Community Munchausen's by Internet (Malingerers, Munchies, Spoonies, etc) - Feigning Illnesses for Attention

[anliteralidiot]

A wild Rose appeared on SFW normie Reddit and scared the shit out of me in the process.

https://www.reddit.com/r/RainbowEverything/comments/1gkkvrp/well_someone_had_to_add_some_color/

View attachment 6608647

Ew...

https://littlesleepies.com/collections/disney-pixar-monsters-inc/products/disney-monsters-inc-scream-team-two-piece-pajama-set

They're kids pajamas.

 

[prolific_mango]

It's just such a wasted life.

I spy a triple lumen catheter in her lap.

I love that for her.

Really not happy you made me zoom in on her lap to see that

 

[Hybrid Icing]

This is just a random question that popped into my head, maybe the more dedicated Munchie trackers in this thread would know.

Is Morgellons still a thing?

 

[Aunt Carol]

This is just a random question that popped into my head, maybe the more dedicated Munchie trackers in this thread would know.

Is Morgellons still a thing?

@The Judean People's Front found a good one recently, but the shine is off of "I GOT SKIN BUGS WANNA SEE" in favor of "alas, my spoons," at least for the young people. The Morgellon's people are off being proactive in Facebook groups.

There's also a fun Urine Therapy thread in Prospering Grounds right now; very nostalgic, very cozy.

 

[GibMoneyPls]

@The Judean People's Front found a good one recently, but the shine is off of "I GOT SKIN BUGS WANNA SEE" in favor of "alas, my spoons," at least for the young people. The Morgellon's people are off being proactive in Facebook groups.

There's also a fun Urine Therapy thread in Prospering Grounds right now; very nostalgic, very cozy.

Hell yeah! Was looking for another thread to watch. I used to be in a group like this Facebook, lots of pictures of rotting wounds. Same type of people that are into that black salve.

 

[prolific_mango]

Morgellons is still a thing in that sometimes people claim it, but any professional/non-psychotic person would just call it what it is, which is delusional parasitosis.

 

[Aunt Carol]

Morgellons is still a thing in that sometimes people claim it, but any professional/non-psychotic person would just call it what it is, which is delusional parasitosis.

I realized belatedly that the reason I couldn't find the discussion was because we were discussing Morgellon's in a completely different (still munchie) thread. Quoted for what is still my summary of why Morgellon's doesn't have the poll numbers it used to, now that invisible disabilities are accepted:

Morgellons!! Sorry, OT, but that's my personal favorite totally made up munchie illness. I wish more people did that one. Joni Mitchell's interview about it was what got me interested in munchies.

If you're saying you have a mysterious medical problem that The Establishment wants to cover up--OK, plausible, plenty of people are interested, go on.

But "...and these are the worms I pulled out of my skin to prove it!" immediately puts you with the "alien implant" people and the people who take pictures of sloughed intestinal wall from bleach enemas and call them "worms." Those people have communities, but they stay much smaller than even the communities of people with completely invisible symptoms. You have to get people in really deep before they accept poop photos.

And look at Kelly Ronahan with the multi-year leg auto-stumpification: absolutely nobody disputes that she has problems, but nobody's lining up to be her "warrior."

Invisible disabilities with removable accessories (and the occasional tube) are what's hot with the lifestyle waifs.

 

[Oracular Slug]

Invisible disabilities with removable accessories (and the occasional tube) are what's hot with the lifestyle waifs.

And ever varying symptoms such that the Florida heat and roller coasters are fine but standing in line might kill them

 

[LonesomeDud]

Really not happy you made me zoom in on her lap to see that

I get it.

Also, why does a woman who is in her 20's who appears perfectly fine have a femoral TLC? She's not an IV drug addict. There is no reason she'd need long term sedation, IV nutrition, fancy antibiotics, blood, chemo. And if she did, there would be grotesque oversharing. And she is well-appearing. Okay, she munched herself into a trach and pressure support. She doesn't seem to be bothering it, which is great, because that will kill her in a second, but it doesn't look like a gross trach that's been messed with.

I just don't understand what's going on here. I would love to talk to her doctors.

 

[glioblastoma multiforme]

My personal MBI cow has updated her blog (archive). First posts here and here. Quick summary: affluent woman in her 50s with the combo platter, butchered by Dr Klinge and pining after a Dr Kim who has been banned from practising in his hospital. She eventually decided that Occult Tethered Cord was causing all of her problems and has spent the past 6 months shitting out a few blogs telling the story.

I honestly don't know why she's dragging this out so much, except maybe trying to come up with a good story about why she still can't do anything despite being super sure this surgery would fix it.

