Inactive Gwen Hartley & The Hartley Hooligans - Attention Seeking Horrorshow Mom of Two Dead Gremlins & Finally Free Human Son

[speshul_sn0wflake]

Poor Lola. Honestly it breaks my heart that her narcissistic bitch of a mother has forced her into this non-existence. I'm a huge cunt so I hate feeling the feels for these kids. I just can't imagine being a big enough monster to have one potato, having the doctors tell me that since my husband and I carry the same defect that we will most definitely have another potato, then saying fuck you by having another potato. Such a sad situation.

That's the main thing that I can't stand about Gwen. She talks about how all life is equal, they've got such an amazing quality of life regardless of their defects, they deserve to live just like everyone else etc. And while Claire's existence was debatable, she knowingly had Lola.
IIRC she even made the entire group of medical professionals staffing Lola's birth pretend that nothing was wrong, no mention of defects or deformities, Gwen "just wanted her birth to be perfect" etc....

If you want to live in your delusions, whatever, but once it starts affecting (effecting? Fuck I always confuse the two) other people there's a problem. I honestly don't believe that all the doctors and nurses just pretended Lola wasn't hideously malformed. I feel like that goes against everything the medical profession stands for, to ask them all to feed into your delusions that this brainless child is neurotypical. They should've ordered a psych evaluation right after the birth. Who knows? Maybe they did. It's not like Gwen would tell us and I doubt her husband would, that's if he's even allowed to use the internet unsupervised.

She wouldn't even let medical professionals really get involved with the kids when both were alive, yet she claims to be an "advocate" for the disabled. I remember seeing a study done on them when they were rather young as the doctors knew very little regarding what's now known as KEGG Disease, (Asparagine Synthesis Deficiency) and it noted all the issues with the children. In one paragraph where they spoke of hypertonia and other issues, I recall it saying something to the affect of "Mother of patient A (claire) claims that patient can crawl, however these claims are unfounded and have not been witnessed by medical personal", then it basically stated that considering her current state it would be impossible for Claire to crawl.

After that Gwen seemed to take a hard line in never letting those kids get any type of medical procedure or intervention. I could be wrong, but I think her extreme dislike of modern medicine probably happened after that study. Gwen seems like the type to tell the doctors what her kids can and can't do, and I guess she assumed they'd somewhat take her word for it and just do the needed tests. There's no way she was happy about what was published when she read the study, she seems like a control freak and having doctors tell her she's wrong about her kids limitations had to be a huge blow to her ego. Whereas a true advocate would allow for (at the very least) non-invasive medical tests to see if their children could be helped or be studied to help others, Gwen didn't give a shit unless it directly fed her ego. Instead they contradicted her claims with actual.. ya know.. science, she noped the fuck out of that a long time ago.

If anyone is interested, while this isn't the exact study from the medical textbook on just the Hartleys, it does include them. Link if you're interested.

Note that the study makes it a point to state "The parents confirmed to be carriers for this mutation and the discovered mutation validated by Sanger sequencing methodology (for detailed WES methodology, filtering strategy, and average coverage, please see supplementary materials)."

I guess writing "These two fucking idiots knew they were both carriers and rolled the dice a second time anyway. Neither seem to understand that the 25% odds of having a normal kid is pretty much "Without replacement", study confirms that the gene pool in Kansas isn't all that deep" isn't appropriate in this setting. Oh well.

 

[keyboredsm4shthe2nd]

I have never wanted to see a pro-cannabis/marijuana bill fail but, for this one, I will make an exception.


If the warrior thing makes you angry, I'm going to guess you've never seen the posts where Gwennie claims she is the mommy to two girls with super-powers. IIRC, she had one in a Wonder Woman shirt and the other in a shirt with the Superman "S" logo.

The girls are literally unable to turn themselves over and Gwennie calls it a super power.

Unless you have an autistic savant for a child, your kid doesn't have a fucking superpower.

And even then afaik being a savant means you're almost guaranteed to be on the lower functioning end not only socially but also as far as being able to look after yourself, so...

