- Joined
- Feb 26, 2020
Send in the ratings if this isn't the place/is a stupid question, but why is a port better than a PICC or a Hickman out of curiosity? Do they have less complications?Better a port than a PICC or Hickman though.
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Send in the ratings if this isn't the place/is a stupid question, but why is a port better than a PICC or a Hickman out of curiosity? Do they have less complications?Better a port than a PICC or Hickman though.
A port is placed under the skin, with no parts exposed unless accessed with a needle. Once the infusion is over and the needle is removed, the port is much easier to keep clean because it's covered by skin. A PICC or a Hickman has tubing that is always exposed to the outside. That means it's much easier for nasty beasties to get in, which is especially bad because the tubing is directly connected to the vena cava.Send in the ratings if this isn't the place/is a stupid question, but why is a port better than a PICC or a Hickman out of curiosity? Do they have less complications?
Somebody posted an obvious not the asshole story on the Am I The Asshole subreddit about how someone got mad at a young amputee for taking a disabled parking spot, so she took her leg off and now people are spilling their spaghetti about their "invisible disabilities". This is just one example of the cringe in this thread:
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r/AmItheAsshole - AITA for taking off my leg and making someone look dumb and feel uncomfortable?
25,807 votes and 1,975 comments so far on Redditwww.reddit.com
SAME!I've seen a bunch of AITA posts where you can tell someone is a munchie by piecing things together. Invariably there's EDS or POTS if you scratch below the surface (and sometimes it doesn't even take scratching) and a bunch of people talking about very OTT munchie stuff in the comments.
She's still alive?Not a single tear.
What a spastic attention whore. I rarely go to look at her stuff because she’s one of the only people I’ve ever encountered on the internet that genuinely gets under my skin.
You guys will absolutely never guess what’s going on with her now…
Any guesses?
She has an infection. Wow didn’t see that coming.
This is a tricky one. Evie's lawyer was a very clever woman (I made a post on the webinar both legal teams made back in Dec) and as very clever lawyers like to do she basically combed the admission out of Dr Mitchell.Evie's mom's claim that the folic acid advice was negligent *and* causational is unbelievable, not factual per their own evidence
SR: "Yes, and he had to accept that he had said in the witness box as well because he hadn't even asked about the diet properly *bursts out laughing* and he agreed during that it would be very difficult to ensure that you had sufficient, because you had to know exactly what the date was. So, he was decent enough, I think, good on him, to accept that frankly if he did in fact give what was his standard practice advice, it was negligent."
VBC: "So really this recent judgement just boiled down to who did the judge believe about what was said in conversation."
SR: Yes, it did.
"We aren't out there to try and weedle in, this was in fact a pretty glaring case of a job not done properly when someone has specifically asked for a specific area of advice and it was not provided with care."
Caroline disputes this. 'He told me it was not necessary,' she told the judge. 'I was advised that if I had a good diet previously, I would not have to take folic acid.'It was accepted that Dr M had no recollection of the consultation and was therefore entirely reliant on his usual practice and his note which read: “Preconception counselling. adv. Folate if desired discussed”. The Judge did not accept Dr M’s evidence that, in accordance with his usual practice, he advised a 400 µg supplement for women preparing for pregnancy and in the first trimester. He would additionally advise that if a patient had very good folic acid intake from their normal diet, then the benefit of supplementation would be less important although the dietary intake of folic acid would need to be very good in order to avoid the need for the 400 µg supplement. The Judge found that Dr M was attempting to reconstruct a conversation/consultation on the basis of an “inadequate note” which required him to speculate or make assumptions about what was said.
This is something I've completely overlooked. I've attached a closeup of one of the bag pics in case anyone is good at identifying these sorts of things. She has a habit of tagging clothing brands (never makes clear if these are sponsored posts or not and legally she should), and these are usually horse brands but lately in London she's been tagging some luxury brands. She tagged the gilet brand in another post, the coat brand in the coffee post:Is that a fucking BIRKIN?
"There's been speculation that you could be awarded millions and I imagine you want to clarify this slightly because the money will be going to cover your lifelong care costs, right?" "Exactly, so this isn't anything like that. What happens now is that doctors assess my health and work out what it would costs to keep me alive and cared for, and that's what it's based on." One of the twitter commentators spoke out about her eyes lighting up when the interviewers mentioned millions. Anyways, yes, the doctor pays nothing and it comes out of NHS Resolutions, i.e. the public purse, and people are very upset that she sued "the NHS" when it is currently ailing and failing because money.
He was literally trying to be kind and sensitive to mental health issues like anxiety. For his trouble he gets some sped and her narc mom try to ruin him.Personally, I think this comes down to the doctor being faced by a young woman who is clearly very anxious about something that really shouldn't be much cause for anxiety and giving her suitable reassurances. Of course, Dr Mitchell cannot recall this anxious patient he met for ten minutes 20 years ago so he can't really defend himself on that point.