Main points I got from her new blog;
- like fuck she didn't know if she wanted Oxy or Dilaudid. Do they honestly give you a choice? It is not like that over here and honestly if you stated a preference they'd probably label you a drug seeker and give you paracetamol.
- so no shit her pain was well managed
- she has digestive problems and has tried every diet, they don't help cos hers are special and anatomical. So somewhat refreshingly, despite being on some made up diet, she didn't throw a shit fit about the hospital not being able to fully accommodate it.
- they took her box full of drugs off her at the hospital and locked it away then were seemingly random about giving her stuff. She says she wasn't sure if she was supposed to take her own or they would provide. Again, its not like that over here, even your regular meds should be dispensed by the hospital pharmacy. It wouldn't surprise me if the US is more lenient just cos of the eye watering price of basic meds probably being worse in hospital (pull me up if I'm wrong here).
- they woke her up to give her some of her meds. Boo hoo, its a hospital, nurses are busy and can't accommodate your sleeping schedule. Especially if you admittedly never wake up in time for even a hotel breakfast.
- they didn't give her Cromolyn but she didn't die of MCAS. Weird.
- yes hospital pharmacies are slow, if you aren't high priority. When you or a loved one are in an ICU or legitimately in A&E, you'll find they pull their finger out. Be glad you're not that unwell.
- she wanted to get out but she didn't do "The Three Stairs" on her first try, the day after surgery. Is it realistic to be discharged a day after spinal surgery? Should they even be trying?
- she got out the next day.
- still no indication of how the surgery impacted her, except her comment on the previous blog about her not being fixed.

 

[LonesomeDud]

@glioblastoma multiforme In the US, give the nurse your med list and give her your medicine if you bring it. The only time you might take your own meds is if it's some fancy new deprmed that they don't have or you can't get approval for, but trust and believe, someone will tell you what's up.

They turn over people pretty fast post op and it depends what you had done. Some little laminectomy? You're fine. Some massive neck to butt fusion of your spine? You're going to feel like garbage and you should hang out at the hospital awhile.

 

[Aunt Carol]

- like fuck she didn't know if she wanted Oxy or Dilaudid. Do they honestly give you a choice? It is not like that over here and honestly if you stated a preference they'd probably label you a drug seeker and give you paracetamol.

From the limited information available, the nurse might have been asking her if she wanted the oral or IV pain medication (respectively). In theory the nurse would ask the patient about pain level and then go off of an ordered algorithm to determine which med, but in practice either this patient comes off as a savvy consumer already or the nurse had already had their quota of people hemming and hawwing and refusing to give numbers and then when they came back, rejecting the oxycodone in favor of "the IV stuff." Sympathy for the service industry.

Surgeons tend to write for a lot more opiates than hospitalists do for inpatients; in my experience they have an order set that includes meds intended for post-op pain. This can be insufficient for chronic opiate users, but it's a bonanza for someone who's usually on APAP and gabapentin.

The rest is her complaining that a system does not allow for her degree of specialness. Please understand, I am not defending an inefficient and slow process, merely commenting to explain some of why it's like that.

@LonesomeDud is correct. The reason they say "bring your meds" is because the average person is an unhelpful historian. Likely the computer system will have them listed, but please recall there is no one computer system, and every piece of the system is a weakness. If you have the tree-killing printout your outpatient doctor gives you after every visit that lists meds, bring that as a backup.

Side note: when the medical office assistant at your primary doctor asks you if your med list is correct, consider answering them truthfully and adjusting times/telling them if you've moved something from scheduled to as-needed. When the nurse going over your home med list at the hospital goes over your meds to make sure you really are taking them three times a day, and do you mean every eight hours or do you mean with meals or three times while awake, consider answering instead of saying it's all on the list, especially if you didn't adjust your list with your PCP's office.

Then recall that after your home meds are finally documented, you only get the ones the doctor orders to continue. If the surgeon is busy surging and doesn't have a PA or a hospitalist involved, it might be a while before they get to go over your list.

Nonformulary meds to bring: bleeding edge new stuff, chemo, eye drops, anti-rejection, hormonal birth control, the rare person who is actually allergic to an inactive ingredient in generic famotidine should bring brand name. If this is a planned admission, it's possible to call ahead and check what you need to bring. Ask if you can check what meds are formulary.


As the MBAs continue to run US health care, of course you can pitch enough of a fit to be given your home lisinopril while inpatient, even though there's a big box in the basement. Reimbursement will vary; IIRC Medicare assumes that you're getting meds from the hospital pharmacy already, so you don't get a discount.

 

[a hapless toad]

@Aunt Carol, I wish me from a year ago could have read that before my mom had a few hospital stays (she's fine now!) and I had to figure out a lot of that stuff on the fly. Very informative, thank you!

 

[Aunt Carol]

@Aunt Carol, I wish me from a year ago could have read that before my mom had a few hospital stays (she's fine now!) and I had to figure out a lot of that stuff on the fly. Very informative, thank you!

