Yes. The modified sign language used for non-verbal delayed children/adults does not require fine motor skills. We teach it to children who probably are lower functioning then Paisley is.
Such a shame for her. Her weirdo parents don’t seem to do anything enriching with her/for her. They also randomly post things like “people say we just leave her laying down all the time but we do lots with her”. Mmm hmm, sure you do. In psychiatry we call this ‘reaction formation’. In others words, they who doth protest too much….
I would unironically be really happy if I saw Paisley was learning modified sign or had access to an eye-gaze machine like the one Luna has. Her existence is already painful, but she can't even communicate. Sure, she probably doesn't have any ground-breaking revelations to share. But she can't even say "hungry" or "take me back inside, I hate the goddamn snow" or "I hate this tacky bracelet."
They aren't even giving her a chance to try it. Maybe it wouldn't work but how would they know? I'm kind of MATI, mostly just SATI.
Wow. So HolLIE is now talking to other parents with brain dead children! This is just absurd! I sincerely hope that in future that Hollie and the rest of her “fan club” refuse any free nhs treatment. Given the fact they have called the nhs out daily and well because obviously HolLIE seems to know best!
I would unironically be really happy if I saw Paisley was learning modified sign or had access to an eye-gaze machine like the one Luna has. Her existence is already painful, but she can't even communicate. Sure, she probably doesn't have any ground-breaking revelations to share. But she can't even say "hungry" or "take me back inside, I hate the goddamn snow" or "I hate this tacky bracelet."
They aren't even giving her a chance to try it. Maybe it wouldn't work but how would they know? I'm kind of MATI, mostly just SATI.
Yeah, Paisley is pretty much guaranteed to be severely retarded, but there's no reason to attempt to see if she can at least communicate "yes" and "no". She's not a complete potato, she's very much aware of her surroundings. And she can't cry easily to communicate basic problems/needs like normal babies can. Not that her stupid parents seem to care, she was clearly trying her damndest to howl in agony when they dragged her out in the cold to see the snow and her awful mom got mad at all the people who correctly pointed that out on social media.
I believe the mother has a kid to another guy, and the father has a couple of kids to another woman. I think Paisley is the only kid of the both of them. The mother has written about it before, when people have questioned why she doesn’t post about her other kid - that her son’s father doesn’t like him being on social media or something. She also mentioned Paisley’s father has a couple of kids from a previous relationship.
The mother has written about it before, when people have questioned why she doesn’t post about her other kid - that her son’s father doesn’t like him being on social media or something.
The parents of a 12-year-old boy at the centre of a life-support treatment dispute are waiting for a High Court hearing next week after they won an appeal for their son's case to be reconsidered.
Mrs Justice Arbuthnot ruled on June 13 that doctors could lawfully stop providing treatment to Archie Battersbee, after considering evidence at a trial in the Family Division of the High Court in London.
However, she said there was a "compelling reason" why appeal judges should consider the case.
Edward Devereux QC, who is leading Archie's parents' legal team, argued evidence had not shown "beyond reasonable doubt" that Archie was dead.
He said the decision had been made on a balance of probabilities - and argued a decision of such "gravity" should have been made on a "beyond reasonable doubt" basis.
Mrs Justice Arbuthnot decided that appeal judges should consider that standard of proof issue.
Three appeal judges analysed the case at a Court of Appeal hearing in London on June 29.
Lawyers representing Archie's parents, Hollie Dance and Paul Battersbee, of Southend, had argued that Mrs Justice Arbuthnot made errors and said the case should be sent back to the High Court and reconsidered.
Sir Geoffrey Vos, the Master of the Rolls; Sir Andrew McFarlane, the president of the Family Division of the High Court and most senior family court judge in England and Wales; and Lady Justice King ruled another High Court hearing will take place focusing on Archie's best interests.
This hearing is set to take place on Monday (July 11).
Doctors treating Archie at the Royal London Hospital in Whitechapel, east London, told Mrs Justice Arbuthnot in the first hearing how they think Archie is "brain-stem dead".
They said treatment should end and Archie should be disconnected from a ventilator.
Archie's parents say his heart is still beating and want treatment to continue.
The 12-year-old suffered brain damage in an incident at home in April.
Ms Dance has told how she found her son unconscious on April 7 and thinks he might have been taking part in an online challenge.
He has not regained consciousness.
Their surname (Spudiene/Spudyte) is
Lithuanian. I wouldn't be surprised if Orinta's parents or grandparents immigrated to the UK in the early 1990s and the whole family have worked their asses off since. The the spelling of her mom's surname indicates that she's married (or possibly widowed), so I'm curious if her dad has weighed in at all.
I'm wondering if Orinta was using stimulants to stay awake and working. Really sad.
I was assuming that working long and late hours in a Soho restaurant that she was using stimulants. No judgment on her, drugs are part of restaurant culture.
Maybe she was one of those unfortunately "healthy" young people who don't realize they have a congenital heart issue.
I was assuming that working long and late hours in a Soho restaurant that she was using stimulants. No judgment on her, drugs are part of restaurant culture.
Rule of thumb in ER’s is anyone under 30 presenting with a sudden cardiac arrest = think cocaine first.
What’s the mum’s obsession with the CCTV? If she was working there’ll be witnesses? She hit her head as she fell.
She’s also saying she wasn’t breathing for 48 minutes, yet is going to recover…
Getting pissed off now also with all the “any mum would do the same” comments. No, they fucking wouldn’t keep flogging their child’s corpse. They listen to the medics, and let them go peacefully. I feel for all the parents who’ve made the right decision who must be reading this and doubting they did the best thing in an awful situation.
