Trainwreck The Empathic Nutritionist / Empathic Mamahood / Robyn Grogitsky-Ramirez / Luna Elva Ramirez / Glenn Ramirez / Atlas Glenn Standford Ramirez - Eyefucking Sociopath Selfie Addict Mother and Closeted Gymrat Pothead Father who use Instagram to Parade their Homemade Homunculus Tard Baby Created by their Refusal to Follow any Medical Oversights

[Vi0l3t]

She’s not clearly thriving at all, unless by thriving you mean still alive. Luna is dying. Her condition means she will be dead before her 3rd birthday, there is no thriving with her condition just a constant decline to a slow death.

People are complaining about Robin using crystals and woo bullshit with Luna instead of actual comfort care and drugs.

At least Robyn is taking her to doctors and having therapists visit. Robyn insisted on having a shunt put in against medical advice, which is why she had to travel to California. After Luna was diagnosed she seemed to accept comfort and hospice care but then changed her mind and started lobbying for interventions like the shunt. She still thinks she knows better than those dumb sciency doctors even after her “know better” resulted in Luna slowly dying.

Other than that she’s keeping Luna fed and clean and as her number one prop on the gram.

Robyn’s birth story blog is archived in this thread. At no point did she say the first doula strongly urged her to go to the hospital. She was happier when the second doula showed up to relieve the first and preferred her. Her dumb photographer and husband both encouraged her to stay at home when Robyn actually decided she was ready to go to the hospital. (She did explicitly tell her husband beforehand that if she weakened during labor and asked to go to the hospital to tell her how strong she was and encourage her to stay the course. Robyn was very committed to this home birth shit no matter what.)

Obviously Robyn’s husband is a dumb twat too, he married her after all. But unlike Robyn he just posts a bunch of shirtless photos and dumb cross fit shit on IG with occasional and more natural photos of Luna. Robyn is the one using Luna as prop on IG and even using fucking beauty filters on her kids photos - that’s why she get 98 % of the hate. If her husband wants to start using his dying daughter to promote his business we will happily dial up the hate on him too.

I hate this new bullshit where doctors bad natural good. These women tell new scared uninformed pregnant women that they are goddesses and can do it, that medicine during birth is bad for the baby or not as an "amazing" experience. It's like a competition on who had the most natural birth lol. Also the dramatic bitches who act like they got PTSD from birth because it didnt go as planned makes me laugh every damn time.

 

[Johnl260589]

She’s not clearly thriving at all, unless by thriving you mean still alive. Luna is dying. Her condition means she will be dead before her 3rd birthday, there is no thriving with her condition just a constant decline to a slow death.

People are complaining about Robin using crystals and woo bullshit with Luna instead of actual comfort care and drugs.

At least Robyn is taking her to doctors and having therapists visit. Robyn insisted on having a shunt put in against medical advice, which is why she had to travel to California. After Luna was diagnosed she seemed to accept comfort and hospice care but then changed her mind and started lobbying for interventions like the shunt. She still thinks she knows better than those dumb sciency doctors even after her “know better” resulted in Luna slowly dying.

Other than that she’s keeping Luna fed and clean and as her number one prop on the gram.

Robyn’s birth story blog is archived in this thread. At no point did she say the first doula strongly urged her to go to the hospital. She was happier when the second doula showed up to relieve the first and preferred her. Her dumb photographer and husband both encouraged her to stay at home when Robyn actually decided she was ready to go to the hospital. (She did explicitly tell her husband beforehand that if she weakened during labor and asked to go to the hospital to tell her how strong she was and encourage her to stay the course. Robyn was very committed to this home birth shit no matter what.)

Obviously Robyn’s husband is a dumb twat too, he married her after all. But unlike Robyn he just posts a bunch of shirtless photos and dumb cross fit shit on IG with occasional and more natural photos of Luna. Robyn is the one using Luna as prop on IG and even using fucking beauty filters on her kids photos - that’s why she get 98 % of the hate. If her husband wants to start using his dying daughter to promote his business we will happily dial up the hate on him too.

Honestly, Luna is just doing what the undamaged part of her brain is supposed to be doing. It’s not because she’s cognizant enough to realize what she’s doing lol

Do not be fooled. My baby was hell of a lot less of a potato than Luna when he was a new born lol

 

[Sparkling Cow]

It's so sad to watch those videos, luna used to move and look a little like a normal baby. Now she have the same horror expression on her face and is in total potato mode

 

[FluffyCat9000]

I hate this new bullshit where doctors bad natural good. These women tell new scared uninformed pregnant women that they are goddesses and can do it, that medicine during birth is bad for the baby or not as an "amazing" experience. It's like a competition on who had the most natural birth lol. Also the dramatic bitches who act like they got PTSD from birth because it didnt go as planned makes me laugh every damn time.

Luckily that shit hasn't infected where I live so much ... Yet.

Literally the only sympathy I can give Americans is that their healthcare is so fucking expensive and cos you allow pharmaceutical ads on TV etc it's easy to see why a dumbass might believe that "big pharma is so evil, doctors only want money".

Obviously anecdotal but I heard about hospital births costing 10k even with no complications ... If you're dumb, pregnant, and don't have that cash you can see why the whole "you can be a natural goddess and do it yourself" would be tempting. These insta wooo posts make it seem effortless so someone without critical thinking skills might wonder "yeah, I can do it too and save myself a bill"

 

[Pippeyy]

View attachment 2107053
Honestly, Luna is just doing what the undamaged part of her brain is supposed to be doing. It’s not because she’s cognizant enough to realize what she’s doing lol

Do not be fooled. My baby was hell of a lot less of a potato than Luna when he was a new born lol

For the love of all fuck, read the rules and lurk more.
"No one gives a shit about your life or your story"

 

[Vi0l3t]

Luckily that shit hasn't infected where I live so much ... Yet.

Literally the only sympathy I can give Americans is that their healthcare is so fucking expensive and cos you allow pharmaceutical ads on TV etc it's easy to see why a dumbass might believe that "big pharma is so evil, doctors only want money".

