- Joined
- Apr 16, 2021
...a snake? Or get a plant, and get a plug-in timer for it.
A local ER has a billboard up advertising with unicorns. It feels like it's aimed at munchies,
Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention
- Thread starter Petronella
- Start date
A local ER has a billboard up advertising with unicorns. It feels like it's aimed at munchies,
ShadowCass
kiwifarms.net
- Joined
- May 30, 2019
They should gone with a zebra, munchies would be lining up around the block!
- Joined
- Oct 23, 2023
You may live in the dark, lady, but do you have to sit like this?
ETA: sorry about format, I am new & an idiot
ETA: sorry about format, I am new & an idiot
- Joined
- Nov 21, 2019
This is complete bullshittery. Nobody sits like that. I hope she pulls her back out.
ZsaZsaBinks
kiwifarms.net
- Joined
- Jul 15, 2022
There is this person I know who was in a car wreck that caused her to have whiplash. She recovered, but five years later, after being in an abusive relationship, she ended up with a list of problems that I and everyone around her believe she has. She has Hypermobile EDS, POTS, MCAS, Sjögren’s Syndrome, ADHD, CPTSD, and mold toxicity. She also had endometriosis which she had her uterus removed for. I used to think that she was a lost cause, but now I’m beginning to wonder if she has Munchhausen’s. Not only does she claim to have all the things Munchhausen’s people have, but she also fits the stereotype of most munchies. She’s privileged and loves indie culture. I don’t want to deny that her suffering exists if it does, but I really can’t help but feel like she is faking all these diseases.
- Joined
- Apr 16, 2021
Yeah, but a unicorn is more special, and more rare!
- Joined
- Mar 15, 2019
- Joined
- Feb 20, 2021
She writes like a fetishist. It reminds me of that munchie girl who wrote like a consumptive Victorian and had been molested by her much-older husband before they married. She came to her thread here and it was funny.
- Joined
- Nov 18, 2020
I actually have a theory that people seek ostomies to place a barrier to sexual intimacy. Not that people can't have great sex lives with ostomies, but the girls with them are so gross.
I think I know who you mean. Red hair? I didn't know she came here.
- Joined
- Jul 29, 2020
Here's something to keep in mind about this diagnosis, it seems to most often come up with BPD. There's some conjecture within the psych community regarding whether or not nearly every person with BPD does not also have C-PTSD, because what is considered "traumatizing" to someone with BPD could be something relatively minor. The symptoms of C-PTSD are not really like the symptoms of PTSD either.
Anecdotally, I was speaking with a coworker who specializes in clinical psychology and apparently they're not even treated the same way, it's a whole other type of therapy people with C-PTSD need, and it happens to be the same type that is more effective for people with borderline.
I don't know your friend, but she sounds like she's got a lot of Cluster B going on and is playing people for asspats and validation. Munchies and those personality disorders seem to go hand in hand often in this thread.
SaidTheSpider
kiwifarms.net
- Joined
- Dec 17, 2019
That's Christine Milneaux, and here's her thread, though I think she got more discussion here than there.
Interesting. What I'd heard was that BPD and CPTSD are one and the same, just that CPTSD is a more palatable name, so the patient is more likely to accept it instead of throwing a fit about it.
- Joined
- Nov 18, 2020
It makes sense. It really is a complex response to trauma. BPD is essentially one of the worst systemic responses to repeated emotional stress.
- Joined
- Mar 14, 2023
I don't think this is the case, see for example here:
https://my.clevelandclinic.org/health/diseases/24881-cptsd-complex-ptsd
and here, where it also mentions that symptoms are similar to PTSD with some extras:
I'm sure people with BPD COULD benefit from these therapies, as @LonesomeDud pointed out it is a response to trauma, but the therapies for C/PTSD and BPD isn't thee same, here it says DBT is generally best for BPD.
eta: anecdotally i know that EMDR and accelerated resolution therapy are extremely effective for the PTSD elements of CPTSD.
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- Joined
- Mar 24, 2021
The problem is that CPTSD is a real thing but also a cover-diagnosis to avoid the stigma and freakout from telling someone with BPD that's what they have. DBT is best for BPD but can also be effective in some CPTSD cases. It's also cheaper and easier to do. It's not uncommon to try DBT and see how it does, then move on to EMDR as needed. Assuming the BPD case doesn't know it's meant as a filter they will generally find DBT effective.
- Joined
- Jul 29, 2020
This was exactly what I was told, but I'll freely admit I don't personally practice in that field and am only speaking on what boils down to gossip from someone who does.
From glancing at clinical trials, it does seem like DBT is not only the primary approach to treating BPD but also C-PTSD and has been found to be highly effective. In my own personal, unprofessional opinion, these internet munchies seem to share a suspicious amount of traits with those who have BPD. All of which is why I say someone who claims to have the Munchie Menagerie (EDS, POTS, MCAS, "chronic lyme", etc) and also C-PTSD might happen to have BPD and is lying/exaggerating for attention. That's my personal bias though.
no I will not
kiwifarms.net
- Joined
- Jan 27, 2023
Delurking because I can actually contribute to this discussion. The whole ptsd/c-ptsd/bpd thing is honestly a bit of a mess right now, at least in the US. C-ptsd isn't in the most recent dsm though there was some pressure to try to get it there. I also know that there is a push among experts in trauma to update the criteria for ptsd and that the updated diagnosis would probably include some but not all cases that are now referred to as c-ptsd. Basically there is a whole spectrum of behaviors that relate to how we perceive and manage distress and the lines are honestly quite blurry and the treatments for ptsd, c-ptsd, and cluster b are more interchangeable than you might think. DBT and emdr are honestly useful for all three. Just never do talk therapy for cluster B.
- Joined
- Oct 23, 2023
I think the discourse around trauma has become absolutely insane, and I blame Bessel Van Der Kolk and his army of perpetual victims for much of it. Humans are resilient which is great because shit happens. Don’t nurture your inner toddler, try to be an adult. Bullying in preschool is not your Vietnam war.
Learning adaptive strategies for anxiety or depression (combined with non-benzo medications in some cases) is key to most non-psychotic disorders including personality disorders and what I see from “trauma informed” health professionals is opposite to that.
Don’t have the energy to sperg my skepticism to EMDR too but yeah, evidence is not solid. And don’t get me started on the muh ayahuasca tribe…
Goddamn VC hippies.
Learning adaptive strategies for anxiety or depression (combined with non-benzo medications in some cases) is key to most non-psychotic disorders including personality disorders and what I see from “trauma informed” health professionals is opposite to that.
Don’t have the energy to sperg my skepticism to EMDR too but yeah, evidence is not solid. And don’t get me started on the muh ayahuasca tribe…
Goddamn VC hippies.
- Joined
- Jan 11, 2023
3I am FtMtF age 27. The first image is from Feb 2023 and the second one is from today. Both images are unedited. I’ve been off of T for almost 7 months now. I was on T for 7 years, lived as male for around 12 years, and had top surgery in 2018. I’ve had 4 laser sessions so far. I’m happy to answer any additional questions you all may have.
Well, well, well if it isn't Shelby-Lynn! (the disabled hippie) FTM "model" on Reddit detrans...her username is lilcannoli69
Well, well, well if it isn't Shelby-Lynn! (the disabled hippie) FTM "model" on Reddit detrans...her username is lilcannoli69
Last edited:
- Joined
- Nov 15, 2014
she reminds me of that science you tuber with the long covid now the one who they turned their bedroom into a tomb and now beg for money.
- Joined
- Feb 21, 2018
I fucking love that I was right. In the comments she says that it was things like internalized homophobia that made her transition. Jaina didn't want to be clocked as a lesbian and put tons of pressure on her to look as masculine as possible and that her family was on board with this too. I'd almost feel bad for her if she hadn't spent the last five years telling other young lesbians that spaying the gay away is the key to happiness.3I am FtMtF age 27. The first image is from Feb 2023 and the second one is from today. Both images are unedited. I’ve been off of T for almost 7 months now. I was on T for 7 years, lived as male for around 12 years, and had top surgery in 2018. I’ve had 4 laser sessions so far. I’m happy to answer any additional questions you all may have.
