Opinion How I Learned to Live With Haunting Visions

Archive
TLDR: Guy who wrote A Series of Unfortunate Events has issues

There’s nothing more boring than someone else’s dreams. “I had a dream last night,” someone will say, and no matter how much you like them, you want them to shut up.

That’s why I didn’t tell anybody when it first happened. It was my first year in college, and terrifying figures began to appear in my sleep. Naked, hairless and powdery white, they beckoned me to witness scenes of violence and torture. I’d wake up, drink water, take some calming breaths and go back to sleep, then have the dream again. Before long I was having it every night.

By morning I would be exhausted and lost. I wasn’t too worried—it was just a dream, after all, and everyone at my liberal-arts college seemed a bit exhausted and lost—but at dusk, my fingers tingled with the sense that something dreadful was about to happen.

Finally I began to tell people. When a friend asked what the dreams felt like, I explained that it was like my whole life was on cheap paper, which these figures ripped away to show what’s underneath. My friend gently suggested that I walk with her to the mental health center.
I didn’t mind therapy, but no matter how much I dug into my life, I did not improve. I was getting so little sleep that the daylight hours had an unsettling hue, a haze that made reality seem fragile. I was clumsy, missing classes, an unreliable friend, a disastrous boyfriend.

Something else began happening, too. No one knew what to call it: fainting, seizuring, dropping. My exhausted brain would lose its bearings and I’d fall twitching to the floor. Once this happened at the house of my girlfriend’s family, sending me tumbling down a flight of stairs. When I awoke, her father told me, as concerned for his daughter as he was for me, that whatever was happening, I needed to fix it.

I was referred to a widening array of experts, but “seizure” turns out to be a vague term for a brain event that can be hard to explain. Some have known causes, but my case was among the many medical mysteries. I had several MRIs. I spent a night with electrodes all over my head and shoulders like a low-budget sci-fi movie. I stayed up all night, the better to fall asleep in an examining room while they flashed strobe lights at me.

When these experts gave up on finding a physical cause, I was sent to a mini-mall storefront to analyze ink blots and fit an assortment of wooden blocks into a framework, then blindfolded and told to do it again, an activity so senseless I ended up crying. I was hypnotized repeatedly, spelunking for repressed trauma. When a doctor used the word “schizophrenia,” my mother left the room.

There is, of course, nothing that makes you feel crazier than being tested to see how crazy you are. I kept thinking the same thing everyone thinks: that there must be some mistake. These were only dreams.

A year or so into this, while walking across campus, I saw one of these naked, ghostly white figures staring right at me. No one else seemed to see what I was seeing, and I fell unconscious on the grass. I was very, very frightened, not just because of what I saw, but because I realized, there on the lawn, that these weren’t just dreams after all. This was something worse.

Various experts with various plans, various drugs and various referrals, kept on failing, and the visions got worse. Sometimes the figures were so close that I had to walk through them. Shortly before graduation, while writing a final paper on H.G. Wells, I had a seizure, the biggest yet. When I woke, I couldn’t read, write or speak. I remember the worried faces of my friends as I was sirened away in an ambulance.

Nobody wants to be a medical mystery. Doctors get excited, but when a pet theory doesn’t pan out, they get tired of making guesses. My brain was rescanned, awake and asleep. I was hypnotized again. In the hospital, I was afraid to sleep, and they were afraid to make me. Finally, a doctor sat on my bed and said, “I don’t know, what do you think it is?” Heaving with sobs, I told him that maybe the reason they couldn’t find the causes of my hallucinations was because they weren’t hallucinations at all. Maybe the figures were real, an actual thing, actually happening.

If you say such things, there are only two places you go. My family had health insurance and money, so instead of ending up on the streets, I arrived at a place not entirely unlike my dorm, except that they took my belt and my shoes. Mostly we sat. Women with eating disorders walked around with apples and paper cups, tasting the fruit then spitting it out. Manicured young men from religious families, described as “confused,” were there for attempting suicide. In my fragile state and Keith Haring T-shirt, I recall telling them that if there is a God, He doesn’t care who you love.

Occasionally we took supervised walks, blinking in the sunshine within a two-block radius. On one of these walks, I heard someone call my name. It was my Nabokov professor, a middle-aged woman in a beat-up car, who seemed both surprised and not surprised to see me there. We had only a brief conversation, but it jogged something in my troubled mind.