Obviously anecdotal but I heard about hospital births costing 10k even with no complications ... If you're dumb, pregnant, and don't have that cash you can see why the whole "you can be a natural goddess and do it yourself" would be tempting. These insta wooo posts make it seem effortless so someone without critical thinking skills might wonder "yeah, I can do it too and save myself a bill"

Sadly I live in a hippy state full of it. I have family who have had home births (although they had actual midwives and safety precautions.) I think the internet has really brought on the misinformation especially with the boomer population. I have seen so many boomer/gen x relatives that did not grow up with internet believe any tom dick or harry on youtube saying they are doctors, or read a blog and believe its 100% true.

 

[multiverse]

The thing that stands out the most about the rash of recent videos Robyn published of Luna allegedly doing things is that they are all less than 5 seconds long. Robyn films constantly on hopes of getting a few seconds of footage where Luna's spasms appear like purposeful movement. And even then, when shown with her 2 month old brother, it's clear how profoundly disabled she is.

Luna is going to die. She will die soon. If she makes it as far as 4, that would be an extreme outlier, maybe even a record. All of Robyn's pretending won't stop that.

And you just know she's either trying to get knocked up again now, or will as soon as Luna dies, just to prove how right she is about home births being totally safe. She does not give one single fuck about her children other than as proof of her lunatic theories.

 

[Vi0l3t]

The thing that stands out the most about the rash of recent videos Robyn published of Luna allegedly doing things is that they are all less than 5 seconds long. Robyn films constantly on hopes of getting a few seconds of footage where Luna's spasms appear like purposeful movement. And even then, when shown with her 2 month old brother, it's clear how profoundly disabled she is.

Luna is going to die. She will die soon. If she makes it as far as 4, that would be an extreme outlier, maybe even a record. All of Robyn's pretending won't stop that.

And you just know she's wirher trying to get knocked up again now, or will as soon as Luna dies, just to prove how right she is about home births being totally safe. She does not give one single fuck about her children other than as proof of her lunatic theories.

I don't get how she wasnt charged with neglect for not seeking medical help during her birth.

 

[Synthwave Obsessed]

I hate this new bullshit where doctors bad natural good. These women tell new scared uninformed pregnant women that they are goddesses and can do it, that medicine during birth is bad for the baby or not as an "amazing" experience. It's like a competition on who had the most natural birth lol. Also the dramatic bitches who act like they got PTSD from birth because it didnt go as planned makes me laugh every damn time.

The "doctors bad, natural good" thing is just an extension of "the experts don't know what they're talking about and I'm a free thinker" even when it is to the detriment of the person. Flat earthers and anti-modern medicine (anti-vaxxers, wannabe witches, etc) relate to degenerates who use their children as punching bags more than they would ever admit. They don't care if the people around them die, all they care about is their belief in being right. It is mildly infuriating how the Internet has become a breeding ground for these nutbags to collaborate together instead of being the social outcast weirdo that no one talks to and bullies into being normal. I love free speech, but I would be a hypocrite if I said that I don't want these people having a platform to speak from. Yet, I'm just so tired of these whack jobs preying on vulnerable people. The internet was a mistake.

Furthermore, I find it very horrifying that Robin is being enabled by the doctors giving Luna care. Even if you're a high schooler working as a nursing assistant, you learn about the Hippocratic Oath. Granted, what you learn is a footnote in chapter 1, but still. This is far beyond "do no harm" and is well into "this child is a very expensive Barbie" territory. They dress her up. They pose her. They roleplay with her. They pretend she has a voice. This lacks dignity. This is a tragedy. In several of the videos, she seems to wince in pain, such as post 691. Multiple videos in this thread, she is locked in a seizure and everyone pretends she is okay. This is a horrible existence for anyone to endure. Robin is fucked up for being a typical nutbag woo woo, but she's just a common dumbass. The nurses enabling this are even worse because they could refuse to indulge her. Robin needs a slap of reality and being enabled by her delusions is not helping her and it is not helping Luna. Unfortunately, this care is kind of semi-common to my experience in the medical field and is what led to me checking out.

Spoiler: I discuss my experience in the medical field

Your mileage may vary, but I feel like the time I worked in the medical field is consistent with Luna's care. By my experience, we did play god with people's lives beyond their expiration date. For the average person who will live for another 30 years, this is great. For someone who is in their sunset years, this is a fate worse than death.

My patients were often treated like Luna. How they appeared to their family mattered more than their dignity. Dress up your human, make them pretty. Smile for the camera, even when your patient can only verbalize moans and can't eat on their own anymore without assistance. Help pose them because they can't move on their own. They can't wipe their own ass by themselves, make sure you do it for them. I find it hard to fathom how horrible this would be for someone all there, but trapped in their head. I would imagine this is even worse for someone who has no idea what is going on. We forced people to stay alive, because the family wished it so. If someone had an estimate 6 months or less to live, the RNs had to convince the family it was best to put someone on hospice care. All this meant was that we kept someone as comfortable as possible while we waited for them to take their last breath. Even if someone was in a potato state like Luna, it didn't mean we could force someone to be put into hospice (as far as I know). What is even worse is that someone might live beyond the 6 months we thought because the body is just as afraid of death as we are.

On a side note, my time in the medical field taught me that a surprising number of nurses are anti-modern medicine. I speculate on if this is what has partially led to the Google University graduates to feeling empowered in their shitty opinion. During my time, the amount of anti-vaxxer mommies was too damn high. The RNs were the worst about the anti-modern medicine rhetoric, but they would really only discuss it around other RNs. I caught several discussions in the break room or nursing station and they would cut the crap immediately when they realized I was there to overhear the conversation. If you played cool, you could probably get involved in the conversations, but any hint that you didn't agree and you were out. The horrifying thing was that their opinions were always from "a place of knowledge" where they used their education to form their delusional opinions. It is dangerous for everyone. I heard rumors about other nurses getting their vaccination cards signed off (but no shot administered), but by that point I had checked out before I could find any truth to the rumors.

Sorry for the lengthy power level sperg, but I hope this adds context to my thoughts.

