He has been treated for a systolic dysfunction - but everything I've had has been related to a diastolic dysfunction. Nothing concrete as of yet, since
open heart surgery isn't something you can just do willy-nilly.
Evidently, Jim seems to think the same thing - everything follows the kind of pattern from a diastolic heart disease of
some kind, he's talking about immunological complications, but all of the heart shit is referring to the
systolic equivalent. There seems to be a miscommunication between his doctors - some of them are pushing for strep A tests, but his congenital diagnosis is for the area immediately outside of the heart. If they're looking for Strep A, they may suspect something else. Strep A affects the area
inside the heart.
Jim's specific odd problems
Absence of Sensation - not "numbness", this would be someone describing an abnormal, rarer symptom without knowing what the word is. It's likely
sexual anhedonia - since this is the exact way any man would describe this exact symptom. "It's not
numb, it's more like an
absence of sensation during sex" - not a common problem at all. Barely studied.
Exactly how it looks on a medical record.
Partial deafness on the right - This one is bizarre, I've had it happen too - comes with what
feels like swelling behind the right eye. Comes with infections and catastrophic nosebleeds around the same time. I still have no idea what the fuck causes this, but seeing this exact problem on Jim's record is
pretty convincing. I've never seen it written anywhere else.
Headaches - when referring to pain, Jim's first thought wasn't all of the broken ribs. It was the
extremely fucking painful headaches. And yes, I also have cluster-like headaches on my record. They are not proper cluster headaches, because they don't follow the same clustering pattern - they don't occur frequently over a short period of time. Hence, cluster-like. There
is a similar kind of headache, though - one caused by swelling and shit, pressing against the optic nerve. They are
extremely painful. He ranks those headaches
above what his record says.
Immunological - this fucker has been tested for strep
so many times. I think either he, or his doctor, are looking for evidence around rheumatic heart disease. Which is, again,
the shit my doctors are looking at too. Not only does his medical history show shit which I've experienced a lot of, either he or his doctors are actually looking towards the same shit.
Obviously there's fatigue, memory and shit too. There's a gigantic list of individual problems which blend together - I tried to list them out, and after the first fifty individual entries I start to lose track. So your record ends up showing the
weird, unexplained shit. He also discounts the hypertension, like I used to, based on circumstances. Like "Yeah, I'm anxious, no shit lol" - and for me, nope, turns out the anxiety was a misdiagnosis by a grotesquely incompetent doctor who edited the record to support it. If Jim's "anxiety and hypertension" is referring to a normal systolic, with a massively elevated diastolic and a massively elevated heartrate then there is a
big problem for whoever made that assessment.
What Jim hasn't mentioned - skin issues. Guttate psoriasis, for example. Also fits in with the Strep A obsession.
Every subsequent doctor, because of the misdiagnosis, considered these problems with the valid assumption that a blatant genetic heart problem would have been properly sorted
years ago. And in hindsight, begrudgingly - they were like "Are you
sure that this has been sorted?"
I can easily picture like, every medical doctor Jim has seen looking at his list of problems, looking at his genetic heart condition and thinking "What's this, aortic? Are you sure? I mean, I've seen other cases like yours with a left ventricle problem, or some hypertrophic condition, but
never on the outside of the heart like that. But I don't have anything to
prove this, so I have to treat this case as an exception." - I really want to know if Jim's experience has been the same.
These two. Jim had surgery outside the heart, directly after the left one, but all of my doctors have been looking towards the one on the right. Because of how these two interact, it's entirely plausible that a doctor negligently misdiagnosed a mitral problem as an aortic problem. The little arrow there - the blood passes through the mitral, then immediately passes through the aortic.
So he has had surgery on the outside, for what
may well be a problem on the inside, a few millimetres away.
And all it would take for that mistake to be held up is for a doctor to
negligently shorten
isolated diastolic hypertension to just
hypertension and assume the high heartrate is down to stress and anxiety. In my case, the doctor seems to have realised his mistake and then decided "It will be much easier for me if nobody finds out about this" and deleted the evidence.
The fact that he wasn't diagnosed with a congenital condition until he was almost 30 also implies that
this man has had some pretty shit doctors in his life.