In one of my favorite Nabokov novels, the relatively obscure “Invitation to a Beheading,” the hero experiences something akin to what I was feeling there with my professor. Condemned to death, the hero is hit with a clarity, “at first almost painful, so suddenly did it come…why am I here? Why am I lying like this? And, having asked himself these simple questions, he answered them by getting up and looking around.”

I never quite like when someone says, “This book saved my life,” as it needlessly imbues a work of literature with the power of an antibiotic or paramedic. But there, in the psychiatric ward, I began to save myself, in part by living by the principles of a book I loved. To some extent, I was in a prison of my own making, and I did not want to be imprisoned any longer.

I began giving different answers to the questions put to me. I told the doctors that they were not helping. I stopped taking the antidepressants, antipsychotics and seizure drugs—drugs which, I should add, work wonders for many people. I did not stop seeing things, but I changed how I talked about them. They were certainly not real. They were hallucinations, of course, and I was going to live with them, not in a hospital, where they would be a constant occupation, but in the world, in “reality”—a word Nabokov said meant “nothing without quotes”—where talking about these visions would send me away again.

I would hate for anyone to infer that I was “cured” by a passage in a novel, or to believe that mental health is largely a question of attitude. I still, to this day, see these figures, frequently but no longer frighteningly. Nobody else has ever said they see them too, and there is still no medical explanation as to why. My seizures are now rare. I’ve more or less pinpointed their cause, never suggested to me by any medical professional: I get them when I don’t get enough sleep. I’ve learned to anticipate them. I’ve also learned to look away, to keep walking, to move through the figures I see, as if they are merely inappropriate, staring strangers. To the bafflement of people who’ve known me for years, I hardly mention them.

I’m not a crazy person. If I were a crazy person, babbling about visitations from ghostly figures, I would not be allowed to run around loose, writing books for your children. Everyone has bad dreams, and talking about dreams is boring, so I stay quiet and I stay in the world.

Sometimes I think of something that happened in the hospital. What I remember is sitting in a chair while two women, nurses or technicians, took a small tool, almost a can opener, and poked two small slits in my arm, between my elbow and my wrist. Then they sat, chatted with each other and let me bleed. When it seemed like my blood was clotting—if clotting is the word—they scraped off the hardening blood with an index card.

Could this have happened? Am I misremembering some essential part of this procedure? The time I spent in the hospital was so confusing and scary that I’m tempted to think this didn’t happen at all, but I have two tiny scars on my arm. They are hardly visible but sometimes, when I tell the story, people lean in close to see the little lines—real scars, but so faint they might as well be a dream.
 
it has been my overwhelming experience that the vast bulk of the medical profession doesn't know what the fuck to do about lower back problems

medical science has some great gaping holes in it

Lower back problems in medical science have an exceptionally poor record of success. Even being in medicine does not help with getting decent treatment.
 
Yeah, the little detail about the "torturous yet casual surgery" at the end there is the giveaway: this person endured the Shamanistic experience in a modern setting stripped of context. Naturally she thought she was going insane, or being accosted by demons.
 
Hallucinations are relatively common even for mentally well people. The brain and senses are complicated, glitches are bound to occur, and it doesn't always mean something is seriously wrong.
They are. Aural hallucinations in particular, I think over one in ten has them has them at some point.
I literally just have a small throw pillow that I tuck under the left side of the small of my back when I sleep
Back sleeper or side? Expand on this if you’d be so kind , its very interesting.

I have long thought that denying the reality of such things isn’t always the right way to deal with such things in SOME patients. It’s real to them, denying that doesn’t help. There’s a type of dementia care that just goes along with things in the most gentle way possible - why tell Doris her husband is not coming to visit y he’s been already for forty years every morning and trigger her grief when you can say ‘oh he was here yesterday don’t you remember? You had a lovely time, he loves you, he will be back tomorrow he can’t make it today.’

Acknowledgment of the reality-for-you can I think be a good way of dealing with things for people who retain a degree of self awareness. It’s real for you, can you deal with it?

