So many things to WTF about here with Jessi, but I'll stick to the most obvious.
1. Have they tried the veins in her feet, neck or even scalp?
2. Is she claiming to lose her hair from the "chemo microdosing" or am I mixing up my munchies?
3. If she'd had a 25 minute seizure, she'd have been in status epilepticus which is a major medical emergency and highly doubtful she'd be posting about it the same day. I call psychogenic seizure, totally.
and
@Kate Farms Shill - is Skinwalker saying she was misdiagnosed with EDS or just rewriting history like her idol?
also now I'm madattheinternet at Jaq claiming to have been too fragile for MALS surgery then getting that massive overkill of a procedure to place her tube. I guess years of Kate Farms nutrition really did wonders for her
She doesn't entirely say she was misdiagnosed with EDS, but it's not the cause of the bulk of her problems because hEDS cannot account for all of her alleged problems. So essentially shortly after she locked down her public account in early 2018 she got the gastric pacer that was supposed to get her off of tube feeds and TPN. The site got badly infected and almost killed her. That info comes from a redditor who managed to fly under the radar and stay on her social media when she locked down (confirmed she had gone from tube feed to pacer and was improving) and from her own facebook posts (saying she had sepsis from an infection at her pacer site and it had to be removed).
Edit; lol sorry I completely forgot to finish this before posting, I
might be a little intoxicated rn.
Anyway, she had the pacer out and the TPN restarted and touted it as the last solution to keep her alive, something she truly didn't want to do but which would save her. But then she needed a reason why despite this life-saving miracle cure she
continued to decline rapidly. So she had a GBS diagnosis apparently dating back to 2017 (unverified as to whether she was dx'd for real or exactly when, but that's the best I can work out from my obsessive stalking) and that became her excuse for why she was losing weight, her levels were never stable, and she was always having some malnutrition issue or other. And then she started shaking and losing her memory and parkinsons showed up. EDS is still in the background. It's just no longer the thing driving all of her problems.
Interesting other information:
1) her pacer infection followed a very similar complication that befell fellow GP warrior and pathological liar, Raven Walton from
Big Brother. Raven documented her prolonged battle with an infected pacer site in gory, Kelly-like detail. I'm not saying she didn't induce it, but she certainly wasn't faking how bad it got. I have no receipts of what SW posted about her own pacer infection other than that it happened and that is why she had to stop eating again after a period of miraculous relief of her symptoms.
2) If she got a real GBS diagnosis, it occurred while being treated with IVIG which other kiwis have pointed out can give false positives for autoimmune diseases or even induce them.
3) her decline while on TPN can very easily be explained by her well-documented purging. She competes in marathons (albeit on a handcycle) to negate the TPN calories and physically purges any actual food or drink she consumes, the latter confirmed by leaks who provided absolutely undeniable proof that this was the case.
This is the perfect way to explain the off-ness of her vids.
Damn it you stole my comment!
I remember a few examples of AJ's faux pas when we were still at lolcow. She was outed in vlogs she had no control over, like JJ's videos. I am pretty sure there was one where Jan was filming and Jaquie said 'Damn it!" That was OMG sakrilijuss because her channel was so "family friendly" and AJ was such a Godly Girl. Ooh so controversy. Much sin. Another time, after AJ got her AFO's, we saw her walking around fine, unassisted and normal gait in the periphery of a JJ shoot. I could be matrixing this one though. There was another of their "Duble Vlogging" when they were in bed together and Jan said something that made AJ look bad and AJ responded with a rapid-fire denial. Her discomfort and upset were palpable and I am so happy for those glorious contradictions.
ETA: OH! I remember! She did a handstand to try and fix her clogged port! Jan mentioned it and AJ was like,"No I didn't!" all pissed off.
Hallelujah, for once I'm caught up in this thread. Off to see how much leg rot Our Lady of Mortification has induced this time around.
After posting about this I started doing some housekeeping in my timeline of jaquie's claims from the start of her social media to her death and it's absolutely mind blowing how many times she said "I can't x because y" and then did something that was way worse, how many times she lied about tiny little stupid inconsequential things that could be easily proven false. How many times she twisted the words of a doctor to make what was probably a thinly veiled callout of her faking into a declaration of how rare and special and complex of a case she was. How her problems would fuck off whenever they weren't convenient and reappear when they were, so she always had a medical reason something happened even if it was totally mundane. How extremely transparent she was when she found a new diagnosis she wanted and needed info on how to get it. All of that I knew but seeing it laid out just makes it more ...digestible.
What actually shocked me is it really was just a few doctors that green lit
everything that happened to her with no hesitation, and even tried to pressure her into even more dangerous (and expensive) treatment options than even she was not willing to do. The only conclusion that can be drawn is that these few doctors saw her as a walking paycheck and gave absolutely zero fucks if they killed her. While she was certainly manipulative and did doctor shop extensively in her early "career" once she found these few physicians she wasn't really the one writing the script anymore. She'd go in for a check up and walk out with a new diagnosis requiring 30 new drugs and a surgery.
I'm not saying she didn't love it. It was truly a symbiotic relationship: they found a patient willing to go for nearly anything they said regardless of cost or risks, and she found physicians who would always have a new plot twist to keep her youtube fresh.