Inactive Chronically Jaquie / Jaquie Beckwith / Jaquie Blake, Husband Judd Beckwith, & Helper Dog Harlow - Instagram Famous, Self-Declared Genetic Anomaly, Munchied Herself to Death

[Cheeseman]

Do you suppose she had a Will?

i was just wondering what would happen to her collection of leggings and autism blankets.

but seriously though, i hope that maybe her walker or wheelchair or stuff like that would be donated to someone who might actually need them.

 

[Cryin RN]

I sense a lawsuit is coming against the hospital. I hope they charted correctly and innocent people don't get screwed over. Especially innocent nurses.

It's a possibility and whew that would be a fun suit to follow... But they seemed to accept palliative care pretty quickly. I wonder if family actually witnessed her insides fall outside. That level of realness is pretty sobering even when you're spinning hoops in a munchie's circus.

 

[ISmellBS]

Judd should keep the YouTube channel going. I'd be interested in how this evolves. Hopefully he'll wear a GoPro camera to the funeral. AJ would have liked that.

There's one thing that is gnawing at me....the ambivalent way Judd and AJ's family announced the news of her passing. Like Judd's texting "Hi Patreon!"....my beloved wife just bit the big one.....really strange. It's almost as if this was the season finale of "Chronically AJ" and she'll be waking up and doing a dream sequence in the fall. I have a conspiracy theory that AJ is actually alive and just bowing out of the whole social media thing to start her new life, in her new home and just wants to be left alone.
Elvis has left the building!

 

[Kate Farms Shill]

There's one thing that is gnawing at me....the ambivalent way Judd and AJ's family announced the news of her passing. Like Judd's texting "Hi Patreon!"....my beloved wife just bit the big one.....really strange. It's almost as if this was the season finale of "Chronically AJ" and she'll be waking up and doing a dream sequence in the fall. I have a conspiracy theory that AJ is actually alive and just bowing out of the whole social media thing to start her new life, in her new home and just wants to be left alone.
Elvis has left the building!

There was some theorizing that the “hey patron!” Was an automatic setting/autocorrect she had that he didn’t bother to fix which would make sense if he used one of her devices that was already logged into the account. Also by the time he sent that message out they had almost an entire day of waiting for her systems to fail and doing nothing else. That’s a lot of time to come to terms with what was going on. It rubbed me wrong at first too but people do weird things when someone dies suddenly.

 

[cuddle striker]

feeding tubes aren't a treatment for mito, and pain medication can make it worse. SHE DID THE OPPOSITE OF WHAT HER ACTUAL DIAGNOSIS REQUIRED.

That's munchausen's. That's a munchie actually being sick. They will exacerbate any real illness and use it to their advantage

seriously- we can pretty much tell when someone is like this, but doctors in the US and any place that allows malpractice suits in civil court are going to do whatever the tests say is needed, especially if the patient pulls the "you're misdiagnosing/ignoring my symptoms" card. if they're actually sick, and you don't do the thing, you're in court. fuck that. so we do the thing, whatever it is. unless we have real, incontrovertible proof that it's faked, our hands are tied with this shit.

like if we have video of someone injecting shit into their port, we are taking out that port. they're still going to get treated for the infection, but they're not going to have venous access anymore- or they're in posies and strapped down and sent on to psych after they have recovered. if we can PROVE to a court that they faked, that's the only time we can really treat the factitious disorder that's causing everything.

it sucks.

here in the US there's no public inquest with this kind of death. there will be a M&M panel among the doctors that treated her, at which her factitious disorder will likely be heavily discussed and the doctors involved will brainstorm as always, what can we do to stop people doing this stuff, how can we catch them early and fix them, etc. and as always it'll come to nothing but "cameras in every hospital room", "monitor social media" then admin and lawyers will say no and we are right back where we were.

 

[ISmellBS]

When ever I see a baby giraffe I will think of AJ.
Amen.

 

[lamp shade]

“She was totally not a munchie because I fake have all of the same illnesses and I’m not a munchie!” has to be THE most obvious sign of a munchie I’ve ever seen. The autism is almost stronger than the munching.

 

[Kate Farms Shill]

That's not what she died from, though.

This.

She didn’t die because of EDS’s terrible effects on her connective tissue. She died because she fucked up her own damn body with needless risky surgeries over and over again, weakened the natural barriers that keep your organs where they should be, sliced and diced her intestines and rearranged them so they stuck through a hole in her abdomen, and put immense pressure on her belly by abusing medications that slow gut transit.

Think about it like cutting a bunch of holes in a pair of pantyhose then trying to stuff both of your legs in one side. It’s going to explode because you’ve weakened it and exceeded its capacity. That’s what Jaq did.