Thanks for explaining/including pictures! I've only ever seen ports when they're accessed courtesy of all the munchies on his thread, so I was under the impression it was essentially a hickman / constantly exposed. Should have figured this group of patients aren't the best examples of what most medical procedures are like, lmao.A port is placed under the skin, with no parts exposed unless accessed with a needle. Once the infusion is over and the needle is removed, the port is much easier to keep clean because it's covered by skin. A PICC or a Hickman has tubing that is always exposed to the outside. That means it's much easier for nasty beasties to get in, which is especially bad because the tubing is directly connected to the vena cava.
With both ports and Hickman lines, a fever is considered a medical emergency because of the risk of severe infection. Bacteria and fungus loves to "stick" to the plastic components, and an infection can go from subclinical to massive sepsis in just a few hours.
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Here is a port. It is "accessed" by pushing a special needle into the center membrane, which is made of silicone. Patients can bathe and even swim with a port, as long as it isn't accessed.
This is what it looks like when accessed:
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A Hickman line looks like this:
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That long, dangling tubing is not removable. During an infusion, a needle is stuck into the dangling ends like an extension cord. It has to be kept clean and dry, which means no submerging the chest in water and taking great care not to get the area wet in the shower, usually by wrapping the area in plastic.
That is indeed a Hermes Birkin- worth roughly $23,000.This is something I've completely overlooked. I've attached a closeup of one of the bag pics in case anyone is good at identifying these sorts of things. She has a habit of tagging clothing brands (never makes clear if these are sponsored posts or not and legally she should), and these are usually horse brands but lately in London she's been tagging some luxury brands. She tagged the gilet brand in another post, the coat brand in the coffee post:
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Valais quited gilet in houndstooth from Holland Cooper (note they also have an equestrian line). £199.
Black trench coat from Fox London £330.
I was wrong, I guess. I thought she was going to spend her compensation on a horse. Turns out the horses are the least of her expenses.
One other thing to note that it is not the done thing in middle class British culture to flex your wealth. It's considered uncouth. If she had friends of upper-middle class social standing (the types to wear these sorts of brands) they would look down on the brand tagging. Either she is too isolated to understand this or she has been raised on the internet and thinks she is an influencer so she should do this. Third option is that she is actually being sponsored and illegally not highlighting this.
I am so MOTI right now. She could have given her court winnings to a spina bifida charity and completely redeemed herself.That is indeed a Hermes Birkin- worth roughly $23,000.
Meet Rose Merrill, age 21, a legal adult with a baby fetish and a wheelchair fetish. Basically we have an American version of Bee.
Red flags abound, but here's a big one:
July 17th, her carer isn't there to fold her laundry so she toughed it out and did it all by herself, asspats all around! Note the head bobbing and the curled wrist.
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but July 25th, just one week later, she's sewed an entire dress herself? It's not super hard to sew a jumper like that, but not an easy, one day task for someone who self-reports an inability to open her hand and hold up her head.
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Mom admitting it's PNES on facebook in 2018
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Rose is on tiktok of course, and her bio states she is "Severely disabled and sick"
Links:
tiktok: https://www.tiktok.com/@fashionabilityrose
insta: instagram.com/fashionabilityrose
facebook: Rose Merrill facebook.com/rosieposie.poodlehead
mom's facebook: facebook.com/DrMRM17
Sibling's blog: https://ithinkidontspeak.wordpress.com/author/katieopotato/
in the early blog posts, there's a bit about disability, apparently Katie/Leo is disabled, as well as Rosie.
https://ithinkidontspeak.wordpress.com/2017/11/23/i-like-to-push-my-little-sister-around/and this one:
https://ithinkidontspeak.wordpress.com/2017/11/16/differently-abled/https://ithinkidontspeak.wordpress.com/author/katieopotato/(cannot archive atm)
same with the youtube: https://www.youtube.com/channel/UCsT34qFxnVwp0hzT-R1ZOHw/videos
insta: https://www.instagram.com/leolinmerrill/
Here she is enjoying herself on the special needs/adaptive playground equipment like any normal 21 year old.
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When you can understand someone asking you a question, but can't answer or understand because you're having a non-verbal day.
This makes all the sense.
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More cringe from the park: https://www.tiktok.com/@fashionabilityrose/video/6874338290045111558
There's more to unpack but I'm out of time.
I've been seeing this a lot more Out In Public the last few years as well, with a huge spike in the last year alone. I've also been told by a teacher friend that there is a kid in their class (elementary-age) that changes nametags as their "alters" front, and I am incredibly impressed at their ability to just ignore that nonsense and call them by their real name. I don't know if I would have the same self-control.There's this girl on campus in a scooter and I ran into her again today. Had all kinds of pins on her bag, wrist braces, whole schtick. I betcha she claims EDS and would love to know her social media. I initially believed she could be disabled until I saw her at the meal hall with a cane and walking just fine. Cane was resting on her arm while she walked.