 

[biledriver]

God those videos of her on the exercise ball, they’re holding her head real gently but it looks like it’s about to snap off her already-crushed little neck.
I kinda understand why (psychologically), someone with a total potato baby would try to “see” any little thing as a “milestone” bc that’s their baby and they want to celebrate them. Of course that’s gonna look weird, but usually it’s not an all out derangement like this. (normally it’s more like “little Bobby smiled today, I think he likes the sunshine” or those type of sad-sweet things you think of when hoping your very disabled kid is just having an ok day, instead of claiming your brainless baby is walking and talking)
TEN probably does deeply, “empathically” know that she fucked up, but she can play it off as the “loving crunchy mama who loves her baby no matter what, even if she ended up with a ‘surprise’ disability”.
I think the things that poke the most holes in that facade are the older videos. Luna didn’t look quite right from day 1, it seems.

she claims they kept rejecting Luna for shunt surgery, so it’s implied that’s why her head got so fucking massive by the time she got one. However in that one clip (where Luna looks fairly wiggly and normal) her head already looks swollen, her eyes look weird. Do you think she just failed to notice her head swelling all that time? I know since they can’t shunt all the cysts, I’d assume that’s why no one wanted to do it at all, right?
(Sorry if not phrasing this well, what I’m wondering is if the surgeons expected she would die before she had a gigantic fused exploded head, did the failed shunt just kinda prolong her life in just enough of a way that she stayed alive but in a much worse state, only to die soon anyway?)

 

[GenociderSyo]

Do you think she just failed to notice her head swelling all that time? I know since they can’t shunt all the cysts, I’d assume that’s why no one wanted to do it at all, right?

That appears to be what happened. It was noticing something "wrong with her eyes" that brought her in. At first she completed accepted her child was terminal, when she didnt die as quickly as she was told the woo that already existed went into over drive.

Also the original diagnosis I am finding out was worse then though. Luna already had portions of her brain "missing" aka completely atrophied by that point. This explains even more the fact doctors thought it was futile.

I didnt include this in the original post because everything was horrible enough as it was and I didn't think a picture of a dying child being treated this way on a regular basis would make people want to read the OP any further. That is her shoving crystals into the soft spot of her skull during an intense seizure pain filled episode stating it was due to pharmacutical meds not helping.


I'm compiling a larger post to answer this but am formatting it to be added into the OP as well.

Also those that asked about the divot in the middle of her forhead she has a large cyst there.

 

[Potatopatato]

with that being said... what the fuck do you guys want her to do? stick her in a box and put her under a bed? thats still her kid,. if she didnt at least try to give her a quality of life which she clearly is. whether or not things work is different but at least shes trying. America is a fucked country. if a child is too much for you to handle and you surrender your child, youre put in jail, you cant euthanize your kid, the hospital isn't going to hold on to luna forever, theyre going to keep sending her home, put her in some sort of home and forget she exists? she clearly is thriving shes getting bigger and fatter. what should she do? stop feeding her and just let her die? it doest work like that. like cut her a break. even something as fucking stupid as turkey sauce or whatever, at least it seems like the kid likes it. I dont know all the terms here or anything so im not trying to be "sunshine" or whatever the fuck it is but really... what do you expect them to do with her? I mean could she do better, maybe? but you cant get blood from a rock. and, for what its worth, the kid couldn't move her mouth a few months ago and now she can clearly take a little liquid food orally. also, bc of her condition like (I forget who explained it not he last page) right now, her neurological hand tightness might release and she might be able to grab a rattle and hit her mom with it. they dont know if she actually is able to hear or see.. shes doing a little more then she used to.


also its unfair robyn gets all the fucking blame. she has a husband who ENCOURAGED her to stay home instead of saying "fuck this, that baby is mine too im calling 911." or "shes wearing that helmet every day or else." theres two people there not just one.

Had to sign in after months of lurking to see if this kid actually is eating.

Spoilers: she isn't. You can literally see her make that exact same chewing motion in other videos when she doesn't have food pointlessly shoved in and around her mouth. Some deranged lunatic smearing crap on her mouth doesn't mean she's eating or swallowing. She's just opening and closing her mouth like a fucking fish.

 

[Dyn]

I never comment bc it makes me feel too horrible BUT ....
If you read her (now deleted) blog, its somewhere in the first pages of this forum there were two birth doulas. the 1st birth doula was with her for two days and TRIED to get robyn to let her intervene, go to the hospital and have luna seen immediately after birth. Robyns whole tirade is against the 1st woman who basically "filled her head with doubt that she could do this" ON THE SECOND DAY. she had to convince robyn to let her feel if Lunas head was breeched, which is wasn't and her "shoving her hands inside me" made her feel "violated" and robyn explicitly says she "HATED" her after she checked for luna. literally uses the word "hated."

then the second one came who she considers an angel to relieve the first one. before the 1st one left they discussed that considering she was going on day three of labor ... it was probablyyyyyyyyy... in mom and babies best interest to get over to this hospital. this made robyn mad bc it filled her head with doubt of her own capabilities.

at some point with the 2nd doula robyn thinks she should go to the hospital but is gratefully talked out of it by the 2nd doula and her husband. and she is sOOooOooOOooo grateful that they believed in her. when the 1st doula, I forget either called or came back once luna was born she tried to pressure robyn to get her checked at the hospital where early intervention COULD HAVE BEEN VISIBLE.

she also notes that luna was NOT latching in her first few days or weeks of birth which is what they assumed was making her underweight. instead of giving her a fucking bottle of formula they gave her nothing until she was basically hungry enough to latch. she was clearly under weight, and STILL didnt take her to be seen.

can you imagine being the first doula, basically know that there is an ill fated out come, begging the mom to go to the hospital, for this to all happen, only despite Robyns own protests and now shes considered suing them??????????? (she doesnt have a chance in hell of winning against the doulas or Lunas doctors. medical science didnt miss something she refused intervention at literally every single turn.) she feels she was violated and they didnt follow her plan and not because luna wasn't facing correctly, or robyn didnt get one fucking scan where they would have seen the cord.. BUT.. by basically stressing robyn out by suggesting she not be a feral fucking alley cat (who instinctually actually knows more than she does), suggested they get her to a hospital and the stress imposed by the 1st doula DOING HER JOB is what made this traumatic and caused this? that she has posted blogs about how traumatic her birth was, by her own doing?

can you imagine being the 1st doula walking out of the house, knowing something is going to go terribly wrong and besides calling 911 (which is what I think most of us would have done but idk the legalities behind that) knowing that there is zero you can do. its like being a patrol cop with no power, telling a driver they suppose is drunk to slow down, but the driver knows they have no Breathalyzer test and cant give them a ticket, yelling F you and then crashing into a wall 10 feet later? like thats basically what happened.

