Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

[Maxie]

I can’t for mysteryelles to fly to Maryland tomorrow and be told if she doesn’t get her spine fused ASAP she will be at risk of being internally decapitated. It’s about time for another muchie to have a botched spinal fusion.

Love how far she is turning her neck in this pic she posted yesterday. That neck that is ready to disconnect from her head at any moment.

 

[howmanypizzas69]

So in the real world aka outside of the “chronic illness community”, is POTS like...an actual, concerning diagnosis to get? I know it’s a real disorder and don’t doubt that it’s frustrating to feel dizzy when you stand up and have to wear compression socks (don’t see many of our special hyperPOTS warriors wearing them, I guess they’re too geriatric and not as cool as AFOS?) but how serious is it usually?

These turds are obviously super OTT in any universe but it kinda seems like a sane person who was diagnosed with POTS wouldn’t even consider themselves chronically ill...are we talking like Reynauds syndrome or more like diabetes as far as illness severity goes? I have no context for this shit obviously.

 

[Punkinsplice]

So in the real world aka outside of the “chronic illness community”, is POTS like...an actual, concerning diagnosis to get? I know it’s a real disorder and don’t doubt that it’s frustrating to feel dizzy when you stand up and have to wear compression socks (don’t see many of our special hyperPOTS warriors wearing them, I guess they’re too geriatric and not as cool as AFOS?) but how serious is it usually?

These turds are obviously super OTT in any universe but it kinda seems like a sane person who was diagnosed with POTS wouldn’t even consider themselves chronically ill...are we talking like Reynauds syndrome or more like diabetes as far as illness severity goes? I have no context for this shit obviously.

I think there are probably some severe cases, but most people with POTS can be fine by maintaining their fluids and salt intake appropriately, using compression hose, and being more aware of their internal cues. By that I mean adjusting their pace or movements to prevent symptoms. Standing up slower, avoiding unnecessary movements that will make you lightheaded, using care in extreme heat. The idea of having a line running into one's heart should give a normal person the incentive to use more conservative measures, imo. That is why these munchies are so perplexing.

 

[large_farva]

New munchie progressing at rapid speed. Account just started Aug 14th.

She says she was chronically ill through childhood but not diagnosed until 21
with all the munchie favs

Docs dismissed her frequently, test results chronically normal.
Geneticist called bullshit on her EDS, which made this exceptional dipshit think she was even more special and more rare. And still when a Neurosurgeon called BS, she thinks it's because she's so rare, but acts like she doesn't want that- making me think they were telling her YOU DONT HAVE EDS.

She has a PICC, of course, but is mad because it wasn't a port. Because she was SUPPOSED to have a port! But you see they changed their minds at the last minute, because that happens with super special rare people, ya see?

And she got IVIG, but she's SO thankful guyz, and knows she's privileged to get it.


But damn, that short supply IVIG she's lucky to get causes severe reactions with people like her! What a pain!



Yay surgery!

The account only started in Aug, and I think she got her PICC after that, started IVIG after that, got the port, MLAS nerve block and now she shopped around enough to find someone to chop up her brain/spine.Wooohoo!

I'm watching her IG to see if she fucking survived. This is a crazy fast timeline.

(edit to fix attachments)

 

[Munchie_Minder]

I’m sure the more medical savvy farmers can elaborate more but people with MCAS claim extreme allergies from absolutely any trigger you can think of- and it can all cause anaphylaxis. Rebellious Story for example won’t allow anyone to cook or eat any food in their home (she, her husband and her mother) bc of such “reactions”. I guess she makes them eat on the porch?! Wtf? But I digress. The triggers patients claim vary wildly- Chronic Zebra for example claims her tears cause her to have MCAS flares, while others say scents or sounds. But every single one seems to be absolutely fine with pets. Go figure.
The doctor that is trailblazing MCAS used to be legit from my understanding- but went private practice and charges obscene amounts to consult and see patients. It reminds me of the chronic Lyme and Chiari/CCI communities as of late. (For ex Here in the US the EDS fusion kids all worship Dr Henderson in Maryland who doesn’t take insurance.)

I’m really glad that this Rebellious Story got brought up with receipts. I have been following her for awhile and had even bought into her claims for a bit. After seeing this, I’m absolutely convinced she is at very least extremely OTT.

Kudos to the person who screengrabbed the negative bone marrow test. My background is not as rich in allergy and mast cell issues, but I will give a run down on what I know.

