Trainwreck The Empathic Nutritionist / Empathic Mamahood / Robyn Grogitsky-Ramirez / Luna Elva Ramirez / Glenn Ramirez / Atlas Glenn Standford Ramirez - Eyefucking Sociopath Selfie Addict Mother and Closeted Gymrat Pothead Father who use Instagram to Parade their Homemade Homunculus Tard Baby Created by their Refusal to Follow any Medical Oversights

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Will Robyn actually go back to see the neurosurgeon in California?

  • Yes

    Votes: 26 12.2%
  • No

    Votes: 107 50.2%
  • Luna will die before the planned trip date

    Votes: 80 37.6%

  • Total voters
    213
  • Poll closed .
@GenociderSyo, I know you've posted about this before, but the physical therapist is actually a licensed professional, right? If I remember correctly, she's not affiliated with a hospital or practice, just has her own (Facebook based?) gig. I think this is part of the appeal for Robyn. Additionally, I don't think Globyn could afford to pay for therapy services from an actual practice, so finding someone via Facebook was probably their most viable option.
Yes I can't find the post now but she did have a license number and only runs her office from facebook.

https://www.facebook.com/Cowan-Phys...al-and-Occupational-Therapy-1565271287136604/
 
It is even possible the physical therapist would be fine working with a less severely disabled child, but she is not a good candidate for providing services to Luna. Luna is really above almost anyone's pay grade. That huge head alone makes it really awkward to wrangle her. Maybe someone with more relevant experience can chime in, but I suspect that most physical therapists would not feel comfortable working with a child as severely disabled as Luna. Combined with Robyn's affinity for woo, and I think the end result is that only inexperienced or underqualified therapists were willing to take on Luna as a client. A lot of the stuff we have seen in videos screams "inexperienced" to me. Maybe not exactly incompetent, but close. I don't really know much about PT/OT specifics though.

@GenociderSyo, I know you've posted about this before, but the physical therapist is actually a licensed professional, right? If I remember correctly, she's not affiliated with a hospital or practice, just has her own (Facebook based?) gig. I think this is part of the appeal for Robyn. Additionally, I don't think Globyn could afford to pay for therapy services from an actual practice, so finding someone via Facebook was probably their most viable option.

I don't think Medicaid/Katie Beckett will pay for "therapy" from someone who isn't licensed, but I do think it's probably not possible for the state to vet every single therapy provider for experience or competence.

At any rate, I take comfort in the knowledge that it doesn't matter to Luna. I don't think she can experience discomfort or pain, regardless of what a therapist might do to her - and make no mistake, it's a "doing to" at this point, not a "doing for".
The degree they feel secure handling Luna makes me nervous. I'm not a nervous person, but I wouldn't transfer Luna from one place to the other because she just looks like she'd squash under your hand like a giant, decomposing strawberry. Glenn doesn't pick her up because even an animal can tell Luna isn't stable.
 
It is even possible the physical therapist would be fine working with a less severely disabled child, but she is not a good candidate for providing services to Luna. Luna is really above almost anyone's pay grade. That huge head alone makes it really awkward to wrangle her. Maybe someone with more relevant experience can chime in, but I suspect that most physical therapists would not feel comfortable working with a child as severely disabled as Luna. Combined with Robyn's affinity for woo, and I think the end result is that only inexperienced or underqualified therapists were willing to take on Luna as a client. A lot of the stuff we have seen in videos screams "inexperienced" to me. Maybe not exactly incompetent, but close. I don't really know much about PT/OT specifics though.

@GenociderSyo, I know you've posted about this before, but the physical therapist is actually a licensed professional, right? If I remember correctly, she's not affiliated with a hospital or practice, just has her own (Facebook based?) gig. I think this is part of the appeal for Robyn. Additionally, I don't think Globyn could afford to pay for therapy services from an actual practice, so finding someone via Facebook was probably their most viable option.

I don't think Medicaid/Katie Beckett will pay for "therapy" from someone who isn't licensed, but I do think it's probably not possible for the state to vet every single therapy provider for experience or competence.

At any rate, I take comfort in the knowledge that it doesn't matter to Luna. I don't think she can experience discomfort or pain, regardless of what a therapist might do to her - and make no mistake, it's a "doing to" at this point, not a "doing for".
I worked as a rehab professional (staying vague) and I do not think anyone in the offices I worked for would agree to treat a child like this. I certainly never saw or worked with a child myself this profoundly disabled in my career. Anyone with clinical education and experience can see that Luna is a palliative care patient. Rehab care and palliative care are not overlapping concepts.

I appreciate knowing that you are confident Luna cannot feel most of the "rehab" being done to her with her specific condition. In my mind, this situation is especially insane, because the whole idea of rehab of any kind necessitates the patient's ability to participate to whatever degree they're able - which for Luna is obviously beyond zero and into the negative.