with that being said... what the fuck do you guys want her to do? stick her in a box and put her under a bed? thats still her kid,. if she didnt at least try to give her a quality of life which she clearly is. whether or not things work is different but at least shes trying. America is a fucked country. if a child is too much for you to handle and you surrender your child, youre put in jail, you cant euthanize your kid, the hospital isn't going to hold on to luna forever, theyre going to keep sending her home, put her in some sort of home and forget she exists? she clearly is thriving shes getting bigger and fatter. what should she do? stop feeding her and just let her die? it doest work like that. like cut her a break. even something as fucking stupid as turkey sauce or whatever, at least it seems like the kid likes it. I dont know all the terms here or anything so im not trying to be "sunshine" or whatever the fuck it is but really... what do you expect them to do with her? I mean could she do better, maybe? but you cant get blood from a rock. and, for what its worth, the kid couldn't move her mouth a few months ago and now she can clearly take a little liquid food orally. also, bc of her condition like (I forget who explained it not he last page) right now, her neurological hand tightness might release and she might be able to grab a rattle and hit her mom with it. they dont know if she actually is able to hear or see.. shes doing a little more then she used to.


also its unfair robyn gets all the fucking blame. she has a husband who ENCOURAGED her to stay home instead of saying "fuck this, that baby is mine too im calling 911." or "shes wearing that helmet every day or else." theres two people there not just one.

This post needs a table of contents and chapter breaks.

 

[flipwizardmagoo]

These are upsetting because if you compare them to recent videos, it’s staggering how much she’s declined. In these clips, she at least moved about a little and responded to physical touch. Now, nothing. Horrible.

 

[GenociderSyo]

Newborn Luna
​

Part 1 : Woo Woo Mom and Birth Horror Story
Part 2 : Luna Deep Dive & Pics
Part 3 : Descent into Ultra Woo Part 1 (You Are Here)
Part 4 : Descent into Ultra Woo Part 2
Part 5 : Luna's Helmet Journey
Part 6 : Luna Vids, Resource Links & Overflow

