torres and her holoprosencephaly baby Derek.
The link below shows sprawled on his proud papa's lap while mama giggles about him playing with a toy. Using his hands to grip things and making repetitive motions with his arms are really all he seems to be able to do, but those are close enough to the actions of a normal baby that his mom is convinced he's using conscious reasoning to actually interact with the world around him.
Here, his mom wants to show you that he's able to get mad
Ember Torres (mom of Derek) on TikTok
Fun times chillin in dads lap. #momsoftiktok #lovemyson #proudmom #HPE #babiesoftiktok #everyonedeserveslove #chunkylilbaby #ourmiraclewww.tiktok.com
And here she expresses some anger herself because "this idiot" was telling her about her kid and they don't even know him like she knows him and she was "not having a good night so this was not the time to get into it" with her.
Ember Torres (mom of Derek) on TikTok
Clean face = mad baby 😁 #lovemyson #momsoftiktok #chunkylilbaby #proudmom #HPE #babiesoftiktok #cleanface #everyonedeservesachance
Parents like her kill me. She puts her severely deformed, profoundly brain damaged kid online for all the world to see, then acts surprised and offended by negative comments. She can claim she's just a mom who loves her kid, but I'm pretty sure he didn't ask to be in her videos and he gets no benefit out of them. She posts because she wants attention and she knows she'll get it when she includes her semicyclops potato baby in her vids. Don't get me wrong. I find medical aberrations fascinating, so if she wants to keep posting these videos, I'll keep watching, but I'm just saying she knew exactly what was going to happen if she showed this kid off to the world, but she chose to do so anyway, so no one is buying her offended, protective mother lion act.
Finally, the video below show's Derek "passed out."...Soo precious...not at all like a Lovecraftian nightmare.
Ember Torres (mom of Derek) on TikTok
You can’t tell rn but he’s passed out 😂 #lovemyson #HPE #momsoftiktok #chunkylilbaby #proudmom #everyonedeserveslove #everyonedeservesachance
I'd also love to go to the Mutter museum one day. The videos I've seen of it are really interesting, but I'm sure they don't compare to seeing the exhibits up close and in person.
It does seem to have some cephalic condition and aspects of its cranio-facial development appear to be similar to a baby with alobar holoprosencephaly(HPE), but it has so many other deformities and anomalies, I can't tell for sure what it is. I know that HPE can affect other systems in the body, such as the endocrine system, so that might be the case with this kid. I know that Derek, the HPE baby I mention above, also has a lot of deformities and weird features that I don't recall seeing in other HPE babies, so the condition appears to have a lot of variation.
As far as Mollymae, She lived for three days and died, so I can't imagine that there will be many more updates about her.
Another Holoprosencephaly baby. For such a rare condition, we sure seem to find a lot of them.Here's a memorial video from a baby that didn't have eyes, either.
The Celebration of Kara Faith Palmer
This video presentation of Kara Faith was presented at her Celebration Service on Tuesday, March 2, 2010. Kara Faith went to the loving arms of her Heavenly...
He appears to be very developmentally disabled, yet his reactions indicate that he's not totally lacking in consciousness. He seems to be capable of feeling pain and discomfort. He's in that hellish middle ground where he's brain damaged enough to have a myriad of problems, yet not so damaged that he can't suffer because of them.
he's tough as all get out. damn
Oh jfc. Behind the Cronenberg body horror surface he’s such a sweet, bright and charming boy. Considering he has no lips and such a fucked up jaw he’s absolutely mastered speaking clearly in two languages. I hope life brings him good things, he deserves it.
his nasal passages being open just means he's likely to have an impaired sense of smell, and be more prone to sinus infection (less protective membranes and hairs to catch bacteria). I think he's waiting on his eyes to see if the surgical technique improve to give him a better chance at full vision.Would there be any issues with having the nasal cavity exposed?
He talks about eye surgery and wanting to wait. How would that possibly impact his quality of life as well as other surgery he may face in the future?
His outlook is great. I wish him the best.
Hell yeah, as fucked as his face is this kid is the shit. Its great to hear he's still doing well and I hope he continues to succeed.
Oh, it's real. Hot takes like that are common among people who have given infants and toddlers multiple brain injuries.
It's okay if you can't answer this, but I'm intrigued. Was it an angiosarcoma? What was the tumor like histologically?
I've seen him elsewhere. I can't figure out how he's even alive.
It's so surreal to hear that clear and normal voice to that severely messed up face. What a trooper though, it really is amazing just to have survived that, let alone being able to still get so much out of life afterwards.
