Around The Dinner Table (ATDT) forums - Parents who think they're better at treating their child's eating disorder than actual doctors

  • 🔧 At about Midnight EST I am going to completely fuck up the site trying to fix something.
Found some shitty parenting from the opposite end of the scale (no pun intended):
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Parents should really leave dealing with this shit to the professionals.
 
Well the professionals often want them to help. In the UK the first line of treatment is parental refeeding - much better results, less of a revolving door of hospital admission, and well above a 50% success rate in the under 18s, providing its caught within 2 years.

- If your child is over 18, has an entrenched illness perhaps look elsewhere :)
 
Okay. rewriting. And sorry above poster. That read too mean. I wasn't trying to attack.

Only bother reading if you want a rambling exploration of the topic and that aspects of it that are relent to what looks nuts to those not involved.

So about 50% of eating disorders are by twin study experiments genetic.
If you have a twin and she gets anorexia there is a 50% chance you will too, even if your environmental influences are entirely alien to hers.
- so parents may cause eating disorders sometimes but eating disorders are not directly the result of any external influence but a load gentics gun. Esp anorexia.

Abuse is minimal in anorexia - about 20%, of which not more than 10% is located within the family unit, and so its not about families. Once it gets going its not really about anything.
And parental involvement is not exactly a piece of cake. Its a lot of continuous effort and it is quite an insane making job.

Regarding causation
The general sensible and accepted opinion is that
- " the working theory as to how eating disorders develop is that genes and environment work together to influence risk—like a “perfect storm.” Just the particular genetic predisposition put in just the particular environment at a particular point in development can set the stage for an eating disorder."

Parents are not doing this to avoid outside help. Often they are desperate for it. In the UK the NHS system means people who are literally emaciated are put on 6 month waiting lists. Its actually better with children as they are allocated more funding but many parents don't have the option of decent medical back up, and are at the mercy of GP's who took a weekend module on the subject 20 years ago. I mean seriously.

J
ust cuz you dont get it dont mean it dont work. And for parents, well, if your child is sick you cant really know to much, and Dr vos would you really leave this to a doctor, if it was your kid? Cause I'd want to be in the best position to help possible,

-
The number one most necessary aspect of recovery is eating sufficiently returning the body to a healthy weight and maintaing whilst learning to deal with life without limiting food in take. This is acrosss treatment methods. The main point of psychotherapy is, as in motivation interviewing, inspiring efforts to do this and helping them manage psychologically but its really fucking hard because it feels horrendous. Like you taken too many uppers and your skin is crawling. But all the time and when not high. People with anorexia are ofter treated with antipsychotics to help them deal, its that rough.

Lets look at the alternative to forcing your child to eat, and the mainstay of the past 50 years of eating disorder treatment so with well documented results.

- as mentioned without external support this takes about 7 years to manage in those that make it.
- 10-20% will die, either directly from starvation or suicide.
- 30% remain chronically ill indefinitely

I know forcing someone with an eating disorder to eat looks like it ought to be destructive. I know that for you or I, to be forced to eat would only make our relationship with food worse. Eating is a personal thing, and to rob that independence of someone seems coercive, undermining, and unlikely to be of long term assistance.

I know, But for a Second - Suspend Your Disbelief.

Recovery from anorexia is an alternative reality.

Your child has lost a worrying amount of weight, is withdrawn, has lost her hobbies, her friends, and is spending every waking hour exercising. She cooks all the time, and talks about food obsessively but when it comes to eating she has only a fixed and diminishing range of food choices. Shes stopped eating dinner with the rest of the family. The doctors say her heart rate is dangerously low. She has the symptoms of hypothermia. Shes terribly anxious but otherwise listless and her spark has gone. And utterly terrifying to you, its clear its getting worse and shes shrinking before your eyes
she doesnt engage with the therapy you get her to attend. The torture of this for 7 years whilst trying to work out how you fucked up, if you didn't, would be excruciating and not helpful in promoting change.

if left in the care of doctors there is a 40% chance she will loose her life either through being two ill to have one or dying because she is too physically ill or not mentally able to survive the illness. one way or another is almost sure to loose the next 7 or so years of her life even if she recovers independently of you in the end.

- so in a best case scenario even if she recovers she will sacrifice her teenage years, her bone health, her education, her independence and her friends.(And when she gets well, she's lost bone mass, heart health and size, and digestive functioning for a long time after. She might still end up in a wheel chair a 60 due osteoporosis) But hey, 60 % chance she will have something of a life. This will tear both your home and your mental wellbeing apart as you watch her and will for her to manage alone but cycle through failed treatment options (that you play no part in) , take her to hospital when shes sick enough to be sectioned, watch her try to eat enough after release but be unable to manage the horrendous anxiety and return to loosing weight. Self harm, and emotional dysfunction. All the time watching from the sidelines, unable to help, because the doctors have "given her a meal plan" and she swears she's eating what it prescribes, although it is obvious from both the meal sizes, and the weight loss she tries to hide that she is failing, and its heartbreaking and terrifying, but you have been told by every medical professional you ask that theres Nothing you can do except put more efforts into fixing perceived family dysfunctions,

The doctors are trying to fix the eating disorder by fixing family relations, but this doesn't work. As one doctors notes its common for medical professionals get the:
" cause and effect backwards: (the only way) to make my family work better, we needed to tackle the eating disorder first."

