🤝 Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[Fireman Sam]

What is wsg?

4chan board for 'worksafe gifs'.
Sometimes there's some interesting stuff there, their 'non worksafe' gif board is just full of porn however.

 

[TheCakeIsALie]

There's a think piece from yesterday's Economist that uses Tinslee Lewis as a hook. I don't think there's much here we didn't know, but the 'these people are dead and everyone knows it but here are the issues' perspective struck me as interestingly... European like.

Article here but paywalled
Read archive here

I can understand as a parent wanting hope your kid would get better and that doctors can be wrong, but not with brain death (plus multiple docs said the same thing) This isnt like a broken bone or vegetative state even. And Mama Nails dragged it in for wayyyy too long. Tinslee isnt brain dead I dont think but obviously cannot function and is hopeless like Jahi.

 

[Treasure Champs]

Tinslee isnt brain dead I dont think but obviously cannot function and is hopeless like Jahi.

I wish she were brain dead. The story wouldn't be half as horrifying if she were. Dead is just... dead. It doesn't matter how long the lawsuits wind through the courts if you're dead. The really heartbreaking thing is that Tinslee is in constant pain and her stupid shit of a mother is too dumb to comprehend that she has doomed her daughter to a hell-like existence of nothing but suffering. Something you wouldn't wish on your worst enemy, let alone someone you claim to love.

She is a tiny child and all she has ever known in this world is pain.

I don't know, every time I see something shitty like that poor man who is in jail in Tranada because he didn't want his daughter shot up with cross sex hormones that would render her infertile and give her cancer, I think, I'm really supportive of parental rights. Fuck the interfering state.

Then I think about Tinslee and I'm like, god some parents wreak some really awful shit on their kids, I wish the state would interfere.

 

[Thomas Eugene Paris]

"'The life she has may not be a life we would want for our children, but we don’t get to make that decision,' says John Seago, legislative director of Texas Right to Life. 'The hospital is making a moral decision. She is alive, that means the care is not futile.' He says the Texas law gives hospitals too much power."


This is so incredibly fucked up.

 

[booklover]

That makes me wonder what daddy did to the kids and if his severely disabled brood by marriage will be the next target.

The potato looked like a potato even in the earliest pics. The girls look fairly normal

There's also another daughter who was born a few years after. You never really hear about her. I guess she didn't bring in any publicity. I'd call her the lucky one honestly.

Yes, Drew was their surprise 7th child. She weighed more at birth than her 6 older siblings put together.

Another sextuplet, John, the first born, is also severely disabled, and one of the other boys has mild cerebral palsy although AFAIK he does go to regular school.

What a person DOESN'T do to their children can also be just as destructive as what they DO do.

"'The life she has may not be a life we would want for our children, but we don’t get to make that decision,' says John Seago, legislative director of Texas Right to Life. 'The hospital is making a moral decision. She is alive, that means the care is not futile.' He says the Texas law gives hospitals too much power."


This is so incredibly fucked up.

The hospital is NOT "making a moral decision." Hospitals don't make decisions; patients or their guardians do.

 

[yasscat]

"'The life she has may not be a life we would want for our children, but we don’t get to make that decision,' says John Seago, legislative director of Texas Right to Life. 'The hospital is making a moral decision. She is alive, that means the care is not futile.' He says the Texas law gives hospitals too much power."


This is so incredibly fucked up.

This makes me IRL mati.

 

[vanilla_pepsi_head]

This makes me IRL mati.

Notice how that callous fuck completely declines to address quality of life, which should damn well be the main consideration because without that, what is the value in longevity for its own sake? It's pointless, it's cruel, and most times it affords the patient no fucking dignity whatsoever. For all that people argue about continuing aggressive medical treatment in the long-term for others when their quality of life is completely zilch, I've never, not once, heard anyone express that they themselves would like to spend years on end in a bed drooling, tubes in every orifice, unable to meaningfully interact with the world in any way except feeling pain, no privacy, no dignity, can't even eat or shit without machines and nurses to do it for you, looking almost unrecognizable. It's an appalling waste of resources on top of everything else, and for health care workers assigned with wasting half their day resuscitating or disimpacting feces from a fucking sack of meat that can't even benefit enough to make it feel worth it probably contributes a great deal to compassion fatigue and burnout.

That said I do get why some people strongly believe the government can fuck right off and keep their noses out of peoples' health care decisions, hell I completely agree. But I don't think doctors should be forced to prolong life in cases where they feel it's so cruel and futile to be morally unconscionable. At that point you're not acting in the patient's best interest as is your duty, you're acting to protect the feelings of a third party who refuses to face their denial. If this very thread doesn't hammer home the point that there are many things far worse than being dead, I don't know what does.

 

[LonesomeDud]

"'The life she has may not be a life we would want for our children, but we don’t get to make that decision,' says John Seago, legislative director of Texas Right to Life. 'The hospital is making a moral decision. She is alive, that means the care is not futile.' He says the Texas law gives hospitals too much power."


This is so incredibly fucked up.

I had a really good conversation recently with someone about technology and medicine outpacing morality. Forcing continued living because we don't have total brain death in some cases just doesn't make much sense. I wonder why some Right to Life people like this are so scared of death. No one should fear death for their loved one at that point.

 

[NotYourMom]

I wonder why some Right to Life people like this are so scared of death. No one should fear death for their loved one at that point.

I think a lot of folks like that are scared of death because what if the person dies and isn’t saved and doesn’t go to heaven?

I also think there may be a portion of them feel that there isn’t such a thing as heaven and that death is final but this isn’t something people in Christian right to life circles ever mention.

