Inactive Chronically Jaquie / Jaquie Beckwith / Jaquie Blake, Husband Judd Beckwith, & Helper Dog Harlow - Instagram Famous, Self-Declared Genetic Anomaly, Munchied Herself to Death

[pinkbutterfly]

It's from the old saw about how doctors are trained to think of a horse first when they hear hoofbeats, and that they have to make themselves consciously remember that the sound of the galloping hooves might be from a zebra instead. That said, I still hate the term. I do know and have known various people with different types of EDS, and have never once heard them refer to themselves that way. It sounds like you're at a goddamn furry convention. There really isn't anything cutesy about having to pound your knee or ankle back into joint so you can go take a fucking statistics final.

The funny thing is, some of the munchies take the opposite approach - everything is a zebra. I think this draws more people in, too - at the mention of a single symptom the 'sufferer' will immediately start going on about how that was just how their symptoms started, or that's exactly what they went through, and here's the list of doctors you can go to but be careful because doctors never listen! You mention slight joint pain and suddenly you're diagnosed with EDS. Oh, you had a little bloating two years ago? EDS! Your joint clicks occasionally? EDS!

 

[eternal dog mongler]

She was an inpatient when it happened. She'd been in hospital for a couple of weeks.

Her care team fucked up, then.

Oh well. Play stupid games, win stupid prizes.

 

[Kate Farms Shill]

Her care team fucked up, then.

Oh well. Play stupid games, win stupid prizes.

Jaquie fucked up. Jaquie demanded invasive surgery. Jaquie abused opiates to the point that she might not have even noticed she was having a real emergency. Jaquie constantly demanded more drugs for pain when she was really in withdrawal. Jaquie cried wolf about anaphylaxis so often in this hospitalization alone trying to get IV Benadryl to potentiate her opiate high that the nurses told her to just use an epi pen and fuck off. Jaquie was the one who sat her mrsa infected ass on the floor like a toddler when the night nurses wouldn’t give her what she wanted.

And this shit can go from “I feel icky” to “fucking dead” in hours during which we don’t even know if she was conscious or had drugged herself into a coma.

The only one who failed Jaquie was Jaquie.

 

[repentance]

Her care team fucked up, then.

Probably not. Catastrophic outcomes happen in hospitals all the time without any negligence on the part of the staff.

The only information anyone has about her cause of death are brief posts by people who are still reeling from it. We don't, and probably won't, know if they've only taken in part of the story. If the basics are correct, though, there was only a very small window for intervention and there's every reason to believe that early signs that intervention was needed would have been masked.

If the problem was discovered at 3am, as written in her husband's post, that means something had caused the staff to be looking for something wrong in the middle of the night on a weekend. He doesn't mention what happened prior to that which made them carry out urgent investigations.

 

[MirnaMinkoff]

I always wonder what makes a particular disease become trendy in the munchie community. I think I've mentioned before that my best friend has a relatively rare (prevalence of 45 per 100,000) endocrine disorder.

In the last couple of years I've noticed online support groups being flooded with people who seem to desperately want an "exotic" diagnosis as well as a trend towards those with an existing diagnosis suddenly claiming it has a huge impact on their life. Far from benefiting people, a lot of support groups seem to have become quite destructive.

I think a lot of has to do with finding obscure or unusual conditions that only require self reported symptoms and have no physical diagnostic tests (like blood tests, urine screens, CAT scans, biopsies, etc.. that can definitively rule a condition in or out). Once a munchie finds a disease that they can get a Dx with self-reported symptoms then the others are like flies to shit once word gets out thanks to patient zero bragging about their new Dx. The ultimate Dx is one that can get them pain pills to eat, because most munchies end up becoming addicts. There's a heady mix of drug seeking munchies and attention seeking munchies and a big overlap between the two.

Because they are mentally ill and usually have personality disorders and/or depression munchies lay around all day complaining about all kinds of symptoms, their imagination works over time coming up with new complaints. Once a new Dx is making the rounds it magically has all the symptoms they've had for YEARS and finally have an DX for their debilitating condition.

 

[AnOminous]

If the problem was discovered at 3am, as written in her husband's post, that means something had caused the staff to be looking for something wrong in the middle of the night on a weekend.

That could be anything from her suddenly complaining of pain (or more pain than usual) or just flat out coding.

 

[repentance]

I think a lot of has to do with finding obscure or unusual conditions that only require self reported symptoms and have no physical diagnostic tests (like blood tests, urine screens, CAT scans, biopsies, etc.. that can definitively rule a condition in or out). Once a munchie finds a disease that they can get a Dx with self-reported symptoms then the others are like flies to shit once word gets out thanks to patient zero bragging about their new Dx. The ultimate Dx is one that can get them pain pills to eat, because most munchies end up becoming addicts. There's a heady mix of drug seeking munchies and attention seeking munchies and a big overlap between the two.