View attachment 5490540
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Maddie / queen.of.eds part 2. In part 1 she went from a gymnast/competitive cheerleader to a paramedic to a full-time munchie after getting a boyfriend. The change came after her mother got a wheelchair and program trained SD for her real MS and her father got diagnosed with cancer. Maddie has just started off with a normie POTS diagnosis and EDS which is really trained hypermobility she documented herself training. We left off with her getting a new pit bull puppy she swears is going to be a service dog just like her mom's. Now it's time to make sure she never has to be a useful contributing member of society for as long as she lives.
Still claiming this is all she eats. Each carton is 325mL at 1 cal/mL, so 325 calories each. Why don’t these girls ever get something truly high calorie like Benecalorie? That’s the same amount of calories in 45mL.
She loves her walker! It’s pink!
The reality of blood draws is very slight bruising where the needle was inserted.
Scores the cripple parking pass and tells us they’re not hard to get once you find a doctor who writes them a lot. Thank you, very helpful to people who actually need to use those parking spaces like your wheelchair-dependent mother, you munchie cunt.
Still posting food but she swears she’s not eating it.
Stretch marks are now serious EDS symptoms. Congratulations on your new zebra diagnoses, all of the women and most of the men reading this. It's not like we watched her gain a lot of weight in a short period or anything.
Spiriva’s a long-acting inhaler for asthma, one of the most commonly prescribed ones at that.
Now claiming spondylosis, osteoarthritis of the spine, very common in young athletes especially those in sports that require them to stretch and hold positions like gymnastics and cheer. Also Adrenal Insufficiency which is a real thing either caused by autoimmune disease (Addison’s Disease) or damage to the adrenals from something like long-term corticosteroid use. But it’s been coopted by the woo set who claim “adrenal insufficiency” is the cause for their tireds and mild aging-related health complaints.
she’s gluten free but in the “I am aping other munchies on social media” way instead of the “I have actual celiac disease” way.
She joins JuicePlus+, an MLM situation type deal that sells overpriced fruit and vegetable extract capsules that they promise lead to better health because magical produce nutrition. In reality you’re getting some really basic vit A, C, and E you could get from any drug store vitamin and paying $80 a month for it. Oh and you have to buy 4 months at a time.
Bone pain from EDS I guess.
Consider actual therapy. But she does look markedly thinner than she did a year ago.
Add Indian food to the list of things she can tolerate when she feels like it.
Reminder that both of her parents have real health conditions that could kill them.
Don’t be afraid to doctor shop if the one you picked isn’t giving you everything you want!
This color combo is super accessible, thank you. I have above-average vision relative to my age and I still had to fiddle with the contrast on my screen to see what the fuck this said.
The dog is still “in training” even though she never posts about him or takes him anywhere from what I can tell. He’s never with her when she goes out places and she doesn’t talk about training. So at least this one hasn’t gone over to a full SD munchie account. Yet.
YOU WERE JUST EATING INDIAN FOOD. Claiming she can only drink 2 cartons of Kate Farms a day which is 650 calories. The body armor is 120 calories of sugar water. Again there’s much higher calorie lower volume options than what she’s drinking like Boost Very High Calorie which is 550 calories for only 237mL. Kate Farms even has a 1.5 calorie peptide formula so 500 calories a 325mL carton, or if she wants to stick with the chocolate standard there’s a 1.4 that’s 455 cals per carton.
LMAO she totally didn’t eat this cheeseburger even though there’s two of them but she can tell you she likes the Beyond Burger way more than the impossible burger, somehow.
She has a UTI.
First time she’s shown the dog “working” and of course he’s on high alert, distracted, and wearing a prong.
I love how she wears this thing like once a year.
Botox for migraines.
Another one that doesn’t understand that when you suddenly go down on the floor your puppy thinks it’s a game and wants to play with you.
Right lumbar nerve ablation and now her leg doesn’t work. Yes, Lara Bloom of the EDS Foundation has posted a zebra emoji on hundreds and thousands of posts tagging EDS for years. It’s a cult.
Her mom’s MS is severe and at this point she has very limited function. They find a skydiving place that can accommodate a full quad so her mom can check skydiving off her bucketlist. Maddie, of course, makes this about herself and her super severe POTS. I do not doubt her mom has real MS. I talked to someone who knows far more about this than I do who said this is very common in that age demog because of the limited treatment options available until recently, and because even most cases of Relapsing-Remitting MS will eventually turn to the Secondary Progressive form where you just continue to get worse. Older people with MS who missed out on the newer treatments were already fucked and then get gigafucked when the disease changes to the progressing form.
Proud of herself for doing her PT.
Lol it’s mild asthma, chill.
First ER visit with her highly trained service dog who is there for comfort only because he performs no tasks. You’d think her mom who is actually disabled and actually has a program trained dog would say something.
It’s a respiratory infection or #chroniclungdisease as she puts it.
First time ever taking her dog to the park to burn off his energy. Holy shit. You know she's not walking him regularly either.
She loves her walker! It’s pink!
The reality of blood draws is very slight bruising where the needle was inserted.
Scores the cripple parking pass and tells us they’re not hard to get once you find a doctor who writes them a lot. Thank you, very helpful to people who actually need to use those parking spaces like your wheelchair-dependent mother, you munchie cunt.
Still posting food but she swears she’s not eating it.
Stretch marks are now serious EDS symptoms. Congratulations on your new zebra diagnoses, all of the women and most of the men reading this. It's not like we watched her gain a lot of weight in a short period or anything.
Spiriva’s a long-acting inhaler for asthma, one of the most commonly prescribed ones at that.
Now claiming spondylosis, osteoarthritis of the spine, very common in young athletes especially those in sports that require them to stretch and hold positions like gymnastics and cheer. Also Adrenal Insufficiency which is a real thing either caused by autoimmune disease (Addison’s Disease) or damage to the adrenals from something like long-term corticosteroid use. But it’s been coopted by the woo set who claim “adrenal insufficiency” is the cause for their tireds and mild aging-related health complaints.
she’s gluten free but in the “I am aping other munchies on social media” way instead of the “I have actual celiac disease” way.
She joins JuicePlus+, an MLM situation type deal that sells overpriced fruit and vegetable extract capsules that they promise lead to better health because magical produce nutrition. In reality you’re getting some really basic vit A, C, and E you could get from any drug store vitamin and paying $80 a month for it. Oh and you have to buy 4 months at a time.
Bone pain from EDS I guess.
Consider actual therapy. But she does look markedly thinner than she did a year ago.
Add Indian food to the list of things she can tolerate when she feels like it.
Reminder that both of her parents have real health conditions that could kill them.
Don’t be afraid to doctor shop if the one you picked isn’t giving you everything you want!
This color combo is super accessible, thank you. I have above-average vision relative to my age and I still had to fiddle with the contrast on my screen to see what the fuck this said.
The dog is still “in training” even though she never posts about him or takes him anywhere from what I can tell. He’s never with her when she goes out places and she doesn’t talk about training. So at least this one hasn’t gone over to a full SD munchie account. Yet.
YOU WERE JUST EATING INDIAN FOOD. Claiming she can only drink 2 cartons of Kate Farms a day which is 650 calories. The body armor is 120 calories of sugar water. Again there’s much higher calorie lower volume options than what she’s drinking like Boost Very High Calorie which is 550 calories for only 237mL. Kate Farms even has a 1.5 calorie peptide formula so 500 calories a 325mL carton, or if she wants to stick with the chocolate standard there’s a 1.4 that’s 455 cals per carton.
LMAO she totally didn’t eat this cheeseburger even though there’s two of them but she can tell you she likes the Beyond Burger way more than the impossible burger, somehow.
