Inactive Gwen Hartley & The Hartley Hooligans - Attention Seeking Horrorshow Mom of Two Dead Gremlins & Finally Free Human Son

[keyboredsm4shthe2nd]

Gwen likes that photo because it shows some sort of expression. As horrifying as it may look - it is proof to Gwen that something is going on in that empty potato skull. Anything that looks like some form of sentience is positive to Gwen.

if you attach jumper cables to a dead man's testicles, he'll still writhe.
if you rip the wings off a fly it still tries to escape.

 

[MysticMisty]

Imagine if Claire and Lola had lived long enough for Cal to get married. You KNOW Gwen would have demanded they be the flower girls. Would they have had Gwen and a bridesmaid carry them down the aisle or would she have expected the bride to do it?

Put them in a wagon with some strings of flowers taped to the back, then make someone drag them down the aisle. Cal already had to do it once for some poor relative's wedding. Knowing Gwen she'd pick the most insulting thing possible: a relative the traditional flower girl age.

And while Claire might finally be gone I wouldn't put it past her to pressure Cal into marriage just so she can still do it for Lola. I mean, she already did that for sped prom and they don't even know her personally. Cal doesn't stand a chance.

 

[Barbarella]

At least Lola is good for something. I finally got me an avatar!

I hope ya vagina is in better shape than Lola’s mouth.

 

[Grog]

I can totally see Gwen carrying a photo of Claire and Lola around in Cal's wedding.

 

[Bunny]

I can totally see Gwen carrying a photo of Claire and Lola around in Cal's wedding.

You know instead of having a slideshow of Cal and his new wife, Gwen would insist upon it including Claire and Lola even if the pictures didn't involve Cal and the wife. Or it'd be a separate slide show for just the girls. Fuck. I'm so sad for Cal's future wedding because somehow it will be overshadowed by Claire and Lola even if Lola is dead.

 

[John Merston]

She wouldn't even let medical professionals really get involved with the kids when both were alive, yet she claims to be an "advocate" for the disabled. I remember seeing a study done on them when they were rather young as the doctors knew very little regarding what's now known as KEGG Disease, (Asparagine Synthesis Deficiency) and it noted all the issues with the children. In one paragraph where they spoke of hypertonia and other issues, I recall it saying something to the affect of "Mother of patient A (claire) claims that patient can crawl, however these claims are unfounded and have not been witnessed by medical personal", then it basically stated that considering her current state it would be impossible for Claire to crawl.

Wait, since when was Asparagine Synthesis Deficiency referred to as "KEGG Disease"? I googled "KEGG Disease" and got a database of genetic disorders.

 

[Whatthefuck]

Wait, since when was Asparagine Synthesis Deficiency referred to as "KEGG Disease"? I googled "KEGG Disease" and got a database of genetic disorders.

I'm not sure where that came from, but I looked up Asparagine Synthesis Deficiency on the NIH website and I'm more convinced than ever that Gwen is an absolute monster for bringing Lola into this world. There is no hope, there is no getting better. This poor child is a potato. She's got NOTHING going on upstairs, never has and never will. Her movements and responses are purely lizard brain levels of responding to stimuli. It's a horrifying condition and I can get Claire being born and all that, but Lola is inexcusable. That child's entire non-existence is purely to feed Gwen's narcissism.

https://ghr.nlm.nih.gov/condition/asparagine-synthetase-deficiency#resources

 

[John Merston]

I found a blog by a mother of a child with the same syndrome as Claire and Lola. While that child is still dragging development-wise, she's practically a rocked-scientist compared to Gwen's spuds. However, I noticed that the most recent update was in August 2017, just after the girl turned two. I have the sneaking suspicion that the reason the mother stopped updating is that her daughter is startng to follow the same path that Claire did-limbs becoming gnarled, facial features becoming distorted because they're outgrowing her small skull, and developmental milestones being lost as her brain atrophies.

 

[Bubblez McGee]

Wait, since when was Asparagine Synthesis Deficiency referred to as "KEGG Disease"? I googled "KEGG Disease" and got a database of genetic disorders.