Descent into Ultra Woo - Part 1​

• Around April 17, 2019
  • 
  • "Within hours of going to the ER for suspected muscle twitches/spasms near Luna’s eyes/mouth (we were thinking, WORST CASE, seizures) we were being told Luna had life threatening brain conditions that would require immediate neurosurgery... only a few more hours into the future, this was followed by the devastating news that neurosurgery had been deemed futile; her conditions, so complicated and rare, that they were deemed inoperable."
• April 20, 2019
  • 
  • "The staff at @peytonchildrens worked tirelessly over the last 72 hours to stabilize Luna enough for us to transfer home for in home hospice care where we will love on her & cherish her until she decides her time earth-side is through. While we haven’t been given any answers as to why our baby girl has the condition she does (we are awaiting many test results) we do know this...Luna doesn’t have much time left w/ us.
  • We’ve been told that it could be days, weeks, or months but her Dr.’s say she will not survive this. What we do know is that Luna was born w/ most of her brain missing & large cysts have formed in the spaces where her brain matter should be, causing hydrocephalus & seizures. We didn’t know any of this until this past Thursday. It is inoperable. She was seen by the best neurosurgeon in Indiana, Dr. Jodi Smith, & we discussed extensively why surgery would be futile & likely cause her even more trauma, pain, or death. So instead of looking for ways to help her survive, we are looking for ways to help her be comfortable & enjoy the rest of her time here w/ us.
  • It’s absolutely a miracle that she didn’t die in utero, let alone live to be born a healthy, thriving baby who, until a few days ago, was hitting all her developmental milestones. We are in shock. Heart broken. Devastated. But also so freaking proud of how strong & brave our daughter is. She is truly a miracle. The Dr.’s don’t know how she was & still is functioning so well since she hardly has any brain matter. But I think this goes to show how amazingly powerful our bodies can be & that we are more then the physical body. Luna’s spirit is so powerful.
  • We’ve gotten her seizures under control. She’s still nursing great, being wakeful at times, moving all around, crying, talking a bit & can definitely hear us.Please continue to send her, Glenn, & I all your love, prayers, strength & energy. We hope to get as much time w/ her as she can give us, however much that may be. But Glenn & I find great comfort in knowing her great Grandpas are waiting for her & will watch over her until we can all be together again.
  • Thank you from the bottom of our broken hearts, Luna’s Mommy & Daddy"
• May 9, 2019
  • 
  • "We are so glad to report that Luna is still happy & stable as of now. Her seizures have continued to remain under control.
  • 3 weeks ago we were discharged from the hospital & were set to begin in-home hospice care. Due to our VERY BROKEN healthcare system & road blocks at every turn, we are still without hospice care for Luna. We are on our own to care for Luna until her time comes, which as any parent can imagine, is absolutely terrifying & financially a heavy burden to bare.
  • 2 weeks ago we reached out to Boston Children’s Hospital for a 2nd opinion from their neuro team & while we are heartbroken to report that the 2nd opinion only confirmed the 1st opinion (that Luna’s brain condition is inoperable and fatal), we are so happy that this team of experts cleared us for traveling with Luna. So we are headed home to vegas to make even more memories with Luna and all our family and friends from home."
• May 20, 2019
  • 
  • "Today marks a giant milestone for our sweet little lady Luna. Almost 5 weeks ago our whole world was turned upside down with the devastating diagnoses we were given for Luna. We were told she had only hours or days to live. But our girl is so strong. In true Luna fashion, she does things on her own time frame and has given us 5 weeks past that. And not just 5 weeks of survival, but 5 weeks of THRIVING! Since leaving the hospital Luna has started to socially smile, had a few little laughs, found her hands, puts her hands in her mouth, can put binkie in and out of her mouth on her own, and is trying with all her might to roll over; all things the medical team said she wouldn’t ever do. Luna has proven that her existence is miraculous and only she knows when her time will come.
  • We continue to live in the seconds between moments with Luna, soaking up every experience and creating so many memories.
    Happy 4 months little lady! I love you to the moon and back, to the moon and back, to the moon and back again."
• June 4, 2019
  • 
• June 21, 2019
  • 
  • "Yesterday our little lady turned 5 months old!! She continues to amaze us every day. 2 months after she was given hours-days to survive & she is still thriving! Lately Luna’s been eating almost nonstop! She LOVES her swing & cuddling. She’s maintaining her weight, eating well, sleeping well, pooping, peeing, crying, smiling, has the occasional laugh, puts her hands in her mouth, can pull her headbands off purposefully, tracks us, turns to you when we talk to her, babbles, & most recently she’s found her feet she’s nothing short of a miracle.
  • I mentioned in my stories yesterday how much it means to Luna’s Dad & I that you all have joined us on Luna’s journey, that you’ve allowed our family into you hearts. Thank you for the continued prayers & healing energy. Please don’t stop!! We FEEL them constantly & please know they are helping to hold us all up during this time.
  • We owe a lot of Luna’s continued thriving to her practitioners, the ones who haven’t given up on Luna despite what her scans & medical tests say. Dr. Tom Eyrich & his healing hands/modalities. This man is a true healer & he’s so kind to our daughter. Lyn Williams, Reiki Master, Crystal Healer, & intuitive who has gifted Glenn, Luna & I with beautifully healing sessions every week since coming home from the hospital. These sessions, with both practitioners are so important to us & we fully believe they’ve helped keep Luna thriving & Glenn & I strong.
  • Next week we move back home to Las Vegas. This move home is unexpected & so financially straining as we just moved across the country only 8 months ago. Luna’s go fund me is still open & any amount would help us greatly! Your continued prayers & healing energy are also requested as this will be a long & hard move for us, taking us at least 5 days to get the driving done. We are looking forward to being home, to be surrounded by our friends & family, to get away from the drama that our jobs here have become, to get away from the suck & back into the light. If anyone in the Vegas area knows of reiki healers, chiropractors, naturopaths or anything similar, we are looking for recommendations for Luna’s new Vegas team!! "
• July 2019
  • 
• August 8, 2019
  • 
  • "Yesterday started out like any other day. But as the day went on, in a perfect storm of little events, Luna’s health took a turn for the worse. We saw the biggest decline in her health since that fateful day in April when our worlds were turned upside down with the discovery of Luna’s brain condition.
  • Luna had what we think were either new symptoms of the building pressure in her head or breakthrough seizures, among other concerning symptoms. These exhausted Luna & she struggled to nurse.
  • We are so glad to say, that after an overnight admittance to the hospital, we’re finally back home with Luna. It feels SO GOOD as we weren’t sure what was in store for us when we arrived at the ER last night. We are so grateful to the staff at Sunrise Children’s Hospital who are helping us establish hospice care for Luna starting tomorrow. Both Glenn & I can take a deep breath of relief as we will finally have the complete support team to help us navigate this chapter of Luna’s life.
  • We don’t know how long we have with our daughter, as this brain condition continues to slowly rob us of her. But we do know this... We love our daughter with all our hearts & souls. She is the creation of a part of each of our souls & of our soulmate connection. She is the strongest, bravest little girl ever. She’s feisty & such a fighter! She has a magical, very special soul. She’s on her own soul mission. She has awoken many to be more present in their own lives, with their own children, families & loved ones. She has touched more people then most with her bravery, strength, & being. We know every day with Luna is precious & never take a second for granted. We will love her till the ends of time, in this life and in all others.
  • So many people have reached out to us from all over the world & it touches my heart so deep. I read every message to Luna that is sent to her/us. You all have become part of our journey & we definitely need a village to help us through this. Please continue to send us your love, healing energy, & prayers. They help keep us all lifted. We can feel them all. Thank you to all who continue to send us support both up close & from afar."
• August 20, 2019
  • 
  • Today Luna turns 7 months old! We could not be more proud of our daughter & her continued strength, courage, & will to stay earth side with us. Today we will spend the day snuggle bugging, playing, singing, & soaking all of Luna up; feeling total gratitude that she’s had a great past week!
  • Since I’ve gotten so many new followers in this past month I wanted to give a bit more details about Luna’s diagnoses in hopes that a follower or someone a follower knows, may have insight we have not been given. Back in April Luna was diagnosed with cystic encephalomalacia which lead to hydrocephalus, seizures & cyanotic episodes. Before these diagnoses we had NO IDEA our daughter was anything but a perfectly healthy child. We have done all the typical testing (no genetic testing yet) that comes with these diagnoses with all the results coming back normal. We’ve been told it’s just a freak occurrence, a once in a million happenstance. In April, when we left the hospital, we were told Luna had only hours-days to live. We were told the pressure in her head was inoperable due to the vast amount of fluid filled cysts she has in her brain- that they wouldn’t be able to connect them to shunt the csf- that even if they could shunt some, the remaining fluid/pressure would shift, putting too much pressure on her brain stem, killing her instantly. However, Luna has completely proven the medical community wrong as she’s continued to thrive and survive for 4 months longer then this. We were told she wouldn’t progress neurologically, socially, developmentally & while she is delayed in some areas, she continues to do new things (like smile, laugh, babble, put her hands in her mouth, pull at her knees/feet, play, rollover, track us, respond to us, etc.), all things they said she would never do. We could not be more proud of her.
  • 2 weeks ago Luna started having break through seizures that lead us to the hospital. These new seizures were causing cyanotic episodes that were by far the scariest thing we’ve experienced with Luna so far. For now, her seizures are back under control with her medication.
  • Our daughter is such a warrior, a magical little girl with such a HUGE soul mission. @garagegymglenn and I are so beyond thankful for all of you how are standing with us on this journey, who have gifted us monetary, who have sent their well wishes, prayers, thoughts, energy, and love, for those who have reached out with suggestions on treatments, doctors, therapies, diagnoses, etc. you all help us stand tall, give us a bit more strength, and not feel so alone on this journey."
• September 19, 2019
  • 
  • "On Monday night into Tuesday, Luna had another big decline is her health. This is when we reached out to all of you and asked for prayers and energy. She started having difficulties with swallowing and nursing. Since she’s so little it doesn’t take much to dehydrate her and make her drop weight. We were starting to get really scared she was reaching the end of her journey here with us our hearts were so heavy and scared. So on Tuesday we made the decision, along with her hospice team, to place an NG (nasogastric) feeding tube. We aren’t sure if this is a temporary or permanent measure but oh man is it making a world of a difference!
  • I balled my eyes out while the tube was being placed; she barley cried and was MUCH stronger then I was! Part of my reaction to this was the thought of losing my connection with Luna through breastfeeding. It’s more then just the way I nourished our daughter, but an energetic exchange that I, admittedly, was not prepared to lose yet. My baby is such a warrior!!! Luna is still breastfeeding while using the NG tube and we are SOOOOO PROUD of her for that as we were told she would almost surely stop nursing with the feeding tube in place. In a little under 48 hours Luna’s cheeks are filling back in, her hydration levels are returning to normal, she’s becoming more alert and wakeful, and she’s is great spirits again!
  • Thank you to all of you who took the time to send us your love, prayers, and energy to help support Luna this week we truly feel the shift when you guys support us that way! It really means the world to us! Please continue to keep Luna, Glenn, Marley and I in your prayers and energy work"
• October 31, 2019
  • 
    