Edit: I do think the PT "treating" Luna is doing this for money and virtue signaling. Any clinician of any stripe who abuses their position of power for their own benefit, to the possible or actual detriment of the patient they are supposedly helping, is evil subhuman scum in my book.
 
I think PT/OT is one of those fields that attracts people who genuinely want to help others feel better. It's a really hands-on job, especially with kids, and I think that weeds out many people who might be interested for other reasons. There are other allied health jobs that pay well, allow you to help patients in a tangible way, but don't require you to physically move another person's limbs for them. It's a truly intimate thing to help someone in that way, without being frustrated by their limitations or grossed out by the physical reality of it all. I think the right person sees it as a privilege: someone is showing you the most vulnerable part of themselves so that you can understand how to help them.

What I'm saying is that physical and occupational therapists and other rehabilitation providers are a special group and it says a lot that people have chimed in here to say that they'd be uncomfortable having Luna as a client. In my own life, I run into a fair number of PT students and they seem like a very earnest bunch who believe that they can improve the quality of life for almost anyone. To hear that professionals would deem Luna beyond helping is really sobering. She's just a little baby and she's broken beyond repair for absolutely zero reason. Just pointless suffering that did not need to be this way. I know Gwen Hartley gets a lot of shit for having Lola when they knew that Claire likely had a fatal recessive genetic condition, but I still think that choice is more understandable than what happened to Luna. She should be a normal toddler now, almost 3 years old. She'd be almost old enough to understand and be excited for her birthday. Maybe she'd have a little balance bike this summer, or maybe she'd rather play at the splash pad. Maybe she'd be looking forward to preschool next year, or dance class, or soccer. She might have her first little friends in the neighborhood. She'd be developing her own personality and opinions, making her preferences clear. Instead, there's just this pointless bullshit until her body catches up with her brain.

I hate this thread sometimes.
 
Luna’s situation has also ruined other lives. It’s surely destroyed her parents’ marriage. It’s turned Robyn from a regular woo lady into an insane, isolated person. Glenn looks like an empty shell of a man just going through the motions. It has to have negatively affected relationships with family, and I don’t see any friends around anymore (online Healy “friends” don’t count). And who knows what the future holds for Atlas. I wish they would stop the therapies and just snuggle their daughter until she passes as peacefully as possible.

This has probably been addressed before, but if they had taken Luna to the hospital in the days following her birth, would there have been any hope for her poor little brain?
 
No. The damage was already done.
I think you're likely right. Maybe if they'd gone to the hospital as soon as they realized labor wasn't progressing, the outcome would have been less grave, but once the flow of oxygenated blood to her brain was interrupted, the cells started to die. An emergency cesarean section might have limited the extent of the damage, but there is nothing that can reverse the catastrophic effects of such a severe and prolonged hypoxia-ischemia event.

There's convincing evidence that therapeutic cooling, which I think was discussed in the Tard Baby thread fairly recently, can improve overall outcome in newborns with moderate to severe hypoxic-ischemic brain injury, but the improvement is generally modest and the treatment cannot reverse damage.

I guess if Robyn had had a crash cesarian section basically as soon as they realized something was wrong, and they'd immediately treated Luna with therapeutic hypothermia, her brain injury may have been less extensive. Newborn brains are also VERY plastic (adaptable) and sometimes kids compensate incredibly well for what clinically appears to be a significant injury. With an unattended home birth, though, this was pretty much always going to be it. There's a reason severe multicystic encephalomalacia is not seen in developed countries very frequently.
 
The only way to fix this would have been to prevent it by giving birth in the hospital or a midwife center attached to a hospital. Primiparous women should always do this, their bodies are not predictable and you've got no idea what could happen during a birth.

Second, third and on, it's a little safer to try home birth, but still you'd need a midwife associated with a nearby hospital to do it with any degree of safety.

If she'd been less anti-science to begin with, she'd have been seen by a doctor as soon as the birth stopped progressing and Luna would probably just be a little bit delayed, tiny bit of sped. She'd be almost a normal kid.

Woo is destructive.
 
Yes I can't find the post now but she did have a license number and only runs her office from facebook.

https://www.facebook.com/Cowan-Phys...al-and-Occupational-Therapy-1565271287136604/
If you type in her name here (Melissa Cowan), you can see her license info from the Nevada Physical Therapy Board. The site doesn't work well on mobile: https://online.nvptboard.com/#/VerifyLicense
Screenshot_20220714-145001_Chrome.jpg
She also was issued an NPI in 2007 which shows her as a sole proprietor
 
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Luna’s situation has also ruined other lives. It’s surely destroyed her parents’ marriage. It’s turned Robyn from a regular woo lady into an insane, isolated person. Glenn looks like an empty shell of a man just going through the motions. It has to have negatively affected relationships with family, and I don’t see any friends around anymore (online Healy “friends” don’t count). And who knows what the future holds for Atlas. I wish they would stop the therapies and just snuggle their daughter until she passes as peacefully as possible.