Pfizer actually discovered sildenafil (Viagra) while trying to develop a drug to treat angina, the pain caused by coronary artery disease. In addition to its widely known use, it is also FDA approved for the treatment of pulmonary arterial hypertension, high blood pressure in the arteries which carry deoxygenated blood from the right ventricle of the heart to the lungs.
Very premature infants have underdeveloped lungs and often require prolonged mechanical ventilation. Both prematurity itself and the chronic acquired pulmonary injury caused by invasive ventilation prevent the lungs and their blood vessels normally, causing a cascade of effects which ultimately result in too much pressure in the pulmonary arteries. Pulmonary hypertension is a major contributor to mortality and morbidity in premature babies, and I actually think at least a couple of the Tard Babies have had it. This is a great article if you're interested.
Anyway, guess what is used to treat PH in tiny premature babies? That's right, sildenafil! Imagine being the parent of a 500 gram newborn, who is in intensive care on a ventilator, and the neonatologist is like, "Yo, time to bust out the Viagra, amirite?!" I have a family member who worked in a NICU, and the first time she had to call the pharmacy about Viagra for a premature baby she froke out thinking the doctor just had zero clue what he was doing.
There's a lot of controversy, especially in recent weeks, about how the military spends more on Viagra than it does on birth control, blah blah blah. I don't have a problem with it; why shouldn't soldiers, especially those who are retired and/or disabled, be able to have sex? BTW, neither Medicare Part D(isaster) or Medicaid pays for Viagra, or any other sexual enhancement drug, when it's used for that purpose, and believe me, any pharmacist who can fog a mirror is going to know the difference, because the doses are drastically different.
Archie update today. Poor kid's a drooling, rotting veggie. The only slightly positive is that Hollie says "what will be will be" so she at least somewhat acknowledges that he will die when the courts take him off the machines.
Archie update today. Poor kid's a drooling, rotting veggie. The only slightly positive is that Hollie says "what will be will be" so she at least somewhat acknowledges that he will die when the courts take him off the machines.
It’s like groundhog day, this. She may as well copy and paste these statuses because they’re the same every day. How is this still going on? Even the mother of the young waitress decided to let the daughter go and switch the machines off. Delusional Dance needs a reality check
Archie update today. Poor kid's a drooling, rotting veggie. The only slightly positive is that Hollie says "what will be will be" so she at least somewhat acknowledges that he will die when the courts take him off the machines.
It’s like groundhog day, this. She may as well copy and paste these statuses because they’re the same every day. How is this still going on? Even the mother of the young waitress decided to let the daughter go and switch the machines off. Delusional Dance needs a reality check
Archie update today. Poor kid's a drooling, rotting veggie. The only slightly positive is that Hollie says "what will be will be" so she at least somewhat acknowledges that he will die when the courts take him off the machines.
I don't think she said "what will be will be" bc she believes he should be allowed to die naturally. She believes his braindead corpse uncontrollably drooling is bc they brought chocolate cake and he smelled it.
Archie update today. Poor kid's a drooling, rotting veggie. The only slightly positive is that Hollie says "what will be will be" so she at least somewhat acknowledges that he will die when the courts take him off the machines.
Not just go fund me there are 2 go fund mes 2 giving cos and another. She has already said shes using hte money regardless. She wants to "change the laws"
This thread is getting a real “Flowers for Algernon” vibe to it today.
alzheimer's Is more prevalent in people with Down’s due to a few extra shitty mutations in their DNA. It’s all early onset and they can develop the disease in their early 40s. Activists with Down’s are at the forefront of Alzheimer’s awareness, so they are all doing good work.
That said, drugs aren’t developed solely in mice, even Down’s mice, and there would be several clinical trials before a medicine hit the shelves.
Happily, it looks like there has been a recent, and accidental breakthrough. With Viagra.
I've mentioned this before, but Downies are perfect for very early Alzheimer’s research, like before they even develop symptoms, because they're guaranteed to get it and are a larger population than familial forms of Alzheimer’s. This is perfect for treatments because once symptoms show up, it's likely too late for any medicine we could develop to do anything.
However, the known mechanism for Alzheimer’s in Downies cannot account for all cases. Alzheimer’s is polygenic, meaning many genes can lead to many routes of dysfunction that inevitably lead to the same kind of dementia.
(Think like Parkinsons dementia and Lewy Body dementia. Both have the Lewy bodies, but the initial cause is probably different since the initial symptoms aren't shared).
I thought thanatophoric dysplasia was a form of dwarfism unrelated to achondroplasia that can occur randomly, rather than “double dwarfism” as you’re saying? I mean, both of her parents are average height for starters, and if many forms of dwarfism are autosomal dominant, you surely need two dwarf parents to make a double dwarfism baby.
As an example, there’s an Australian couple who are Instagram famous and have three kids. The mother has Achondroplasia, the father has geleophysic dysplasia. One kid has mom’s type, one kid has dad’s type, and one kid will be average height. They explained there’s a 25% chance of each, the final 25% being a baby inheriting both types.
They were really lucky not to do that, because they were very upfront that they would terminate if tests at 20 weeks showed that. Risky odds.
Yeah, as someone stated, homozygous achron isn't the same as thanato because the mutation isn't the exact same. It does, however, present similarly. It's worth calling them different things because one is survivable and inherited, whereas the other is sporadic and deadly, but they're also sorta the same thing being in the same gene and all.