• November 8, 2019
  • 
  • "Please help us get the world praying for Luna!!!
  • We’ve seen time and time again how strong the power of positive energy, intentions, words, love and prayer can be. We’ve felt and watched it hold Luna and us up throughout the last 6.5 months after receiving her fatal diagnoses. .
  • Today, I ask all of you to please share this post on your pages and stories so we can get thousands and thousands praying and sending healing comforting vibrations to Luna.
  • At this moment in her journey, Luna needs a miracle. She’s losing her battle. But after all the love, prayers and energy sent yesterday, she’s still here with us. And this morning at 430am, after a beautifully powerful family guided meditation and reiki session, I felt this overwhelming knowing that she wanted to nurse (after 2 days of refusing to breastfeed and 2 days of vomiting up all fluids given) and so I attempted to breastfeed her... and guys!!!!! She IMMEDIATELY latched and has been nursing for the past 10 minutes.
  • Please pray for Luna, send her healing vibrations, loving and comforting energy, good thoughts, kind written words, and everything in between. Maybe with all of your help we can shift the energy from her being at her end of life journey to her surviving.
  • Please tag me @the_empathic_nutritionist and use the hashtag #prayforbabyluna or #healingenergyforbabyluna to help us share this message and get the world sending her energy and prayers!!!
  • Thank you from the bottom of my broken heart, Luna’s Mama, Robyn"
• November 20, 2019
  • 
  • "My baby girl turns 10 months old today! I can’t believe I’ve been her Mama for 10 months now! I can’t imagine my life without knowing her and without being her Mama. She has changed me to my core, allowed me to grow in so many beautiful ways. I’ll forever be grateful for her.
  • This past month has been a roller coaster ride of highs and lows. Luna had such a big decline in her health, that we were sure we’d lose her. We said all the things, felt all the feels, surrounded her with our love and gratitude for her existence, and prepared for the end.... and then the end didn’t come and after a week of her being in active dying stages, she bounced back and has had stable vitals since Monday. She’s definitely doing things on her own terms, in true Luna fashion, and has decided she’s not ready to go yet. This is her journey. Only Luna knows the path ahead and we are here to love, support, honor and cherish her on this journey. We are here to help Luna accomplish her soul mission, to touch the hearts and lives of others, to help people live in the moment, to cherish their children and loved ones just a bit harder and never forget how precious life is. We are so proud of her for how tough she is and how determined she is to give us as much time here with us as she can.
  • We are setting up for the holidays so we can give Luna all the best memories and experiences from our favorite time of year We are forever hopeful that she’ll get to spend the holidays here with us"
• December 12, 2019
  • 
  • "Missing the days before we knew Luna was sick, before our whole world was turned upside down, never to be the same again. Missing the days where my beautiful, silly, sassy little girl would play and coo and babble up a storm. Missing the days she’d stretch out her arm and play with my hair and lips while she breastfed. Missing the days where she had no pain and cried and fussed for normal baby reasons. Just missing that precious time we had with her so so badly..
  • It’s getting so HARD. Luna’s been in so much pain lately that it’s unbearable to watch, let alone FEEL. As an empathic mama, it’s more then just hearing your baby cry out in distress, more then watching her writhe in pain; it’s fully feeling the energy of it all with her. It’s having major migraine pain triggered by her pain. It’s feeling the terror and fear right along with her. Its not being able to leave her side or having panic attacks while away from her. It’s HEAVY.
  • But being an empathic mama also means I have a DEEP and powerful connection with my daughter. Its knowing her before she was born. It’s experiencing her joy and wonder on an energetic level, and not just witnessing it from the outside looking in. It’s FEELING how much she loves and adores me. It’s knowing our bond goes beyond this 3D physical world. It gives me peace knowing I have this with Luna for the rest of my life. It’s this that helps me get through the darkest times with her.
  • I love you to the moon and back, to the moon and back, to the moon and back again. "
• December 25, 2019
  • 

Click here for Part 4

 

[GenociderSyo]

Newborn Luna
​

Part 1 : Woo Woo Mom and Birth Horror Story
Part 2 : Luna Deep Dive & Pics
Part 3 : Descent into Ultra Woo Part 1
Part 4 : Descent into Ultra Woo Part 2 (You Are Here)
Part 5 : Luna's Helmet Journey
Part 6 : Luna Vids, Resource Links & Overflow