Some people take it further from the ‘real to you’ to ‘actually real.’ There’s a guy called Jerry marzinsky who believes these are demonic attachments. Now whether you believe that or think it’s crazy is kind of secondary because his approach is to start by telling the patients he believes them, and getting them to do actions that soothe them. He has a significant success rate with this. Who is to say this is worse than just drugging people up?
Very interesting
 
This guy is describing the same thing that everyone with sleep paralysis experiences, only fully awake. Ghostly figures gathering around showing you insane visions and threatening to drag you away with them to some nameless plane of torment.

I use to have this problem until I started sleeping with a lumbar support. No shit.

I literally just have a small throw pillow that I tuck under the left side of the small of my back when I sleep. Sleep paralysis and demonic visions, in my case, seem to be directly tied to my lower back issues. I still have disturbing nightmares, but with a lumbar support I stopped experiencing sleep paralysis and waking hallucinations over a decade ago.

Maybe Mr. Handler has some kind of spinal misalignment.
Alternatively, you could have been having mild hypoxia, either from a touch of sleep apnea or a quirky vena cava, and getting off of flat-on-back is the solution for those as well.
 
Neat story. I've often wondered what it would be like to have hallucinations that aren't too intrusive, with enough insight to know they're hallucinations. Could I make it through the day without doing anything too weird? I mean, I can barely do that now, but would hairless naked powder-white beckoning figures make it that much worse?
Just drink a bottle of Benadryl and you'll have your answer bro
 
Back sleeper or side?
half-and-half, use the throw pillow when I'm on my back
L4/L5 is the problem area
Alternatively, you could have been having mild hypoxia, either from a touch of sleep apnea or a quirky vena cava, and getting off of flat-on-back is the solution for those as well.
anything's possible
I'm willing to bet it isn't so much your lumbar spine directly, as it is the change in the flow of cerebrospinal fluid. If when you try to sleep a difference in the structure of your lumbar spine is causing a "kink" that disrupts the normal flow of CSF, altering the pressure of CSF in your brain, it can have all sorts of strange effects on how the brain functions. By using a lumbar support you are probably preventing this "kink" from occurring, allowing the CSF to flow correctly. It's possible that the anatomical different is so small it may not even show up on MRI. Excellent work in determining a solution for your situation. If it is a very small structural defect that is causing this, it is unlikely any doctor would have come up with the right answer for you.
^^this is the more likely explanation given my back history
 
Take 👏 your👏 meds 👏
If they didn't do shit obviously they weren't the right meds. It sounds like it might be some weird version of epilepsy. At least some religious figures probably had temporal lobe epilepsy. You don't really call them crazy if they turn it into something insightful and useful to others. Phil Dick wrote some of his best work after a series of extremely vivid religious hallucinations (as well as around a million words of speculation on what had happened in what he called his Exegesis).

Valis, The Divine Invasion, and The Transmigration of Timothy Archer are almost entirely based on these experiences.

While he had mostly quit drugs by this point, it's possible they had something to do with triggering it.
They are. Aural hallucinations in particular, I think over one in ten has them has them at some point.
I fairly commonly have one where my brain interprets some random sound as someone distant yelling my name. I can tell it's not real though. SImilarly, sometimes I'll see something like a crumpled up paper blowing along and bouncing as a squirrel or some animal for a split-second. I'd barely call that a hallucination.

I also used to have hypnagogic hallucinations fairly often, usually benign. Once I was sleeping in a room next to a kitchen with the door open, and looked over and saw what looked like a cat on top of the cupboard and was wondering how it got there. Suddenly it turned its head around and it had the head of an owl. I instantly woke up and it popped out of existence.

I also did lucid dreaming for a while because I was having nightmares and sometimes sleep paralysis demons. One of the easiest tricks to learn is simply to wake up by an act of will. I also figured out I could just banish them. That's more effort than it's worth since just deliberately waking up gets rid of them more easily.

So if I'm not enjoying a dream, I just end it. Or you can deliberately decide not to wake up and just see how things go, which is what I usually do now.

I don't think you can really do that with someone who has whatever the OP story has, which seems like it's probably organic and not just psychological.
 
Last edited:
Neat story. I've often wondered what it would be like to have hallucinations that aren't too intrusive, with enough insight to know they're hallucinations. Could I make it through the day without doing anything too weird? I mean, I can barely do that now, but would hairless naked powder-white beckoning figures make it that much worse?
It felt like having company, until I was old enough to realise that other people didn't see things the way I did.