She has a UTI.
First time she’s shown the dog “working” and of course he’s on high alert, distracted, and wearing a prong.
I love how she wears this thing like once a year.
Botox for migraines.
Another one that doesn’t understand that when you suddenly go down on the floor your puppy thinks it’s a game and wants to play with you.
Right lumbar nerve ablation and now her leg doesn’t work. Yes, Lara Bloom of the EDS Foundation has posted a zebra emoji on hundreds and thousands of posts tagging EDS for years. It’s a cult.
Her mom’s MS is severe and at this point she has very limited function. They find a skydiving place that can accommodate a full quad so her mom can check skydiving off her bucketlist. Maddie, of course, makes this about herself and her super severe POTS. I do not doubt her mom has real MS. I talked to someone who knows far more about this than I do who said this is very common in that age demog because of the limited treatment options available until recently, and because even most cases of Relapsing-Remitting MS will eventually turn to the Secondary Progressive form where you just continue to get worse. Older people with MS who missed out on the newer treatments were already fucked and then get gigafucked when the disease changes to the progressing form.
Proud of herself for doing her PT.
Lol it’s mild asthma, chill.
First ER visit with her highly trained service dog who is there for comfort only because he performs no tasks. You’d think her mom who is actually disabled and actually has a program trained dog would say something.
It’s a respiratory infection or #chroniclungdisease as she puts it.
First time ever taking her dog to the park to burn off his energy. Holy shit. You know she's not walking him regularly either.
In August 2019 she goes to Mayo Clinic in Minnesota to see their gastro and figure out why she’s having such terrible GI conditions. She claims she’s lost 50 lbs and has been liquids only for five months. She’s been told she has to force feed herself but can’t keep anything down. This has made her a cranky spanky no one wants to be around. Her doctors referred her to Mayo to see if she has some sort of GI dysmotility. Remember that she’s on a ton of medications that slow gastric transit.
And we suddenly learn she has scored a wheelchair and pink AFOs she never mentioned before. And of course the terrified dog is there. How hard do you think the Mayo doctors roll their eyes when they see another girl like this come in with the pink wheelchair and ""service dog"", obviously seeking specific trendy diagnoses.
I always wonder when these girls get to the anal manometry test if they start to regret their choices, even just a little bit, especially given that their “intestinal dysmotility” is generally a result of their own drug use and other poor lifestyle choices. If you don’t know, that test involves having a medical buttplug-balloon inserted into your asshole and inflated. While the balloon is inside your booty bunker, they ask you to perform certain activities like coughing so that a sensor can measure the pressure your rear entryway exerts on it. Then in front of an audience of medical staff, you must strain in an attempt to poop the inflated buttplug out. During this whole time you are often asked to describe how it feels to have this in your poop chute at that particular moment. She gets that, then a gastric mucosal scan that involved having to drink 300mL of nutrition drink which totally made her sick. Then she had an MR Enterography and she couldn’t drink the full contrast and her ribs kept “sliding out” from the position she was in. (Jaquie was completely traumatized by anal manometry, which she had to get after blocking her intestines with opiates, zofran, and IV benny)
And all that testing amounted to… nothing. Everything about her was perfectly healthy. Her digestive system works fine when she’s not stopping herself up to the eyeballs with medications. They won’t even give her a feeding tube! Now she has to push her doctors harder than ever to give her what she wants. I love when they just give away that they're making themselves huge pests and demanding doctors do what they say.
Hope this last test shows something! If not she’s going to go tantrum at home until they tube her because she literally can’t eat???
Next post: went out to lunch with the service human! Conveniently doesn’t show the table.
Medicalizing a car ride.
And right on to her next big thing, urology to get a handle on her chronic UTIs.
On August 23rd she shows off that she’s getting IV fluids at home now, as is the way. It’s a six week trial to see if her health improves.
A week later we learn she has talked a doctor into giving her a surgical feeding tube without ever even trialing an NG/NJ. She claims she got an intestinal dysmotility diagnosis from mayo even though when she was there she was having a shitfit that nothing was showing up on scans. Her colon is the worst part and somehow this makes her unable to eat. I suspect what they told her was her medications were making her unable to poop and this was making her uncomfortable. She’s down to a third of what she needs from her liquid diet so they decided to do a g tube which puts the formula in her stomach anyway. They want to see if that works before moving to a GJ. Woudln’t you trial an NJ first and make sure that’s going to work before you punched a hole in someone’s abdomen?
Look at that smile of satisfaction. She’s absolutely bursting at the seams with joy because she won. She gets her tube. Fuck you Mayo Clinic.
She’s already begging for a FreeArm to hold her feed bag up.
And complaining that the g-tube isn’t working. They can only run feeds at 10mL/hr which is working out to even fewer calories than when she was just drinking it like a pleb. Her doctors don’t even care right now! They’ve given her 5L of fluids and it’s not leaving her body so now she’s strugglin’ to breathe on top of it and has to be on CPAP.
Discharged and almost immediately boomerangs back to the ER because she’s “spacey.” They’re checking her electrolytes.
Gofundme time! We learn she’s no longer working and hasn’t been for months and her parents – her disabled mother and her very recent cancer survivor dad – have been eating the expenses for her frequent stays at the Hotel d’Hospital while her boyfriend pays all their living expenses. https://archive.ph/QKRCd
Most of the GFM is just dozens and dozens of photos of herself, posted out of order to make it look even more like she's healthy when she wants to be. $650 donated. $250 was from her mom.
She turns her back on the Creamy Delicious Kate Farms and gets Vital 1.5 peptide enteral feeds instead.
Here is a photograph of a real service dog next to a spastic untrained pet in a vest.
At the end of September she’s gotten a GJ tube installed. She’s already getting better and it’s making her crabby.
Your mother is permanently disabled by an autoimmune disease that decimated her CNS, you wonky-eyed penguin.
MCAS because ranitidine was pulled from the market.
On to our next adventure: a port for salt water, of course. Potsie Nicole in the comments cheering her on. Nicole has had sepsis over a dozen times from her line she got for salt water infusions.
She gets her port and names it Paris. Also says she’s now allergic to dilaudid and hydrocodone. Her doctor will only sign off on the hydrocodone for home use so she’s just sedating herself with benedryl.
I wonder if her mom gets to hop out of her wheelchair to go enjoy a non-accessible pumpkin patch when she wants to.
As per usual, the very common adhesive reaction is super serial MCAS.
Showing off pred for a normal resp infection because other people are getting pneumonia. Gotta love chronic (transient infectious) lung diseases!!!
This is apparently something you stick in your ear and pump and the manufacturer says it releases the pressure in your head to relieve migraines. Amazon reviews say it’s overpriced garbage that works fine if you have an ear pressure issue but isn’t going to do shit for a migraine.
Feeding tube. There's 0 chance that she's making this much food for just her boyfriend but never eating it herself. I do like the #wifematerial. HINT HINT TIMOTHY.
Makeup Therapy still fine with her MCAS.
Things her stomach can tolerate: red wine. Of all the things. . .
DON’T SETTLE For reasonable suggestions like “drink water and do some cardio!” Keep screeching until you find a doctor who will put a catheter directly into your heart so you can pump salt water into it.
Is this what passes for wedding attire in Missouri? Jeans and a flannel?
The egg cup has returned!
“Bloat” from eating meals. This is the sad reality, she’ll pay for it for days, it was worth it, etc etc.
She’s cleared to access her own port, and may the sepsis countdown begin.
Remember that all of this started in September 2018, and we have only made it to November 2019, the anniversary of her first hospital admit when she learned her body “doesn’t do very well after surgeries.” Even though she’d had several previous surgeries. Add the medication comments and it sounds more like “the first time I learned I could get them to keep me for days hooked up to the good pain medication.”
And we suddenly learn she has scored a wheelchair and pink AFOs she never mentioned before. And of course the terrified dog is there. How hard do you think the Mayo doctors roll their eyes when they see another girl like this come in with the pink wheelchair and ""service dog"", obviously seeking specific trendy diagnoses.
