Inactive Gwen Hartley & The Hartley Hooligans - Attention Seeking Horrorshow Mom of Two Dead Gremlins & Finally Free Human Son

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A week or so ago, Gwen posted a scree on FB about Cerebral Palsy to "raise awareness" but it just turned into of course, being about the potatoes and Gwen. I'm not going to judge her on that alone, but JFC she's delusional. Also, medicinal marijuana is a drug, you clown Gwen. (Emphasis mine.)

The Hartley Hooligans
7 October at 02:53 ·
Today is World CP Day, and we honor Claire, Lola & all their friends who happen to list cerebral palsy as one of their superpowers. As mentioned before, both Claire & Lola have spastic quadriplegia cerebral palsy, which is stiffness in the muscles affecting all four limbs as well as their trunks. We don't usually see any pain resulting from this increased muscle tone, but occasionally we do. Due to the fact that our girls cannot take medicines due to being VERY sensitive, we have found several alternative options that help relieve discomfort on their "high tone days." We rely on our Young Living essential oils, hydrotherapy, massage, and lots of stretching on days when they are extra tight. Sometimes we feel it's related to weather/barometric pressure changes, and other times we see an increase or decrease in tone based on illness or stress. It is unpredictable, but for the most part, we feel our girls use their tone in positive ways to help them accomplish new things. For example, Lola has been sitting in her Bumbo chair & is able to hold herself in an upright, correct position due to her tone. Her head control is on point! Claire is working on kneeling and crawling positions currently & can hold herself rigid and "in position" partially due to her tone (and the rest due to her amazing determination!). When they were very little, we didn't have to hold their heads or necks because they were able to do so on their own. In addition, we saw rolling before it was "typical" to do so, also because of tone.

In our girls' case, their cerebral palsy was caused due to their brain abnormality (microcephaly with simplified gyral patterns -- MSG) & their genetic condition (Asparagine Synthetase Deficiency -- affecting the ASNS gene). They were both diagnosed the first week of life with CP. They were able to do things their bodies should not have been able to do -- for example, if you held them on their tummy in a Superman position, a typical baby's body should droop over your hand. Our girls kept their bodies rigid & held a straight Superwoman pose like true champions. We thought it was adorable, but apparently it was abnormal.

At first, all of the associated conditions felt overwhelming, and some days they still do. We have found natural ways to help with almost all of the conditions listed here. We still are working on the sleep piece for Lola, though we are seeing some slight improvements. We continue to search for natural remedies for their seizures as well (Please hurry up & pass medical marijuana, Kansas!!!!!! We wait rather impatiently to try that...).

Take the time to reach out to the next individual you see in a wheelchair or who is using a walker. Speak to them as you would speak to anyone else of the same age. Compliment their wheels or abilities. Visit with their caregivers or family members. Step outside of your comfort zone and bring light to someone who is often overlooked in our society. There is so much joy in this world in places we never think to look.
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Her using oils on these things is one thing, but to ignore the fact that marijuana is not a drug, a medication, something that alters what little brain chemistry these things have is incredible. It's a medicine you ginger fuckwit.
 
While I'm usually an advocate for marijuana being used to treat certain symptoms of certain conditions, these potatoes are just so far gone. The only thing it might do for them is stop them frantically flailing around for a bit. So instead of twitching and mewling they'd just lay there like corpses. What an improvement. /sneed
 
Actually, I’d love to see the potatoes on marijuana. That kind of comedy writes itself. (Baked potatoes, anyone?)

On another topic, did Gwennie seriously write “who happen to list cerebral palsy as one of their superpowers”? Cerebral palsy is now a superpower? Riiiiight...
 
Gwen and Susan Schofield should swap kids so Claire and Lola can get some real meds, and Jany and bohdi can come down off their shit and go on some oils.
Is their a thread on the Schofields anywhere? You just reminded me of their existence and I always wondered what happened to January.
 
Actually, I’d love to see the potatoes on marijuana. That kind of comedy writes itself. (Baked potatoes, anyone?)

On another topic, did Gwennie seriously write “who happen to list cerebral palsy as one of their superpowers”? Cerebral palsy is now a superpower? Riiiiight...
Compared to what the gremlins have, I gotta agree with Gwen that cerebral palsy is a super power.
 
Not power-levelling? But I used to use a chair and if some random fucker "complimented my wheels" if have ran over their fucking foot. How condescending and patronising can you be?!
Get bent Gwen, you don't know shit.
It's a baffling thing to say, like complimenting someone on their legs if they can walk. I'd be totally confused if someone complemented my 'wheels'. It's just a way of getting around, wtf? And that's before you even start on the only reason the person is really saying it is for their own brownie points. None of it makes any sense at all.
 
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