 

[Catmannjew]

I had a really good conversation recently with someone about technology and medicine outpacing morality. Forcing continued living because we don't have total brain death in some cases just doesn't make much sense. I wonder why some Right to Life people like this are so scared of death. No one should fear death for their loved one at that point.

It is very selfish in a lot of cases. For Tinslee it is political, which is even sadder.

 

[LonesomeDud]

I think a lot of folks like that are scared of death because what if the person dies and isn’t saved and doesn’t go to heaven?

I also think there may be a portion of them feel that there isn’t such a thing as heaven and that death is final but this isn’t something people in Christian right to life circles ever mention.

I personally believe in God's promises to us, so it's always interesting to talk to people who are against allowing for natural death in any case. Your child will be hurt from life support, almost certainly in an enduring way. I don't think people want to consider that. I can even understand saying you want meds only or something for a little child, but compressions and shocks are so intense. If I had a child, I'd have a hard time saying no to bicarb/epi/amio pushes to try to save them.

 

[John Merston]

"'The life she has may not be a life we would want for our children, but we don’t get to make that decision,' says John Seago, legislative director of Texas Right to Life. 'The hospital is making a moral decision. She is alive, that means the care is not futile.' He says the Texas law gives hospitals too much power."


This is so incredibly fucked up.

I'm pretty sure they'd decide to let her die if you told them she has a high chance of dying from COVID.

 

[Android raptor]

I had a really good conversation recently with someone about technology and medicine outpacing morality. Forcing continued living because we don't have total brain death in some cases just doesn't make much sense. I wonder why some Right to Life people like this are so scared of death. No one should fear death for their loved one at that point.

Definitely, I know Karen-Ann Quilin's parents were devout Catholics and I've always heard that was part of why they thought it wasnt right to use extraordinary means to prolong their severely brain damaged daughters life. Even if you don't like abortion, it doesn't make sense to think doctors should be forced to prolong the lives of terminally ill babies who are suffering.

I don't neccesarily agree with the gov getting involved either, but I think when multiple drs have confirmed palliative care only is best that should be the end of it. Tinlee should have been allowed to pass years ago.

 

[Everything Beagle]

@A Detachable Penis the one you are unsure of looks like Cornelia de Lange to me.

Genetic disorders are terrifying. When Down Syndrome is the "good" one, you know you're fucked. The worst, in my humble opinion, is Lesch-Nyhan Syndrome:

Here's a fantastic - although old - article about what people with Lesch-Nyhan live with.
An Error in the Code

 

[Bubblez McGee]

Latest Tik Tok video of little Derek, the HPE baby, posted by his proud mom Ember Torres. I'm not 100 percent sure of the point she was trying to make with this one. That he can make sounds and/or "talk" through his trach? That he's responsive and not profoundly brain damaged? That he's not suffering, but is in fact a really happy baby? I don't know, but its...just I mean the sounds he makes are...I don't know how to describe them...I'm sort of reminded of trailer from a 1970s horror movie called "It's Alive", where a cooing baby sound is morphed and distorted to sound like a screeching monster...Although poor Derek doesn't actually have the strength to screech, so that's not really accurate...anyway...click at your own risk:

Spoiler

https://www.tiktok.com/@embertorres...15526?lang=en&is_copy_url=1&is_from_webapp=v1

 

[Everything Beagle]

Entirely accurate. I spent my teenage years in a conservative evangelical church, and a bunch of the kids I knew went off the rails as soon as they graduated high school and got out into the real world, and I saw even more of that when I was in college.

On the other side of things - when my sisters and I were teens (70's) our parents let us listen to the Rolling Stones complete with dirty lyrics, read the nastiest books, and pretty much consume whatever media we could get hold of. Mom told off a librarian who wouldn't let me check out a book on Satanism.

We were the only girls on the block who didn't get pregnant.

 

[booklover]

I've lived in Florida for nearly my whole life and I agree.

I'm back working for my county's public health department and we recently launched an ad campaign asking patients to make sure their doctors actually have a license to practice medicine and we're getting an alarming amount of pushback.

I should have just become a fucking Reiki master

I've heard that Florida is something of a haven for doctors who are not licensed, or are marginally competent.

 

[Everything Beagle]

I've lived in Florida for nearly my whole life and I agree.

I'm back working for my county's public health department and we recently launched an ad campaign asking patients to make sure their doctors actually have a license to practice medicine and we're getting an alarming amount of pushback.

I live here too and all the stereotypes are true. Good lord.

I should have just become a fucking Reiki master

I still think Reiki masters should be required to wear Jedi robes and levitate.

 

[Catmannjew]

Latest Tik Tok video of little Derek, the HPE baby,

This video gives you such a great look at Derek, and the issues he has. The angle is starts off is cronenberg-esque.

Her fighting in the comments is getting very old. But this video again, gets all the prolife asspats.

 

[TheCakeIsALie]

@A Detachable Penis the one you are unsure of looks like Cornelia de Lange to me.

Genetic disorders are terrifying. When Down Syndrome is the "good" one, you know you're fucked. The worst, in my humble opinion, is Lesch-Nyhan Syndrome:

Who said DS is a "good" genetic syndrome? Have you forgotten cystic fibrosis? It is serious and it is genetic but it is hell of a lot better than DS. New breakthroughs mean longer lives. My friend who is old for a cfer (40s) was able to quit his oxygen thanks to trikafta and maintain his pfts so he still has his original windbags. Sure he has cfrld and cf diabetes but he works full time still.