This lady claims EDS to start with and has used this as a starting platform to develop mast cell and mastocytosis. Mast Cell issues, along with POTS are often found in hEDS patients. The recent survey conducted gave about a 40% correlation and crossover for POTs and interestingly, the more bendy a person is, the lower their blood pressure. Then about 60-70% of people who have EDS and POTS, also have symptoms of Mast Cell Activation Disease (not the same as mastocytosis). So the number of individuals with all three of the trifecta that all of these girls claim is around 20%.

Now, my training is not in allergy so maybe someone will have to clarify, but basically, as I understand it, mast cells are a type of connective tissue that can be found in different areas of the body and their primary job is to manufacture and carry heparin (to reduce clotting) and histamine (changes the membrane potential and permiability of blood vessels to allow white blood cells in to fight infection, particularly the capillaries). These mast cells are particularly dense in the cell matrix of skin, gut, and bones.

So. MCAD, or Mast Cell Activation Disorder is a disorder where those cells that release heparin and histamine are activated when they shouldn’t be. (Sorry got sidetracked when I began this. Will edit and continue this lesson in a moment.)

So in the real world aka outside of the “chronic illness community”, is POTS like...an actual, concerning diagnosis to get? I know it’s a real disorder and don’t doubt that it’s frustrating to feel dizzy when you stand up and have to wear compression socks (don’t see many of our special hyperPOTS warriors wearing them, I guess they’re too geriatric and not as cool as AFOS?) but how serious is it usually?

These turds are obviously super OTT in any universe but it kinda seems like a sane person who was diagnosed with POTS wouldn’t even consider themselves chronically ill...are we talking like Reynauds syndrome or more like diabetes as far as illness severity goes? I have no context for this shit obviously.

POTS by itself is not terribly concerning. It can be induced by dehydration and vitamin/mineral imbalance. It, by definition is postural tachycardia. It means your heart rate increases by 30 beats per minute or more within 2 minutes of positional changes. It is annoying, causes fatigue and is something to monitor, but not life threatening without another condition. It can be managed with proper diet, mineral intake, hydration, leggings, and blood pressure and heart rate altering drugs like midodrine and propranolol, along with stress management.

These girls often include symptoms of orthostatic intolerance (passing out during times of blood pressure changes which will absolutely be present during a tilt table test) which are not common in POTS patients or those with EDS. If a POTS patient does pass out, not taking care of oneself and spending too much time laying down (like after a surgery) is usually the culprit and an exercise program where you gradually increase time upright is needed.

I would compare it more to being a type 2 diabetic, where you can do things to reverse it and get better but you have to make choices that help it.

There are other conditions like pure autonomic failure that result in your whole body losing its ability to maintain homeostasis but this would not be fakeable and would result in death, usually within a couple years. Most EDS patients have some degree of dysautomnia but the exact cause is not known yet. There is a lot of speculation that fragile nerve tissue or types of connective tissue being damaged that maintain homeostasis.

TDLR, pots is annoying, but not the same thing as orthostatic intolerance or autonomic failure, which is what these people seem to be mimicking.[/QUOTE]

 

[howmanypizzas69]

^ oh great, so not only are the wheelchairs and the being bed bound completely OTT 99% of the time, but it sounds like laying in a bed all day and wheeling yourself around whenever you leave the house is exactly the opposite of how to manage POTS! Perfect.

Seems like Chiari is the new thing, I wonder what’s next after that.

 

[medicaidmunch]

The account only started in Aug, and I think she got her PICC after that, started IVIG after that, got the port, MLAS nerve block and now she shopped around enough to find someone to chop up her brain/spine.Wooohoo!

wow another person who is getting their spine destroyed by Dr. Henderson

 

[Punkinsplice]

I'm surprised that our new girl isn't claiming Chiari, honestly. Goes with POTS a lot. Maybe she had an MRI that disproves it.

 

[thirsttrap12345]

I'm surprised that our new girl isn't claiming Chiari, honestly. Goes with POTS a lot. Maybe she had an MRI that disproves it.

def wouldn’t stop them. There is now Chiari 0, which only the most experienced of neurosurgeons can detect (diagnostic criteria: the smell of money.)

 

[mooserangerofthenorth]

Spoonful_of_benadryl that's like, overdose girl.