But the intuitions you guys have are present too, so there is dispute. The conceptual understanding of the issue is far from singular or undisputed. But the 'food is first' model is often taken quite simplistically by parents simply because the situation is an awful lot more complicated than they are able to work out clearly initially. But confidence is key, and a singular message (and, yes, obsessiveness) allows this better than 'its family dynamics and fear of loss of control/growing up/failure. -> one message and understanding enables effective action, and they are is divide and conquer.

so food is the number one priority. And leaving it to the doctors wont make it get eaten

in a different treatment model, highly alien from the first. In this you abandon the role of watching from the sidelines and instead do the effort for your child. Instead of watching her try and fail to do what she is too sick to do, you take away the reigns and manage recovery for her. This means doing what is required for her to regain mental and physical health. It means making her gain weight. This is both horrendously distressing and time consuming. She takes 2 hours to eat a meal. She hides food. She chucks food. But shes safe and in time, she is likely to learn to manage. But to get her to that point may require eating a lot more calories than is usual. The reason the parents on the site talk so much about food is because so much of it is needed and its so hard to get an anorexic to eat it. Its not uncommon for patients to burn calories very fast after being underweight for a prolonged period and many doctors don't know everything I have sighted above, and assume, like you, its about parents being too interfering. Not to mention we live in an utterly fat phobic society in which healhty eating is way over hyped so doctors tend to be overly fearful of high fat high calorie diets (which are without a doubt necessary to gain weight and health) and there is evidence that people predisposed to anorexia require more food to remain a healthy weight after recovery for about a year. (again not common knowledge)

Imagine that having someone tell your daughter to eat healthily sends her into a tail spin in which she has a meltdown panic attacks, assuming this means shes eating too much and is greedy and needs to restrict. She utterly freaks out and won't eat what she needs or the foods that allow her to eat enough to regain health as these high fat and she feels to horrendous.

You are going to want to make them stick to the script = this is what you need. Eventually that singular repeated message and action will get the kid well, not all the time, but at least half. Individual therapy relies on the motivation of someone with a starved brain, often in the middle of adolescence and torn about recovery and their motivation for it. Just eat relies on nothing more than repetition. Perhaps its the sanity preserving element of the singular message that makes it so ott. Perhaps its because it takes so much energy to match the 'just DONT eat' of their child this is the only way they can over power their obsession. I dont know, but it works. eventually.

That is the fruit of love and hardship not abuse and dysfunction.


"An eating disorder is a phenomenally stressful illness. Every meal brings arguments and worries. Is my child going to eat? Are they going to run to the bathroom to purge after? Will they exercise it off? The person with the eating disorder is anxious and depressed, they feel compelled to engage in behaviors, yet embarrassed of their symptoms."

- again simple message keeps you sane?
I do agree its a bit too likely to not fully take into account other aspects of the situation, but it
seems to just be very easy to grasp for very confused parents. And yes some go overboard, some a re paranoid and traumatised for years after, which results in overboard. But the situation itself - having a kid literally on deaths door because they won't eat leads to overboard reactions re food for a long time. I had an eating disorder 10 years ago and if my mother lets slip she's not eating wheat for her digestive issues she becomes anxious she's affected me. I couldn't give a toss but she got freaked out majorly


Lets say 10% of anorexic parents abuse their kids. I'd doubt 3% were stalking that forum.

I don't see why you you assume that those parents who and join online forums and ask questions and obsess about how much their children are eating and spend endless hours sitting at the dinner table are likely to be the abusive ones?
The assumption that this is motivated by something malicious and not of care is odd because it takes so much effort.

"making someone eat" is consuming. Ha. It Involves a) putting food on the table b) repeating the need to eat and stopping them leaving the eating area or following with the food if they do c)avoiding engagement with the random anorexic talk they are spewing and keeping calm. Repeating mantras. c) encouraging their efforts d) waiting for about 1 - 2 hours to eat a single meal. Its not uncommon for breakfast to run into lunch lunch dinner and so forth e) keeping them from engaging in activities to counter act eating for an hour or two afterwards f) repeat.
And stubborn determination throughout.
- the reason the control myth grew is because anorexics are fucking hard to control on food!
For Two Fucking Years.
Or more.

I dont think much other than devotion to wellbeing would keep ya going. And abusive behaviour leads to failure. Shouting or hitting will not result in meals being eaten. Its not fear of punishment which allows anorexics to eat but the removal of alternatives and consequentially the anxiety of not persuing them. making health required, not optional in those who cant decide to be well. You make not eating properly not an option and over time this allows the patient to accept recovery, though not desire it in most cases. They will still resist food, but passively, and they will eat, and their personality will begin to gradually reappear. To maintain this you may have to manage their meals for a long time after they're a healthy weight. They need to relearn how to do this and that takes time and motivation which means you need to wait for their anxiety and anguish to dissipate. But its a shit load quicker and less risky than leaving them to DIY and wait and see...

Please don't criticise what you can't understand.

And if you are in this position: Research.
Knowledge is power,
And get medical help. Get medical help that sights studies and effectiveness and doctors that Know Their Fucking Shit.

Don't follow the advice of people who are working on the data of the 1980s, or what they absorb from the media. Know your shit and find others who do to.