I always wonder when these girls get to the anal manometry test if they start to regret their choices, even just a little bit, especially given that their “intestinal dysmotility” is generally a result of their own drug use and other poor lifestyle choices. If you don’t know, that test involves having a medical buttplug-balloon inserted into your asshole and inflated. While the balloon is inside your booty bunker, they ask you to perform certain activities like coughing so that a sensor can measure the pressure your rear entryway exerts on it. Then in front of an audience of medical staff, you must strain in an attempt to poop the inflated buttplug out. During this whole time you are often asked to describe how it feels to have this in your poop chute at that particular moment. She gets that, then a gastric mucosal scan that involved having to drink 300mL of nutrition drink which totally made her sick. Then she had an MR Enterography and she couldn’t drink the full contrast and her ribs kept “sliding out” from the position she was in. (Jaquie was completely traumatized by anal manometry, which she had to get after blocking her intestines with opiates, zofran, and IV benny)
And all that testing amounted to… nothing. Everything about her was perfectly healthy. Her digestive system works fine when she’s not stopping herself up to the eyeballs with medications. They won’t even give her a feeding tube! Now she has to push her doctors harder than ever to give her what she wants. I love when they just give away that they're making themselves huge pests and demanding doctors do what they say.
Hope this last test shows something! If not she’s going to go tantrum at home until they tube her because she literally can’t eat???
Next post: went out to lunch with the service human! Conveniently doesn’t show the table.
Medicalizing a car ride.
And right on to her next big thing, urology to get a handle on her chronic UTIs.
On August 23rd she shows off that she’s getting IV fluids at home now, as is the way. It’s a six week trial to see if her health improves.
A week later we learn she has talked a doctor into giving her a surgical feeding tube without ever even trialing an NG/NJ. She claims she got an intestinal dysmotility diagnosis from mayo even though when she was there she was having a shitfit that nothing was showing up on scans. Her colon is the worst part and somehow this makes her unable to eat. I suspect what they told her was her medications were making her unable to poop and this was making her uncomfortable. She’s down to a third of what she needs from her liquid diet so they decided to do a g tube which puts the formula in her stomach anyway. They want to see if that works before moving to a GJ. Woudln’t you trial an NJ first and make sure that’s going to work before you punched a hole in someone’s abdomen?
Look at that smile of satisfaction. She’s absolutely bursting at the seams with joy because she won. She gets her tube. Fuck you Mayo Clinic.
She’s already begging for a FreeArm to hold her feed bag up.
And complaining that the g-tube isn’t working. They can only run feeds at 10mL/hr which is working out to even fewer calories than when she was just drinking it like a pleb. Her doctors don’t even care right now! They’ve given her 5L of fluids and it’s not leaving her body so now she’s strugglin’ to breathe on top of it and has to be on CPAP.
Discharged and almost immediately boomerangs back to the ER because she’s “spacey.” They’re checking her electrolytes.
Gofundme time! We learn she’s no longer working and hasn’t been for months and her parents – her disabled mother and her very recent cancer survivor dad – have been eating the expenses for her frequent stays at the Hotel d’Hospital while her boyfriend pays all their living expenses. https://archive.ph/QKRCd
Most of the GFM is just dozens and dozens of photos of herself, posted out of order to make it look even more like she's healthy when she wants to be. $650 donated. $250 was from her mom.
She turns her back on the Creamy Delicious Kate Farms and gets Vital 1.5 peptide enteral feeds instead.
Here is a photograph of a real service dog next to a spastic untrained pet in a vest.
At the end of September she’s gotten a GJ tube installed. She’s already getting better and it’s making her crabby.
Your mother is permanently disabled by an autoimmune disease that decimated her CNS, you wonky-eyed penguin.
MCAS because ranitidine was pulled from the market.
On to our next adventure: a port for salt water, of course. Potsie Nicole in the comments cheering her on. Nicole has had sepsis over a dozen times from her line she got for salt water infusions.
She gets her port and names it Paris. Also says she’s now allergic to dilaudid and hydrocodone. Her doctor will only sign off on the hydrocodone for home use so she’s just sedating herself with benedryl.
I wonder if her mom gets to hop out of her wheelchair to go enjoy a non-accessible pumpkin patch when she wants to.
As per usual, the very common adhesive reaction is super serial MCAS.
Showing off pred for a normal resp infection because other people are getting pneumonia. Gotta love chronic (transient infectious) lung diseases!!!
This is apparently something you stick in your ear and pump and the manufacturer says it releases the pressure in your head to relieve migraines. Amazon reviews say it’s overpriced garbage that works fine if you have an ear pressure issue but isn’t going to do shit for a migraine.
Feeding tube. There's 0 chance that she's making this much food for just her boyfriend but never eating it herself. I do like the #wifematerial. HINT HINT TIMOTHY.
Makeup Therapy still fine with her MCAS.
Things her stomach can tolerate: red wine. Of all the things. . .
DON’T SETTLE For reasonable suggestions like “drink water and do some cardio!” Keep screeching until you find a doctor who will put a catheter directly into your heart so you can pump salt water into it.
Is this what passes for wedding attire in Missouri? Jeans and a flannel?
The egg cup has returned!
“Bloat” from eating meals. This is the sad reality, she’ll pay for it for days, it was worth it, etc etc.
She’s cleared to access her own port, and may the sepsis countdown begin.
Remember that all of this started in September 2018, and we have only made it to November 2019, the anniversary of her first hospital admit when she learned her body “doesn’t do very well after surgeries.” Even though she’d had several previous surgeries. Add the medication comments and it sounds more like “the first time I learned I could get them to keep me for days hooked up to the good pain medication.”
Starting Xolair for her asthma and MCAS.
Welp. I guess this is wedding attire in Missouri, who knew? Also wow matching your boyfriend's outfit lol.
I don’t consent. Remember when she was e-begging saying she was bankrupting her loved ones because of her medical bills and now she can afford to shell out for new makeup collabs? Lol.
And MOMMY!!! When are you going to take your poor sick baby on a vacation?
“Hope you can do some training again!” She hasn’t been doing shit with this dog. She bought a vest and got him to minimally behave in public so now he’s a service dog. The juxtaposition between her untrained lunatic and the actual program trained dog never stops being funny.
Xolair’s working. At this rate she won’t have anything to whine about. Nice subtle body check to show her thighs are starting to not touch.
More prezzies from her feeding tube formula company! Best customer service ever!!! Gotta get their customer back after she switched formulas I guess.
And right here is where I saw Jessica Riley posting. Given that Maddie has no qualms about faking in front of her severely disabled mother and some of the other accounts floating around in her comments have things like cystic fibrosis, I thought perhaps Jessica was another actually sick person who got caught in her orbit. And a month later I finally made it back where I started.
Getting on MMJ now. Excited for the next year!
Baby’s first MCAS flare. She had to go to the ER because she was real itchy and benadryl wasn’t cutting it. They gave her steroids, more benadryl, and hydroxyzine then prescribed her the latter for at home use. Her GI system is acting fucky and she’s back on tramadol, I’m sure these are unrelated. But the best part is the day after her “flare” and ER trip she goes to her PCP asking for IV Benny and was told no, and furthermore that she never needed a tube or port and that she was going to kill herself and he wouldn’t be complicit in it. He fires her as a patient even after she told him that she took upwards of 300mg of benadryl to make her itchies stop. Gee whiz, kid. She left this appointment “balling” and now has to find a new doctor who will give her what she wants.
Fuck you, Doctor Whoever! She loves her tube and she’s never ever getting rid of it!
She sees a psychologist and from this, learns that she should fire any doctor who isn’t giving her what she wants.
She’s now worried that the “flare” was caused by the Xolair itself. The dose is now doubled.