So, I had a chance to show providers Rebellious Story. None had ever heard of phengnan being used IV at home. Even in hyperemesis pregnant patients. As mentioned it can cause gangrene and is the same class as benadryl, so I have doubts its IV. I didnt see any pictures or the vials but I did see benadryl. There are no pain patches that are every 6 hours, so either shes getting double rxed one or is sticking otc lidocaine or methyol patches on way too often. Her weight gain, yank the tub. I've never actually seen a person in need of one hit more than 110 lbs. Her weight a skin color, again agreed is medication toxicity.

I also noticed how much she rags on how super duper bad the medical system is. Every single profession has it's bad apples but doctors aren't bad because they wont medicate you to a forever daze.

And as for "doctor" Henderson he makes you sign an agreement you cant give him a bad review. I'm going to go find it.

 

[Pimpkin Pumpkin]

So, Mast Cell Activation or whatever they claim is basically just “sometimes I have allergic type reactions to stuff”?
That sounds even stupider than POTS when it’s described. The disease/syndrome now sounds so specific yet vague that it hides how dubious it is.

Also, I’m vaguely reeeeeeeeeeeing how pretty that spoonful_of_benadryl girl is. Bitch, why are you munching for your attention? Set up a patreon or something, idk.

 

[Erica_Kane]

If you would like to read about managing Phenergan and Benadryl, read below:

Spoiler: Pharmacology re: diphenhydramine and promethazine

Benadryl (diphenhydramine) and Phenergan (promethazine) are technically the same type of drugs- H1 histamine inhibitors. Benadryl is often listed for its anticholinergic properties as well, but even colloquially people know it as a antihistamine. For example: get a bee sting, elevated histamine response, take a Benadryl. Feel better from an OTC medication.

Promethazine is most often given in the clinical setting for anti-nausea (as listed up-thread) related to post-operative narcotics if the patient has "failed" or lists an aversion to Zofran (Ondansetron) for whatever reason.

It is associated with some unwanted side effects, mainly being tardive dyskinesia (uncontrollable mouth movements), drowsiness, dizziness, confusion, and it's a bit harder on the liver. For this reason, most clinicians will not prescribe promethazine for the patient to take home, but will instead prescribe dissolvable Zofran tablets. It may also cause respiratory depression in high enough doses, which is increased when combined with opiates, which also cause respiratory depression. It wouldn't be unheard of, however, for a clinician to give a patient a take-home prescription if they insisted they could not take Zofran, or if the clinician believed the prescription would be short term.

It's sometimes used in cough syrup preparations because it can suppress coughing as one of its secondary functions.

Where am I going with all this? Because of its sedating effects, those taking it in the syrup preparation paired with codeine came to enjoy it, and that was the origin of "Drank," seen in hiphop subculture in the mid 2010s. Lil Wayne was allegedly hospitalized from it, which is, I think, a preparation of promethazine and codeine syrup, sprite, jolly ranchers and alcohol. You can see how that shit would put you out.

A more "sophisticated" user who could try to just manage drugs as an MBI human, as you noted, might try diphenhydramine and promethazine. Maybe opiates and/or benzodiazepines, maybe MMJ. I don't know their lives. That would certainly, from the effects promethazine and diphenhydramine are known to cause, cause you to feel way out of it. Maybe they're into that.

However, given that both promethazine and diphenhydramine work on the H1 histamine receptor, taking them both at the same time is dangerous. All the bad side effects of antihistamine poisoning? You're going to get there twice as fast. Increased heart rate, nausea, vomiting, loss of balance, possible seizure, coma and even death.

Source: https://www.latimes.com/science/la-...rp-side-effects-lil-wayne-20130318-story.html

https://www.caymanchem.com/msdss/16478m.pdf

TLDR: Entirely possible to get someone to prescribe Phenergan and Benadryl. You don't even need a Benadryl prescription. However, not a good idea to combine two medications that are very, very similar just to get a high. Cuz, you know, cooking yourself alive and brain damage and such.

very alarming, benadryl IVs are used for migraine management as is prescription promethazine.

So in the real world aka outside of the “chronic illness community”, is POTS like...an actual, concerning diagnosis to get? I know it’s a real disorder and don’t doubt that it’s frustrating to feel dizzy when you stand up and have to wear compression socks (don’t see many of our special hyperPOTS warriors wearing them, I guess they’re too geriatric and not as cool as AFOS?) but how serious is it usually?