If you want to have some actual information to base your judgements upon, here ya go .


http://evamusby.co.uk/ (advice on how to refeed well. Calm. The key is Calm)
https://uncexchanges.org/2016/10/31...ders-part-2-the-genetics-of-eating-disorders/ (why its not your fault, regardless of if you are ill or your child is)
https://www.graceonthemoon.com/ (if you are an adult with an eating disorder)
https://www.aroundthedinnertable.org/file?id=3244506 (for good clinical support in face to face on how to do this right)
Simple 2 minute read covering the relationship between parental behaviour and childrens illnesses:
https://www.psychologytoday.com/blo...ionship-between-families-and-eating-disorders
https://www.kartiniclinic.com/blog/ (Julie O'tool - top eating disorder doctor you can trust)
 
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you have a hunch? Do you imagine?

You don't have a clue.

"Does anyone have experience with breaking food rituals? What did you do? Should I focus on increasing her food intake first and deal with the rituals later? . " - How she can help her eat enough without terrifying her

In regards to a patient who had been chronically underweight and ill, needing to be in hospital " she "gained only a couple of kilograms in each admission to hospital and on the second stay didn't eat at all" - How he can get care which actually allows for physical recovery

Due to several hospitalizations (has only just become capable of leaving home, although still sick) So, because there are often long wait lists, (and the parents fear relapse does anyone know of treatment providers ( inpatient, outpatient, psychiatrists, psychologists etc. in (the area my daughter is going to..) - to try and keep their chronically unwell daughter safe

"My wife and I are finding it very hard work. We've read and watched videos (to learn to create) a soothing environment and realising how anxious our Daughter is likely be feeling, but haven't yet found any technique that has lead to our daughter eating more than she decides to". - to try and help there (very young) child return to a normal diet of 1700 calories

And finally,

"looking for any input from other parents with similar experience"

The key motivation for joining the forum as far as I can see....

They really are trying to save their kids lives whilst navigating a illness which from an outsider perspective is baffling, is highly misunderstood and, remember, with terrifyingly high stakes

Anorexia boasts the greatest mortality rate of any mental illness, with some reports indicating around 20% will die. Without intense intervention the average length of illness if treated through traditional psychotherapy and cycles of hospital admission is 7 years. Due to limitations on the budget of eating disorders, and the fact that in actuality the parents are often the only ones to notice the doctors are not involved enough for a lot of the parents liking. This is not small change or something you can just 'wait and see' regarding. This is life or death, leading to more fatalities in the 15-24 years age category than any other cause. And how much do you really know about eating disorders, the frustrations of seeking help to treat them, or about the family dynamics of the people involved?

You have a hunch.

So lets examine that hunch. Starting with, and I am not denying abuse is a factor in some cases, how prevalent a role is in reality?

There is some disparity in figures but about twice as much abuse has gone on in the lives of people with eating disorders, in general, than in the lives of people with out, iin general. Say, around a third compared to a sixth or so... But thats across the board and is in actuality more applicable to eating disorders involving episodes of over eating than extreme under eating. The level of abuse in eating disorders is indeed lowest in anorexia, whilst genetic factors are higher than it fellows. Abuse is more common in bulimia, for example - anorexia sites the lowest level of abuse of the majorly recognised eating disorders

And lets have a look at some abuse statistics: say 30% of people - a very high estimate, of people with AN (anorexia nervosa) have suffered abuse
- a third of that will have originated from peers, putting us at 20%
- another fifth of that 20% of that will arise from adults the child doesn't know well putting our figure at about 17%
- of which another 5 - 10% will be adults the child is well known to but not direct family members.

So we're at 10% max. So don't assume the caring, healthy, fuction but poorly endowed genetically parents are to blame. Most parents have done nothing wrong.

Furthermore:
"Women with BN+SDD (thats med paper speak for bulimia in combination with substance abuse) had the highest frequency and the most severe history of sexual abuse. However, the causal relationship between eating disorders and sexual abuse remains to be elucidated. "


Whether the is some specific association between anorexia and abuse is Not Clear
(Coovert Kinder Thompson, 1989; Connors & Morse, 1993; Pope & Hudson, 1992) <- maj0r eating disorder professionals

Its no higher than other psychiatric disorders.


Now, lets get back to your remarks re parents being the primary drivers of recovery.

- There seem to be a few underlying assumptions you are making.

A) abuse is major element of effect.
Now I think I addressed this above, but to summarise. Abuse is a factor, whether contingent or causally effective is not really known. We dont know how anorexia is caused. But its no higher than other psychiatric disorders, and actually lower than other major eating disorders or cases of substance abuse. I wonder how many of you dabble? The role of genetics is large, although we don't know exactly how these play into the development of the condition either to be honest.


The assumption that seems to be rife here is that since parents caused the issue, the should but out.
----this is utterly ungrounded assumption in most cases parent showed no abusive behaviour to their children.


Not only is the majority of anorexia about abuse, its not about bad parenting or fucked up mom dieting either -
Twin studies - that is twins who have been split at birth disentangle genetics from exposure/modeling have revealed that 40-60% of the risk for anorexia nervosa in adults is accounted for by genetic factors.1 Thus, the answer to why eating disorders run in families is not because the parents did anything whatsoever wrong Its because they have unlucky genetics. And this has been replicated in several studies around the world.

---- its a matter of bad luck, not poor effort.

So you'll argue with the parents, Do you have the research or knowledge to dispute the science?