Then I was terrified I would be put away for it.

Psychosis-induced ones were literally things out of my nightmares and not the benign ones that had always accompanied me. They weren't "seeing things". They were absolutely real and absolutely terrifying.

The usual ones are just like intrusive thoughts you can see. The flowers on the wallpaper don't really open and close with the sun the way real flowers would, and I know that, but they are not going to hurt me and I like to watch them.
 
  • Thunk-Provoking
Reactions: KiwiFuzz2
Alternatively, you could have been having mild hypoxia, either from a touch of sleep apnea or a quirky vena cava, and getting off of flat-on-back is the solution for those as well.
Sleep paralysis is way more common when lying on your back. I get it, in a couple of quite peculiar forms

Sounds like he needs a visit with Dr. Jerry Marzinsky instead of a typical schizo shrink to be quite honest considering the sleepless, draining aspect of his lifelong torment.
I didn’t see this until I went back through the thread - glad you are aware of him too. His work is very interesting
L4/L5 is the problem area
Urgh. Spines. There just isn’t much you can actually do about most issues. If it’s general age related degenerative change it’s not getting better. All you can do is strengthen the area. I have had some small improvement from issues with an osteopath. I wasn’t very sure about it and considered it woo but was recommended this woman when I was abroad and she was amazing - really just very hands on firm manipulation that hauled something back where it should be. Felt like I’d been run over afterwards, then three days later it was vastly improved. I also take collagen and silica and vitamin C and I think that does make a difference as well - it’s not ‘fixing it’ level better but less bad.

I fairly commonly have one where my brain interprets some random sound as someone distant yelling my name.
That is very normal I think - I’ve noticed all the kids have experienced it. I think that and the squirrel thing are our lizard brains reacting to sounds and visual input to form patterns.
I also did lucid dreaming for a while
I can sometimes do this, I find it quite difficult to stay asleep when I am though. I suspect when I’m able to I’m lightly asleep and already partially awake
Our brains and minds are very strange. I think if I needed to find an organic explanation for what this guy had I’d go with epilepsy if some type, and if I was allowed to choose a non organic explanation I’d say something is attached to him - he could see that as a literal or metaphorical explanation, whatever works best for him.
 
Some people take it further from the ‘real to you’ to ‘actually real.’ There’s a guy called Jerry marzinsky who believes these are demonic attachments. Now whether you believe that or think it’s crazy is kind of secondary because his approach is to start by telling the patients he believes them, and getting them to do actions that soothe them. He has a significant success rate with this. Who is to say this is worse than just drugging people up?
It's an actual topic of debate whether the purpose of mental health interventions are to try and cure people or to try and get people functional.

The most notorious one is in treatment for OCD - a woman had a debilitating case where she kept thinking she'd left her hair straighteners on and her housd would burn down so had to keep going home to check, only to feel the urge to go back and check again hours later. The suggested treatment was... "put the hair straighteners in your purse and take them with you". This didn't actually treat the OCD in any way and so was controversial, but it did effectively resolve any issues she had since if she got into a panic, she could just look in her purse. This has become a pretty standard intervention for OCD now - if you're scared you didn't lock your door, video yourself locking the door in the morning and watch the video when you're worried. If you think you left the oven on, video yourself checking the oven and watch that. Doesn't always work - a friend of a friend has pretty bad OCD and needs a neighbour to go through his house videoing everything is off when he's on holiday, because the video he made "wears off", but it is genuinely life changing for many.

Some psychiatric professionals are highly critical of this, but they've not had the same "success" rates in treating people with OCD and waiting lists are ever lengthening, so what's the issue?
 
Sadly, the only option for a lot of people with schizophrenic hallucinations is to learn to identify and ignore them. Meds may not help when the brain is simply misfiring.
 
  • Like
Reactions: Otterly
Some psychiatric professionals are highly critical of this, but they've not had the same "success" rates in treating people with OCD and waiting lists are ever lengthening, so what's the issue?
They shouldn’t be critical if it works and doesn’t hurt the patient. If she’s got her straighteners in her bag then she’s able to control the urge, and that in and of itself is therapeutic. She’s taking control. Over time maybe the issue will lessen.
The Jerry marzinsky thing is really interesting becasue it’s the same thing. If you’re religious you can believe it’s a demonic entity. And if you’re not, it still works as well becasue it’s like the straighteners in the handbag - you’re saying to them ‘I believe you, you’re seeing a thing. Let’s try to find ways to manage and lessen its influence.’
It seems to me a far more humane way of treating the problem. Fwiw I don’t think you can even cure OCD, not by bashing the symptoms down. It’s a manifestation of a different issue, and the cure is being able to control it, not make it stop existing.
 