These turds are obviously super OTT in any universe but it kinda seems like a sane person who was diagnosed with POTS wouldn’t even consider themselves chronically ill...are we talking like Reynauds syndrome or more like diabetes as far as illness severity goes? I have no context for this shit obviously.

I've met like 2 patients who are normal with POTS, most doctors groan when they see certain diagnoses like POTS or MCAS.

I'm surprised that our new girl isn't claiming Chiari, honestly. Goes with POTS a lot. Maybe she had an MRI that disproves it.

Magical genetic testing chiari.

 

[medicaidmunch]

So, Mast Cell Activation or whatever they claim is basically just “sometimes I have allergic type reactions to stuff”?
That sounds even stupider than POTS when it’s described. The disease/syndrome now sounds so specific yet vague that it hides how dubious it is.

as far as I can tell MCAS is on a spectrum. Sometimes reactions are just itching and hives and other times it can be anaphylaxis but that’s when they actually have MCAS. They basically can be allergic to anything but I think people with actual MCAS know their “triggers” and rarely have random reactions. Most of these munchies don’t show any signs of allergic reactions.

 

[Refrigerator Poet]

View attachment 988299View attachment 988302View attachment 988272

Bish, you ain’t special. NONE of that is special. The protocol for IVIG is a pain in the ass for everybody - nurses AND patients. Vitals every 15 minutes for at least the first hour, if not longer, depending on how fast the rate increases. The longest you go in between vitals checks is 30 minutes. They’re not worried about you; they’re following policy.

The abuse of IVIG is my particular hobby-horse, so I’m gonna breathe and let this bitch go, before I get buried in an avalanche of hats.

 

[medicaidmunch]

this is another one I’ve been following for a while. she really irks me because she can’t seem to spell 90% of the time and just like every other fake EDSer, she swears every pain and pop is a dislocation. here is a series of photos where she thinks her hip is dislocated:


because a doctor would tell you to wait and see if a dislocated hip puts itself back into place!! who is “we” and why did she need to take her pants off to see if her hip was dislocated? god this girl is dumb.

 

[elliptical narcissist]

^^^She's been taking selfie lessons from Amanda/Ren.

 

[Punkinsplice]

The first picture is freaky, looks like that other person has no idea she is there taking that weird selfie in the dark. I imagine them waking up with a text message from"unknown" and that photo attached with " I didn't have the heart to wake you... " in the message

 

[Ellesse_warrior]

The first picture is freaky, looks like that other person has no idea she is there taking that weird selfie in the dark. I imagine them waking up with a text message from"unknown" and that photo attached with " I didn't have the heart to wake you... " in the message

I'm sure they wouldn't appreciate the full up nostril view of their face either.

 

[Vanilla Donut]

I'm sure they wouldn't appreciate the full up nostril view of their face either.

I could never trust that person around me with a camera again, haha. Jesus, I’d flip the fuck out if someone uploaded a photo of me at that angle.

Ahh. I don’t understand how all these brave warrior zebras don’t know if they have dislocated a major joint? I’m going off anecdotal evidence here but everyone I’ve personally known who has dislocated a major joint has had to go to the emergency room or equivalent due to it being a pain they can’t stand, then they have been strapped up for a week or two afterwards. That’s including those with an EDS diagnosis. Yet so many of these bitches are hobbling or wheeling around claiming they dislocate 500 bones a day and relocate dislocations of major joints themselves but just cite their usual high pain tolerance due to their unrelenting 500/10 daily pain as the reason they can. Sure, ligaments might have more give if they truly have a connective tissue disorder but really?

 

[LetThemEatCake]

Ahh. I don’t understand how all these brave warrior zebras don’t know if they have dislocated a major joint? I’m going off anecdotal evidence here but everyone I’ve personally known who has dislocated a major joint has had to go to the emergency room or equivalent due to it being a pain they can’t stand, then they have been strapped up for a week or two afterwards.

Yeah, people I know who have been in car accidents etc and dislocated shoulders and what have you have described it as utterly excruciating. You can't just live your life with it, have dinner, go to sleep - it's a major FIX THIS SHIT NOW thing. You go to emergency and they put in back into place and then you have issues with it for a while.

I was also involved in a mixed-sex hockey game (dumb idea, trust me) once where a girl dislocated her leg after colliding with a guy twice her size and the expression on her face from the pain will not leave me. Agony. Pure suffering. Not something you can Insta through.