We're not really in a position to judge but
- " the working theory as to how eating disorders develop is that genes and environment work together to influence risk—like a “perfect storm.” Just the particular genetic predisposition put in just the particular environment at a particular point in development can set the stage for an eating disorder."

B) Parents are making the efforts they are making to stop outside involvement. That is, you are assuming this is what is driving them.

What really annoys me about this


The parents who have sacrificed everything to helping their children are being pigeon holed as dysfunction simply because you dont understand the reason for their efforts or the way in which directed. They are doing all they can to help their children flourish but they are assumed to be either ill willed or misguided simply because from an outside view it is hard to understand. And worse, assumed abusive simply because you do not understand how it works. But just cuz you dont get it dont mean it dont work.

-
The number one most necessary aspect of recovery is eating sufficiently returning the body to a healthy weight and maintaing whilst learning to deal with life without limiting food in take.

Lets look at the alternative to forcing your child to eat, and the mainstay of the past 50 years of eating disorder treatment so with well documented results.

- as mentioned without external support this takes about 7 years to manage in those that make it.
- 10-20% will die, either directly from starvation or suicide.
- 30% remain chronically ill indefinitely

I know forcing someone with an eating disorder to eat looks like it ought to be destructive. I know that for you or I, to be forced to eat would only make our relationship with food worse. Eating is a personal thing, and to rob that independence of someone seems coercive, undermining, and unlikely to be of long term assistance.

I know, But for a Second - Suspend Your Disbelief.

Recovery from anorexia is an alternative reality. Heres my attempt to paint it.

Imagine you were in this situation:

Your child has lost a worrying amount of weight, is withdrawn, has lost her hobbies, her friends, and is spending every waking hour exercising. She cooks all the time, and talks about food obsessively but when it comes to eating she has only a fixed and diminishing range of food choices. Shes stopped eating dinner with the rest of the family. The doctors say her heart rate is dangerously low. She has the symptoms of hypothermia. Shes terribly anxious but otherwise listless and her spark has gone. And utterly terrifying to you, its clear its getting worse and shes shrinking before your eyes
she doesnt engage with the therapy you get her to attend.

if left in the care of doctors there is a 40% chance she will loose her life either through being two ill to have one or dying because she is too physically ill or not mentally able to survive the illness. one way or another is almost sure to loose the next 7 or so years of her life even if she recovers independently of you in the end.

- so in a best case scenario even if she recovers she will sacrifice her teenage years, her bone health, her education, her independence and her friends.(And when she gets well, she's lost bone mass, heart health and size, and digestive functioning for a long time after. She might still end up in a wheel chair a 60 due osteoporosis) But hey, 60 % chance she will have something of a life. This will tear both your home and your mental wellbeing apart as you watch her and will for her to manage alone but cycle through failed treatment options (that you play no part in) , take her to hospital when shes sick enough to be sectioned, watch her try to eat enough after release but be unable to manage the horrendous anxiety and return to loosing weight. Self harm, and emotional dysfunction. All the time watching from the sidelines, unable to help, because the doctors have "given her a meal plan" and she swears she's eating what it prescribes, although it is obvious from both the meal sizes, and the weight loss she tries to hide that she is failing, and its heartbreaking and terrifying, but you have been told by every medical professional you ask that theres Nothing you can do except put more efforts into fixing perceived family dysfunctions, but no amount of family therapy makes your child eat.

The doctors are trying to fix the eating disorder by fixing family relations, but this doesn't work. As one doctors notes its common for medical professionals get the:
" cause and effect backwards: (the only way) to make my family work better, we needed to tackle the eating disorder first."

so food is the number one priority. And leaving it to the doctors wont make it get eaten

Now: Imagine that a new understanding of anorexia and your capacity to help is discovered in a different treatment model, highly alien from the first. In this you abandon the role of watching from the sidelines and instead do the effort for your child. Instead of watching her try and fail to do what she is too sick to do, you take away the reigns and manage recovery for her. This means doing what is required for her to regain mental and physical health. It means making her gain weight. This is both horrendously distressing and time consuming. She takes 2 hours to eat a meal. She hides food. She chucks food. But shes safe and in time, she is likely to learn to manage. But to get her to that point may require eating a lot more calories than is usual. The reason the parents on the site talk so much about food is because so much of it is needed and its so hard to get an anorexic to eat it. Its not uncommon for patients to burn calories very fast after being underweight for a prolonged period and many doctors don't know everything I have sighted above, and assume, like you, its about parents being too interfering. Not to mention we live in an utterly fat phobic society in which healhty eating is way over hyped so doctors tend to be overly fearful of high fat high calorie diets (which are without a doubt necessary to gain weight and health) and there is evidence that people predisposed to anorexia require more food to remain a healthy weight after recovery for about a year. (again not common knowledge)

Imagine that having someone tell your daughter to eat healthily sends her into a tail spin in which she has a meltdown panic attacks, assuming this means shes eating too much and is greedy and needs to restrict. She utterly freaks out and won't eat what she needs or the foods that allow her to eat enough to regain health as these high fat and she feels to horrendous.

- ---- you are going to what to control what the doctors say to her ------
You are going to want to make them stick to the script = this is what you need. Food is medicine. We wait until you can eat. I'm sorry its so hard.

- that sort of thing..,..

That is the fruit of love and hardship not abuse and dysfunction.

