Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

[Punkinsplice]

Sorry for this PL, but I wonder if my own experience may help here. I get a weird thing where my hip joint feels tight or just "wrong" and when I do a hip flexor stretch, it makes a loud clunk noise and it really feels like it is shifteing, maybe going back into place. It isn't, and I don't have any of these conditions that cause subluxations. Docs have said it is tendon moving, not the joint. I wonder if this is the phenomenon that some of the munchies are thinking is a dislocation. I can see why they might believe it from my experience. It happens in other parts of the body, too.

 

[IBrokeBob]

Sorry for this PL, but I wonder if my own experience may help here. I get a weird thing where my hip joint feels tight or just "wrong" and when I do a hip flexor stretch, it makes a loud clunk noise and it really feels like it is shifteing, maybe going back into place. It isn't, and I don't have any of these conditions that cause subluxations. Docs have said it is tendon moving, not the joint. I wonder if this is the phenomenon that some of the munchies are thinking is a dislocation. I can see why they might believe it from my experience. It happens in other parts of the body, too.

oMG you have superspeshul eds. Quick get a neck brace and start posting pitiful pics with it. That is the standard treatment for superspeshul eds.

 

[Punkinsplice]

oMG you have superspeshul eds. Quick get a neck brace and start posting pitiful pics with it. That is the standard treatment for superspeshul eds.

No thanks! I am not photogenic enough to be a super munchie. It seems to be a fad in younger groups anyway. These kids are really missing out on their best years, and when they hit their 30s, they will be even worse off than most of their peers because they are deconditioned from all the fake splints and braces.

 

[mooserangerofthenorth]

Sorry for this PL, but I wonder if my own experience may help here. I get a weird thing where my hip joint feels tight or just "wrong" and when I do a hip flexor stretch, it makes a loud clunk noise and it really feels like it is shifteing, maybe going back into place. It isn't, and I don't have any of these conditions that cause subluxations. Docs have said it is tendon moving, not the joint. I wonder if this is the phenomenon that some of the munchies are thinking is a dislocation. I can see why they might believe it from my experience. It happens in other parts of the body, too.

It's legit called "snapping hip syndrome" and a very large part of the human population has it.

Joints that have a large amount mobility (like the shoulder) can easily sublux and dislocate after first dislocation or, with EDS. You can actually pick up techniques to relocate and do it yourself if your joint is unstable. Many ER doctors actually will attempt relocation in patients with chronic instability with little to no pain medicine on board.

But for the hip, nope not happening.

 

[Munchie_Minder]

I could never trust that person around me with a camera again, haha. Jesus, I’d flip the fuck out if someone uploaded a photo of me at that angle.

Ahh. I don’t understand how all these brave warrior zebras don’t know if they have dislocated a major joint? I’m going off anecdotal evidence here but everyone I’ve personally known who has dislocated a major joint has had to go to the emergency room or equivalent due to it being a pain they can’t stand, then they have been strapped up for a week or two afterwards. That’s including those with an EDS diagnosis. Yet so many of these bitches are hobbling or wheeling around claiming they dislocate 500 bones a day and relocate dislocations of major joints themselves but just cite their usual high pain tolerance due to their unrelenting 500/10 daily pain as the reason they can. Sure, ligaments might have more give if they truly have a connective tissue disorder but really?

As someone who has examined and been around a couple dozen EDS patients, I will say that it is possible that someone is dislocating a joint and not knowing it is out. The capsule becomes so stretchy that sometimes, particularly during sleep, it can slip in and out of place quite easily.

The THING IS, when this happens, 99% of the time, a) the patient doesn’t necessarily know what’s happening and just presents with “my shoulder hurts” or “my hip hurts” when I sleep and change positions. The muscles are also stretched out and don’t spasm as much to put it back in place OR b) the muscles do spasm and are able to relocate the joint back in place easily on its own within a few minutes.