That's what's kind of weird with the support groups for my friend's disorder. It is a disorder which is easily confirmed by laboratory tests and imaging once a physician has reason to suspect it (which many don't because most doctors will never see a case in their lifetime).

I seriously think that they just plug symptoms into Google and if they get a hit on even one symptom they convince themselves they have the other symptoms too. And if one rare illness is excluded then they look for the next.

It's kind of weird reading the reddit threads where they were ripping shit out of Jaq only a couple of days ago and now they're all "crying rn". My dudes, if you don't want this happening to other munchies then stop giving them non-stop internet validation.

 

[ISmellBS]

I blame Harlow. Why didn't Harlow alert to those compromised intestines???
Harlow should be stripped of her service dog stripes. Bad doggo.

 

[Esther]

yes bc if they were recognized as a munchie they would be on a psychiatric hold and not actively harming themselves. plus look at how crap doctors are at recognizing it - look at Gypsie Blanchard the one pediatric specialist who raised questions and said this does not add up was laughed at and ridiculed by a bunch of other pediatric specialist. (even though it was by proxy)

Something really does not add up. that feeding tube should have been pulled a long time ago. she has been looking far from skinny for a long damn time now. I heard she was getting some steroids but I just can't see her taking something she knew was making her look pudgy. she was purging out the g tube and I am pretty sure they knew it so they pulled it. all they ate was junk food. well surprise , surprise she got chubby. why does a chubby person need a feeding tube ? a feeding tube that killed her. I hope her specialist clearly charted she was advised to have said tube removed and she declined.

I doubt she was purging out her G-tube, and that's not why they removed it. I made an account just to comment on this because it's annoying. She was never underweight. She was thin, and even with her tubes she ALWAYS ate food orally. She did not deny this. All she did was make it seem like she ate way less than she actually did. At the peak I think she probably did 80% tube feeds and 20% oral food (everyday). She mainly ate junk food even at her worst. She obviously had to keep up the appearance of barely eating orally to maintain her charade. Jaq was on constant feeds for asspats which would make her not very hungry plus she likely had side effects from her various medications that caused her to have even less of an appetite. For example she was on a stimulant for her narcolepsy which she would not identify directly. Not going to sit here and list all her meds and look up the side effects but many medications cause upset stomach and may cause lack of appetite. Even with all of this she was never dangerously underweight. She's always been around the low/mid normal BMI range, even at her worst.

She wanted medical marijuana because not only is it a cool new toy but so she can get high. She got it. Weed is famous for it's almost miracle effects on nausea and vomiting, so she had to adjust her acting to this by eating more. Not only that but everyone knows weed gives you the munchies and so she couldn't resist eating like she used to. She was saving face by appearing better but in reality she just got stoned and ate more junk food than normal. Then all of a sudden when she doesn't seem sick enough she ends up in the hospital multiple times. And now she's dead.

I've been following Jaq for years and posting on LC about her the whole time. It's sad as hell because she was very mentally ill but it's her own fault. Her death is the result of so many different factors that nobody can be to blame but herself. Sadly the medical knowledge and help for people with factitious disorder is basically non-existent and in the US it wouldn't matter if it was. Jaq was rich and if things weren't paid for by Judd's insurance, it was paid for out-of-pocket by her daddy. Even if factitious disorder was more widely known and sought out by doctors, I doubt that would've helped because there's an infinite number of doctors in the US who will do anything for money. One calls her a faker and she moves on. Her family loves her and may have some idea that something isn't right but it's their daughter/sister/etc...they see she's getting all this stuff done and are worried sick for years. Judd does not seem like a malicious person whatsoever. He actually seems like a nice guy, albeit pretty dim-witted. They met in high school when Jaq was significantly less munchie and he loved her despite her "narcolepsy and epilepsy". Then she ends up all fucked up and he's already totally emotionally dedicated. Judd and her family are not complicit...they were tricked just like her doctors and her fans. Many may have had suspicious thoughts but when she ends up in the hospital and gets all these procedures, their compassion for her outweighs the doubt. Especially for her family and friends who have been dealing with this for years. Unlike a typical junkie she has the paperwork and diagnoses to back up her bullshit.

 

[Barbarella]

I can’t tolerate munchies. If you know somebody living with a real disease, such as a terminal cancer, it is hard to even laugh at those who want to be sick. Even if it’s a mental illness. It just seems so wasteful and ridiculous to want to be sick, when real sick people would give anything to be healthy.

