Well, in the meantime, here's a small introduction to a new-ish girl on the block. I can't figure this one out and would be happy to hear anyone's opinion. Meet Jenn. Erotica novelist. POTS/MCAS/et al sufferer. I'm suspect due to her use of baby talk and I swear she bought her subscribers because her views don't match up with the count. It's really disproportionate.
This is the video where she received a brand new, shiny direct J toob and port.
Three surgeries at one time. Only one day of anesthesia, one really rough recovery, one recovery to deal with narcotic side effects. My GJ feeding tube is be...
youtu.be
Really interested in anyone's thoughts.
edit: shared wrong link
I don't have too much time to go over her but she's a former competitive gymnast and ballet dancer claiming hEDS. I don't know much about ballet's strains on the joints but anyone with clinically significant hypermobility to the point where it needs a diagnosis is not going to be able to compete as a gymnast, even if we assume that her symptoms were exacerbated by puberty and prior to that she had few problems. Gymnastics is fucking tough on your joints and her competition photos don't even show her wearing the normal braces that gymnasts all end up wearing because of it.
She admits she learned about her various illnesses from Jaquie and Amy Lee Fisher before she got diagnosed, then shopped around for doctors who would give those diagnoses out.
Had a baby, no stretch marks. No.
Half her photos she shows are blatant body checks. Claims all her weight loss was unintentional. "Food is poison to me."
"Took it upon herself to find out what's wrong with her" before finding the youtubers, by researching through an alphabetical list of diseases until she found one she thought she could pull off. Bawled with happy tears when she thought she had lupus despite having extensive testing that showed nothing was wrong with her. Gets shitty attitude when her doctor says she doesn't have it. This is, by her own description, one of the worst days of her life. Jesus christ. Begged to be hospitalised because she "knew she was dying." What she's describing is anxiety.
It took DAYS to get an IV in while in the hospital. But has pictures of normal bloodwork from her numerous other tests.Two problems here: 1) sounds like someone dehydrated herself, and 2) who documents normal bloodwork other than someone for whom every test is a potential jackpot?
ANA is positive, everything else is negative, loses her shit that the doctor says positive ANA is meaningless and she needs an SSRI. Doctor decides she's anorexic and has reflux.
Her feeding tubes get fucked up within a few weeks of placement, in exactly the same way that all these ana chans feeding tubes are mysteriously getting fucked up all the time.
Heals beautifully from surgeries.
Some of her medication:
Diclofenac sodium, topical NSAID
Chlorhexadine mouthwash: used for gingivitis, dry socket.
Tylenol
Biotin supplement, commonly used for hair, skin, and nails
Melatonin supplement for sleep
Trazodone, sedative, used for depression and panic disorders
Elidel, atopic dermatitis/eczema topical treatment.
"Magic Mouthwash", one of any number of blends for sores in the mouth
Propranolol, beta blocker
Cyclobenzaprine, muscle relaxer. Someone feel free to correct me but it seems like a muscle relaxer would be the absolute worst thing if you had hEDS.
Finacea, topical for rosecea and acne
Clobetasol, more eczema treatment
I'll be back with more but I'm going to say probably just an anachan who wanted a diagnosis to justify her eating disorder and was bendy enough to convince some schmuck it was hEDS, dehydrated herself enough to get a POTS dx from a TTT, etc.
edits: clarification and a little more information