You're correct. KEGG doesnt refer to a specific illness; but a database of conditions. The letters KEGG stand for :Kyoto Encyclopedia of Genes and Genomes. According to Wikipedia, it's " a collection of databases dealing with genomes, biological pathways, diseases, drugs, and chemical substances. KEGG is utilized for bioinformatics research and education, including data analysis in genomics, metagenomics, metabolomics and other omics studies, modeling and simulation in systems biology, and translational research in drug development. "

I can understand though, how someone might mistake it being part of a condition's name if they've never heard of it before, because when you google "Asparagine Synthetase Deficiency", some of the first results that come up say do KEGG Disease right before the name, which makes it confusing. It's only when you google "KEGG" itself that you see that it's a database of conditions and not a condition itself. Quite a few other conditions have KEGG or KEGG disease in front of their names. ADHD for example is listed as" KEGG Disease : Attention Deficit Hyperactivity Disorder (ADHD) and there are many others.

I found a blog by a mother of a child with the same syndrome as Claire and Lola. While that child is still dragging development-wise, she's practically a rocked-scientist compared to Gwen's spuds. However, I noticed that the most recent update was in August 2017, just after the girl turned two. I have the sneaking suspicion that the reason the mother stopped updating is that her daughter is startng to follow the same path that Claire did-limbs becoming gnarled, facial features becoming distorted because they're outgrowing her small skull, and developmental milestones being lost as her brain atrophies.

Her mother's instagram is still active and she posted something fairly recently, March 9th I believe. It's hard to tell exactly how Jules is doing from just a photo and given past experiences, I usually don't completely trust when the parents of these kids boast about their kids awesome achievements. However, it is pretty obvious that she's definitely in much better condition than the Hartley girls ever were. Even Claire in her youngest and most healthy appearing times, never seemed as normal looking as this girl. I notice that Jules also doesn't seem to be as bad as the other kids in the studies who have ASD. All of them had very obvious microcephaly from birth, while even a few years on, it's hard to tell that Jules's head size is abnormal.

I know that like many disorders, this one probably falls on a spectrum , but she appears so different than any other the other ASD children , that it's almost like she has another condition entirely.
I suppose it's possible maybe that there are others like her with milder versions of ASD, but since it's still fairly newly discovered, perhaps doctors u dont suspect it in other kids with mild forms and so don't test for it and dont diagnose it. Either that or she just got lucky, comparatively speaking or maybe she was misdiagnosed and actually has something else. Whatever the case, it's all quite fascinating.

 

[Philosophy Zombie]

if you attach jumper cables to a dead man's testicles, he'll still writhe.
if you rip the wings off a fly it still tries to escape.

I actually remember a redditor taping jumper cables to his balls to prove something retarded to someone, and he said there was a bit of a jolt first putting them on but after that he said there was a "pleasant tingling sensation"

I'll link it when I find it

I'm not sure where that came from, but I looked up Asparagine Synthesis Deficiency on the NIH website and I'm more convinced than ever that Gwen is an absolute monster for bringing Lola into this world. There is no hope, there is no getting better. This poor child is a potato. She's got NOTHING going on upstairs, never has and never will. Her movements and responses are purely lizard brain levels of responding to stimuli. It's a horrifying condition and I can get Claire being born and all that, but Lola is inexcusable. That child's entire non-existence is purely to feed Gwen's narcissism.

https://ghr.nlm.nih.gov/condition/asparagine-synthetase-deficiency#resources

So? If she is really not sentient and can't feel anything there is no harm done to anyone besides Gwen herself and maybe Cal, but it's her prerogative if that martyr fantasy is what makes her happy.

I would understand to vilify her if you followed the common belief here that she does feel pain, but you can't both have your cake and eat it.

 

[REGENDarySumanai]

What the hell is taking the Grim Reaper so long to visit Lola?

 

[MirnaMinkoff]

I'm not sure where that came from, but I looked up Asparagine Synthesis Deficiency on the NIH website and I'm more convinced than ever that Gwen is an absolute monster for bringing Lola into this world. There is no hope, there is no getting better. This poor child is a potato. She's got NOTHING going on upstairs, never has and never will. Her movements and responses are purely lizard brain levels of responding to stimuli. It's a horrifying condition and I can get Claire being born and all that, but Lola is inexcusable. That child's entire non-existence is purely to feed Gwen's narcissism.

https://ghr.nlm.nih.gov/condition/asparagine-synthetase-deficiency#resources

Well, in Gwen's defense they didn't know they had ASD when Lola was born. The genetic tests that showed that was the issue were many years down the road. Lots of microcephalic babies are just bad luck, one off mutations and in those cases having another microcephalic baby is extremely unlikely, So Gwen deciding to get pregnant again wasn't crazy or anything. HOWEVER, at about 20 weeks it was confirmed that Lola had the same condition as Claire. At this moment it became very obvious that there was a major genetic problem and that Lola was going to be another microcephalic baby, this is where Gwen loses all sympathy because she decided to proceed with the pregnancy anyway....and did shit like asking Cam if he wanted to meet his baby sister and not. She also decided to not allow any medical testing of Lola once she was born because Gwen at this point had decided sticking her finger in her ears and insisting her girls were perfect as is was the way to go.

