Trainwreck The Empathic Nutritionist / Empathic Mamahood / Robyn Grogitsky-Ramirez / Luna Elva Ramirez / Glenn Ramirez / Atlas Glenn Standford Ramirez - Eyefucking Sociopath Selfie Addict Mother and Closeted Gymrat Pothead Father who use Instagram to Parade their Homemade Homunculus Tard Baby Created by their Refusal to Follow any Medical Oversights

Will Robyn actually go back to see the neurosurgeon in California?

  • Yes

    Votes: 26 12.2%
  • No

    Votes: 107 50.2%
  • Luna will die before the planned trip date

    Votes: 80 37.6%

  • Total voters
    213
  • Poll closed .
Has Luna had that crack/dimple in the middle of her forhead for long? That looks new.
Yea its just usually hidden.
How long has she had AFOs? I'm sure Robyn claims they're for "foot drop" rather than "decorticate posturing".
Unsure.

Her feet are definitely not aligned right very noticeable in the one nearest the camera:
 
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This is one case where I think it's ok to hope a young child dies. I really hope Luna passes peacefully in her sleep soon because seeing her suffering prolonged like this is horrific :(

I think Robyn is one of the most MOTI-inducing cows to ever have a thread here. Harming a child is completely unforgivable.

I thought I have seen the depths of human depravity. Robyn is an absolute cockroach of a woman, and she has the gall to smile through torturing an actual infant. I don't know anything about medicine, but I have learned so much over the past few days catching up on poor Luna. This is the first thread to make me cry, and your comment made me lose it. Fuck.

I truly hope that Luna finds peace soon, she doesn't deserve the life she is burdened with. How could a mother hate her child so much? (:_(
 
I thought I have seen the depths of human depravity. Robyn is an absolute cockroach of a woman, and she has the gall to smile through torturing an actual infant. I don't know anything about medicine, but I have learned so much over the past few days catching up on poor Luna. This is the first thread to make me cry, and your comment made me lose it. Fuck.

I truly hope that Luna finds peace soon, she doesn't deserve the life she is burdened with. How could a mother hate her child so much? (:_(
Comparing Robyn to a cockroach is an insult to cockroaches.

I don't think she hates her kid so much as she's completely apathetic about her wellbeing. She's a narcissist and her kids are just objects that exist to give her narcissistic supply.
 
Good lord, Luna’s head looks so misshapen it looks like parts of it are like... sliding out of place. Gross.
Her head is so horrifying it makes it easier to overlook the awful contractures in her hands and ankles. This is an indication that something is seriously wrong with her brain. Basically, her brain and muscles don't communicate well, so her limbs are constantly tensed in a spasm. It's a condition called hypertonia. It's also possible that she has some low tone, or hypotonia, as well. This "mixed tone" is, in general, indicative of a more severe neurological pathology than either hyper- or hypotonia alone.

Most people have probably encountered someone with cerebral palsy. Luna is a good example of someone who has the most severe type of CP, spastic quadriplegia. That means that all four of her limbs are affected by abnormal muscle tone, because her brain is so damaged. For a lot of people with CP, the high tone has a major, negative impact on quality of life. Anyone who can imagine a constant, severe charley horse probably has a bit of an idea of why it's so miserable. If Luna has any awareness at all, she is very likely in constant pain. People with mild CP will also describe how frustrating it is to have muscles that won't do what you want them to do. For example, they might have trouble letting go of a glass of water after picking it up, causing them to spill on themselves. Many of them have trouble with speech articulation, meaning they have normal intelligence but cannot physically "get the words out", which is obviously frustrating because it causes other people to treat them like they're retarded.

The high muscle tone can be treated. Some patients get regular Botox injections in the tighter muscles. Botox is botulinum toxin, which is the same thing that causes paralysis in cases of botulism from food. By paralyzing the affected muscles, it allows the other ones to do what they're supposed to do, without the signal from the brain being drowned out by nonsense, basically. There's also a medication called baclofen, which is a muscle relaxant similar to what you might get if you throw out your back. It can be taken by mouth, but if the spasticity is very severe or affects many of the muscles, it can also be given via an intrathecal pump, which is a little reservoir that is implanted in the abdomen. From there, a tiny tube is placed into the spinal column and the pump dispenses the solution into the spinal fluid at a constant rate. The pump does need to have its battery replacemed every 5-10 years, and the medication reservoir has to be refilled several times a year by inserting a long needle through the abdomen.

There are also orthopedic braces and splints that help keep everything in the right place in spite of the pulling of the muscles that are too tight. I thought Luna had some thumb spica wrist splints to help with the contractures in her arms, but I might have been misremembering because I don't see them in recent photos.

The reason you want to do all of these intense interventions as soon as possible is because joint contractures can become permanent, leading to complete loss of function of the joint and skeletal deformity. For example, it's really common for people who have spasticity in their legs to end up with dislocated hips, because of how the muscles pull on the bone, eventually causing the hips to become misshapen. This can be fixed surgically, but it's a major operation, involving a lot of pain and a very long recovery period during which the kid has to be immobilized basically from the chest to the toes, and most surgeons try to wait as long as possible before doing it. It is also strongly advised to make the child bear weight on his or her legs as much as possible, even if he or she won't ever walk. This helps the hips maintain proper anatomical arrangement and promotes bone density. A lot of profoundly disabled people struggle with bone fractures, and it can make it really hard for the kid and the caregiver, both emotionally and physically. Most parents would feel pretty shitty if they broke their kid's femur just by putting him to bed.