 

[Muscle Bra]

but once it starts affecting (effecting? Fuck I always confuse the two) other people there's a problem.

Grammar nazi here but you got it right.

Affect is a verb, while effect is (mostly) a noun. If you "affect" something, you change or alter it, while an "effect" is the end result of some change or action. I find it best to think of a "special effect" in a movie; it's some thing (i.e. a noun) that has been changed to look cooler.

 

[ignominious]

As an aside, what the fuck are those shirts the kids are wearing? I get that they don't pick out their outfits, but whatever homeopathic oils Gwen has been ingesting seem to have rotted what little brain she had left if she thinks those shirts are a good idea.

come on, you're seriously implying that those aren't the most amazing ironic shirts ever?

 

[cuddle striker]

I guess writing "These two fucking idiots knew they were both carriers and rolled the dice a second time anyway. Neither seem to understand that the 25% odds of having a normal kid is pretty much "Without replacement", study confirms that the gene pool in Kansas isn't all that deep" isn't appropriate in this setting. Oh well.

this can happen anywhere the gene pool is shallow.

Patient 1 was a full-term baby boy born by cesarean section due to fetal distress and failure to progress to the first-cousin Saudi parents.

almost every family studied is consanguineous. kissin cousins. there's only one exception, those poor unlucky Canadians.

if you dig into related studies of the same disease, there's plenty of brain scans to be found. we know Lola wasn't given one, against all reason, but Claire is in there somewhere, a ghost in the research. (edit to add: Claire is on the more severe end of this spectrum- putting lola nearly off the map)

I didn't realize it earlier but the progressive degeneration of the brain means their seizures cannot be treated- not by benzos, not by weed, not by anything. this law is irrelevant to Claire and Lola, the receptors for CBD are totally non functional in their brains.

I've always been team Lola. never had a chance.

here's a few images.

microcephaly, showing the progressive degeneration over a period of time.

another in which the child started out with a bit more in the noggin.

this is three siblings, of varying severity.

I noticed also that a few of the kids in the research have lived into their thirties, despite neutropenia (no/low immune system) and the constant seizing. that is horrifying.

Lola is lucky in a way, with her mother's refusal to medically assist her, she will not be one of those.

 

[MysticMisty]

In one paragraph where they spoke of hypertonia and other issues, I recall it saying something to the affect of "Mother of patient A (claire) claims that patient can crawl, however these claims are unfounded and have not been witnessed by medical personal", then it basically stated that considering her current state it would be impossible for Claire to crawl.

Gwen never did give up on that particular lie. Sometime within the last couple of years she claimed Claire took her first steps. Considering that she documents their shitting and vomiting in great detail but didn't have a single photo to show for it her lie was quite conspicuous. Except for her loyal fundie asspatters who never doubt anything Gwen says.

 

[Barbarella]

So I just googled and Kansas house approved the bill. Gwen is not bragging yet.

Edited to add link, and note it was not called Claire and Lola’s Law.

https://www.usnews.com/news/best-states/kansas/articles/2019-03-27/house-approves-using-cbd-oil-with-small-amount-of-thc

 

[Miss Misery]

So I just googled and Kansas house approved the bill. Gwen is not bragging yet.
Edited to add link, and note it was not called Claire and Lola’s Law.

Yeah, but she's going to call it Claire and Lola's Law for eternity and pat herself on the butt about it forever. Her potatoes' legacy!

 

[bluehydrangea]

Gwen never did give up on that particular lie. Sometime within the last couple of years she claimed Claire took her first steps. Considering that she documents their shitting and vomiting in great detail but didn't have a single photo to show for it her lie was quite conspicuous. Except for her loyal fundie asspatters who never doubt anything Gwen says.

I think what she considers Claire's first steps was in the video where Claire was in her walker thingy and Gwen claimed she pushed herself forward a few times. Claire's feet were barely even touching the ground and it was blatantly obvious that the therapist pushed her. Of course she milked it for all it was worth and her followers ate it up even though it was right in front of their eyes that Claire didn't do shit.