I actually remember a redditor taping jumper cables to his balls to prove something exceptional to someone, and he said there was a bit of a jolt first putting them on but after that he said there was a "pleasant tingling sensation"

I'll link it when I find it


So? If she is really not sentient and can't feel anything there is no harm done to anyone besides Gwen herself and maybe Cal, but it's her prerogative if that martyr fantasy is what makes her happy.

I would understand to vilify her if you followed the common belief here that she does feel pain, but you can't both have your cake and eat it.

Gwen wastes a lot of government resources on Lola. The state pays her money for their disability, provide nurses/respite care, pointless therapies, lots of medical equipment, etc... Putting aside whether there is any suffering going on in the potato Gwen takes a lot from the larger community simply to waste it on a child with zero potential to make herself feel better. There's an extraordinary amount of time, money and effort being spent by capable adults on what amounts to a potted plant.

 

[heathercho]

Well, in Gwen's defense they didn't know they had ASD when Lola was born. The genetic tests that showed that was the issue were many years down the road. Lots of microcephalic babies are just bad luck, one off mutations and in those cases having another microcephalic baby is extremely unlikely, So Gwen deciding to get pregnant again wasn't crazy or anything. HOWEVER, at about 20 weeks it was confirmed that Lola had the same condition as Claire. At this moment it became very obvious that there was a major genetic problem and that Lola was going to be another microcephalic baby, this is where Gwen loses all sympathy because she decided to proceed with the pregnancy anyway....and did shit like asking Cam if he wanted to meet his baby sister and not. She also decided to not allow any medical testing of Lola once she was born because Gwen at this point had decided sticking her finger in her ears and insisting her girls were perfect as is was the way to go.



Gwen wastes a lot of government resources on Lola. The state pays her money for their disability, provide nurses/respite care, pointless therapies, lots of medical equipment, etc... Putting aside whether there is any suffering going on in the potato Gwen takes a lot from the larger community simply to waste it on a child with zero potential to make herself feel better. There's an extraordinary amount of time, money and effort being spent by capable adults on what amounts to a potted plant.

I'm pretty sure Gwen was told she had a 1 in 4 chance of the next baby being born the same as Claire.
The genome thing they did confirmed that yes, 25% chance of potato. So Gwen knew that the next potato had a chance of being Lola'd.

On Monday of this week, I got a call from Genetics in Kansas City saying they had a diagnosis. I almost couldn't catch my breath. A DIAGNOSIS, y'all!!! Should I say it a third time? THEY HAD ANSWERS!!!!!!! They told me they'd figure this whole thing out, and THEY FREAKIN' DELIVERED.

Scott & I were found to be carriers of this gene defect (it is an Autosomal Recessive gene, resulting in a 25% chance of this occurring each pregnancy, as we suspected), and both girls presented with the ASNS gene for Asparagine Synthetase Deficiency. It apparently causes most all of the girls' diagnoses, and the one picture I was able to see of another affected child could have passed for a Middle Eastern, male version of Claire at age 4. The newborn baby picture looked IDENTICAL to my girlies' noggins/faces/chins/ears/head shapes! This appears to be what we have been searching for all these years...

Shortly after Claire's 4th birthday, we found out we were expecting you. We were SO happy, SO scared, SO overjoyed, SO nervous. Not an hour passed where I didn't pray to God that you would be "OK." I so needed to "heal," to have a typical pregnancy, to have a "normal" birth experience again, to breastfeed you. It HAD to be OK. We knew we had a 75% chance of that.

We had too-many-sonograms-to-count during the first half of the pregnancy, each one more promising than the last. At one point, you even showed us your hand with your thumb OUT, which to us signified you were OK since Claire's thumbs had ALWAYS been tucked tightly in her fists. We watched your movement, checking for ANY spasticity. We studied your forehead, researched normal head circumferences, memorized "the numbers" so when we went for the sonograms we'd know exactly if things were lagging AT ALL before we were even told. At 22 weeks, we saw your head measurements stall... they were still within "normal limits" (just 2 weeks behind). We panicked, prayed, cried, promised years off our own lives if all could be OK with your brain. Microcephaly was confirmed at 26 weeks, and the next 48 hours were some of the most difficult of our lives.