 

[Larry David's Opera Cape]

EDS is a real disease, or should I say a dozen real diseases, ranging from one that is basically "oh, my knee hurts" to one that is "shit, my heart exploded." But currently, at this moment, it is trendy as fuck with several groups of people who are nothing but trouble: munchies, neurotic somatizers, and shady doctors. The people who had MCS in 1997, and the doctors who diagnosed them with it, now are no-pun-intended throwing their shoulders out of joint reaching to go for EDS instead. It's genetic! It's "not all in my head"! It's LEGIT! EDS experts regrouped to try to fix this by tightening up the diagnostic criteria, so now they are all hopping on board the one type that isn't locked down to basically foolproof tests, the "type 3." And again, EDS type three/hypermobility is a real thing that exists. However, there are good odds that anyone diagnosed in the past five years actually is either a munchie, a somatizer, or the victim of a quack. Real type 3 is a relatively mild disorder. No feeding tubes, no opiates, no "toys." Just early onset arthritis and aches and pains. Anyone calling herself a "zebra" is automatically sketchy. No one who has any other real life disease calls themselves by the name of some cute animal mascot. People with MS don't call themselves muskrats, people with lupus don't call themselves wolves. It's attention seeking bullshit. In a few years, they will all have something else.

 

[NobleGreyHorse]

Anyone calling herself a "zebra" is automatically sketchy. No one who has any other real life disease calls themselves by the name of some cute animal mascot. People with MS don't call themselves muskrats, people with lupus don't call themselves wolves. It's attention seeking bullshit. In a few years, they will all have something else.

It's from the old saw about how doctors are trained to think of a horse first when they hear hoofbeats, and that they have to make themselves consciously remember that the sound of the galloping hooves might be from a zebra instead. That said, I still hate the term. I do know and have known various people with different types of EDS, and have never once heard them refer to themselves that way. It sounds like you're at a goddamn furry convention. There really isn't anything cutesy about having to pound your knee or ankle back into joint so you can go take a fucking statistics final.

 

[Larry David's Opera Cape]

It's from the old saw about how doctors are trained to think of a horse first when they hear hoofbeats, and that they have to make themselves consciously remember that the sound of the galloping hooves might be from a zebra instead. That said, I still hate the term. I do know and have known various people with different types of EDS, and have never once heard them refer to themselves that way. It sounds like you're at a goddamn furry convention. There really isn't anything cutesy about having to pound your knee or ankle back into joint so you can go take a fucking statistics final.

I know what it's from, but seriously, can you think of any other disease or syndrome where people call themselves that kind of nickname? Even the name origin story is actually kind of telling. Munchies and neurotics and quacks are always dreaming of encountering that damn zebra that will get them what they want, and here they have a disease that can be adapted to suit any symptoms they manage to conjure or discover! They can hide any inconsistencies behind the "poorly understood and rare" explanation, too.

 

[rocknrollmartian]

EDS is a real disease, or should I say a dozen real diseases, ranging from one that is basically "oh, my knee hurts" to one that is "shit, my heart exploded." But currently, at this moment, it is trendy as fuck with several groups of people who are nothing but trouble: munchies, neurotic somatizers, and shady doctors.

I think EDS got a little more attention from Munchies after Lena Dunham claimed it as one of her diagnoses about five years ago; Lena also claims to suffer from other Munchie go-tos like fibro, endo, and anxiety, pops pain pills and Xanax like they're Skittles, and is speculated to be a Munchie herself. She's even branded herself SICK with a hideous tattoo on the back of her neck.

The Munchie community feels a lot like the pro-ana community: loads of self-harming, self-obsessed teens and young women sharing their deadly tips and tricks with each other for attention and validation and a temporary rush. The sickest one "wins."

 

[repentance]

I think EDS got a little more attention from Munchies after Lena Dunham claimed it as one of her diagnoses about five years ago; Lena also claims to suffer from other Munchie go-tos like fibro, endo, and anxiety, pops pain pills and Xanax like they're Skittles, and is speculated to be a Munchie herself. She's even branded herself SICK with a hideous tattoo on the back of her neck.

I always wonder what makes a particular disease become trendy in the munchie community. I think I've mentioned before that my best friend has a relatively rare (prevalence of 45 per 100,000) endocrine disorder.

In the last couple of years I've noticed online support groups being flooded with people who seem to desperately want an "exotic" diagnosis as well as a trend towards those with an existing diagnosis suddenly claiming it has a huge impact on their life. Far from benefiting people, a lot of support groups seem to have become quite destructive.

 

[RodgerDodger]

It's a possibility and whew that would be a fun suit to follow... But they seemed to accept palliative care pretty quickly. I wonder if family actually witnessed her insides fall outside. That level of realness is pretty sobering even when you're spinning hoops in a munchie's circus.

You don’t have a choice. When the critical failure is digestive system, it’s over. The Doc’s mince no words about this. It’s not something they can fix. There is no work around or advanced life support for it. It’s why bloody bariatric surgery has an insanely high negative outcome.

 

[rocknrollmartian]

I always wonder what makes a particular disease become trendy in the munchie community. I think I've mentioned before that my best friend has a relatively rare (prevalence of 45 per 100,000) endocrine disorder.