Descent into Ultra Woo - Part 2​

• January 2020
  • 
• February 3, 2020
  • 
  • "Over the past 2 years, so much has changed; I’ve gone through so much. Finding out about my autoimmune and genetic conditions, stepping into my light, believing in myself, getting pregnant, retiring from a 16 year career, becoming a mother, having a disabled child in hospice, moving across the country twice, becoming an energy worker. This change has come with so much growth and from that growth, the Empathic Nutritionist was born.
  • I am a Nutritionist but I am also empathic. That means I experience, feel, absorb, & sense other people and animals energy and emotions as if they were my own. At times this has been paralyzingly overwhelming and isolating. But over the last 2 years I’ve turned this ability into my superpower. It helps me to deeply connect with my clients and have great insight into them as beings. It paved the way to becoming an energy worker and is the foundation of my soul connection with Luna.
  • The new Empathic Nutritionist website and social media will be a place where you can find delicious, gluten free, high-vibing recipes, where you can learn about nutrition & how to eat intuitively, enjoy stories & advice about mamahood, healthy family living, and all things energy work (from reiki to crystals & everywhere in between).
  • Thank you for all your support along the way from starting RGR Nutrition 5 years ago, our journey with Luna, and now the beginnings of the Empathic Nutritionist tribe."
• February 20, 2020
  • 
  • "This girl lights my soul on fire. Never have I been more loved and adored as when I look into her eyes. Being her Mama is both amazing and terrifying and awe inspiring and challenging and the easiest roll all at the same time. When I look into Luna’s eyes, I see the whole universe looking back at me and know infinite possibilities can be built from our love. I see wonder and joy and love (so much love) in her eyes.
  • At 13 months old Luna is a sassy little girl who loves her Mama and Daddy so much. She whines, fusses and groans at us when she’s annoyed or wants things differently. When she’s upset or not feeling well she cry’s, furrows her brow, and reaches for our hands and squeezes our fingers. She’s easily calmed with hand squeezes, singing to her, kisses and snuggles. When she’s in pain, it’s beyond obvious. On the flip side, she’s happy most of the time and you can see it in her eyes. Every now and then we get a sweet smile and it’s priceless. She plays with her hands, stretching out, playing with my hair or her lovey, Uni the unicorn’s main. She sometimes makes soft sweet baby coo’s and when we hear them we cherish them forever.
  • Luna is very empathic and we continuously interact empathically through our connection. I talk to her and ask her/ give her options about things you would to any child her age. I just tune into my intuition and know I’m connected to her. It’s an amazing, unbelievable, beautiful connection.
  • We will continue to celebrate our brave girl’s month birthdays; each is so precious to us! You have come so far Luna, we are so so proud of you! Keep proving them all wrong baby! "
• March 9, 2020
  • 
  • "During Luna's morning Reiki treatment today she was in tremendous pain. When we're maxed out on her doses of pharmaceutical pain meds and this type of breakthrough pain emerges, it knocks the wind out of all of us. Watching your child in the worst pain you can humanly imagine (I personally think it looks worse then child birth and I had a very painful natural child birth) and knowing you can't take it away is about the most crushingly helpless emotion you can imagine feeling. So what can we do when this happens? Cry, feel helpless for a moment, then we open our alternative tool box up and get to work! Because we cannot sit by and watch her suffer that greatly and not find SOMETHING to help her.
  • Today during her Reiki session we used these specific stones to help ease her tremendous neurological pain and I swear, moments after utilizing this beautiful crystal medicine, she finally calmed down and is peacefully resting. Honestly, I don't care if you believe in any of this stuff or not. We do. It works for us and I'm so thankful to have these additional tools to help Luna. Without them, I don't know where we'd be. As a parent, you'll do anything to keep your children from feeling pain like Luna endures. I'm going to start sharing all this stuff more in hopes that what we've learned helps Luna, can help even one other person or child who's suffering out there."
• March 27, 2020
  • 
  • "Tribe, we need your help!
  • We are waiting to hear back from a new pediatric neurosurgeon about a possible surgery that would be life extending and relive Luna's pain! We've been waiting as patiently as possible over the past 2 weeks, but Luna needs help NOW! SHE NEEDS THIS SURGERY!! We're asking, from the bottom of our hearts, that you all surround us in love and light, that you help us bring urgency and compassion to the hearts of the pediatric neurosurgery department along with Dr. Cheshire of Primary Children's Hospital in Salt Lake City, Utah. You can do this by praying, sending energy/good vibes, calling on your team of light to work their magic in the background, by sending reiki, or by visualizing Luna being accepted for this surgery and having beautiful outcomes!
  • Thank you from the bottom of my heart, Luna's Mama."
• April 8, 2020
  • 
  • "I love this silly little girl so soooooo much!!
  • A week after this photo was taken we were admitted to a Children’s Hospital in Indianapolis (where we were living at the time) and our whole world turned upside down.
  • Within hours of going to the ER for suspected muscle twitches/spasms near Luna’s eyes/mouth (we were thinking, WORST CASE, seizures) we were being told Luna had life threatening brain conditions that would require immediate neurosurgery... only a few more hours into the future, this was followed by the devastating news that neurosurgery had been deemed futile; her conditions, so complicated and rare, that they were deemed inoperable.
  • We were told Luna had hours-days to live.
  • My head was spinning.
    I felt physically sick.
    I got physically sick.
    I couldn’t even catch my breath when the doctors told me all of this as I was all ALONE in the hospital room (Glenn had gone home to grab Luna’s things and love on our pup for a bit as we had been gone all night).
  • Yes, this moment I’m reflecting on was one of the hardest moments in my life. Yes, I feel angry/defeated/cheated/like life is unfair for us at times.
  • But I’m forever grateful for the blissful, normal almost 3 months that we had with Luna as new parents before receiving her diagnoses. Grateful for the times when life was hard for totally different reasons; when we worried about tummy time & introducing baby sign language instead of worrying over pain management or NG tube changes.
  • But I am also so so very grateful for all the hard times that were on our road ahead, times we couldn’t even fathom when this photo was taken. I’m grateful for all the time since this photo was captured because it’s time we were originally told we wouldn’t have with Luna.
  • Every second,
    every moment between moments,
    including the earth shatteringly hard ones & the awe inspiring beautiful ones,
    are worth everything to me.
  • I will love her endlessly,
    care for her till the ends of time,
    show up time & time again to be her protector, her advocate.
  • How lucky am I to have been given all this extra time with my daughter when so many other mamas & daddies out there are not given this chance?"
• May 8, 2020
  • 
    
