Trainwreck The Empathic Nutritionist / Empathic Mamahood / Robyn Grogitsky-Ramirez / Luna Elva Ramirez / Glenn Ramirez / Atlas Glenn Standford Ramirez - Eyefucking Sociopath Selfie Addict Mother and Closeted Gymrat Pothead Father who use Instagram to Parade their Homemade Homunculus Tard Baby Created by their Refusal to Follow any Medical Oversights

[TheCakeIsALie]

Random thought. We know you can’t repair the brain, and Globyn is insistent that Luna is healing, but if you had a child in Luna’s position would you want her brain to heal? We’re 99% sure she can’t register pain, could you imagine her suffering if her brain did start healing? Those contractures and seizures, the skin conditions, being dragged around for god knows how long with a broken leg, who would want to register any of that?

I would not have let this go on. I would have had her in a real hospice program. Robyn is prolonging the inevitable for no real reason other than pure selfishness. It’s the goblin girls all over again (Hartley girls). Now, the exception is Gwen didn’t directly cause their problems but she knowingly got pregnant after finding out she could pass on the same genetic issue that happened the first time around.

What point is there? Luna and the Hartley girls never really had a life. Kids their age are going on field trips, learning about the world, developing friendships and having fun. Potatoes are still potatoes even if you dress them up and name them. The only difference is that Robyn caused Luna’s brain injury whereas Gwen had a genetic disorder at play and ignored all doctors advice or warnings that it could happen more than once.

And look, I am caring. I have feelings, I am a parent too but I would never bring a potato baby into the world because that just creates more suffering. Sometimes, the kindest thing to do is to terminate. It sounds harsh, I know but it’s also true. This isn’t like, a minor defect or slight ASD. All three girls had/have catastrophic injuries or catastrophic disorders.

 

[TismFarmer]

I would not have let this go on. I would have had her in a real hospice program. Robyn is prolonging the inevitable for no real reason other than pure selfishness. It’s the goblin girls all over again (Hartley girls). Now, the exception is Gwen didn’t directly cause their problems but she knowingly got pregnant after finding out she could pass on the same genetic issue that happened the first time around.

What point is there? Luna and the Hartley girls never really had a life. Kids their age are going on field trips, learning about the world, developing friendships and having fun. Potatoes are still potatoes even if you dress them up and name them. The only difference is that Robyn caused Luna’s brain injury whereas Gwen had a genetic disorder at play and ignored all doctors advice or warnings that it could happen more than once.

And look, I am caring. I have feelings, I am a parent too but I would never bring a potato baby into the world because that just creates more suffering. Sometimes, the kindest thing to do is to terminate. It sounds harsh, I know but it’s also true. This isn’t like, a minor defect or slight ASD. All three girls had/have catastrophic injuries or catastrophic disorders.

I agree 100%.
If Luna was my child, she would have had comfort cares only. Plenty of pain relief while she still had enough brain for them to help, and just let her gently slip away...

 

[Elderly beef taco]

I'm always struck by the horrible image of Robyn taking Luna out for a walk (well, a push) and the stroller tipping due to Robyn not paying attention (or being jostled by one of the boy). I'm fairly certain Luna is fragile enough falling from any height would make her explode like a watermelon.

 

[Optavia Sales Rep]

... Luna is fragile enough falling from any height would make her explode like a watermelon.

Maybe not that graphic, but the result would be the same. Luna could not heal a fracture of any sort. She's too malnourished.

 

[TheCakeIsALie]

Maybe not that graphic, but the result would be the same. Luna could not heal a fracture of any sort. She's too malnourished.

Plus kids bones are flexible, anyways. Ossification and fusion depends on what bones we are talking about. For example, the patella starts forming by years 2-6 but fuses before puberty.

 

[Oracular Slug]

I'm still pretty sure the top of her head is hair, skin, meninges; which means the only thing actually protecting her from probably fatal meningitis is the dura mater. When I was Atlas's age I did what 4 year olds do and went head first onto a triangular tool, still have a dent from where my skull did its job...it would've gone, (lead) paint chips and all, into her brain.

 

[GenociderSyo]

That bulge on her head that has grown significantly since last year: Do you all think her shunt has failed or is it that it can't keep up? If her shunt fails, how would we know?

The last time she had the shunt checked they had to increase the flow on it. Now the shut is a magnetic shunt and she is constantly having magnets around it which can effct it.

Could you imagine?! Periods are hell, even when you can effectuate your own care and comfort. Relying on someone else for that kind of personal care when you're miserable must be excruciating, even when you can vocalize your needs and discomfort. That's why I'm surprised Alex Dacy hasn't yeeted her uterus yet. I would be mortified if someone had to change my pads and shit. This was truly a humane, compassionate thing to do for Ashley.