Have we ever seen Luna in a stander? I'm wondering if Robyn is using chiropractic in lieu of actual physical therapy.

(Sorry, this response got really long and spergy. I can spoiler it if people would prefer that.)
 
Have we ever seen Luna in a stander? I'm wondering if Robyn is using chiropractic in lieu of actual physical therapy.

(Sorry, this response got really long and spergy. I can spoiler it if people would prefer that.)
We have but it's been randomly used as like a prop on christmas or sometimes. It's obvious they do not use it nor any other real therapy the way its supposed to be used.
 
This chick is fucked. Multiple ticking time bombs. The more I read the literal worse it gets. Is that baby's head just gonna blow one day? Like wtf?

Has Luna had that crack/dimple in the middle of her forhead for long? That loo

This is what gives me a deep almost primordial sense of repulsion when I see this kid. Her skull is literally exploding in slow-mo—- you know Robyn is aware how bad she fucked up (Luna had a weirdly swollen head easily seen in even the earliest post-traumatic birth photos), and there’s something additionally repugnant (& darkly hilarious) about just sticking a big ugly floofy bow on it like “There! Good as new! Pretty princess!”

I’m kind of amazed her eyeballs haven’t been pushed out or otherwise more damaged since they’ve never closed.
 
This is what gives me a deep almost primordial sense of repulsion when I see this kid. Her skull is literally exploding in slow-mo—- you know Robyn is aware how bad she fucked up (Luna had a weirdly swollen head easily seen in even the earliest post-traumatic birth photos), and there’s something additionally repugnant (& darkly hilarious) about just sticking a big ugly floofy bow on it like “There! Good as new! Pretty princess!”

I’m kind of amazed her eyeballs haven’t been pushed out or otherwise more damaged since they’ve never closed.
"Fortunately" for Luna, the skull bones of infants are fairly soft and thin, and they also have spaces between them. In a normal infant, this allows the brain to grow as the baby develops. You can see and feel (very gently!) these "soft spots" on the heads of infants. As the skull grows, the bones begin to fuse together. The places where the bones meet are called sutures. There are several of them, and some don't fully close until adulthood. In the image I linked, you can see the major sutures of a normal infant skull, with the forehead at the top of the image.

So, despite how uncomfortable Luna's skull appears, it's very likely among the least of her worries, pain-wise. It looks like her skull exploded, but really, the bones never had a chance to join, and her skull is actually doing what it's supposed to do to keep her alive. If the skull bones were joined and then her brain started to be replaced by fluid, she would be in dire straits because the swelling would have nowhere to go.

A normal adult brain is pretty tight within the skull, with very little room to move, for obvious reasons. If someone whose skull sutures have mostly closed suffers an injury or illness that causes brain swelling, the lack of space inside the skull causes the very fragile brain tissue to be crushed and torn. The inside of the cranial vault is not completely smooth; there are several sharp bony projections, and a swollen brain can be damaged by being pressed into them. Structures deep within the brain can also be crushed against each other and destroyed.

Eventually, if the swelling continues unchecked, parts of the brain can herniate. Put simply, this means that various parts of the brain are pushed into areas where they don't belong. This generally kills a person. Brains do not like to be fucked with at all. The tissue damage from the herniation means that even if a surgeon could just put everything back where it belonged, the brain wouldn't work right anymore.

The one that makes her head look the most unsettling, in my opinion, is the metopic suture, which is the one running vertically in the middle of the forehead. Normally, this is one of the first sutures to close, before the infant is a year old.
 
Some morning woo for you all from TEN's instastories:


Supposedly if you go near someone who got the vaccine your period will go out of whack and you'll miscarry if your pregnant. THIS IS WHAT ROBYN BELEIVES.....

Let's just look at who posted this:
1618659677448.png


Yep...Totally expected....

And there's more proof that she is anti-vaxx and stupid as could be.
 
Some morning woo for you all from TEN's instastories:
View attachment 2095309

Supposedly if you go near someone who got the vaccine your period will go out of whack and you'll miscarry if your pregnant. THIS IS WHAT ROBYN BELEIVES.....

Let's just look at who posted this:
View attachment 2095310

Yep...Totally expected....

And there's more proof that she is anti-vaxx and stupid as could be.
Well that should be really easy for her to prove, given that >85% of all obstetricians and midwives I know are now vaccinated.
 
Some morning woo for you all from TEN's instastories:
View attachment 2095309

Supposedly if you go near someone who got the vaccine your period will go out of whack and you'll miscarry if your pregnant. THIS IS WHAT ROBYN BELEIVES.....

Let's just look at who posted this:
View attachment 2095310

Yep...Totally expected....

And there's more proof that she is anti-vaxx and stupid as could be.
It’s amazing what bullshit people go in for on IG based on photogenic filtered photos. I wouldn’t trust that ditzy broad to give me a haircut, never mind medical advice.

It’s like the hilarity of a 20 year old Nicole Kidman playing a neurosurgeon in that race car movie, but this isn’t a movie, and some idiots are actually listening to these ridiculous twits.
 
Maybe I don't understand the medical condition, but if it is fluid in her head, can they not have it drained to make life more bearable? In some infant photos her head looked almost normal sized. I know the fluid will come back if you drain it, but doing nothing about it must put Luna more head pain from the pressure.
Her condition is a bit more then hydrocephalus. It causes the brain to make multiple fluid filled cysts that slowly take over and destroy the entire brain. It would be impossible to shunt every cyst that could show up so they shunt the main area and hope it drains them. Her head is so mishappen because the skull already has fused, she would require actual reconstruction to fix things and has huge areas that are unprotected.
 
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