Inactive Gwen Hartley & The Hartley Hooligans - Attention Seeking Horrorshow Mom of Two Dead Gremlins & Finally Free Human Son

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The genome thing they did confirmed that yes, 25% chance of potato. So Gwen knew that the next potato had a chance of being Lola'd.
It's kinda shitty but normal people roll the dice on their children's lives like that literally all the time.

It's like, yeah I had a kid with cystic fibrosis and he's all dying and whatnot, but second time's a charm, so let's just hope our second one is healthy. Or somebody with the gene for Huntington's decides to have biological kids and doesn't even test because "you know what, they might not have it! Here's to hoping!" or "I'm sure there will be a cure by the time it becomes an issue".

It seriously happens all the time. Plus 25% is less than 50% so people who don't really understand statistics decide that sounds low and the risk is worth taking.
 
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Kansas resident: “Hello, senator? Please support Claire and Lola’s law.”

Senator: “whose law?”

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Kansas resident: “Hello, senator? Please support Claire and Lola’s law.”

Senator: “whose law?”

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:story: Sorry, but Lola just shoved aside like a damn purse is too perfect.

Also save Lola? SAVE? Save her? Fuck off Gwen. Weed cannot save her. What the fuck is this bitch even talking about?
It's not even going to help her.

she dressed Lola up as a fucking lobster.

When she was dying.
 
:story: Sorry, but Lola just shoved aside like a damn purse is too perfect.

Also save Lola? SAVE? Save her? Fuck off Gwen. Weed cannot save her. What the fuck is this bitch even talking about?
It's not even going to help her.
What exactly does she think CBD oil does? I agree that it wont help Lola, but even if it somehow miraculously did help with her seizures, it isn't going to halt the progress of her degenerative condition . It's not going to replace the Asparagine synthetase that she doesnt produce. It's not going to help her grow a normal brain or regrow the brain matter that she's been losing for the last 12 years. Lola was out of options the moment she was conceived. She's doomed and I think Gwen knows it. All these theatrics are just more of her usual delusion, denial and attention seeking.
 
Kansas resident: “Hello, senator? Please support Claire and Lola’s law.”

Senator: “whose law?”

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Poor Cal, he probably actually believes her that this will save his sister's life or at least stop her pain. I always felt bad for Cal in pictures where the potatoes are forced in but man, this picture hits me about as hard as that letter her had to write years ago
 
Claire was "watching over and guiding every single person in that room"? Yeah, right.

But, seriously, Gwennie has managed to create the perfect storm for herself by setting Lola up as a figurehead for this law and by playing her martyr mommy role to a T. If we assume that Lola manages to hang in for another year or so (and, for the record, I'm one of the folks who gave her only 6-12 months in the poll), Gwennie is going to claim that this was due to the miracle of medical marijuana and can set herself up as the patron saint of woo cures. However, should Lola die in the next couple of months, Gwennie gets to claim that the cause of death was Lola not having medical marijuana and how the evil medical establishment's failure to embrace this miracle drug took Lola from her.

It's literally a "heads I win, tails you lose" situation.
 
I hope she takes lots of pics of her dying daughter toking up and posts about what a sassy pothead she is.

She should dress her up in stoner gear with a bong and make her do stoner things and take pictures of them to establish how cool she is. She should get on that before she croaks or she might not get the chance and have to do it at the funeral instead.

I bet there are a lot of relevant scenes from stoner movies she could pose her in. Maybe get that what's his name other kid slave she has to pose in it too.
 
Her mother's instagram is still active and she posted something fairly recently, March 9th I believe. It's hard to tell exactly how Jules is doing from just a photo and given past experiences, I usually don't completely trust when the parents of these kids boast about their kids awesome achievements. However, it is pretty obvious that she's definitely in much better condition than the Hartley girls ever were. Even Claire in her youngest and most healthy appearing times, never seemed as normal looking as this girl. I notice that Jules also doesn't seem to be as bad as the other kids in the studies who have ASD. All of them had very obvious microcephaly from birth, while even a few years on, it's hard to tell that Jules's head size is abnormal.

I know that like many disorders, this one probably falls on a spectrum , but she appears so different than any other the other ASD children , that it's almost like she has another condition entirely.
I suppose it's possible maybe that there are others like her with milder versions of ASD, but since it's still fairly newly discovered, perhaps doctors u dont suspect it in other kids with mild forms and so don't test for it and dont diagnose it. Either that or she just got lucky, comparatively speaking or maybe she was misdiagnosed and actually has something else. Whatever the case, it's all quite fascinating.
Even if it's not as severe now, Asparagine Synthetase Deficiency is always progressive from what I can tell, so there's still the chance that Juleyana could turn into another potato.:'(
 
I found another YouTube mom of a catastrophically disabled child who makes her potato do ridiculous things for Internet Clicks

Here's a bizarre video of her indoor skydiving.

An employee makes sure her limp body doesn't smash onto the ground as the tiny limbs flail in the wind like a corpse. There's a brief, horrifying flash of an eye widened in a waxy face while her mom cackles in the background.

https://www.youtube.com/watch?v=D7DAQ8x5jWU

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More malk: The mom claims "Oh those spontaneous eye rolls and muscle jerks actually aren't scawwy bad seizures, they were just nice cute Startle Syndrome this whole time!"

Edit: This mom is such a liar and a cow. She also lies about her daughter's age, claiming she is only 9 when she was born in 2005. She's friends with Gwen Hartley and has a stupid Instagram post where she lauds Gwen like a preacher. She's constantly bringing up the fact that Kaylee went with no oxygen for 32 minutes and that she was lethally overdosed on potassium (Munchie mom evidence?) in addition to her congenital condition. I think I'm going to start working on putting together some stuff for a thread
 
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