I've had to work with a young adult with childhood disintegrative disorder (think dealing with late stage dementia) who menstruated it was awful for both of us.

I'm still pretty sure the top of her head is hair, skin, meninges; which means the only thing actually protecting her from probably fatal meningitis is the dura mater. When I was Atlas's age I did what 4 year olds do and went head first onto a triangular tool, still have a dent from where my skull did its job...it would've gone, (lead) paint chips and all, into her brain.

She has a giant soft spot where there is no skull that Robyn has spoken about.

 

[Imp]

Say Luna falls on her head where there is no bone. A hard fall. Can our medfgs speculate what would happen and would it mercifully release her?

 

[Awwtismo]

I'm amazed Luna hasn't had spontaneous cerebrospinal fluid leakage from her high intercranial pressure. Technically she doesn't need a traumatic injury to tear her dura mater, it could just spontaneously happen. CSF would most likely leak out through her sinuses or ears. I remember seeing a autopsy image a long time ago of a child that had some form of hydrocephalus that suffered a rapid intercranial decompression from a CSF leak. Her skull sort of looked like she had an empty bowl on her head. It was pretty horrifying.

 

[Disgruntled Pupper]

I'm amazed Luna hasn't had spontaneous cerebrospinal fluid leakage from her high intercranial pressure. Technically she doesn't need a traumatic injury to tear her dura mater, it could just spontaneously happen. CSF would most likely leak out through her sinuses or ears. I remember seeing a autopsy image a long time ago of a child that had some form of hydrocephalus that suffered a rapid intercranial decompression from a CSF leak. Her skull sort of looked like she had an empty bowl on her head. It was pretty horrifying.

It's been speculated that this may be one of the ways Luna dies, especially if her shunt fails. Back when Robyn posted a lot more of Luna and even would have her on her live woo classes I thought it would be mighty ironic if Luna went POP when Robyn was filming.

 

[Flourishing Pinecone ❧]

Plus kids bones are flexible, anyways. Ossification and fusion depends on what bones we are talking about. For example, the patella starts forming by years 2-6 but fuses before puberty.

Luna has already had a broken femur from just... existing it seems (speculation is that it was broken during one of her 'therapy' sessions being dragged around in the walker).

For reference, your femur is the hardest bone in your body, it's like concrete. In normal adults (who have normal bone density) it only tends to break in high impact incidents like car accidents.

 

[TheCakeIsALie]

Luna has already had a broken femur from just... existing it seems (speculation is that it was broken during one of her 'therapy' sessions being dragged around in the walker).

For reference, your femur is the hardest bone in your body, it's like concrete. In normal adults (who have normal bone density) it only tends to break in high impact incidents like car accidents.

I’m guessing there’s more at play since Luna isn’t a normal child. She’s not growing properly so she is probably malnourished to begin with, so who knows what her skeletal age is, who knows where she is at the growth process. Best way to find out is to do a bone age study for kids with growth problems. It’s futile in Luna. She could have also broken her leg in a traumatic way and Robyn just hides it. For example, if Luna accidentally got dropped or fell due to Robyn’s negligence. It’s not like Robyn would admit to that.

 

[Flourishing Pinecone ❧]

I’m guessing there’s more at play since Luna isn’t a normal child. She’s not growing properly so she is probably malnourished to begin with, so who knows what her skeletal age is, who knows where she is at the growth process. Best way to find out is to do a bone age study for kids with growth problems. It’s futile in Luna. She could have also broken her leg in a traumatic way and Robyn just hides it. For example, if Luna accidentally got dropped or fell due to Robyn’s negligence. It’s not like Robyn would admit to that.

She has no muscle tone, doesn't do any weight bearing, and is malnourished. Her bones are going to be like chalk.

 

[ILikeYou]

She has no muscle tone, doesn't do any weight bearing, and is malnourished. Her bones are going to be like chalk.

Just wondering: why would she necessarily be malnourished? I know she can't swallow food and is tube fed, but isn't that designed to supply all needed nutrients? I know Robyn likes to put some other slop in there at times, but, what signs are there of lacking complete nutrition?

 

[TheCakeIsALie]

Just wondering: why would she necessarily be malnourished? I know she can't swallow food and is tube fed, but isn't that designed to supply all needed nutrients? I know Robyn likes to put some other slop in there at times, but, what signs are there of lacking complete nutrition?

Muscle tone is a big indicator. Lack of growth is an even bigger indicator. Her hair is also rather thin, the Hartley girls looked to be in better shape, tbh. I don’t think Robyn properly feeds her. Just because she’s putting stuff in a tube doesn’t mean it’s the proper food or right nutrients.