Please don't criticise what you can't understand.



"An eating disorder is a phenomenally stressful illness. Every meal brings arguments and worries. Is my child going to eat? Are they going to run to the bathroom to purge after? Will they exercise it off? The person with the eating disorder is anxious and depressed, they feel compelled to engage in behaviors, yet embarrassed of their symptoms."

----so your on fucking high alert about this things.


And why do you imagine the fucked up ones are the ones on the forum, seeking advice, and help, and reassurance and guidance, and stories of success?

Lets say 10% of anorexic parents abuse their kids. I'd doubt 3% were stalking that forum.

I don't see why you you assume that those parents who and join online forums and ask questions and obsess about how much their children are eating and spend endless hours sitting at the dinner table are likely to be the abusive ones? The ones that go in the face of medical opinion to try something that might allow their child to flourish at the loss of their own everday lives are not I venture, the ones who have fucked their kids up. -----> those ones wouldn't put in the leg work. You have to fucking love someone to refeed them. Its a literal waking nightmare that exhausts every fibre of your being. You wouldn't bother.

The assumption that this is motivated by something other than desperation for ones child to be well seems odd....

"making someone eat" is consuming. Ha. It Involves a) putting food on the table b) repeating the need to eat and stopping them leaving the eating area or following with the food if they do c)avoiding engagement with the random anorexic talk they are spewing and keeping calm. Repeating mantras. c) encouraging their efforts d) waiting for about 1 - 2 hours to eat a single meal. Its not uncommon for breakfast to run into lunch lunch dinner and so forth e) keeping them from engaging in activities to counter act eating for an hour or two afterwards f) repeat.

For Two Fucking Years.
Or more.

I dont think much other than devotion to wellbeing would keep ya going. And abusive behaviour leads to failure. Shouting or hitting will not result in anguish and meals being eaten. Its not fear of punishment which allows anorexics to eat but the removal of alternatives to eating properly, making health required, not optional. You make not eating properly not an option and over time this allows the patient to accept recovery, though not desire it in most cases. They will still resist food, but passively, and they will eat, and their personality will begin to gradually reappear. To maintain this you may have to manage their meals for a long time after they're a healthy weight. They need to relearn how to do this and that takes time and motivation which means you need to wait for their anxiety and anguish to dissipate. But its a shit load quicker than leaving them to DIY and wait and see...
1FPubZg.jpg


If you actually browse the forum a bit longer it very quickly starts to seem less and less like caring parents desperately trying to help their sick child and more and more like parents trying to find a way to make their child's illness all about them.

"Screw my child's desire for privacy, I am the victim here and I need support and sympathy!"

Also try to be a bit easier on the :powerlevel:
 
yes of course!
I'm not going to discuss the details of what that person says but absolutely there are annoying people on that forum. People who don't have a clue. People who think its about them.

that 50% of causation is genetics and parents being involved is helpful doesn't mean there are no stupidities....

But there are lots of caring informed and very worried parents who just want to get their kids well.

Trying to understand a head fuck of an issue and use peer support well. It is very isolating for all involved.

I'm a philosophy student. I don't give a shit about my weight. I mean really couldn't give a fuck ut I got food poisoning in india and ended almost dying at 14. I went fucking insane. And my parents were told I would grow out of it. I just got much worse because I couldn't help myself and it was terrifying.

This is a resource which enables parents to make informed choices and gives them up to date information. Some will use it well, others wont. But I think its important for it to be available and fact check and ego check individuals all you like, just don't discredit the whole thing on the basis of them because it might cut people of from valuable help
 
and sorry if i was to harsh in tone.But i just want people to consider in more depth stuff dismissed cuz it doesn't make any sense at first.


Even if they aren't refeeding. Knowing how to deal with anxiety and the doctors who truly dont have clue is integral to this
 
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(Endless sperging)

I don't really care if anorexia is genetic or by abuse - in fact I'd lean towards giving you this since I've read there's a strong correlation between autism in women and eating disorders - it's still selfish as shit and deserves ridicule. The fit vegan ginger and Ashley Issacs are great examples of anorexics who are 100% cognizant of what they're doing to themselves and their family and to the other impressionable teens that follow them, and actively want to make other people sick (or at least milk their own sickness for attention and asspats).

It's definitely interesting how these parents and their kids have basically turned this into a competition of who can be the most actively manipulative, and I don't know what's got you so assmad here. I have a hard time feeling sorry for the 20% or whatever of people who are successful at starving themselves to death when it's by their own choice. People don't act like someone who is 600 lbs didn't have control in ending up that way (even if abuse or genes were a factor), why do these parents act as if their selfish as shit kids are just victims of something they couldn't help?
 
force feeding people doesn't change the underlying pathology of eating disorders.

it's pretty easy to flip the switch from anorexia to bulimia/binge eating.

these parents are as ridiculous as the mpa folks. even a little worse, I think.
 
Honestly? I understand your perspective, though I see with a different one.

I don't want to argue with your conception of anorexia,I don't really care.

But regardless of your conception of the illness, (and I would feel the same if it was 14 year old kids dying of binge eating disorder, for the record, without parents doing anything when they could. )

I think parents letting their kids eat themselves to death, out of greed or physical disorder, is bad. I think parents not intervening because they falsely believe they aren't in a position to do so, letting their children starve to death out of narcism or neurological disorder is bad.