So I just googled and Kansas house approved the bill. Gwen is not bragging yet.

Edited to add link, and note it was not called Claire and Lola’s Law.

https://www.usnews.com/news/best-states/kansas/articles/2019-03-27/house-approves-using-cbd-oil-with-small-amount-of-thc

Well that's good. The law shouldv'e been passed for the benefit of other people, but definitely not named after the goblins. If Gwen actually had good motivations other than pure narcissism for advocating for the bill, she would've posted about it and celebrated it as a victory regardless of what they called it. But it was just a vanity project so I'm sure she's salty about it. I'd be highly surprised if she even gives Lola any CBD oil tbh.

 

[Dwarf troll]

Does anyone else think her face looks swollen around her left eye?

This is a screenshot from the infinity glass documentary lola looks green
I don't know what else to say

 

[RebatsivePulsard]

Does anyone else think her face looks swollen around her left eye?

Yep, with a red ring around her eye. Speaking of which, Lola’s eyes have more life and soul than Gwen’s dead, cold ones.

 

[MirnaMinkoff]

I noticed that myself. Something else I noticed is that whenever good ole crazy eyed Gwen posts something about Claire, she uses her baby pictures. Even on one of the memorials I stumbled across looking for the death record and obituary, I saw her using Claire's baby pictures.

I'm guessing it's because Claire looked a bit more normal as a baby? Not by much, but better than she looked as she got older and far better than Lola can ever hope to appear.

It's like Gwen wants people to remember Claire that way, only she forgets she posted pictures of her tubers often and Claire was only "cute" for a modicum of time.

I'm not sure why I expect anything crazy ass Gwen does to make sense though. This is a 40 something year old woman who talks and writes like a 12 year old trying to be edgy and whose cognitive dissonance is off the charts.

She’s erased the last decade of Claire’s life. All the photos of Claire posted since her death have been photos of her as a baby. Optics and appearance matter A LOT to Gwen no matter how much she tries to say otherwise.

Just look at photos Gwen posts of the spuds compared to candid photos by others. Night and day difference.

I think what she considers Claire's first steps was in the video where Claire was in her walker thingy and Gwen claimed she pushed herself forward a few times. Claire's feet were barely even touching the ground and it was blatantly obvious that the therapist pushed her. Of course she milked it for all it was worth and her followers ate it up even though it was right in front of their eyes that Claire didn't do shit.

Well that's good. The law shouldv'e been passed for the benefit of other people, but definitely not named after the goblins. If Gwen actually had good motivations other than pure narcissism for advocating for the bill, she would've posted about it and celebrated it as a victory regardless of what they called it. But it was just a vanity project so I'm sure she's salty about it. I'd be highly surprised if she even gives Lola any CBD oil tbh.

Bills and laws in state legislatures really aren’t named after shit like that, it’s a PR tactic more than anything. I’m sure the bill has a riviting name like HR765 but for optics and ego people try to attach catchy or scmaltzy titles to them.

Federal laws can formally have such titles, but not states. If they let states do it they would go bonkers with that shit. They already waste lots of time naming interstate bridges and roads after people for PR points.

This strikes me more as Gwen being willing to lend the goblins name to anything in hopes she can say she passed “Claire and Lola’s Law” for her next media appearances.

Usually when a child’s name is attached to a federal law it’s because the law might have helped save their life had it been in effect before their demise or it at least properly punished the parties who harmed them. Megans Law is a prime example.

Spoiler

(Megan was a seven year old girl raped and murdered by a convicted child rapist. Her parents had no idea this POS lived in their neighborhood. Megan’s law created public sex offender registries and notifications)

Lola’s & Claire’s Law sounds dramatic, but it’s rather funny it just about some cannibis oil that would have done zero to help or effect the lives of Claire and Lola. Gwen just made a really desperate bid for the spotlight on this one and wasn’t too choosy for her vehicle. Would have been a lot better if she used the potatoes to lobby a bill that helped increase medical care/aid for families with severely disabled kids. More prenatal testing would have been most appropriate for a “Claire and Lola’s Law” or a death with dignity bill - the potatoes would have been perfect poster girls for that.

