🤝 Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

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It's been awhile since I checked up on "gods brave little warrior Silas" and sure enough, he's still kicking. Well, not kicking but he's still breathing. They're talking about doing a thymus transplant, and to me , it's seems to be a sketchy sign when only one medical place does it. I sure wouldn't want to be doing it if I was a doctor, I'd rather do it on a child with a normal rate of recovery, rather than not be able to show any signs whatsoever.

He made it to six months, and his head is slowly forming a heart shape. Soon him and Luna can have mental playdates.
The only cases of this I can find are for complete DiGeorge Syndrome where they are born with no thymus at all.

https://www.sciencedaily.com/releases/2004/08/040804083624.htm
 
It's so surreal to hear that clear and normal voice to that severely messed up face. What a trooper though, it really is amazing just to have survived that, let alone being able to still get so much out of life afterwards.
I’m betting there’s surgeons who’re studying how to fix his jaw. Are they going to break it, or are they going to go with a full replacement of it? I’d be worried about the muscles, but giving him the ability to close and open a jaw would be an immense help for him I feel. It might be a bit tricky to speak for a while for him though. My guess is the reconstruction surgeries are waiting until he’s stopped physically growing.
 
It's okay if you can't answer this, but I'm intrigued. Was it an angiosarcoma? What was the tumor like histologically?

People think DS is all smiling tards and it is not. My childhood acquaintance (of "I'm not retarded, I have Down syndrome, asshole!" fame) is very high functioning and lived in fear of developing dementia. It's really sad, because her family couldn't exactly lie to her and say it wouldn't happen, because she knew it could. There's no way to know if it will happen to her, and if it does, she understands what will happen. It's terrible.
Yes it was. It had grown enough to disrupt the valves, from the R atrium. It was very solid, more so than the heart muscle in rigor. Irregular boundaries and deformation of the chordae.

The girl apparently was high functioning- she was well groomed and had been at the hospital for some time, I think they were attempting some treatment. There was a previous surgery with scars on the heart apparent but it failed to remove the entirety of the cancer or stop its growth. I don't think they place DS people on the transplant list, but I could be incorrect.

It was a truly bizarre thing to see.
 
I'm new to this thread. Can anyone give me some main players? I tried looking through but got kind of bored of all the medical talk.
 
Yes it was. It had grown enough to disrupt the valves, from the R atrium. It was very solid, more so than the heart muscle in rigor. Irregular boundaries and deformation of the chordae.

The girl apparently was high functioning- she was well groomed and had been at the hospital for some time, I think they were attempting some treatment. There was a previous surgery with scars on the heart apparent but it failed to remove the entirety of the cancer or stop its growth. I don't think they place DS people on the transplant list, but I could be incorrect.

It was a truly bizarre thing to see.
I have definitely heard of people with DS, and other mental disabilities, getting organ transplants, BUT like "normal" people, they have to have stable housing, a support network, and understand what's happening to them.
 
I’m betting there’s surgeons who’re studying how to fix his jaw. Are they going to break it, or are they going to go with a full replacement of it? I’d be worried about the muscles, but giving him the ability to close and open a jaw would be an immense help for him I feel. It might be a bit tricky to speak for a while for him though. My guess is the reconstruction surgeries are waiting until he’s stopped physically growing.
That and he might be iffy to try anything to risky/extreme. I'd imagine for a lot of people with severe deformities who are always gonna look fucked, your main priority would be on keeping at least the functionality you have and trying to enjoy life.
 
Yes it was. It had grown enough to disrupt the valves, from the R atrium. It was very solid, more so than the heart muscle in rigor. Irregular boundaries and deformation of the chordae.

The girl apparently was high functioning- she was well groomed and had been at the hospital for some time, I think they were attempting some treatment. There was a previous surgery with scars on the heart apparent but it failed to remove the entirety of the cancer or stop its growth. I don't think they place DS people on the transplant list, but I could be incorrect.

It was a truly bizarre thing to see.

Is that because they are less likely to adhere to post transplant medicine like prograf/tracolimus?
 
I'm new to this thread. Can anyone give me some main players? I tried looking through but got kind of bored of all the medical talk.
There really aren’t any here. But if you want to read about a specific person, check out the Empathic Nutritionist thread, also in Beauty Parlor, which is a spinoff from this thread.
Also I would recommend the now-closed-because-she-died Jahi McMath thread, and likewise the Hartley Hooligans one.
 
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I’m mad at his parents. Who leaves a lit candle unattended around a sleeping toddler? That’s what happened to him, his blanket caught on fire.

I know it’s come up before in this thread the wards full of brain damaged kids from shaken baby syndrome, but I’ve also seen some takes out there in the wider world lately that shaken baby syndrome isn’t real. Thoughts?
Not to Sperg but it's very real. It happens way too much.
 