Next day, she’s having terrible bone pain, daily allergic reactions, and fatigue. She spends what little energy she has on finding and meeting new doctors because she’s simply gotten too complex for the old ones.
She experiences two kinds of hunger, one where she’s actually hungry because she doesn’t have gastroparesis and that one is solved by drinking liquids, and one where she just wants food. She only has two safe foods she can eat! She just drank an entire Ensure and her stomach is NOT HAPPY she did that. Jessica would like to know why she doesn’t just drink Kate Farms and Maddie insists she’s allergic. Jessica says she has the kids formula so she’s fine.
Her new PCP restored her faith in herself and he has so many ideas he’d like to try. She’s his most complicated patient even with previous experience at an EDS clinic and says some things just aren’t lining up. Instead of realizing this is because she does not have EDS, he thinks it’s because there’s something more going on. She has anemia that needs to be addressed and no one knows why it’s getting worse… port. And she’s changing medications so everything can go into her tube now and because of absorption problems they’ll be adjusting the doses.
Admitted to the University Hospital for mast cell shit. Valerie Webb/chronic.life.of.val in the comments.
Truefax: I love these giveaway posts because it’s like a free directory of who I should be keeping an eye on. There’s dozens upon dozens of accounts listed in the comments for me to peruse. Some of them are old friends like Katie Stanina, Marisa Finan-Goode, Lauren the EDS noodle, and Potsie Nicole, but a bunch are new friends we haven’t met yet!
She’s very lucky she doesn’t have any of the EDS-related eye issues. Probably because she doesn’t have EDS.
Some of you may not know she has a feeding tube that she shows off constantly. She’s been really struggling to except this reality she tantrumed and screamed her way into. Claiming she has esophageal dysmotility which was never mentioned at mayo, and this will never get better or go away so she’ll need a tube for life. It’s so hard to avoid food when other people are eating! I reckon Maddie eats just fine when people aren’t watching, and probably does so in front of her enabling boyfriend who is too stupid or involved in the caretaker role to realize this is a major discrepancy. Jamie Bruce in the comments.
Thank you for not questioning my lies and for funding my lifestyle!!!
New allergist, it could not have gone better! This doctor totes agrees with the MCAS diagnosis and is totally on the same wavelength about treating it. She’ll be switched from Benadryl to hydroxyzine and from Xolair to Dupixent.
She’s also now on Symbicort, a combo inhaler. She claims her lungs feel like tehy’re full of “junk and fluid” all the time. CF larping.
Before her tube she was “quite malnutritoused and loosing weight.” This woman’s tenuous grasp on the English language is fascinating. Her body weight never went below 120 before she was tubed. Illustrates with body checks, of course.
After months of screeching and wailing she FINALLY has gotten her hands on IV Benadryl.
Having gained the ability to immediately sedate herself by pushing antihistamines into her heart, she suddenly is struggling with crippling fatigue. Her WBCs are elevated and no one knows why.
“Turns out I had a UTI for a month and my body decided not to fix it.” So, you ignored a UTI and didn’t get treated because you were hoping it turned into something you could milk for drama. Cool. I don’t know how these girls stand not treating a UTI. It’s one of the most naggingly uncomfortable things I can think of. Not the most painful, but it’s like a toothache or a bad hangover. It demands that you pay attention to it. I guess they just keep popping pain meds so they can ignore the symptoms. Iron levels are back to normal after the miracle known as “taking a supplement.” She’s taking diflucan/fluconazole for frequent oral thrush, which is almost definitely from her inhalers and nebulizers. I love that she dressed up like it was date night for this appointment lmao.
Nerve biopsies done. Insurance won’t approve dupixent but she loves that she can push benadryl directly into her heart now!
Thanks to insurance she can’t get this medicine she NEEDS to survive.
How many -mabs can one munchie take? Aimovig for migraiens now.
She got approved for disability somehow. She started birth control with the belief that her hormones might causing her medication reactions but instead they got worse. She goes to the ER for extreme lower right quadrant pain and it’s an ovarian cyst (she told this exact story before!) and now she’s looking into PCOS but is told birth control is what she needs for that. She has “anaphylaxis” that was treated with IV Benadryl (no the fuck you did not). Sleep study, migraine botox. The rheumatologist says she “doesn’t think there’s anything else wrong with her.” Lmao munchie tried to go for an autoimmune diagnosis to add to her list and was told to fuck off. Stopped BC because she realized it coincided with her “reactions” that are definitely not anxiety. Starts motegrity for “unexplained” constipation. Posted March 14, 2020 – her last big hurrah of hospital-hopping before coof.
Soooo close to admitting the truth, that she had normal, very benign hypermobility that made her an asset in her sport and then she trained it for years. She is “now in a place where she got most of her diagnosis.” Like it’s a collection she’s trying to complete.
All of this is EDS symptoms now.
A flare looks like an ambulance ride, a picture from one of the times she had surgery, mild flushing and adhesive reactions, taking pictures of her bellyfat in a doctor’s office, maximizing public attention with her walker, braces, and Kate Farms hat, and her boyfriend waiting on her hand and foot.
Her whole life has been medicalized from childhood. She’s been on antidepressants since she was 10.
Some of the “misconceptions” she’s heard are that she has anxiety, her blood tests are all normal, she isn’t sick, she doesn’t need a wheelchair, she doesn’t need to be on all this medication, she’s fine when there’s something fun to do, and her allergies aren’t real. Amazing.
Meet my enablers!
She’s starting iron infusions now that she quit the oral supplement. She gets a scope but she won’t tell us what they found until she sees her doctor.
She suddenly gets #sponsored to do all these product reviews and that's all she posts for a while. I guess the MLM didn’t work out.
Turning 22, looking 45. I don’t even know what could fix this because I am not a makeup gal. I do would not be drawing this much attention to my eyes if they looked like this. Also amazing that makeup still doesn’t affect her super terrible MCAS.
Welp. I guess this is wedding attire in Missouri, who knew? Also wow matching your boyfriend's outfit lol.
I don’t consent. Remember when she was e-begging saying she was bankrupting her loved ones because of her medical bills and now she can afford to shell out for new makeup collabs? Lol.
And MOMMY!!! When are you going to take your poor sick baby on a vacation?
“Hope you can do some training again!” She hasn’t been doing shit with this dog. She bought a vest and got him to minimally behave in public so now he’s a service dog. The juxtaposition between her untrained lunatic and the actual program trained dog never stops being funny.
Xolair’s working. At this rate she won’t have anything to whine about. Nice subtle body check to show her thighs are starting to not touch.
More prezzies from her feeding tube formula company! Best customer service ever!!! Gotta get their customer back after she switched formulas I guess.
And right here is where I saw Jessica Riley posting. Given that Maddie has no qualms about faking in front of her severely disabled mother and some of the other accounts floating around in her comments have things like cystic fibrosis, I thought perhaps Jessica was another actually sick person who got caught in her orbit. And a month later I finally made it back where I started.
Getting on MMJ now. Excited for the next year!
Baby’s first MCAS flare. She had to go to the ER because she was real itchy and benadryl wasn’t cutting it. They gave her steroids, more benadryl, and hydroxyzine then prescribed her the latter for at home use. Her GI system is acting fucky and she’s back on tramadol, I’m sure these are unrelated. But the best part is the day after her “flare” and ER trip she goes to her PCP asking for IV Benny and was told no, and furthermore that she never needed a tube or port and that she was going to kill herself and he wouldn’t be complicit in it. He fires her as a patient even after she told him that she took upwards of 300mg of benadryl to make her itchies stop. Gee whiz, kid. She left this appointment “balling” and now has to find a new doctor who will give her what she wants.
Fuck you, Doctor Whoever! She loves her tube and she’s never ever getting rid of it!
She sees a psychologist and from this, learns that she should fire any doctor who isn’t giving her what she wants.
She’s now worried that the “flare” was caused by the Xolair itself. The dose is now doubled.