 

[SourDiesel]

Wait, the law doesn't even really "allow" people use CBD oil anyway? It sounds like it's made it so if you're arrested for it & go to court you can argue it was for medical reasons but like, you still get arrested and have to pay a lawyer and maybe even spend time in jail awaiting trial. That doesn't sound like a very big win tbh.

 

[heathercho]

I think what she considers Claire's first steps was in the video where Claire was in her walker thingy and Gwen claimed she pushed herself forward a few times. Claire's feet were barely even touching the ground and it was blatantly obvious that the therapist pushed her. Of course she milked it for all it was worth and her followers ate it up even though it was right in front of their eyes that Claire didn't do shit.




Well that's good. The law shouldv'e been passed for the benefit of other people, but definitely not named after the goblins. If Gwen actually had good motivations other than pure narcissism for advocating for the bill, she would've posted about it and celebrated it as a victory regardless of what they called it. But it was just a vanity project so I'm sure she's salty about it. I'd be highly surprised if she even gives Lola any CBD oil tbh.

There were rare times that Claire did flail her limbs around, where she looked like she was irritated with something.
What annoys me about Gwen is, that instead of like... put those moments in context as being something positive, she instead goes manic and pretends like that's nothing, she does it all the time, but OMG LOOK AT CLAIRE WALKING!
Which she never had or would be able to do.

Where as Lola.... well Lola was a pretzel when she was born.

The arms and legs don't move at all. They only have some motion because of her torso. Lola is basically a head and a torso.
I never understood why she never viewed stuff honestly.

Oh and she'll never give Lola CBD oil. She only mentioned it one single time before launching into this law stuff.
How exactly would it have benefited Claire? Claire had some kind of organ failure going on. If anything, it would have made her situation worse.

I find this whole CBD thing rather pathetic honestly. Like I've been sympathetic to Gwen re: not wanting to give them, especially Lola "medicine" and opting for softer methods. No one knows exactly how medicine will react in her body, her brain, her lack of brain rather, I completely feel for her on that, but I'd be more sympathetic if Lola was like Bree Gilker, but she's not. Bree had something to preserve, to support. Lola doesn't.

I always come back to the fact that if Gwen cared about Lola's well being, she would have given her a feeding tube in some capacity, instead of holding onto the idiotic notion that she can have a "baby" experience with Lola because Lola roots and can have her head tilted back to "swallow". Gwen cares about Gwen's experience. That's all. That's all this law is.

 

[Dwarf troll]

There were rare times that Claire did flail her limbs around, where she looked like she was irritated with something.
What annoys me about Gwen is, that instead of like... put those moments in context as being something positive, she instead goes manic and pretends like that's nothing, she does it all the time, but OMG LOOK AT CLAIRE WALKING!
Which she never had or would be able to do.

Where as Lola.... well Lola was a pretzel when she was born.

The arms and legs don't move at all. They only have some motion because of her torso. Lola is basically a head and a torso.
I never understood why she never viewed stuff honestly.

Oh and she'll never give Lola CBD oil. She only mentioned it one single time before launching into this law stuff.
How exactly would it have benefited Claire? Claire had some kind of organ failure going on. If anything, it would have made her situation worse.

I find this whole CBD thing rather pathetic honestly. Like I've been sympathetic to Gwen re: not wanting to give them, especially Lola "medicine" and opting for softer methods. No one knows exactly how medicine will react in her body, her brain, her lack of brain rather, I completely feel for her on that, but I'd be more sympathetic if Lola was like Bree Gilker, but she's not. Bree had something to preserve, to support. Lola doesn't.