I’m mad at his parents. Who leaves a lit candle unattended around a sleeping toddler? That’s what happened to him, his blanket caught on fire.

I know it’s come up before in this thread the wards full of brain damaged kids from shaken baby syndrome, but I’ve also seen some takes out there in the wider world lately that shaken baby syndrome isn’t real. Thoughts?

A lot of Kiwi Farms users are proof of Shaken Baby Syndrome.
 
I posted this a while back, and somehow it disappeared, but here goes: Most people don't realize that organ transplant recipients often remain chronically ill, just in a different way than they were before. They are very prone to infections of all kinds, and certain types of cancer, on top of the "visible" side effects of the anti-rejection meds. I've definitely heard of people who were approved for a transplant, and asked to be taken off the list because they didn't feel it was worth it.
 
This dude came up a few years ago when facebook deleted posts cause of how he looked.
SBSK did another interview with him now that hes 18.

Spoiled because last time he made people actually sick in this thread to look at him:
He's really a special young man. What a positive attitude for all he's been through.
 
He's really a special young man. What a positive attitude for all he's been through.
He really does seem like a great guy and although I'm sure he doesn't want pity, I can't help feeling bad for him. I admire that he's able to have such a positive attitude, but it's still sad that his physical form has been so devastated. While it would be great if appearance didn't matter and it probably shouldn't matter, especially when someone is as kind and intelligent as this young man is, unfortunately looks do make a difference in how humans react to one another. Even when you realize on an intellectual level that he's just a normal person who just happens to have been in a very bad accident, on a visceral, instinctual level, it's all but impossible to totally ignore his horrific disfigurement.

What's strange for me is that I probably could get past almost all of it, but I admit that if I was in the same room with him, the one thing I don't think I could handle is the constant drooling. It might sound like such a minor issue, especially in light of everything else..hell, even babies drool, so it shouldn't be a big deal, but there's just something about seeing drool, spit, saliva, etc., that just makes me sick to my stomach.

I still wish him the best and I hope he's able to live a happy, fulfilling life.
 
Jeez, I remember reading about Jahi when she finally died-died and her mom couldn't leech off of the state anymore. Mama Nails was as sick as a grifter can be.

I feel bad for kids that are born like this. They probably shouldn't be alive, but their parents don't want to let go and don't care about who gets hurt in the process.
 
This dude came up a few years ago when facebook deleted posts cause of how he looked.
SBSK did another interview with him now that hes 18.

Spoiled because last time he made people actually sick in this thread to look at him:
I always felt so so bad for this kid. Hearing his old interview about wanting friends and stuff broke my heart.
 
I posted this a while back, and somehow it disappeared, but here goes: Most people don't realize that organ transplant recipients often remain chronically ill, just in a different way than they were before. They are very prone to infections of all kinds, and certain types of cancer, on top of the "visible" side effects of the anti-rejection meds. I've definitely heard of people who were approved for a transplant, and asked to be taken off the list because they didn't feel it was worth it.
I'll also add that transplants don't last forever, either. Their "shelf life" is pretty short so even if you make it through the infections and illnesses caused by the anti-rejection meds, you'll still need a brand new transplant after a while anyways.
 
It's not uncommon for a person to refuse re-transplantation, because while they were glad to have the first one, they really don't want to go through that again.

My cousin had a transplant in the late 00s, with his then 68-year-old father being the donor, and in the meantime, he's had a rare type of lymphona that only occurs in immune-compromised people. There's also been talk about re-transplanting him should that now 80-year-old kidney fail (my uncle is still in good health) but I haven't heard anything more about it.

He inherited a disease that killed his mother, and possibly his grandfather too; IDK if either of his kids have it themselves. Don't know what it's called, but I do remember that she was briefly placed on the transplant list, and taken off when they decided that her overall health was too poor for her to benefit from a transplant, and she died shortly afterwards.

Once in a while, there's a patient who beats the odds and lives way longer, with fewer complications, than anyone expects. I've even heard of people who did not get an identical-twin transplant who were able to go off meds, and in these cases, it's believed that stem cells in the transplanted organ may have engrafted in their bone marrow, and tricked their immune system into thinking that the organ is really "theirs." Research is being done regarding this.
 
A lot of Kiwi Farms users are proof of Shaken Baby Syndrome.
There is a girl who is featured on another forum here who is in denial about her kid having delays.
We suspect she was shaken.

Sadly Jahi wasn't born that way. She was obese, had major tonsil/nasal surgery and her brain dead family snuck a cheeseburger into recovery to her,which opened her sutures and made her bleed out which killed her.
 
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