Whenever Reader's Digest publishes a "things you should know about the hospital" articles, it's always "remind everyone to wash their hands" and then a bunch of unhelpful stuff they didn't fact-check. "How to Travel a Broken System" would be too gloomy, I guess; they don't want to let the Boomers know that everyone knows that it's busted.

Also bring a phone charger with a 10-foot cord.

I am surprised a munchie doesn't have all the hospital stuff down pat, though. Unless she likes the chaos; a smooth ride brings less to complain about.

 

[DogSnoopySnoop]

Another reason that patients rarely get doses from their meds from home while in a (well run) hospital is because they can’t ever be sure about the meds that the patient brought in. I’m not even talking about something stupid like a patient filling their lisinipril capsules with weed or coke in an attempt to sneakily get high while inpatient. I’m talking about people who do things like remove their meds from the bottle to put into a pill case but mislabel them, leave it in the car on a hot summer day so now the ingredients are inert, or just generally unsanitary conditions some people keep their meds in. I’ve seen some gross things while working in a hospital pharmacy. I’m all for reducing unnecessary waste and reducing cost in the medical field, but using home meds in the hospital is unfortunately not viable on a large scale.

It would also require a lot of wasted time and effort for the pharmacy to sort through the patient home meds to determine and verify what everything is and it still wouldn’t avoid a ton of other issues like the ones I just mentioned. The only time I’ve experienced patient home medications dosed to the patient on the floor was when it was a medication that wasn’t on our hospital formulary or that was out of stock and we couldn’t get by our normal channels. That typically meant it was only very new or very rare medications. And any medications a patient brought with them was always taken from the patient and stored elsewhere - the pharmacy, a cabinet on the floor, ect. It’s never left in a patient room because the hospital can’t risk a patient doubling up on dosing or taking one of their own meds that may interact with what the hospital has them on. Even basics like OTC pain meds, vitamins, or Tums aren’t allowed to be kept in the patient’s room. Every medication a patient takes while in the hospital must be documented so everyone is aware it was given.

You’re completely correct about the slowness of hospital pharmacies. If it’s a true medication emergency, I assure you the needed medication is already stored on the floor. If a patient goes into sudden anaphylactic shock, the nurse doesn’t have to page the doctor to put in the order for an epi-pen and then wait for the pharmacy to send it up. It’s already on the floor in something like a Pyxis machine where an array of general medications are stored for floor use.

 

[tastelikeluckystrikes]

Ew...

View attachment 6621269

https://littlesleepies.com/collections/disney-pixar-monsters-inc/products/disney-monsters-inc-scream-team-two-piece-pajama-set

They're kids pajamas.

they're kids pajamas that come in adult size on the website. a size 16 is the same as a women's small/xs per the size chart. she's just a freak.

 

[Eventide]

This is just a random question that popped into my head, maybe the more dedicated Munchie trackers in this thread would know.

Is Morgellons still a thing?

Yeah, but I've noticed its more likely to be discussed in non-munchie (yet equally as deranged) alien abductee internet communities . Apparently its related to Grey alien/Praying Mantis alien implants (but not the Nordics - they use metal implants ). Abductees think they're infected with self replicating fiber optic wires

...I went down an alien abductee TikTok rabbit hole recently. Had a hard time telling if abductees were larping, had sleep paralysis, or were profoundly mentally ill. Perhaps a combination of all 3?

 

[Elderly beef taco]

Yeah, but I've noticed its more likely to be discussed in non-munchie (yet equally as deranged) alien abductee internet communities . Apparently its related to Grey alien/Praying Mantis alien implants (but not the Nordics - they use metal implants ). Abductees think they're infected with self replicating fiber optic wires

...I went down an alien abductee TikTok rabbit hole recently. Had a hard time telling if abductees were larping, had sleep paralysis, or were profoundly mentally ill. Perhaps a combination of all 3?

I swear the discovery channel once talked about this. Didn't it turn out to be clothing fibers getting into open wounds?

 

[Elysian]

Yeah, but I've noticed its more likely to be discussed in non-munchie (yet equally as deranged) alien abductee internet communities . Apparently its related to Grey alien/Praying Mantis alien implants (but not the Nordics - they use metal implants ). Abductees think they're infected with self replicating fiber optic wires

...I went down an alien abductee TikTok rabbit hole recently. Had a hard time telling if abductees were larping, had sleep paralysis, or were profoundly mentally ill. Perhaps a combination of all 3?

Probably all 3. I did hear an interesting theory once (might have been on Joe Rogan ‘s podcast lmao) that they might have something fucked up about their body’s DMT production since being high on DMT makes you feel like you’ve been sucked out of your body into an otherworldly dimension full of strange sentient beings, but I’ve never seen anyone do an MRI to prove that or anything.

 

[Kufungisisa]

I swear the discovery channel once talked about this. Didn't it turn out to be clothing fibers getting into open wounds?

Often nerve fibres are picked at.