So its simple really.

certainly people with anorexia are self absorbed. Though I dont think this is a causal factor in the origination of the problem. Just a natural result. Along with much else.

The reason I did a long annoying defence article?

For parents like this who saw this: "the forum is a complete shitshow of parents who think they know how to treat their child better than medical practitioners simply because they happen to have conceived said child. "

and thought this ".I am not a doctor or an expert and I never claimed to be.I just want my daughter back"

I wanted to show their side.
 
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A maudsley horror story that was posted on Tumblr:
http://debunking-minniemaud.tumblr.com/post/101120718150/it-didnt-work
[...]
I hit rock bottom of my eating disorder at 16. My parents sent me to therapy, they began to gently encourage me to eat more. I wanted to be healthy. I loved my therapist. I felt better after my sessions. I increased my intake, slowly, but surely.

My weight loss slowed significantly, but did not stop. This was not good enough for my parents. They discovered the ‘Maudsley Method’ of recovery, similar to MinnieMaud, which asserts that anorexia is the product of a starved mind and nothing else.

I was pulled out of therapy. I was made to sleep on the floor of my parents room while my father slept on the couch. In fact, I was screamed at for ‘making’ him do that. My parents kept an excel spreadsheet of my intake; 3,500 to 4,000 calories per day.

I was threatened with physical violence if I did not eat, so I did. I ate until I thought I would vomit. I remember dry heaving on the bathroom floor, with my family instructing my baby sister not to comfort me. They didn’t want to encourage my ‘tantrum’.

I shut down. I’d sit, stare at a wall for hours. I felt nothing much. I got in trouble for this. I was in trouble for wearing sweats on not doing my hair (another tantrum). I remember sleeping on the floor next to the bed, and seeing an old forgotten vase under my parents bed. I thought about breaking it and using it to cut my wrists and commit suicide. I confessed this to my parents in the morning, and was punished for ‘trying to upset’ them.

I could go on and on about those months of my life.

But that’s not important.

What I want you to focus on, is the fact that I did gain weight. I gained weight until I was almost overweight.

Why wasn’t I cured?

Why did I move out at age 17 and immediately relapse?

Why am I constantly plagued with disordered thoughts?

You are a fake. A fraud. You push this method of ‘recovery’ to make yourself feel like this mother fucking hen, caring for her little chicks. You are a lie. A farce.

One day the people you ‘help’ will realize that. I hope you’re ready for their retaliation.

I stand here as proof that your method of ‘calories cure everything’ DOES NOT WORK.

I'm not saying this method couldn't possibly help someone. It might work with younger kids (like < 13) whose eating really should be the parents' responsibility, but combine maudsley with controlling, narcissistic, or otherwise dysfunctional parenting, and BOOM, the child will be scarred for life.
 
f

it's pretty easy to flip the switch from anorexia to bulimia/binge eating.
.
e
--- this is true and important. About 30% of anorexics go on to bulimia.
Thats why the meals need to be controlled, and following a plan like O'tools (bottom) avoiding hyper palatable foods (aka things that encourage binging) is often advised
 
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A maudsley horror story that was posted on Tumblr:
http://debunking-minniemaud.tumblr.com/post/101120718150/it-didnt-work
[

This is terrible. It made me really sad. ...
But that doesn't mean the method doesn't work, it can be used badly. If you are going to do it you need to do it as best you can, use all resources. I recommend this source for emotional self regulation and effective and respectful communication http://evamusby.co.uk/


And people with anorexia are more vulnerable, this is fucking appalling[/spoiler]
 
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Okay. rewriting. And sorry above poster. That read too mean. I wasn't trying to attack.

Only bother reading if you want a rambling exploration of the topic and that aspects of it that are relent to what looks nuts to those not involved.

So about 50% of eating disorders are by twin study experiments genetic.
If you have a twin and she gets anorexia there is a 50% chance you will too, even if your environmental influences are entirely alien to hers.
- so parents may cause eating disorders sometimes but eating disorders are not directly the result of any external influence but a load gentics gun. Esp anorexia.

Abuse is minimal in anorexia - about 20%, of which not more than 10% is located within the family unit, and so its not about families. Once it gets going its not really about anything.
And parental involvement is not exactly a piece of cake. Its a lot of continuous effort and it is quite an insane making job.

Regarding causation
The general sensible and accepted opinion is that
- " the working theory as to how eating disorders develop is that genes and environment work together to influence risk—like a “perfect storm.” Just the particular genetic predisposition put in just the particular environment at a particular point in development can set the stage for an eating disorder."

Parents are not doing this to avoid outside help. Often they are desperate for it. In the UK the NHS system means people who are literally emaciated are put on 6 month waiting lists. Its actually better with children as they are allocated more funding but many parents don't have the option of decent medical back up, and are at the mercy of GP's who took a weekend module on the subject 20 years ago. I mean seriously.

J
ust cuz you dont get it dont mean it dont work. And for parents, well, if your child is sick you cant really know to much, and Dr vos would you really leave this to a doctor, if it was your kid? Cause I'd want to be in the best position to help possible,

-
The number one most necessary aspect of recovery is eating sufficiently returning the body to a healthy weight and maintaing whilst learning to deal with life without limiting food in take. This is acrosss treatment methods. The main point of psychotherapy is, as in motivation interviewing, inspiring efforts to do this and helping them manage psychologically but its really fucking hard because it feels horrendous. Like you taken too many uppers and your skin is crawling. But all the time and when not high. People with anorexia are ofter treated with antipsychotics to help them deal, its that rough.