Very very rarely does an EDS patient’s joint stay out of place and when this happens they are a) unable to move the joint. Like this bitch would not be able to walk AT ALL with the hip dislocation b) it is extremely painful and or/ numbness occurs c) it will spasm itself back into place because the joint of a Hypermobile person is just that or the person will require ER visit because the pain is unbearable until joint is reset. Sometimes patients go through an intermediate stage where the pain of a dislocation causes them to have someone nearby help them reset the joint which can happen with EDS as spasms assist. But again, they KNOW it is out of place because they can’t move their arm or leg or jaw and PAIN.

 

[Kate Farms Shill]

Hello I have little to add to the current discussion as I am still catching up from an internet break, but I have chosen to expose my extreme autism to this particular band of degenerates. Gimme dem puzzle pieces.

Central Florida Womens Medical Society Records, 1885-1900

Narcolepsy/Cataplexy Date,Event,Notes,Source,Additional Info 2008,narcolepsy symptoms begin,claims she has suffered from narcolepsy since age 12,instagram,claim made in July 2016 unknown,cataplexy episodes as a child,cousin reports she had cataplexy episodes from excitation while they played vid...

docs.google.com

I call this the Jaquipedia, and it's something I started many moons ago when Jaquie was just starting to pick up traction on
YT and I was starting to cotton onto the fact that she wasn't telling the truth. At the time I didn't have any knowledge of any of these diseases at all and had never even heard of most of them but something just wasn't sitting right with me about her claims, so I started tracking them to see if I noticed any inconsistencies. Wew lad. Anyway, I used to listen to/watch her videos on my train commute and write notes in a word document about what she said, just a list of facts and interesting tidbits like "claimed she had anaphylaxis last night, aborted with benadryl" "ate a ham and cheese sandwich, did not mention gastroparesis."

I ended up with like a 200-page list of dated claims that I vaguely sorted by topic by the time she died which is how in the aftermath of her death I could come up with the answer to virtually any question asked about her history, often down to the exact date. On the request of some people who saw the rough cut, I've been cleaning it up and turning it into a sortable, shareable spreadsheet.* I hope to make it a database of every lie she told on youtube and what I can recover from her early Instagram posts. I've only gotten up to the leadup to her original tube surgery now, but it's still an interesting ride. I figured with so many new members and this new crop of munchies modeled in her image, there's been a lot of "how do they talk their doctors into ___?!" Well, here's how. She serves as kind of a model case in getting doctors to butcher you to death for internet points.

Use tabs at the bottom to flip between diagnoses/topics and have fun. I'll be back in a few weeks with some actual content.

(*my job is primarily done on Google Sheets so the fact that I can openly work on this in the office and get paid for it as long as I change the title to something like "Dr. Kate F. Shillington's records, 1917-1919" doesn't hurt. If the title is something weird, that's the reason)

 

[medicaidmunch]

Sorry for this PL, but I wonder if my own experience may help here. I get a weird thing where my hip joint feels tight or just "wrong" and when I do a hip flexor stretch, it makes a loud clunk noise and it really feels like it is shifteing, maybe going back into place. It isn't, and I don't have any of these conditions that cause subluxations. Docs have said it is tendon moving, not the joint. I wonder if this is the phenomenon that some of the munchies are thinking is a dislocation. I can see why they might believe it from my experience. It happens in other parts of the body, too.

most of them are experiencing exactly this. like someone below you said, it’s called snapping hip. yes, it hurts and can really freak people out but it’s not anywhere close to a subluxation or dislocations. If you try to correct these munchies and tell them how hard it is to actually dislocate a hip, even with EDS, they freak out. I would kill to be in the room with her when she explains to her doctor that she dislocated her hip but somehow didn’t realize it.

there have been people in FB groups that claim they can run on dislocated hips. It’s amazing honestly

 

[eternal dog mongler]

It's legit called "snapping hip syndrome" and a very large part of the human population has it.

Joints that have a large amount mobility (like the shoulder) can easily sublux and dislocate after first dislocation or, with EDS. You can actually pick up techniques to relocate and do it yourself if your joint is unstable. Many ER doctors actually will attempt relocation in patients with chronic instability with little to no pain medicine on board.

But for the hip, nope not happening.

Yeah it's particularly weird that munchies always seem to go for hip dislocations. Shoulder and ankle subluxations are pretty common in people with hypermobility. Both those joints are shitty and unstable even in the normal population. Your hip...not so much. If you dislocated your hip you'd go to ground immediately and be unable to walk without crutches. Then you'd need medical intervention.