In the last couple of years I've noticed online support groups being flooded with people who seem to desperately want an "exotic" diagnosis as well as a trend towards those with an existing diagnosis suddenly claiming it has a huge impact on their life. Far from benefiting people, a lot of support groups seem to have become quite destructive.

I'm sure the Internet has influenced Munchies a great deal. They can all hop on trends just like normal people on Insta and Reddit do with makeup and fashion, pore over WebMD, and learn how to manipulate the system with info from other Munchies. Due to their weird, similar pathological thinking, perhaps certain diseases appeal to them more than others.

Also, it's almost like a form of really warped LARPing as others have said before. I think a lot of Munchies love the process of "researching" diseases, finding doctors who will believe them or at least play along, working through multiple differential diagnoses by choosing diseases with vague or extremely common constellations of symptoms to prolong the attention and interaction with medical professionals and to garner more sympathy, etc. It's interesting that they often pick an "invisible" illness along with one that requires "visible" accessories or aids as well; I guess it covers all of their bases, and they can belong to multiple communities that way, one of which is based on "never judge someone who seems/looks healthy."

 

[ISmellBS]

In the pilot of the original Star Trek tv series, Captain Christopher Pike existed with just his head sticking out of a box. He had no body. Why couldn't the doctors do that for Jaquie? I'd sue!

 

[Larry David's Opera Cape]

I always wonder what makes a particular disease become trendy in the munchie community. I think I've mentioned before that my best friend has a relatively rare (prevalence of 45 per 100,000) endocrine disorder.

In the last couple of years I've noticed online support groups being flooded with people who seem to desperately want an "exotic" diagnosis as well as a trend towards those with an existing diagnosis suddenly claiming it has a huge impact on their life. Far from benefiting people, a lot of support groups seem to have become quite destructive.

I think I guessed the one you mean because I noticed the same thing. It went from "that thing my one friend in high school's sister had" to every other dangerhair "spoonie" online, seemingly overnight. It always is like that--an obvious fad, from the outside. The medical system's weakness is that because of scientific curiosity, there's always an initial reaction to take the increase at face value of "huh it may be more prevalent in this population, fascinating!" and by the time they figure out it's mere psychodrama, it's too late to go back.

And yeah those disease support groups are horrible, not least of all for people who actually just have a disease and aren't interested in drama and internet asspats but just want to talk about boring health maintenance shit. The influx of munchies to a diagnosis destroys any actual support for people who just have an annoying health problem, and may encourage people with the actual problem to play it up if they are also psychologically weak, leading to even more problems.

 

[Feline Darkmage]

I think EDS got a little more attention from Munchies after Lena Dunham claimed it as one of her diagnoses about five years ago;

The more I learn about that Child Molestor the more she comes across as the epitome of a wretched collection tumblr user stereotypes that just happened to accidentally become a celebrity.

Lena is a complete tool.

 

[eternal dog mongler]

Something really does not add up. that feeding tube should have been pulled a long time ago. she has been looking far from skinny for a long damn time now. I heard she was getting some steroids but I just can't see her taking something she knew was making her look pudgy. she was purging out the g tube and I am pretty sure they knew it so they pulled it. all they ate was junk food. well surprise , surprise she got chubby. why does a chubby person need a feeding tube ? a feeding tube that killed her. I hope her specialist clearly charted she was advised to have said tube removed and she declined.

I think this validates my suspicion that many munchies also have EDs. Someone who was eating normally would have noticed an SI obstruction immediately and honestly it's really not a big deal to surgically correct it.

So either she wasn't eating or she cried wolf too many times and nobody bothered to take her to the ED when she complained of abdominal pain. Whoops, you munched too close to the sun.

Maybe some Dr Kiwis can answer this, but how is a EEG invasive? Don't they just stick some metal things to your head and body? "Worst" part is having to sleep with a bunch of cords connecting you to a machine, or getting the gluey bits out of your hair and the round spots all over your body when they're done. For a Munchie, that doesn't bring much attention but is personally annoying, so I guess I could see how they would label it "invasive", especially since it would be done unnecessarily.

Surgical iEEGs are a thing, but I think they're only used on kids with seizure disorders. I don't do them because I don't think they're medically necessary or useful, but they exist.

e: I should also say that EDS has a really fucking broad diagnostic criteria, but actual EDS is horrifying. You can snatch an EDS Type III diagnosis (which is now hEDS) easy if you can bend your fingers backwards a lil bit. Easy fake diagnosis, terrible actual diagnosis. That's why all the munchies love it.

 

[repentance]

I think this validates my suspicion that many munchies also have EDs. Someone who was eating normally would have noticed an SI obstruction immediately and honestly it's really not a big deal to surgically correct it.

So either she wasn't eating or she cried wolf too many times and nobody bothered to take her to the ED when she complained of abdominal pain. Whoops, you munched too close to the sun.

She was an inpatient when it happened. She'd been in hospital for a couple of weeks.