Luna is also very very pale and like the good doc said, it’s not normal to break bones easily. A child should not be able to break their bone from being in a walker or using a walker or in a non traumatic fashion. Robyn also feeds her all sorts of supplements and some of them probably cause diarrhea and diarrhea can also cause malnourishment long term. Ever get a nasty stomach virus and poop your brains out? You get dehydrated real quick. I remember I was vomiting and running to the bathroom so much with a stomach virus by the fourth time I went in, I couldn’t get up off the floor because I was that weak. Gatorade helped, but you can still be eating and drinking and get dehydrated with an upset stomach. Who also knows if she can actually digest the foods she eats.

Luna is six (happy birthday…you goblin, sorry your mom ruined your life). She should be able to write cards to her mom, she should be almost 4 ft tall/close to it. She should be blowing out bday candles, eating cake, opening presents and having princess birthday parties.

Now, I will say that because Luna has so much wrong with her she wasn’t ever going to develop and grow like a regular kid. But as other medfags pointed out, Luna is really, really, really messed up from a developmental perspective. Like, I cannot understand understate how messed up she really is. I see kids say in and day out and they’re fun to watch grow and develop and turn into little people with opinions and dreams. Luna is a potato, truly she is a potato. there is absolutely zero quality of life. She is both deaf and blind and sits there and seizes. That’s it, that’s her life.

 

[Disgruntled Pupper]

Just wondering: why would she necessarily be malnourished? I know she can't swallow food and is tube fed, but isn't that designed to supply all needed nutrients? I know Robyn likes to put some other slop in there at times, but, what signs are there of lacking complete nutrition?

Traumatic brain injuries, even if they don't affect the brain stem directly, are associated with parasympathetic dysregulation. We're not entirely sure why, but the body is one big very complex machine that influences and responds to itself. Lack of hormones from other areas of the brain might be influencing her digestive system, even if those hormones don't have a direct relationship to it. Signals from the medulla obligations might not be going where they're supposed to, or signals that are supposed to be going to other areas of the brain might be interfering. Lots of things could be going on, often in conjuction with each other.

 

[TheCakeIsALie]

Brain stem affects the parasympathetic nervous system, so that’s one reason right there. Even if the brain stem is mostly spared, hypothalmus damage will do it , and the thalamus is affected by MCE.

Technically, it’s the paraventricular nucleus as it that primarily controls the ANS. Other than that, cytokines are thought to play a particular role in it.

If you really want to get into it: some parvocellular neurons are concerned with anterior pituitary control and neuroendocrine function, while a second group of parvocellular neurons is concerned with central autonomic control.

As to growing: I’m assuming there’s pituitary damage. Typically, MCE doesn’t really affect growth…BUT: in severe cases of multicystic encephalomalacia, where extensive brain damage is present, the function of the pituitary gland could potentially be affected due to its close proximity to the affected brain regions. It also does affect the GI system. Besides swallowing, gut motility can be affected as well as digestion because of the messed up neural pathways that would otherwise be functioning correctly.

Tbh Luna could actually make for an interesting post mortem case, imo. Would be interesting to see what shape her organs are and what the body of a school aged kid with MCE looks like. Most literature talks about neonates. Cadavers are the whole reason we know so much about the human body to begin with. Although there was a time period where autopsies were…odd. I believe in the 17th century particularly. It’s hard to tell if reports from that time period were accurate or a bit exaggerated

 

[Flourishing Pinecone ❧]

Just wondering: why would she necessarily be malnourished? I know she can't swallow food and is tube fed, but isn't that designed to supply all needed nutrients? I know Robyn likes to put some other slop in there at times, but, what signs are there of lacking complete nutrition?

In addition to the above mentioned, Robyn has said she doesn't use pre-made formula, but blends up some kind of bone broth slop and puts that down her feeding tube (with a modified pump set up as she has said the slop is too thick for the machine). Luna also has been losing weight, compared to a year or two ago.

 

[Disgruntled Pupper]

gut motility can be affected as well as digestion because of the messed up neural pathways that would otherwise be functioning correctly.

Haha, I almost brought up the Hartley and their infamous constipation but didn't. When they weren't projectile vomiting or had diarrhea, Gwen was recounting with glee about her husband "milking" the poop out of the goblins in restaurants, and their brains were less fucked than Luna's. Of course Gwen's heavy goat milk and yogurt diet for them probably didn't help much...

Edit:

in severe cases of multicystic encephalomalacia, where extensive brain damage is present, the function of the pituitary gland could potentially be affected due to its close proximity to the affected brain regions. It also does affect the GI system. Besides swallowing

Do you think Luna's lip smacking and tongue thrusting could actually be a sign of pituitary damage? I've always chalked it up to seizures in other parts of the brain, but maybe it's the pituitary itself that's going haywire, or maybe it's both. Would we even be able to tell at this point?

 

[GenociderSyo]

Contractures in her hands are not looking good.