Next day, she’s having terrible bone pain, daily allergic reactions, and fatigue. She spends what little energy she has on finding and meeting new doctors because she’s simply gotten too complex for the old ones.
She experiences two kinds of hunger, one where she’s actually hungry because she doesn’t have gastroparesis and that one is solved by drinking liquids, and one where she just wants food. She only has two safe foods she can eat! She just drank an entire Ensure and her stomach is NOT HAPPY she did that. Jessica would like to know why she doesn’t just drink Kate Farms and Maddie insists she’s allergic. Jessica says she has the kids formula so she’s fine.
Her new PCP restored her faith in herself and he has so many ideas he’d like to try. She’s his most complicated patient even with previous experience at an EDS clinic and says some things just aren’t lining up. Instead of realizing this is because she does not have EDS, he thinks it’s because there’s something more going on. She has anemia that needs to be addressed and no one knows why it’s getting worse… port. And she’s changing medications so everything can go into her tube now and because of absorption problems they’ll be adjusting the doses.
Admitted to the University Hospital for mast cell shit. Valerie Webb/chronic.life.of.val in the comments.
Truefax: I love these giveaway posts because it’s like a free directory of who I should be keeping an eye on. There’s dozens upon dozens of accounts listed in the comments for me to peruse. Some of them are old friends like Katie Stanina, Marisa Finan-Goode, Lauren the EDS noodle, and Potsie Nicole, but a bunch are new friends we haven’t met yet!
She’s very lucky she doesn’t have any of the EDS-related eye issues. Probably because she doesn’t have EDS.
Some of you may not know she has a feeding tube that she shows off constantly. She’s been really struggling to except this reality she tantrumed and screamed her way into. Claiming she has esophageal dysmotility which was never mentioned at mayo, and this will never get better or go away so she’ll need a tube for life. It’s so hard to avoid food when other people are eating! I reckon Maddie eats just fine when people aren’t watching, and probably does so in front of her enabling boyfriend who is too stupid or involved in the caretaker role to realize this is a major discrepancy. Jamie Bruce in the comments.
Thank you for not questioning my lies and for funding my lifestyle!!!
New allergist, it could not have gone better! This doctor totes agrees with the MCAS diagnosis and is totally on the same wavelength about treating it. She’ll be switched from Benadryl to hydroxyzine and from Xolair to Dupixent.
She’s also now on Symbicort, a combo inhaler. She claims her lungs feel like tehy’re full of “junk and fluid” all the time. CF larping.
Before her tube she was “quite malnutritoused and loosing weight.” This woman’s tenuous grasp on the English language is fascinating. Her body weight never went below 120 before she was tubed. Illustrates with body checks, of course.
After months of screeching and wailing she FINALLY has gotten her hands on IV Benadryl.
Having gained the ability to immediately sedate herself by pushing antihistamines into her heart, she suddenly is struggling with crippling fatigue. Her WBCs are elevated and no one knows why.
“Turns out I had a UTI for a month and my body decided not to fix it.” So, you ignored a UTI and didn’t get treated because you were hoping it turned into something you could milk for drama. Cool. I don’t know how these girls stand not treating a UTI. It’s one of the most naggingly uncomfortable things I can think of. Not the most painful, but it’s like a toothache or a bad hangover. It demands that you pay attention to it. I guess they just keep popping pain meds so they can ignore the symptoms. Iron levels are back to normal after the miracle known as “taking a supplement.” She’s taking diflucan/fluconazole for frequent oral thrush, which is almost definitely from her inhalers and nebulizers. I love that she dressed up like it was date night for this appointment lmao.
Nerve biopsies done. Insurance won’t approve dupixent but she loves that she can push benadryl directly into her heart now!
Thanks to insurance she can’t get this medicine she NEEDS to survive.
How many -mabs can one munchie take? Aimovig for migraiens now.
She got approved for disability somehow. She started birth control with the belief that her hormones might causing her medication reactions but instead they got worse. She goes to the ER for extreme lower right quadrant pain and it’s an ovarian cyst (she told this exact story before!) and now she’s looking into PCOS but is told birth control is what she needs for that. She has “anaphylaxis” that was treated with IV Benadryl (no the fuck you did not). Sleep study, migraine botox. The rheumatologist says she “doesn’t think there’s anything else wrong with her.” Lmao munchie tried to go for an autoimmune diagnosis to add to her list and was told to fuck off. Stopped BC because she realized it coincided with her “reactions” that are definitely not anxiety. Starts motegrity for “unexplained” constipation. Posted March 14, 2020 – her last big hurrah of hospital-hopping before coof.
Soooo close to admitting the truth, that she had normal, very benign hypermobility that made her an asset in her sport and then she trained it for years. She is “now in a place where she got most of her diagnosis.” Like it’s a collection she’s trying to complete.
All of this is EDS symptoms now.
A flare looks like an ambulance ride, a picture from one of the times she had surgery, mild flushing and adhesive reactions, taking pictures of her bellyfat in a doctor’s office, maximizing public attention with her walker, braces, and Kate Farms hat, and her boyfriend waiting on her hand and foot.
Her whole life has been medicalized from childhood. She’s been on antidepressants since she was 10.
Some of the “misconceptions” she’s heard are that she has anxiety, her blood tests are all normal, she isn’t sick, she doesn’t need a wheelchair, she doesn’t need to be on all this medication, she’s fine when there’s something fun to do, and her allergies aren’t real. Amazing.
Meet my enablers!
She’s starting iron infusions now that she quit the oral supplement. She gets a scope but she won’t tell us what they found until she sees her doctor.
She suddenly gets #sponsored to do all these product reviews and that's all she posts for a while. I guess the MLM didn’t work out.
Turning 22, looking 45. I don’t even know what could fix this because I am not a makeup gal. I do would not be drawing this much attention to my eyes if they looked like this. Also amazing that makeup still doesn’t affect her super terrible MCAS.
For a while during the pandemic she was just posting old pics and explanations of her health with no new drama to report. Once she gets bored of this, it’s right back to making sure she gets the most medical attention ever. She is hospitalized and tells us it’s for a “reaction” and now she’s having trouble adjusting to being home.
She wins a giveaway by Christina Doherty. It’s those MLM vitamin patches that don’t do shit.
She’s been on high dose pred and her lungs are not bouncing back. She has little to no adrenal function left because of this. She’s had to switch from Creamy, Delicious Kate Farms Standard Enteral Formula to Vivonex. Kate Farms in the comments: YOU’LL BE BACK.
First Iron infusion. IIRC iron is one of those things that it’s super normal to react to.
Her gi system just hates the extra iron! She’s taking low dose naltrexone but the side effects are too much. Starts tagging Neurogenic Bladder.
Lol Jamie Bruce shilled this same company’s port shirts, too. FTR she has never named one task this animal allegedly performs.
Back to Xolair because dupixent turned out to not be the life-saving miracle she said it was.
Xolair is working! She’s having so many fewer reactions!!
She has cellulitis around her port now. She gets admitted for IV clindamycin and can’t use her port until the infection clears. The clindamycin sends her into a mast cell flare so they keep pumping her with IV benny on demand.
LOL Discharged the next day. Cultures are negative. She has to run antibiotics through her tube just to be sure.
She’s got that stupid spoonie planner all the cool munchie girls had for a while. Mast cell appointment goes great. She wants that great spoonie prize IVIG and is super pleased that this doctor is willing to try it! She’s already started paperwork to get approved! In the meantime she’s starting Gleevec – did she mention it’s a chemotherapy drug? Pulling out the big guns for this super sick warrior. Kate Farms is so happy she found a good doctor to advocate!!!
Amazing. Home and unsupervised, the antibiotics do not work and her cellulitis comes back. Moonface coming in nicely.
God she is tragically unattractive. Her blood cultures come back positive now. She might lose her port and then it would be two whole days before she could get a new toy to fuck up!!!
It’s National Digestive Tract Paralysis month! The woman whose been told her pooper is only fucked up because of her drug use now wants us to know she has to get salt water piped into her rectum so she can shit.