To hell with your growth Lola, Mommy needs to have a typical experience!!

 

[MG 620]

What the hell is taking the Grim Reaper so long to visit Lola?

He took a week off after the Christchurch extravaganza, but I assure you, it's on his to do list.

 

[雑音🐈]

Out of curiosity, what makes Gwen beauty parlour material?

 

[AnOminous]

Out of curiosity, what makes Gwen beauty parlour material?

The sexy, sassy, totally normal teenage daughters.

 

[speshul_sn0wflake]

Out of curiosity, what makes Gwen beauty parlour material?

It was mentioned in the beginning of the thread somewhere, but a KF Staff Member moved it from (I believe) horrorcow to beauty parlour. Looking for the exact reason why, but every now and then when going from page to page I keep getting a 502 error "Bad Gateway". It was happening to me the other night when as well when I was browsing KF.

Anyone else getting that? Or is it just me?

Also, apologies about the KEGG thing, I didn't look into it too much and took it straight from the study I posted. I didn't realize it was a broad classification of specific disorders.

 

[Cat Menagerie]

It was mentioned in the beginning of the thread somewhere, but a KF Staff Member moved it from (I believe) horrorcow to beauty parlour. Looking for the exact reason why, but every now and then when going from page to page I keep getting a 502 error "Bad Gateway". It was happening to me the other night when as well when I was browsing KF.

Anyone else getting that? Or is it just me?

Also, apologies about the KEGG thing, I didn't look into it too much and took it straight from the study I posted. I didn't realize it was a broad classification of specific disorders.

Nah, site seems a bit fucked atm.

She dressed herself up and her daughters like dolls, so I suppose this is as good of a place for her as any.

 

[Dysnomia]

I'm pretty sure Gwen was told she had a 1 in 4 chance of the next baby being born the same as Claire.
The genome thing they did confirmed that yes, 25% chance of potato. So Gwen knew that the next potato had a chance of being Lola'd.





To hell with your growth Lola, Mommy needs to have a typical experience!!

But she already had a perfectly normal child in Cal. I guess she just had to have the perfect experience with a daughter. Going by the prom posts we all know that these were really Gwen's proms and not Claire and Lola's. I think Gwen would be the type of mother that would make her sassy teen daughters' social lives all about herself. She'd probably sign up as a chaperone and be an annoyance and embarassment all night long.

She never got a real mini me experience because with boys it is different. So here comes the embarassing costumes and posting disgusting projectile diarrhea stories about her sassy teens. Real sassy teens would be mortified. But Claire and Lola are potted plants with no concept of what is going on. So Gwen throws their dignity out the window so she has something to share with her asspatters. She can't blog about dancing lessons, cheerleading, proms and dates. So she has to work with what she has. Well she did get the prom. But her potatoes were more like props than participants.

 

[speshul_sn0wflake]

@Cat Menagerie Ohh ok. I figured as much with all the bullshit that's been going on.

I was looking through this thread because it's been a while (and I was trying to find when it was moved) since I've read the beginnings of this mindfuck and I came across a picture of Lola.

This was taken in March 2017, so about two years ago, and oh my God. You know how when you gain a little bit of weight, you don't always notice it, especially if it's only like 5 pounds or so? Then you find a picture of yourself and are like "Oh shit, I'm getting a little bit chubby better cut out the junk food"?

That's kinda how I felt when I saw that picture of Lola. I know the disease is degenerative so every day she gets a bit worse, but I don't think I realized how much worse until a few moments ago. She was also the hooligan that was (in my mind) the more "fucked up" of the two, so I was always expected any pictures of her to be horrifying.

Then there's this photo from a year ago, and it's obvious Gwen did as much photoshopping as possible to remove the birthmark/rash/godknowswhat from her face.

Now compare these to the pictures we've seen of Lola recently, especially the one of Lola's side profile that was taken by a photographer (other than Gwen at the Senate) and it's like night and day.

I try to keep in mind that Gwen likes to do fat chick "Myspace Angles" and then 'shops the taters pictures before posting, so the pictures she takes aren't always reliable but clearly things aren't going well. She also does alot more sneaky shit with her photos than I ever realized, I knew Gwen was short and kinda chunky but I never realized how big she actually was because she's always taking those weird aerial like photos of her and the kids.

Anddd there's still no update on her blog regarding that bill, but we all knew that would happen.