  • "Hello everyone! Welcome to our tribe!! We’ve gotten so many new followers lately Luna and I thought it was a good chance to reacquaint ourselves with everyone!
  • I’m Robyn, Luna’s Mama! My most important roles are being a mama and a wife! I’m also an empath, energy worker, reiki practitioner, psychic/medium, intuitive artist, Nutritionist, and recipe developer! I’m married to my soulmate and best friend @garagegymglenn and that love created our amazing, beautiful warrior baby girl Luna.
  • The first 3 months of our life with Luna were perfectly normal and filled with all the typical worries and joys of being first time parents. But at 3 months of age we took her to the ER for suspected muscle spasms, only to have our entire world turned upside down when we were told Luna had a fatal and inoperable brain condition (cystic encephalomalicia, hydrocephalus, and seizures) we were told she had hours-days to live and to go home with her and love her till the end. And so we were discharged from the hospital with no help, no hospice.
  • But Luna kept LIVING, she kept hitting new milestones; doing things like socially smiling, putting her hands in her mouth and rolling over, all things the doctors said would never happen.
  • After the shock of her diagnoses wore off, and she continued to survive, I could not find peace in my mama heart to just sit there waiting for this fate I truly didn’t believe was Luna’s. And so began my year long fight to find a surgeon who would help Luna. We got turned away by one of the (supposed) top pediatric neurosurgeons in America, no responses at all from dozens of other pediatric neurosurgeons all over the world, told it would cost $1,000, $5,000, or $10,000 to just review Luna’s case. I begged news stations and reporters to share our story as I feared I’d run out of time before finding a surgeon willing to see Luna as the LIVING warrior baby she was, someone who would fight even a fraction of the fight she’s endured for over a year. No one would help me in media, no one would hear my cries and pleading and screaming that my baby was being killed slowly because of inaction of allopathic medicine.
  • 1 year of nothing but “NO’s”, and being told to just let my daughter die, an earth angel walked into our life. The surgeon I had been trying so hard to manifest, to find or to find us, came into our lives at almost exactly 1 year after her diagnoses. Dr. Muhonen at CHOC saved my daughters life on 4/30/20 by placing a VP shunt to drain the excessive fluid out of her head. Without this surgery Luna would have been killed. He was a huge yes before we even got on I’m the teleconference with us (though I was prepared to fight him if need be lol). He saw our baby girl as the beautiful baby she truly is, as a loving little girl who was unnecessarily suffering so greatly. He was angry with us that so many surgeons had failed Luna for so long. He has given Luna a new chance at life and now as our chapter 2 is beginning and we head back home to Vegas, we know we finally have a team, a family, here who adore Luna and who are fighting WITH US to give her the life she has deserved this whole time.
• May 13, 2020
  • 
  • "PLEASE HELP LUNA GET HER HELMET!!!
  • Hello tribe! We need your help! Nevada Medicaid has deemed helmets for children over 1 year old as medically unnecessary & won’t cover Luna’s helmet she so desperately needs. It’s so hard to ask for help, but we could really use the power of our tribe to help raise the funds so we can get Luna her helmet ASAP!
  • Why does Luna need a helmet?
    Luna’s skull sutures are not fused like typical 16 month olds. Because, until just about 2 weeks ago, her untreated/unshunted hydrocephalus caused her sutures to be pushed wide open by the mounting pressure building in her head. This caused very large fontanelles (soft spots) to form as well as the development of malformations of her skull bones. Now that Luna’s been shunted, her soft spots have sunken in & leave her healing brain vulnerable to injury & without a helmet this leaves her skull vulnerable to greater malformations developing as her sutures begin to close (now that the excess pressure is decreasing). This helmet will not correct the malformations she has currently (she will need cranial reconstruction for that down the road) BUT it will prevent further plagiocephaly (flattening/widening of the back of her head) & other cranial abnormalities from developing further.
  • Luna’s helmet is $2850. The prosthetics company is discounting that price to $2500 for cash pay.
  • From the bottom of my Mama heart, please help us help our daughter! She’s fought for over a year to finally get her life saving surgery, get pain relief from her condition & begin living life again, we cannot let this bump in the road stop her rehabilitation & recovery! I am reaching out to you all in desperation to help us raise these funds & funds for our traveling back to California to have her custom helmet fitted by a cranial remolding specialist and Dr. Muhonen. Can you please help us get Luna her helmet??
  • Please share this post far and wide!!! And for ways you can donate or support Luna in other ways, please click the link in my profile and then click “ways you can support Luna” for more information!!
  • Thank you in more ways then I can express, Luna’s Mama (Robyn)"

Comments from Users

Videos

​

Click here for Part 5

 

[GenociderSyo]

Now for all the stuff posted WHILE I was working on that:


She purposely doxed her new place on instagram stories (address removed here it was NOT a PO Box) asking for mail to be sent to Luna.

Spoiler: Bunch of Vids

Update:
More vids:

 

[RisingPhoenix]

This thread is educational at least, I didn't know babies could actually struggle with suckling or how much the "breast is best" movement had made it extra hard for actual loving moms who feel like they fail cuz of needing formula.

The whole birth thing is weird, I can't imagine thinking "ooh one last pamper sesh!" once the contractions come.

The one thing that does puzzle me is the fact she wanted to go into the birthing pool even before her waters broke (which according to story doesn't happen till the middle of day 2) - I thought the worst pain came after that point, and prior to that the worst was just the contractions? Like I always assumed if you do use a birthing pool - you only get in there once it's actual go time, not just cuz the contractions hurt more than you thought they would

 

[The Lychee Queen]

@GenociderSyo thank you for doing the deepest dive I've seen on a KF thread. Just incredible.

I've never seen those newborn Luna pictures. WOW. I'd had the impression that her condition wasn't noticeable until a few months in. But no. Look at this.

[Edit - for some reason, the picture won't insert. I'm referencing the second pic here. She's wearing the striped onesie.]

It's at a bit of an angle, but look at Luna's head. That is not a normal head shape; you can see that fluid has already started accumulating. No wonder they started with turbans and headbands so early. You can see how skinny her legs are through the fabric. (I have a feeling that's a onesie for a newborn, not one for an older baby to grow into.) (Interesting her eyebrows were born already in that position, already moving away from each other.)

Despite the fact mommy had a way-too-long and traumatic birth, they didn't think it necessary to bring her to an A L L O P A T H I C doctor until she was three months old, correct? We know that Robyn said Luna didn't cry or make noise or blink or put on weight or sleep or react to anything and all the other stupid normal shit newborns are supposed to do, PLUS she looked like a Megamind baby. And Robyn still didn't see any reason to bring Luna to a real doctor. Fucking insanity.

God. Seeing those pictures is heartbreaking. It's like seeing pictures of Claire Hartley as a newborn, only worse because this is ALL THE MOTHER'S FAULT. Fuck you, Robyn. You can see the beautiful little girl Luna would have been if she'd been lucky enough to be born to someone else, born to a mother who wouldn't hesitate to put aside her own ego to save her baby.

God. This thread is always such a punch to the gut.

Nothing will allow Luna to live the life her parents stole from her, but the minor consolation is that even if Robyn came from a family of woo woo lunatics, her beliefs are NOT mainstream, so she's bound to have some sane, internet-savvy relatives and friends who'll find this thread. All it takes is one of them to find this thread and furtively show it to another person in her orbit, and then the whisper campaign has begun. "Did you know she has a big thread in this forum about her?" "What? No!" "I'm not saying it's all true, but here's a link..."

 

[GenociderSyo]

Time to use her daughter to get some moneys! She charges from $222 to $444 for these things.
BUT if you buy during shuntversary its only $400!