Trainwreck Alex Dacy / Alex Dzimtowicz / Wheelchair Rapunzel - 50% wholesome disability influencer, 50% that cash me outside girl

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I know kids can be filthy little beasts but it really bugs me that as soon as Ari is with Alex and her family, she looks like she's been rolling in the dirt in cheap, shitty clothes. She's such an adorable nugget.
There's a certain amount of dirt you've to eat before you die -shrugs-

Then again, there's dirt and then there's the cesspit of despair that surrounds Alex.
 
Alex mused about forgiveness:

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Then posted a new photo of herself-- with Ari's car seat-- in a Chicago airport:

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Salina was in Michigan last night, presumably to accompany Alex wherever she's going:

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Only sign of life from Noah was posting some music stuff yesterday:

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Alex ate a raw onion (cursed video) and took Ari to the library (good start, now sign her up for summer reading and get her some picture books-- and take her to story time!).

Stories:

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Raw onion video from stories:



Grid post:

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You can see this is the Palos Heights Public Library-- the library in her hometown, where her parents' primary residence is.

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Alex ate a raw onion (cursed video) and took Ari to the library (good start, now sign her up for summer reading and get her some picture books-- and take her to story time!).

Stories:

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Raw onion video from stories:

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Grid post:

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You can see this is the Palos Heights Public Library-- the library in her hometown, where her parents' primary residence is.

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At least we didn’t have to hear her trying to swallow in the video. I’m still haunted by the sounds I’ve heard her make in videos eating.

Anyone with med info able to answer—I’m surprised to hear she could walk as a child? I know sma is degenerative but there was also a photo of her recently I think where she was maybe 3-5 and she was painting. I do feel bad for her about experiencing that loss of function, it seems like it would be harder than being at her level from birth. But don’t worry I only have a modicum of pity for her.
 
I’m surprised to hear she could walk as a child?

She never walked, not even as a child. She's propped in a chair in that photo of her painting. She's always been unable to walk or to stand. The painting photo is blurry or something, so it's hard to see what's going on. She's referenced a stander (I think) that she had in early childhood, but she said she wasn't able to use that, either.

Onion update:

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She never walked, not even as a child. She's propped in a chair in that photo of her painting. She's always been unable to walk or to stand. The painting photo is blurry or something, so it's hard to see what's going on. She's referenced a stander (I think) that she had in early childhood, but she said she wasn't able to use that, either.

Onion update:

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Ohh I was confused bc of her phrasing about going to the library, thanks.
 
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It's constant content now that she can exploit Ari for views.

Stories:

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Videos from stories:





You can see Alex's mom's arm in the left background in this one, and you can hear her distinctive voice (low, croaky smoker's voice):

 
Those Library photos are really showing how much worse her body folding has become. Her shoulders are getting closer and closer to her knees.
I am fascinated and appalled by this. It looks so uncomfortable, and I can’t help but wonder what she would look like if she had kept herself as healthy as possible.
 
I am fascinated and appalled by this. It looks so uncomfortable, and I can’t help but wonder what she would look like if she had kept herself as healthy as possible.
A while back there was a woman on TikTok that I think had SMA as well. I think she was in Canada, had been adopted. Her mum and carers did exercises for her prescribed by a physiotherapist, massages to help the spasming muscles, her nails/hair/makeup was always done. She had actual hobbies, did disability modeling etc. while she had some contractures, they weren’t like this. Alcohol also causes a lot of extra bloating and inflammation so that’s not helping.
 
Might be a silly question but surely SMA sufferers still experience pain from all that folding? The position she's in looks uncomfortable at best.

Ari is a cutie pie still.
The main issue with all the folding is it limits an already limited lung capacity. Most people with SMA I've seen online do the best they can to not "fold" like she is to keep them healthy longer. She though does not seem to want to use the wheelchair restraints to keep her upright.
 
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