I always come back to the fact that if Gwen cared about Lola's well being, she would have given her a feeding tube in some capacity, instead of holding onto the idiotic notion that she can have a "baby" experience with Lola because Lola roots and can have her head tilted back to "swallow". Gwen cares about Gwen's experience. That's all. That's all this law is.

There is a video of claire with a PT and she puts cold slim in Claire's hand and she pulls it away and even her legs move and Gwen gets excited and says claire can definitely feel warm and cold
So maybe there was some brain activity
Lola on the other hand she seems to just want to eat her fist and make faces like she smelled a bad fart
There is a video of Gwen trying to get lola to cry by saying put your lip out but if you notice she is squeezing her finger pretty good like she is trying to inflict pain
I think I watch these videos to much but there is just something about the potatoes it's like a car crash you just have to look and watch

 

[MirnaMinkoff]

There is a video of claire with a PT and she puts cold slim in Claire's hand and she pulls it away and even her legs move and Gwen gets excited and says claire can definitely feel warm and cold
So maybe there was some brain activity
Lola on the other hand she seems to just want to eat her fist and make faces like she smelled a bad fart
There is a video of Gwen trying to get lola to cry by saying put your lip out but if you notice she is squeezing her finger pretty good like she is trying to inflict pain
I think I watch these videos to much but there is just something about the potatoes it's like a car crash you just have to look and watch

The most depressing thing is all these people with healthy minds and bodies wasted fifteen years of their lives caring for mindless potatoes. The potatoes had no awareness and no potential so it all those resources, time and energy was just flushed down the shitter to what end? Gwen’s psychological comfort and need for attention.

The girls could have had something akin to hospice care during their lives, they would not have lived as long but would have been comfortable. No dragging them out for cosplay photos, basketball games or proms.

Gwen wasted fifteen prime years of her life trying to prove the girls lives had meaning and purpose. Cheerleading “super power” nonsense and looking for the slightest sign the potatoes had a spark on consciousness hidden somewhere. After living in a self-constructed fantasy for so long she’s going to have a hell of a time trying to function in reality once Lola is gone. She will think it’s her job for the rest of her life to be a martyr to the most amazing, perfect girls. Gwen’s failed quest to try and accept the potatoes broke her brain.

 

[Miss Misery]

I think the most depressing thing is that all of that time and energy could have gone to Cal.

Or they could have devoted their resources to adopting some kids who needed a loving family wait nevermind on that one. They'd probably be better off in foster homes than victims of Gwen's psycho crusades.

 

[Whatthefuck]

I think the most depressing thing is that all of that time and energy could have gone to Cal.

Or they could have devoted their resources to adopting some kids who needed a loving family wait nevermind on that one. They'd probably be better off in foster homes than victims of Gwen's psycho crusades.

Now that's the saddest part of this equation. Claire and Lola had/have no real consciousness. They weren't/aren't aware of the world around them. Cal is a healthy, emotionally available, clearly dependable and loving son and he is completely ignored in this circus. Worse than that, he's expected to participate. These people have fucked up on the most epic level with that kid. It's a miracle he turned out as well as he has.

 

[Miss Misery]

I'm painting this scenario as if Lola is already gone because 1. I assume it will happen soon and 2. I really don't want it to actually happen if Lola beats the odds.

Imagine if Claire and Lola had lived long enough for Cal to get married. You KNOW Gwen would have demanded they be the flower girls. Would they have had Gwen and a bridesmaid carry them down the aisle or would she have expected the bride to do it?

 

[Whatthefuck]

I'm painting this scenario as if Lola is already gone because 1. I assume it will happen soon and 2. I really don't want it to actually happen if Lola beats the odds.

Imagine if Claire and Lola had lived long enough for Cal to get married. You KNOW Gwen would have demanded they be the flower girls. Would they have had Gwen and a bridesmaid carry them down the aisle or would she have expected the bride to do it?

You know, maybe Cal turned out so well because Gwen didn't document every aspect of his life. She was so preoccupied being the best mom to the bestest, smartest, most speshulest potatoes that Cal was relegated to the background and was allowed to grow up in relative anonymity?