  • Agree
Reactions: Prokhor Zakharov
If they didn't do shit obviously they weren't the right meds

Bingo. You never keep taking meds hoping they will work. Every med has a window where it will either work, or it will do nothing. Continuing to take a med that does not work is like banging your head against a wall thinking the next time you do it your headache will probably stop.
 
  • Like
Reactions: Otterly
The suggested treatment was... "put the hair straighteners in your purse and take them with you".
I'm Russian. Back in the 90s, I had a "joke book" with a collection of translated American jokes. Said jokes were so old that the conscientious Soviet-educated translator added historical footnotes about the Great Depression and such. (Some were really funny; parenting jokes were the best, I didn't get them as a kid.)

There was a joke in it which went like this:
A man goes to a shrink and says, "Doctor, please help me, I can't sleep. Whenever I go to sleep, I start imagining there's someone under the bed. I climb under the bed to look, there's no one, of course, but then I start thinking someone's lying on the bed above me. All through the night, I keep climbing under the bed and back out, and I can't get any sleep."
The doctor says, blah blah, therapy, multiple seances, etc. But the man doesn't return; time passes, and the doctor meets the man out in town.
"How are you?" he asks.
"Couldn't be better", the man says. "My wife cured me for free, she told me to saw off the legs of the bed."

What i'm saying is there's a 🤔 reason you present this Great Depression-era solution as surprising (and it is!), there's a reason it didn't take off.

It's an actual topic of debate whether the purpose of mental health interventions are to try and cure people or to try and get people functional.
The purpose of mental health interventions is to earn money.
In the hair iron example, the therapist would say,
"Why are you afraid of a house fire?
"You lack a sense of security in your domestic life.
"Do you perhaps think that your husband might be cheating on you?
Then you start thinking your husband might be cheating on you.
Then your husband starts thinking you might be cheating on him.
Then you go to couples therapy.
Then you divorce.
Then your kids go to therapy, and the therapist's kids go to college.
 
They are. Aural hallucinations in particular, I think over one in ten has them has them at some point.
I have them. They never mean anything. It’s always nonsense phrases or someone calling my name. I only ever get them when I’m already in bed, when my mind wanders and I’m trying to fall asleep. I always assumed it was somehow hormonal. It’s not intrusive or distressing so I never tell any medical professionals because I don’t need a vacation in the grippy sock hotel.
Back sleeper or side? Expand on this if you’d be so kind , its very interesting.

Sleep paralysis is way more common when lying on your back. I get it, in a couple of quite peculiar forms
I also get sleep paralysis when I lay on my back at night. So does my little girl. Our solution is to use weighted blankets to prevent shifting and sleeping on our sides/fronts. Works great.

My episodes are usually accompanied by this tooth-rattling buzzing sensation, that’s how I know I’m having one rather than an actual confrontation with my “sleep paralysis demon” (which isn’t a being but instead a glowing, floating nuke from CoD Nazi Zombies for some weird reason). Now I don’t have the episodes unless I’m sleeping in an unfamiliar bed where I’m not pinned into the correct position with a heavy blanket. But I know what they are so I just wiggle my pinky finger to snap out of it and roll over.

Interesting to think it could be a spinal difference instead of a generational demonic attachment, like my grandmother used to insist.

Of course the medical system doesn’t like pragmatic solutions to OCD because they can’t make money off a person who just brings their hair straightener to the grocery store. That’s free. Jerry-rigging your own spicy brain makes nobody money and that’s a problem for the people who want inside your wallet.
 
god I loved and still love the way this guy writes

however, as someone who regularly has nightmares with and without presences, they're fairly easy to banish with force of will.
it's human haunting that's hard to shake off if it's pointed at you.

presences, in comparison, are just ghosts in the machine; figments of collective fears, which in turn fear any true will/self-power.
 
Last edited:
Back