The internet has made it so easy now for people to find these diseases like POTS and EDS that were super rare 30 years ago, and now we have 20 year olds decorating their unnecessary feeding tubes.

The thing that struck me about her is she was eating but kept her tube because of drugs. She’s right, taken by mouth the bioavailability of many drugs is a fraction of whatever the mgs are. So druggies chop them up and stick them up their asses, or inject them, or on her case keep an unnecessary feeding tube to get the effect.

Many people think that she was unconscious when she got sepsis. Maybe. Maybe not. I know a person (alive) who had a pancolitis infection-entire bowel. (Not a munchie. Not a druggie) who went septic and never lost consciousness, even being near death. They were in ICU for a week and docs wanted to yank the colon but whatever the infectious disease guy did saved them. (It was a travel-related thing)

Not to PL, but my point is sepsis alone isn’t necessarily going to make you unconscious. It’s possible her pressure dropped so low that she lost it. But it’s possible she had time to know, maybe not that she fucked up and was dying. But that she was very very sick.

I wish this community of munchies would take this as a warning, but they won’t. I guess they think they can poke holes in their gut and reroute intestines and they’ll always end up ok. She could have had a good life with Judd, kids, travel, health. But she chose to be leader of the munchie gang, drug addiction and death.

F

 

[Kate Farms Shill]

Judd does not seem like a malicious person whatsoever. He actually seems like a nice guy, albeit pretty dim-witted. They met in high school when Jaq was significantly less munchie and he loved her despite her "narcolepsy and epilepsy". Then she ends up all fucked up and he's already totally emotionally dedicated. Judd and her family are not complicit...they were tricked just like her doctors and her fans. Many may have had suspicious thoughts but when she ends up in the hospital and gets all these procedures, their compassion for her outweighs the doubt. Especially for her family and friends who have been dealing with this for years. Unlike a typical junkie she has the paperwork and diagnoses to back up her bullshit.

Thank you. I know a lot of munchies. Most of their families, partners, and friends just take what they say at face value because they have the diagnoses and prescriptions to back them up. They might not believe it if they just said "I have this rare debilitating condition" but once a doctor confirms, they defer to the doctor's expertise. Most people are not medically literate enough to dig through the bullshit or piece together the inconsistencies, plus she surrounded herself with other munchies who would absolutely back her up and say yes, everything she is experiencing is because EDS and they know because they also have EDS. As we saw in this very thread. I'm telling you, if I went to my parents and partner tomorrow and said I went to the doctor on my lunch break and I have some rare incurable disease and need a feeding tube and a port, they would never ask for proof. They would never even ask which doctor.

As for the doctor-blaming, a determined munchie is going to get what they want and Jaquie was amazingly skilled at knowing exactly what to say and do in front of doctors. She was laser-focused on specific things she wanted and spent her entire life researching and plotting how to get them. The roux-en-y? If that fourth surgeon had said no, she'd have gone to a fifth or a sixth. Venus Angelic, while not really a munchie, went to, what, eighty doctors before she got someone to do weight loss surgery on her? Point is, Jaq was going to get these procedures done no matter what, and even if she didn't she was going to die. She was going to overdose, give herself a line infection, or get another stupid unnecessary surgery that killed her. And had she survived this hospitalization, she would have paraded her near-death experience around for more munchie points. She wasn't going to change.

but my point is sepsis alone isn’t necessarily going to make you unconscious. It’s possible her pressure dropped so low that she lost it. But it’s possible she had time to know, maybe not that she fucked up and was dying. But that she was very very sick.

Yeah i think she was aware she was no longer controlling the situation and truly scared for once in her life, but I do think they sedated her before she had to grapple with the fact that she was not coming back from this one.

 

[repentance]

Judd and her family are not complicit...they were tricked just like her doctors and her fans. Many may have had suspicious thoughts but when she ends up in the hospital and gets all these procedures, their compassion for her outweighs the doubt. Especially for her family and friends who have been dealing with this for years. Unlike a typical junkie she has the paperwork and diagnoses to back up her bullshit.

I do wonder whether her family ever considered that this might be the outcome.

Not to PL, but my point is sepsis alone isn’t necessarily going to make you unconscious. It’s possible her pressure dropped so low that she lost it. But it’s possible she had time to know, maybe not that she fucked up and was dying. But that she was very very sick.