Lets look at the alternative to forcing your child to eat, and the mainstay of the past 50 years of eating disorder treatment so with well documented results.

- as mentioned without external support this takes about 7 years to manage in those that make it.
- 10-20% will die, either directly from starvation or suicide.
- 30% remain chronically ill indefinitely

I know forcing someone with an eating disorder to eat looks like it ought to be destructive. I know that for you or I, to be forced to eat would only make our relationship with food worse. Eating is a personal thing, and to rob that independence of someone seems coercive, undermining, and unlikely to be of long term assistance.

I know, But for a Second - Suspend Your Disbelief.

Recovery from anorexia is an alternative reality.

Your child has lost a worrying amount of weight, is withdrawn, has lost her hobbies, her friends, and is spending every waking hour exercising. She cooks all the time, and talks about food obsessively but when it comes to eating she has only a fixed and diminishing range of food choices. Shes stopped eating dinner with the rest of the family. The doctors say her heart rate is dangerously low. She has the symptoms of hypothermia. Shes terribly anxious but otherwise listless and her spark has gone. And utterly terrifying to you, its clear its getting worse and shes shrinking before your eyes
she doesnt engage with the therapy you get her to attend. The torture of this for 7 years whilst trying to work out how you fucked up, if you didn't, would be excruciating and not helpful in promoting change.

if left in the care of doctors there is a 40% chance she will loose her life either through being two ill to have one or dying because she is too physically ill or not mentally able to survive the illness. one way or another is almost sure to loose the next 7 or so years of her life even if she recovers independently of you in the end.

- so in a best case scenario even if she recovers she will sacrifice her teenage years, her bone health, her education, her independence and her friends.(And when she gets well, she's lost bone mass, heart health and size, and digestive functioning for a long time after. She might still end up in a wheel chair a 60 due osteoporosis) But hey, 60 % chance she will have something of a life. This will tear both your home and your mental wellbeing apart as you watch her and will for her to manage alone but cycle through failed treatment options (that you play no part in) , take her to hospital when shes sick enough to be sectioned, watch her try to eat enough after release but be unable to manage the horrendous anxiety and return to loosing weight. Self harm, and emotional dysfunction. All the time watching from the sidelines, unable to help, because the doctors have "given her a meal plan" and she swears she's eating what it prescribes, although it is obvious from both the meal sizes, and the weight loss she tries to hide that she is failing, and its heartbreaking and terrifying, but you have been told by every medical professional you ask that theres Nothing you can do except put more efforts into fixing perceived family dysfunctions,

The doctors are trying to fix the eating disorder by fixing family relations, but this doesn't work. As one doctors notes its common for medical professionals get the:
" cause and effect backwards: (the only way) to make my family work better, we needed to tackle the eating disorder first."

But the intuitions you guys have are present too, so there is dispute. The conceptual understanding of the issue is far from singular or undisputed. But the 'food is first' model is often taken quite simplistically by parents simply because the situation is an awful lot more complicated than they are able to work out clearly initially. But confidence is key, and a singular message (and, yes, obsessiveness) allows this better than 'its family dynamics and fear of loss of control/growing up/failure. -> one message and understanding enables effective action, and they are is divide and conquer.

so food is the number one priority. And leaving it to the doctors wont make it get eaten

in a different treatment model, highly alien from the first. In this you abandon the role of watching from the sidelines and instead do the effort for your child. Instead of watching her try and fail to do what she is too sick to do, you take away the reigns and manage recovery for her. This means doing what is required for her to regain mental and physical health. It means making her gain weight. This is both horrendously distressing and time consuming. She takes 2 hours to eat a meal. She hides food. She chucks food. But shes safe and in time, she is likely to learn to manage. But to get her to that point may require eating a lot more calories than is usual. The reason the parents on the site talk so much about food is because so much of it is needed and its so hard to get an anorexic to eat it. Its not uncommon for patients to burn calories very fast after being underweight for a prolonged period and many doctors don't know everything I have sighted above, and assume, like you, its about parents being too interfering. Not to mention we live in an utterly fat phobic society in which healhty eating is way over hyped so doctors tend to be overly fearful of high fat high calorie diets (which are without a doubt necessary to gain weight and health) and there is evidence that people predisposed to anorexia require more food to remain a healthy weight after recovery for about a year. (again not common knowledge)

Imagine that having someone tell your daughter to eat healthily sends her into a tail spin in which she has a meltdown panic attacks, assuming this means shes eating too much and is greedy and needs to restrict. She utterly freaks out and won't eat what she needs or the foods that allow her to eat enough to regain health as these high fat and she feels to horrendous.

You are going to want to make them stick to the script = this is what you need. Eventually that singular repeated message and action will get the kid well, not all the time, but at least half. Individual therapy relies on the motivation of someone with a starved brain, often in the middle of adolescence and torn about recovery and their motivation for it. Just eat relies on nothing more than repetition. Perhaps its the sanity preserving element of the singular message that makes it so ott. Perhaps its because it takes so much energy to match the 'just DONT eat' of their child this is the only way they can over power their obsession. I dont know, but it works. eventually.