Port has to go after cultures showed it’s been infected by MSSA, which is the antibiotic sensitive version of MRSA.
Discharged with only a PICC and no pain control. They REFUSED to give it to her! She’s so happy to be home and not with those terrible medical professionals who didn’t believe all her dramatics.
FEEDING. TUBE.
A month without a post and she’s back to say so much happened but she had no energy to share. Back home, she starts developing a strange rash that her doctors think might be a terrible MRSA issue but it turns out it’s just tinea versicolor, a fungal infection probably caused by her being a sedentary person who sits in her own sweat all day and is on too many steroids. She also got a new port and she’s started IVIG. Wow, so glad you’re wasting a scarce, life-saving blood product on your anxiety! It makes her mast cells unhappy and she feels like shit but she and her quacks are so excited to see what this can do for her. She’s tapering down her steroids and now she has night sweats so bad she soaks through everything she wears – there’s the tinea versicolor. Her adrenals are bouncing back from the abuse. And she’s starting back at school after her long absence. Everything’s coming up Maddie!
She got that tilite Aero Z and SmartDrive
Next post: walking in a field of goddamned sunflowers.
And then she goes apple picking. I wonder why her mom doesn’t tell her to quit her bullshit given that mom really can’t walk.
She’s seeing a high risk OBGYN and genetics – no she’s not pregnant, she’s starting CHEMO!! Guys did you know my medication is CHEMO?! She wants to make sure it won’t affect her ability to have a healthy baby in the future.
She’s finally off the ‘roids.
She wins a giveaway by Christina Doherty. It’s those MLM vitamin patches that don’t do shit.
She’s been on high dose pred and her lungs are not bouncing back. She has little to no adrenal function left because of this. She’s had to switch from Creamy, Delicious Kate Farms Standard Enteral Formula to Vivonex. Kate Farms in the comments: YOU’LL BE BACK.
First Iron infusion. IIRC iron is one of those things that it’s super normal to react to.
Her gi system just hates the extra iron! She’s taking low dose naltrexone but the side effects are too much. Starts tagging Neurogenic Bladder.
Lol Jamie Bruce shilled this same company’s port shirts, too. FTR she has never named one task this animal allegedly performs.
Back to Xolair because dupixent turned out to not be the life-saving miracle she said it was.
Xolair is working! She’s having so many fewer reactions!!
She has cellulitis around her port now. She gets admitted for IV clindamycin and can’t use her port until the infection clears. The clindamycin sends her into a mast cell flare so they keep pumping her with IV benny on demand.
LOL Discharged the next day. Cultures are negative. She has to run antibiotics through her tube just to be sure.
She’s got that stupid spoonie planner all the cool munchie girls had for a while. Mast cell appointment goes great. She wants that great spoonie prize IVIG and is super pleased that this doctor is willing to try it! She’s already started paperwork to get approved! In the meantime she’s starting Gleevec – did she mention it’s a chemotherapy drug? Pulling out the big guns for this super sick warrior. Kate Farms is so happy she found a good doctor to advocate!!!
Amazing. Home and unsupervised, the antibiotics do not work and her cellulitis comes back. Moonface coming in nicely.
God she is tragically unattractive. Her blood cultures come back positive now. She might lose her port and then it would be two whole days before she could get a new toy to fuck up!!!
It’s National Digestive Tract Paralysis month! The woman whose been told her pooper is only fucked up because of her drug use now wants us to know she has to get salt water piped into her rectum so she can shit.
Port has to go after cultures showed it’s been infected by MSSA, which is the antibiotic sensitive version of MRSA.
Discharged with only a PICC and no pain control. They REFUSED to give it to her! She’s so happy to be home and not with those terrible medical professionals who didn’t believe all her dramatics.
FEEDING. TUBE.
A month without a post and she’s back to say so much happened but she had no energy to share. Back home, she starts developing a strange rash that her doctors think might be a terrible MRSA issue but it turns out it’s just tinea versicolor, a fungal infection probably caused by her being a sedentary person who sits in her own sweat all day and is on too many steroids. She also got a new port and she’s started IVIG. Wow, so glad you’re wasting a scarce, life-saving blood product on your anxiety! It makes her mast cells unhappy and she feels like shit but she and her quacks are so excited to see what this can do for her. She’s tapering down her steroids and now she has night sweats so bad she soaks through everything she wears – there’s the tinea versicolor. Her adrenals are bouncing back from the abuse. And she’s starting back at school after her long absence. Everything’s coming up Maddie!
She got that tilite Aero Z and SmartDrive
Next post: walking in a field of goddamned sunflowers.
And then she goes apple picking. I wonder why her mom doesn’t tell her to quit her bullshit given that mom really can’t walk.
She’s seeing a high risk OBGYN and genetics – no she’s not pregnant, she’s starting CHEMO!! Guys did you know my medication is CHEMO?! She wants to make sure it won’t affect her ability to have a healthy baby in the future.
She’s finally off the ‘roids.
Another one-month break and she comes back to say her health is the best it’s been in a year.
Ooh we’re being introduced to all sorts of new friends today!
Back to #microinfluencer #reviews
IVIG is her ticket out of her lies, in a way. Once she starts it she can suddenly eat meals and go back to school. At PT she’s working on walking more, which should be easy considering she walks just fine.
Back on narcotics and showing off her shit-baby.
But she’s passing her classes and oh… oh no. Human anatomy. Human development. That looks like nursing prereqs to me.
No really what is wrong with this woman's eyes? It looks like god decided to install her eyelids upside down for a laugh.
At this point she’s posting only very rarely. She and the man-servant go to Branson for vacation. Kind of interesting that she’s got on a sun dress while the man and the dog are bundled up. While she’s there she eats to her heart’s content. I guess all her disabilities took a vacation that week too.
Starting hydroxyurea, another CHEMO!!!!!!!!! drug mostly used to treat Sickle Cell disease. Dr. Afrin himself said that this was the better choice for Mast Cell. You remember Dr. Afrin right? MCAS quack? All his patients are steroid-bloated nightmares? A few have been permanently disabled or even died from his treatments including Taylor Nearon whose spine was strangled thanks to steroids and Cheyanne whose organs all failed? Most of his patients are munchies who don’t have any mast cell problems? Yeah that guy. He is the reason she’s starting this drug. In the comments, Jamie Bruce gallops to her next medical crisis. I went to her timelines to see if she mentions what drug she started but at this time she was just posting about surgeries.
She wants to be one of the cool girls with the dyed hair so she goes out and buys everything she could ever possibly need. Because her hair’s already falling out so why not make it 10x worse by processing the hell out of it?
She got an IUD and it was the best decision she ever maid! Now that her hormones are normal she’s turned into a pimply, pissed off eat-beast.
Port #3. This time it’s a dual lumen port because poor healing with EDS or some shit. None of her surgeries looked like they healed poorly, ever, but this allows her to switch back and forth between two hubs to give her a chance to heal. Her last port didn’t even last a year because it was “too shallow” aka she could fuck with it easier. Sinus surgery tomorrow.
Oh god this hair is an actual crime. Enjoy the inside of maddie’s nose. She’s very rare and this is the first time in thousands of surgeries her doctor has seen her specific abnormality. The surgeon was “almost gitty” over this. It turns out she didn’t actually need the surgery but she’s still glad she got it
Enjoy also these photos of how bad she fucked with her port. Totes an EDS thing! She developed a seroma after surgery.
she has open TMJ surgery. So much for that slow EDS healing. She does get face lymphedema which couldn’t happen to a nicer gal. Also what the fuck is she doing to her poor hair?
Months without an update. In Feb 2022 she tells us she was diagnosed with very mild hip dysplasia and she has no idea how no one ever noticed before. She cried happy tears because now she KNOWS it wasn’t all in her head! She went there hoping they'd do surgery but they tell her it's not bad enough to need it and will only do surgery if it progresses. People tell her it’s total bullshit that they won’t do surgery on her just because it’s not that bad. She should be able to choose which surgeries she wants a la carte.