 

[Nobody Loves Milhouse]

most of them are experiencing exactly this. like someone below you said, it’s called snapping hip. yes, it hurts and can really freak people out but it’s not anywhere close to a subluxation or dislocations. If you try to correct these munchies and tell them how hard it is to actually dislocate a hip, even with EDS, they freak out. I would kill to be in the room with her when she explains to her doctor that she dislocated her hip but somehow didn’t realize it.

there have been people in FB groups that claim they can run on dislocated hips. It’s amazing honestly

I've watched a few "day in the life of" videos from some of our subjects, and they almost always stop filming to point out that they just had a dislocation (usually the hip), and then show on camera how they put the joint back in place. Mind you, I'm not a medical professional, but it honestly just looks like they're cracking a joint to get a mild 'pop' or 'crunch' sound. They're not in pain, they're not freaking out, and the way they put the joint 'back in' honestly looks like nothing - like they're just adjusting it.
I've seen videos of legitimate dislocation corrections, and it looks nothing like what our munchies do. It requires way more strength than just a little tap and wiggle.

I read a while back, about an EDS patient in her 50's who said that she's only had a handful of dislocations in her entire life, despite having pretty extreme hypermobility. Like, the joints are unstable, but they don't fully come out 200 times a day. At that age, you'd think she'd be much worse off than some of the 19 year olds who claim to LITERALLY FALL APART if they remove their braces or finger splints.

 

[Maxie]

I've watched a few "day in the life of" videos from some of our subjects, and they almost always stop filming to point out that they just had a dislocation (usually the hip), and then show on camera how they put the joint back in place. Mind you, I'm not a medical professional, but it honestly just looks like they're cracking a joint to get a mild 'pop' or 'crunch' sound. They're not in pain, they're not freaking out, and the way they put the joint 'back in' honestly looks like nothing - like they're just adjusting it.
I've seen videos of legitimate dislocation corrections, and it looks nothing like what our munchies do. It requires way more strength than just a little tap and wiggle.

I read a while back, about an EDS patient in her 50's who said that she's only had a handful of dislocations in her entire life, despite having pretty extreme hypermobility. Like, the joints are unstable, but they don't fully come out 200 times a day. At that age, you'd think she'd be much worse off than some of the 19 year olds who claim to LITERALLY FALL APART if they remove their braces or finger splints.

They claim they fall apart but rarely mention permanent damage to their joints. Most people I know in person with hypermobility issues have arthritis in multiple joints in their 20s and cannot squat down next to their extra special service dog.

 

[Freezerburn420691]

Anyone else notice how SOS changes her Insta bio every other day?
Recently she updated to reflect her hospital visits. Recently changed to ***currently living in a hotel due to mold in our house.***

Really odd behavior

 

[Vanilla Donut]

there have been people in FB groups that claim they can run on dislocated hips. It’s amazing honestly

Not too long ago, someone posted that when their knee dislocated while running that they just kept on running until it relocated itself or something along those lines.
Running with a dislocated knee? Okay. Yep, sure.
The one-upmanship culture in certain FB groups leads to some bloody hilarious scenarios being posted even on the most boring of days.

Anyone else notice how SOS changes her Insta bio every other day?
Recently she updated to reflect her hospital visits. Recently changed to ***currently living in a hotel due to mold in our house.***

Really odd behavior

SOS is incredibly strange, my guess would be that she’s just changes it to what she’ll think will get her the most asspats now. Of course she has to also use the bio to remind people that there is “no cure” for something she’s apparently lived with her entire life but has only decided to complain about recently.

 

[medicaidmunch]

anddddddd mysteryelles is getting her neck sliced open. I wonder how many complications she will have

 

[Maxie]

anddddddd mysteryelles is getting her neck sliced open. I wonder how many complications she will have

She will be able to go as the headless horseman by next Holloween with him operating.

 

[mooserangerofthenorth]

Barfie doll is back in the hospital with her PICC pulled and nose hose and Hickman. How long before sepsis, you know again.