That is the fruit of love and hardship not abuse and dysfunction.


"An eating disorder is a phenomenally stressful illness. Every meal brings arguments and worries. Is my child going to eat? Are they going to run to the bathroom to purge after? Will they exercise it off? The person with the eating disorder is anxious and depressed, they feel compelled to engage in behaviors, yet embarrassed of their symptoms."

- again simple message keeps you sane?
I do agree its a bit too likely to not fully take into account other aspects of the situation, but it
seems to just be very easy to grasp for very confused parents. And yes some go overboard, some a re paranoid and traumatised for years after, which results in overboard. But the situation itself - having a kid literally on deaths door because they won't eat leads to overboard reactions re food for a long time. I had an eating disorder 10 years ago and if my mother lets slip she's not eating wheat for her digestive issues she becomes anxious she's affected me. I couldn't give a toss but she got freaked out majorly


Lets say 10% of anorexic parents abuse their kids. I'd doubt 3% were stalking that forum.

I don't see why you you assume that those parents who and join online forums and ask questions and obsess about how much their children are eating and spend endless hours sitting at the dinner table are likely to be the abusive ones?
The assumption that this is motivated by something malicious and not of care is odd because it takes so much effort.

"making someone eat" is consuming. Ha. It Involves a) putting food on the table b) repeating the need to eat and stopping them leaving the eating area or following with the food if they do c)avoiding engagement with the random anorexic talk they are spewing and keeping calm. Repeating mantras. c) encouraging their efforts d) waiting for about 1 - 2 hours to eat a single meal. Its not uncommon for breakfast to run into lunch lunch dinner and so forth e) keeping them from engaging in activities to counter act eating for an hour or two afterwards f) repeat.
And stubborn determination throughout.
- the reason the control myth grew is because anorexics are fucking hard to control on food!
For Two Fucking Years.
Or more.

I dont think much other than devotion to wellbeing would keep ya going. And abusive behaviour leads to failure. Shouting or hitting will not result in meals being eaten. Its not fear of punishment which allows anorexics to eat but the removal of alternatives and consequentially the anxiety of not persuing them. making health required, not optional in those who cant decide to be well. You make not eating properly not an option and over time this allows the patient to accept recovery, though not desire it in most cases. They will still resist food, but passively, and they will eat, and their personality will begin to gradually reappear. To maintain this you may have to manage their meals for a long time after they're a healthy weight. They need to relearn how to do this and that takes time and motivation which means you need to wait for their anxiety and anguish to dissipate. But its a shit load quicker and less risky than leaving them to DIY and wait and see...

Please don't criticise what you can't understand.

And if you are in this position: Research.
Knowledge is power,
And get medical help. Get medical help that sights studies and effectiveness and doctors that Know Their Fucking Shit.

Don't follow the advice of people who are working on the data of the 1980s, or what they absorb from the media. Know your shit and find others who do to.


If you want to have some actual information to base your judgements upon, here ya go .


http://evamusby.co.uk/ (advice on how to refeed well. Calm. The key is Calm)
https://uncexchanges.org/2016/10/31...ders-part-2-the-genetics-of-eating-disorders/ (why its not your fault, regardless of if you are ill or your child is)
https://www.graceonthemoon.com/ (if you are an adult with an eating disorder)
https://www.aroundthedinnertable.org/file?id=3244506 (for good clinical support in face to face on how to do this right)
Simple 2 minute read covering the relationship between parental behaviour and childrens illnesses:
https://www.psychologytoday.com/blo...ionship-between-families-and-eating-disorders
https://www.kartiniclinic.com/blog/ (Julie O'tool - top eating disorder doctor you can trust)

You are one stupid motherfucker. Eat a sandwich and shut up.
 
http://www.aroundthedinnertable.org/post/i-didnt-know-it-was-this-bad-8439378#gsc.tab=0

This woman is trying to control a 20-year-old's eating. Not even her child, but her sister. Good luck with that.

Can you tell your s. that you are going to help her by preparing her food for her? Keep her out of the kitchen while you are preparing the meals.

She is an adult.

Full fat milk, 100% juice, etc, no diet or low fat food should be in the house. Always serve a caloric drink with meals.

SHE IS AN ADULT.
 
yep I can see it with kids that are really young. in that case you're really controlling their food anyway


but older teens? adults? no, this just doesn't work. my favorite parts in that forum are the ones where the parents are obviously batshit. I'll see if I can find the one thread- they were cows in every way, and it was no wonder their kid was fucked up.

I feel like a lot of them end up on those "estranged parents of adult kid" forums eventually, wondering why their kids get restraining orders and such


hint: this forum section is MASSIVE.
 

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I feel like a lot of them end up on those "estranged parents of adult kid" forums eventually, wondering why their kids get restraining orders and such.

I bet there's dozen of posts like this and the one in the OP. "Wahhh my daughter won't let me have full access to her medical records, look through her trash for used tampons, or create caloric spreadsheets for her because she's 18 now! How do I get complete sociopathic control over her again?"

Are there ever any dads on there? Serious question...this seems like a forum specifically for stay at home histrionic mommies.
 
Are there ever any dads on there? Serious question...this seems like a forum specifically for stay at home histrionic mommies.
There are a few dads on the forum, but they don't seem to post as much as the moms. Maybe they've realized that literally anyone could read the things posted there, even their own kid.
 
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