Second diagnosis she got is macular degeneration which is not progressing. The damage happened very recently and they don’t know why and probably never will. Again, there's nothing they can do unless it progresses.
Surprise! She’s a nursing student and she’s “there” first student in a wheelchair! So much of her job can be done seated! I googled and did find some legitimately disabled nurses who use wheelchairs because of some horrible accident or illness that left them paralyzed, but none of the ones I found do bedside care. They are case managers or something like that, and almost all of them were nurses before their injury. The one I found who wasn't (Andrea Dalzell, who has an incomplete SCI from transverse myelitis) had to do intensive upper body workouts to be able to pass her CPR test and while she did get her RN, she too works as a case manager. My guess is Maddie overcomes the limitations of her disability by simply deciding she doesn't need her wheelchair on the days it will interfere with her class.
Lol. Yea. She starts clinicals without her wheelchair.
She does a long course of IV antifungals because she’s still all yeasty.
I love that in this photo to show off her nursing attire she’s giving herself a dose of something.
Next post: cryface selfie because she’s actually terrible at this and doesn't realize it. Her fellow students tell the teacher about her mistakes instead of coming to her. She knows she’s blunt but god, are people that afraid of confrontation? Yeah, I don’t want to set off some tantrum-prone retard by saying they’re doing it wrong either. I’ll just let the person who is paid to do this handle it.
Oh god. She got those body horror tear duct plugs just like Jamie did and I am once again sad to know these exist. Jamie’s in the comments to say they helped her so much!
She can’t make or keep friends because her whole personality is “sick”, it's all she talks about, and she’s a raging bitch if you criticise her in any way.
She’s a full time student and full time patient who does all her own care but still has at least three doctor appointments a week. “I’m still not fully diagnosed or treated to my potential.” Holy fuck kid get a hobby. Weight has crept back up almost to her starting point.
Adjustable disabilities are funny
To the surprise of literally no one, she has been dismissed from her nursing program. The school “violated multiple ada laws” and dismissed her entirely because of a disability issue. She’s planning to become a “patient care tech” in the meantime and then try to get into a BSN program. She stops posting after this critical embarrassment.
Her only return to social media came in August to talk about Cheyanne and how much she influenced Maddie’s life. Gee, couldn’t tell. Hope you’re not the next to munch yourself to death because no one will know or care.
Ooh we’re being introduced to all sorts of new friends today!
Back to #microinfluencer #reviews
IVIG is her ticket out of her lies, in a way. Once she starts it she can suddenly eat meals and go back to school. At PT she’s working on walking more, which should be easy considering she walks just fine.
Back on narcotics and showing off her shit-baby.
But she’s passing her classes and oh… oh no. Human anatomy. Human development. That looks like nursing prereqs to me.
No really what is wrong with this woman's eyes? It looks like god decided to install her eyelids upside down for a laugh.
At this point she’s posting only very rarely. She and the man-servant go to Branson for vacation. Kind of interesting that she’s got on a sun dress while the man and the dog are bundled up. While she’s there she eats to her heart’s content. I guess all her disabilities took a vacation that week too.
Starting hydroxyurea, another CHEMO!!!!!!!!! drug mostly used to treat Sickle Cell disease. Dr. Afrin himself said that this was the better choice for Mast Cell. You remember Dr. Afrin right? MCAS quack? All his patients are steroid-bloated nightmares? A few have been permanently disabled or even died from his treatments including Taylor Nearon whose spine was strangled thanks to steroids and Cheyanne whose organs all failed? Most of his patients are munchies who don’t have any mast cell problems? Yeah that guy. He is the reason she’s starting this drug. In the comments, Jamie Bruce gallops to her next medical crisis. I went to her timelines to see if she mentions what drug she started but at this time she was just posting about surgeries.
She wants to be one of the cool girls with the dyed hair so she goes out and buys everything she could ever possibly need. Because her hair’s already falling out so why not make it 10x worse by processing the hell out of it?
She got an IUD and it was the best decision she ever maid! Now that her hormones are normal she’s turned into a pimply, pissed off eat-beast.
Port #3. This time it’s a dual lumen port because poor healing with EDS or some shit. None of her surgeries looked like they healed poorly, ever, but this allows her to switch back and forth between two hubs to give her a chance to heal. Her last port didn’t even last a year because it was “too shallow” aka she could fuck with it easier. Sinus surgery tomorrow.
Oh god this hair is an actual crime. Enjoy the inside of maddie’s nose. She’s very rare and this is the first time in thousands of surgeries her doctor has seen her specific abnormality. The surgeon was “almost gitty” over this. It turns out she didn’t actually need the surgery but she’s still glad she got it
Enjoy also these photos of how bad she fucked with her port. Totes an EDS thing! She developed a seroma after surgery.
she has open TMJ surgery. So much for that slow EDS healing. She does get face lymphedema which couldn’t happen to a nicer gal. Also what the fuck is she doing to her poor hair?
Months without an update. In Feb 2022 she tells us she was diagnosed with very mild hip dysplasia and she has no idea how no one ever noticed before. She cried happy tears because now she KNOWS it wasn’t all in her head! She went there hoping they'd do surgery but they tell her it's not bad enough to need it and will only do surgery if it progresses. People tell her it’s total bullshit that they won’t do surgery on her just because it’s not that bad. She should be able to choose which surgeries she wants a la carte.
Second diagnosis she got is macular degeneration which is not progressing. The damage happened very recently and they don’t know why and probably never will. Again, there's nothing they can do unless it progresses.
Surprise! She’s a nursing student and she’s “there” first student in a wheelchair! So much of her job can be done seated! I googled and did find some legitimately disabled nurses who use wheelchairs because of some horrible accident or illness that left them paralyzed, but none of the ones I found do bedside care. They are case managers or something like that, and almost all of them were nurses before their injury. The one I found who wasn't (Andrea Dalzell, who has an incomplete SCI from transverse myelitis) had to do intensive upper body workouts to be able to pass her CPR test and while she did get her RN, she too works as a case manager. My guess is Maddie overcomes the limitations of her disability by simply deciding she doesn't need her wheelchair on the days it will interfere with her class.
Lol. Yea. She starts clinicals without her wheelchair.
She does a long course of IV antifungals because she’s still all yeasty.
I love that in this photo to show off her nursing attire she’s giving herself a dose of something.
Next post: cryface selfie because she’s actually terrible at this and doesn't realize it. Her fellow students tell the teacher about her mistakes instead of coming to her. She knows she’s blunt but god, are people that afraid of confrontation? Yeah, I don’t want to set off some tantrum-prone retard by saying they’re doing it wrong either. I’ll just let the person who is paid to do this handle it.
Oh god. She got those body horror tear duct plugs just like Jamie did and I am once again sad to know these exist. Jamie’s in the comments to say they helped her so much!
She can’t make or keep friends because her whole personality is “sick”, it's all she talks about, and she’s a raging bitch if you criticise her in any way.
She’s a full time student and full time patient who does all her own care but still has at least three doctor appointments a week. “I’m still not fully diagnosed or treated to my potential.” Holy fuck kid get a hobby. Weight has crept back up almost to her starting point.
Adjustable disabilities are funny
To the surprise of literally no one, she has been dismissed from her nursing program. The school “violated multiple ada laws” and dismissed her entirely because of a disability issue. She’s planning to become a “patient care tech” in the meantime and then try to get into a BSN program. She stops posting after this critical embarrassment.
Her only return to social media came in August to talk about Cheyanne and how much she influenced Maddie’s life. Gee, couldn’t tell. Hope you’re not the next to munch yourself to death because no one will know or care.
That's all for this one. Not the funniest by far, and hardly worth the regal title she's given herself, but it is fun to watch them occasionally get bitchslapped by reality..
Next up: a postmortem.