I've had sepsis. The scariest thing about it is that I actually felt better on the day it was diagnosed than I had for the previous two days. Nothing about the way I felt that day gave me any indication I was heading for serious trouble. The only reason I ended up in the ED is because I finally felt well enough to go and get imaging done for pain I'd been in for a couple of days and the result required an urgent surgical consult. They didn't even wait for blood test results before initiating the sepsis protocol on the basis of my obs.

 

[eternal dog mongler]

That could be anything from her suddenly complaining of pain (or more pain than usual) or just flat out coding.

If you're slamming the call button like a DJ then floor staff is going to hate you and tell the attending about you.

When munchies have an actual life-threatening problem it goes mostly ignored because no shit, cry wolf all you want.

 

[Teeter]

LOL "Muh MAST cell reaction!" Uh, no, your guts going necrotic. It has been a laugh riot since finding out she Darwin'd herself faking bullshit diagnoses.

$10 to the first farmer to find Judd's Grindr account.

 

[cuddle striker]

a weekend night? guarantee her bp bottomed out. it's about the only thing that get us in the room at that hour on a weekend.

that or she actually pulled out visible intestine, freshly, between nurse visits to take vitals. fooling around with it so it would look more painful.


munchies wreck everything; doctor's empathy, family and friends' sense of trust, the supportiveness of... support groups, everything.
and they do it for attention. it's the fawning over the little sick girl, that's what they want. it's the questions in public, the stares, people online offering sympathy.

they do not like people in real life or the internet suggesting that they see a psychiatrist and come clean. they don't like getting caught, either, but the strange thing is that unlike most people who get caught fucking up, they are similar to eating disorder or personality disordered people in that they'll deny everything. even video footage, they'll deny it. it's when you see how intensely, really truly batshit they are.

and yeah if you call them out, they find another doctor. the minute you suggest their illness isn't physical, they'll go shopping for the next specialist. only a note in a universal chart would stop them. they can refuse to sign forms allowing old notes to be given to new doctors; we can't do anything about that (HIPAA) so in the US, they can skip fresh to each new doc. until they get whatever it is they're after.

and yes they do really serious research about what to say, how to fake signs, what symptoms to claim, in order to get the thing they want.

I too know people with a lot of the munchie illnesses who actually have them, are actually sick. they do not want to be sick. they don't really talk about it unless shit goes really awry. it's almost as if their illness is a personal thing, not a thing to show off in public.

 

[Frazzle]

View attachment 742830

LOL "Muh MAST cell reaction!" Uh, no, your guts going necrotic. It has been a laugh riot since finding out she Darwin'd herself faking bullshit diagnoses.

$10 to the first farmer to find Judd's Grindr account.

Was that right before she bit it? She's bloated as shit those opioids got her filled up.

 

[repentance]

a weekend night? guarantee her bp bottomed out. it's about the only thing that get us in the room at that hour on a weekend.

that or she actually pulled out visible intestine, freshly, between nurse visits to take vitals. fooling around with it so it would look more painful.

Faecal vomiting would also get her taken to imaging stat (and presumably imaging was done based on her husband's recounting of what happened), even in the middle of the night on a weekend. He doesn't mention an RRT being called or surgery even being contemplated. It will be interesting to see if more information is forthcoming in time.

Was that right before she bit it? She's bloated as shit those opioids got her filled up.

Several days earlier based on when it appeared on reddit, so unlikely to be related to her demise.

 

[Kate Farms Shill]

Was that right before she bit it?

nah, this was the 19th. She died 10 days later.

 

[UT 514]

 

[SnarkyTeaSips]

Lurked, but just made an account to laugh publicly laugh at the people on Reddit. PC babies had to make a separate sub to grieve the loss of a munchie they all shit posted about for a year because they can't stop crying? How did they think this story would end? Oh I forgot..*ThEy SeRvE tO sAvE tHe MuNcHiEs By SpReAdInG aWaReZnEsSeS". But don't get it confused, they don't wanna delete the sub or remove topics or erase threads cos of the guilty realization they were all for the lulz too. They just want to cry about how emotional they are and post links to grief counselors and crisis centers because they loved that Munchie and hated exclusively out of pure love and rainbows. I guess whatever makes them sleep at night, but I sleep better knowing my own colors instead of lying convincing myself I'm not deep down a snarky tea sipping bitch. Pathetic.

Someone needs to tell these supposedly-now Munchie lovers that they ain't rescuing anything except themselves from boredom and to own what they are, people who think Munchies make good lulz, instead of flip flopping to feel better about themselves as much as a Munchies current symptoms list. Totally convinced the whole point of that sub is to make themselves feel better. "I'm not as bad a munchie as this one" or "ass pat me while I blog, I loved her now that it's trendy and acceptable to"