This has probably been addressed before, but if they had taken Luna to the hospital in the days following her birth, would there have been any hope for her poor little brain?
Honestly, Robyn needs her IRL woo buddies and Glenn needs his workout buddies. Their lives will be better when Atlas goes to school and they can enjoy normal things like a couple kids running and playing and enjoying the house.

After having my fiance's little cousins around, I actually prefer a house with normal noises and messes to a sterile clean one that's eerily silent. It can't make Robyn happy sitting in that bland house with nothing going on. I take boredom breaks from reading this thread. I can't imagine living in it.
 
Luna’s situation has also ruined other lives. It’s surely destroyed her parents’ marriage. It’s turned Robyn from a regular woo lady into an insane, isolated person. Glenn looks like an empty shell of a man just going through the motions. It has to have negatively affected relationships with family, and I don’t see any friends around anymore (online Healy “friends” don’t count). And who knows what the future holds for Atlas.
I wish people talked about the toll on marriages, siblings, and mental health when they talk about having disabled kids.
 
Honestly, Robyn needs her IRL woo buddies and Glenn needs his workout buddies. Their lives will be better when Atlas goes to school and they can enjoy normal things like a couple kids running and playing and enjoying the house.

After having my fiance's little cousins around, I actually prefer a house with normal noises and messes to a sterile clean one that's eerily silent. It can't make Robyn happy sitting in that bland house with nothing going on. I take boredom breaks from reading this thread. I can't imagine living in it.
Bold of you to assume she plans to send Atlas to school. Or has any IRL buddies.
 
I wish people talked about the toll on marriages, siblings, and mental health when they talk about having disabled kids.
No one thinks about gravity of it all. Reminds me of a documentary on the mermaid girl, Shiloh
Her parents talk about what it did to them.
After she died they went their separate ways.
 
No one thinks about gravity of it all. Reminds me of a documentary on the mermaid girl, Shiloh
Her parents talk about what it did to them.
After she died they went their separate ways.
A grim thought that I always have is that, when parents choose to have and keep these very severely disabled children, they do not expect the child to live long at all.

They keep up the front of “doing everything they can” and “allowing god to decide” but deep down they want it over with, and are too ashamed to admit it.
 
A grim thought that I always have is that, when parents choose to have and keep these very severely disabled children, they do not expect the child to live long at all.

They keep up the front of “doing everything they can” and “allowing god to decide” but deep down they want it over with, and are too shamed to admit it.

I suspect that it's very, very widespread.
On one of the original lolcow threads about the Hartleys, the story of Gwen chimping out over Cal saying "retard" led to a discussion about this very subject, and whether Cal resented his sisters. A few people shared stories they'd heard from the parents of disabled children; they were shockingly grim.

"I'm not a parent, but my second cousin (much older, in his 60's) and his wife have 4 daughters.
Let's call the oldest K. K was born with very severe down syndrome, diabetes and as a celiac. They said she had absolutely no chance of living past 5 years old. The father is a retired surgeon and the mother was a nurse. She gave up her job at 24, when K was born. She raised 3 other daughters, of which 1 was diabetic as well (she was also a huge problem child. Out of control, really). She gave up her life when K was born. She expected to be back at work within 10 years.

K is 43 this year and still requires full time care. She works at a factory that is specifically for down syndrome people. She has to have her blood tested several times a day, which means that one of her parents has to drive for 30 minutes to check it, then 45 minutes home. She is dropped off and picked up by her parents every day she works. They have to measure every meal she eats with a measuring jug to check ensure she maintains a healthy diet and get up three times a night to check her blood.

As is usual with down syndrome patients, the older she has gotten, the more difficult she is to deal with.

I sat with her mother one night drinking wine, talking to her about it. After a few glasses, she broke down. She never got a chance to live her own life because of K. Not in their wildest dreams did they expect her to live as long as she had.

The mother is a wonderful, kind woman. I've never seen someone with so much love.

 She looked at me and said "I wish she'd just die already."

 
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He does have that one little boy as a friend, I guess. Remember the play date when he came over and Robyn made Luna the center of attention?
The little boy who couldn’t stop staring at Luna? That was the happiest I ever seen Atlas.

I don’t have kids and they don’t really invoke a feeling in me but I was filled with joy seeing how Atlas interacted with that kid. His smile is infectious and I am so worried about when Luna is finally gone. Will she try to potato him? Or blame him for Luna dying. Sorry had to vent a bit on this one.
 
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