 

[thirsttrap12345]

anddddddd mysteryelles is getting her neck sliced open. I wonder how many complications she will have

there is a Henderson favorite among the EDS fans, a young woman named Christina who is an artist. She does not appear to be OTT or attention seeking in any way (and seems to have a life outside her illness) BUT she has let him slice her open multiple times. This young woman has had her spine fused at 17 levels- yes, you read that right/ 17. There is a photo on her Instagram of her massive scar if anyone would like to be horrified by his healing powers.

any of the medical savvy farmers on here that can shed light on how legit his practices and treatments are?

 

[Punkinsplice]

Can this "favorite" patient walk? That sounds like a nightmare , tbh!

 

[Mako_Spark]

Yeah it's particularly weird that munchies always seem to go for hip dislocations. Shoulder and ankle subluxations are pretty common in people with hypermobility. Both those joints are shitty and unstable even in the normal population. Your hip...not so much. If you dislocated your hip you'd go to ground immediately and be unable to walk without crutches. Then you'd need medical intervention.

Slightly off topic - a relative is a doctor, and in his first week seeing patients as a GP a guy came in with a clearly dislocated shoulder, moaning and groaning in terrible pain. Doc started planning to call in the senior doctor for help but the guy said "no, don't bother, this has happened before - I can put it back in myself, I just need something for the pain." So my doc relative wrote him a script for pain meds and off he went. That night he got a call from the senior doctor, who had just looked over his charts for the day, telling him he'd fallen for a con; the guy was a pill addict and he'd tried every doctor in town with his 'dislocated shoulder' trick, until one suspicious GP had his secretary quietly trail the guy out the door, where he instantly dropped the 'in terrible pain' act, popped his shoulder back in like it was nothing, and went happily towards the pharmacy for his high.

My relative still doesn't know if dislocating the shoulder on purpose was painful for this guy, but worth it for the meds, or if he was one of those people who figures out they have 'easy' sockets and just decided to take advantage of it, but now he works in a major hospital and can't believe he ever fell for it, it's that common for pill addicts to come in with dislocations... and they can't all have freaky hypermobile joints.

 

[medicaidmunch]

there is a Henderson favorite among the EDS fans, a young woman named Christina who is an artist. She does not appear to be OTT or attention seeking in any way (and seems to have a life outside her illness) BUT she has let him slice her open multiple times. This young woman has had her spine fused at 17 levels- yes, you read that right/ 17. There is a photo on her Instagram of her massive scar if anyone would like to be horrified by his healing powers.

any of the medical savvy farmers on here that can shed light on how legit his practices and treatments are?

im not that medical savvy when it comes to CCI but once a surgeon touches you especially with spinal surgery, it’s difficult to find someone to clean up the mess. Henderson is one of 3 doctors in the US that operates on EDS patients with “CCI.” He will diagnose anyone with CCI and tell them they need surgery. There’s a reason that these people are only getting surgery with these doctors and that surgeons at the big, academic hospitals aren’t doing the surgeries. Do some of them truly have instability? Sure. Is it enough to warrant surgery? Probably not. Once you fuse part of the spine, the instability starts to move down. This is why they end up with repeat surgeries and the need for a full spinal fusion.

there’s another girl who has had multiple surgeries from the guy in NY and hasn’t been able to walk.

 

[ineedattention]

curious on the lack of Skinwalker material?

rebellious story, also curious on the consensus of her. does anything think there’s any validity to anything?

im not that medical savvy when it comes to CCI but once a surgeon touches you especially with spinal surgery, it’s difficult to find someone to clean up the mess. Henderson is one of 3 doctors in the US that operates on EDS patients with “CCI.” He will diagnose anyone with CCI and tell them they need surgery. There’s a reason that these people are only getting surgery with these doctors and that surgeons at the big, academic hospitals aren’t doing the surgeries. Do some of them truly have instability? Sure. Is it enough to warrant surgery? Probably not. Once you fuse part of the spine, the instability starts to move down. This is why they end up with repeat surgeries and the need for a full spinal fusion.

there’s another girl who has had multiple surgeries from the guy in NY and hasn’t been able to walk.

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is this for real? stop it.